The MSing Link

Latest Episodes:

85. Patients Getting Paid w/ Kathy Raegan Young Aug 31, 2022

Show notes

Kathy Reagan Young is the founder of the FUMSnow.com site – whose mission is to provide information, inspiration, and motivation to help people with Multiple Sclerosis live their best lives. Diagnosed in 2008, Kathy found nothing uplifting about MS on the internet – only depressing, medically-dense sites. So – she built the site herself to show people that there was indeed life after diagnosis – and it could be a really good one!

Over the course of 10+ years, she added a podcast, merchandise, and an ebook in an effort to monetize the site when she had to leave her full time employment due to her MS. Once she added patient advocacy gigs to her portfolio, her online income surpassed her previous full time employment income. Upon that achievement, she knew she had to share her experience and resources – which is why she started the Patients Getting Paid membership community – to help people with chronic illness learn how to find and create flexible, remote work opportunities to better accommodate their health while generating an income. She added a podcast for PGP as well - all of which can be found at www.PatientsGettingPaid.com

Find Kathy's Podcasts on Social Media:

** Patients Getting Paid: Apple Podcast: https://podcasts.apple.com/us/podcast/patients-getting-paid/id1581141026

Google Podcast: https://open.spotify.com/show/325dx2GYuaipvbi8y3YTGz?si=XffG1ADOTcGYwtm5aK9C5w&utm_source=copy-link

Instagram: https://www.instagram.com/patientsgettingpaid/

** FUMS: Apple Podcast: https://podcasts.apple.com/us/podcast/fums-giving-multiple-sclerosis-the-finger/id982388479

Google Podcast: https://open.spotify.com/show/1CRt6lX5imnKsnB02TgwXW?si=kNAfCHyJQ7ilIstfEuszyw&utm_source=copy-link

Instagram: https://www.instagram.com/fums.now/

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

84. Progress Through Resilience w/ Amy M. Aug 29, 2022

Show notes

Today, I am joined by The MSing Link member, Amy! Her story is one that I feel many listeners can relate to filled with ups, downs, and many different approaches to managing her MS. Amy's resilience, and determination to continue to make progress has truly allowed her to find success even through challenging seasons of life. I know that you will find Amy's story inspiring, and it will uplift you to continue to keep going with your own journey.

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

83. Walk Confident with byAcre Aug 24, 2022

Show notes

Join me today as I sit down with the founder and CEO of byACRE! We chat about the details of the design process, and all the considerations taken into account when creating their ergonomic rollators, and so much MORE!

Anders Berggreen is the founder and CEO of byACRE; A Danish company who designs and produces stylish, functional rollators. He founded the company in 2017 with a mission to break down the stigma related to reduced mobility and to help those it serves maintain an active lifestyle without compromise.

Facebook: @byacre

Instagram: @byacre

Website: https://www.byacre.com/, CODE - DOCTORGRETCHEN10 for 10% off

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

82. Top Advocacy Tips from Dr. Barry Singer (Plus Advice on Sexual Dysfunction) Aug 17, 2022

Show notes

On today’s episode, I’m interviewing Dr. Barry Singer - He is an MS Neurologist as well as director and founder of the MS Center for Innovations in Care at Missouri Baptist Medical Center.

He’s very well known as being a top neurologist that stays up to date on research & newest medications and therapies. He has been an investigator in greater than 35 multiple sclerosis trials focused on new therapeutic options including remyelination.

On today’s episode, we talk about advocacy and what to do if you feel like your neurologist (or anyone on your healthcare team isn’t listening to you or acting in your best interest) as well as access to care and sexual dysfunction, symptom management for fatigue, pain, and bladder. This episode is chock full of his best recommendations for therapies and medications. You’ll want to take notes or come back to this episode for future reference.

Find Dr. Singer:

Website - www.mslivingwell.org

Twitter - @drbarrysinger

MS Living Well Podcast - *Apple Podcast https://apple.co/3N4DDWU *Spotify https://spoti.fi/3tpkxTx

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

81. What is Spasticity & How to Reduce It Aug 15, 2022

Show notes

Before sitting down to record this episode, I asked The MSing Link members as well as those in my public MS support Facebook page what topic they would like to hear more about. And there was a resounding response to know more about spasticity! So, join me today as I share with you what it is exactly, different techniques you can do at home to reduce it, and different ways your neurologist may approach treatment.

Learn more about The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

80. Stay Cool with Thermapparel Aug 10, 2022

Show notes

I’m joined by Kurtis Kracke, the co-founder and CEO of Thermapparel. They’re a cooling company that’s been helping keep people with MS cool for 5 years. Today, we chat about what sets Thermapparel apart from other cooling brands, the technology behind the cooling packs, sizing, all the considerations taken when creating this vest, and more! If you have heat intolerance, or even just feel like summer weather is too hot for you, you'll want to hear what Kurtis has to say!

Find Thermapparel:

Website - https://www.thermapparel.com

Facebook - https://www.facebook.com/ThermApparel/

Twitter - @Thermapparel

Instagram - https://www.instagram.com/thermapparel/

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

79. Resilience & Grief in MS Aug 03, 2022

Show notes

A lot of things come alongside a diagnosis of MS, but typically the emotion of grief and the trait of resilience are not the things in the forefront of your mind. But, they are two very important topics. Today, I chat with Dr. Rosalind Kalb about how to acknowledge and maintain resilience in the face of MS. And also about how it is important to allow yourself the feeling of grief in certain circumstances. She also gives some great tips on how to keep moving forward through difficult times!

Rosalind Kalb is a clinical psychologist who has worked in the MS field for 40 years – first at one of the earliest MS comprehensive care centers and then for 16 years at the National MS Society. Dr. Kalb is now a Senior Programs Consultant for Can Do Multiple Sclerosis with a special focus on cognitive and emotional wellness for people with MS and the unique needs of MS support partners. She has published books and articles about MS, with the two most recent papers being Recommendations for Cognitive Screening and Management in MS Care and Exercise & Lifestyle Physical Activity Recommendations for People with MS Throughout the Disease Course.

Resources:

MS Navigator: https://www.nationalmssociety.org/Resources-Support/Find-Support/Ask-an-MS-Navigator
Can Do Multiple Sclerosis: https://www.cando-ms.org/
The MSing Link app (Android): https://play.google.com/store/apps/details?id=com.x25e14b93419.app&hl=en_US&gl=US
The MSing Link app (iPhone): https://apps.apple.com/us/app/the-msing-link/id1606973076

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

78. A Bad Habit That Might Be Stunting Your Progress Aug 01, 2022

Show notes

Bad habits are something that we all can acquire in areas of our lives, and most of the time we are aware of their existence. But, this particular bad habit I'm going to chat with you about today, may be one that you don't even realize you have! However, no need to worry! Tune in to hear what this habit is, and my best 3 tips to help you kick that habit to the curb!

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

77. Q&A: Cold intolerance, MS-Specific Physical Therapy, New DMT/therapies Jul 27, 2022

Show notes

I am a firm believer that if one MS'er has a question, chances are high that a lot of other MS'ers have the same question, but haven't had the opportunity to ask. Today, I am joined by The MSing Link member, Charissa for a Q&A session! We chat about cold intolerance, MS-specific therapy vs. orthopedic PT, and more!

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

76. New MS Therapy: PoNS w/ Ardra Shephard Jul 20, 2022

Show notes

On today’s show, I’m interviewing Ardra Shephard! Ardra is the blogger behind the award winning Tripping On Air and the host of AMI-tv's Fashion Dis. Arda had the opportunity to participate in the PoNS clinical trial in Canada. PoNS = Portable Neuromodulation Stimulator. On today’s episode, she shares what the trial was like, what benefits she’s observed (and continued to see) & also a downside to the PoNS.

Follow Ardra On:

Instagram: https://www.instagram.com/ms_trippingonair/

Website:https://trippingonair.com/

TV Show:https://www.ami.ca/FashionDis/episodes

Tripping On Air, the podcast, debuts July 14th, 2022.

Clinical Trial Website: https://clinicaltrials.gov

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen