The MSing Link

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Alternative Health
**The MSing Link**

Do you have Multiple Sclerosis and have goals of improving your mobility, energy, and motivation? On this show, you’ll learn MS-specific exercises and symptom management strategies to help you gain control over your life with MS. I also bring in other MS Experts in the healthcare industry to share their insights and advice so you’ll be armed with research-driven education. You’ll leave each episode feeling empowered and ready to take action!

Latest Episodes:

55. Destigmatize MS With Author Julie Stamm Apr 13, 2022

Show notes

Julie A. Stamm was diagnosed with Multiple Sclerosis (MS) in 2007. Following her diagnosis, Julie

made it her mission to educate, advocate, and support others battling the disease. She works

tirelessly to help lessen the burden each patient has to bear. Her efforts have given her the

opportunity to work with physicians, patients, and foundations across the Globe.

After the birth of her son in 2016, Julie shifted her focus to supporting the children of parents with a

chronic illness. Her children’s book entitled “Some Days” was created to normalize differing

abilities and amplify how each of us can thrive in spite of the challenges. The movement she has

created has changed the apologetic tone and transformed the child and parent’s experiences into

uplifting stories that highlight the patient’s resilience.

In today’s episode, we talk about her book as well as the importance of de-stigmatizing chronic illness from a young age.

Purchase Some Days: https://theexperimentpublishing.com/catalogs/fall-2021/some-days/
*You can also find this book in your local library (or request it if it’s not there)

Find Julie -

IG: @iamstamm

Email: info@somedayswe.com

Coloring Page -

https://www.chamisakellogg.com/illustration#/books/

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

54. [PEP TALK]: Our Thoughts Determine Our Actions Apr 11, 2022

Show notes

Do you pay attention to the self talk you allow in your mind each day? How many of those words are negative? If you have found yourself speaking negatively more often than positively this pep talk is for you! You deserve kind words to be spoken to you, from others, but especially from yourself. Tune in to hear the steps that can be taken to help guide us all back to a positive place!

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

53. Navigating Workplace Accommodations & Unemployment w/ Dr. Philip Rumrill Apr 06, 2022

Show notes

My guest today is employment and disability expert Dr. Phillip Rumrill, and we're going to talk about aspects of job accommodations, & unemployment directly related to Multiple Sclerosis.

Dr. Rumrill is a nationally certified rehabilitation counselor & the director of research and training at the University of Kentucky human development institute. For many years, He served as the director for Multiple Sclerosis Employment Assistance Service, which provided vocational services & support to people living with MS across the US. Dr. Rumrill has authored and co-authored more than 150 professional journal articles, 40 book chapters, and 6 books.

★Resources mentioned during episode:

→ “Enhancing Productivity on Your Job: The Win-Win Approach to Reasonable Accommodations" - www.nmss.org

→ Rehabilitation Services Administration - Find the specific link for each state's vocational rehabilitation program & more - https://www2.ed.gov/about/offices/list/osers/rsa/index.html

→ The Job Accommodation Network or "JAN" through West Virginia university -https://socialwork.wvu.edu/research/the-jan-research-project

→ The US Equal Employment Opportunity Commission - www.eeoc.gov

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

52. Spasticity, MS Progression, & Walking on Uneven Surfaces: Your MS Questions Answered Mar 30, 2022

Show notes

This week Dr. Gretchen sits down with MSing Link member Jeanette! Jeanette has seen great improvements by being a part of the program, but also had some very relatable questions when it came to things such as spasticity, MS progression, and walking on uneven surfaces. Tune in to hear Dr. Gretchen answer Jeanette's questions and provide strategies on how to not only conquer situations such as uneven surfaces, but also how to see improvements!

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

51. High Intensity Interval Training (HIIT) & MS Mar 28, 2022

Show notes

Have you ever wondered about High Intensity Interval Training, aka HIIT? Tune in as Dr. Gretchen shares how HIIT is an exercise style that can be good for anyone who has MS, some guidelines on how to incorporate HIIT into your routine, and even some examples exercises that can be used!

Behind the Scenes to The MSing Link: https://www.doctorgretchenhawley.com/BehindTheScenes

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

50. Top 5 Symptom Management Tips w/ Dr. Marwa Kaisey Mar 23, 2022

Show notes

This episode we are so excited to welcome back Dr. Marwa Kaisey! She will be doing a speed round of symptom management with us today! Tune in for all the knowledge.

Dr. Marwa Kaisey is an Assistant Professor in the Department of Neurology at Cedars-Sinai Medical Center. Her clinical practice focuses on care of people with Multiple Sclerosis and other neuroimmune conditions. She is also actively involved with trainees of all levels: Dr. Kaisey serves as the neurology site clerkship director for students from the UCLA School of Medicine, teaches the Cedars-Sinai neurology residents in both inpatient and outpatient settings, and assists with the MS fellowship. She has won multiple teaching awards including the A.B. Baker Teacher Recognition Award from the American Academy of Neurology.

Dr. Kaisey completed the UCLA neuroscience undergraduate major and served as the school’s first Muslim student body president. She went on to the Coro Public Affairs Fellowship, a leadership and public policy program focused on the city of Los Angeles, before she attended the University of Michigan Medical School. Dr. Kaisey is a board-certified neurologist; she completed neurology residency at UCLA and served as chief resident. She helped design and then was the first fellow to complete the Cedars-Sinai MS fellowship. Dr. Kaisey is active in research and has several publications on the diagnosis and misdiagnosis of Multiple Sclerosis. She works on developing novel tools to more quickly and accurately diagnose MS.

You can find her on Instagram @theMSmd and now also on YouTube.

Find Dr. Marwa Kaisey: Instagram: https://www.instagram.com/themsmd/?hl=en

YouTube: https://www.youtube.com/c/DrMarwaKaisey

Be the first to find out about Dr. Kaisey's new course: https://forms.gle/mAgqjxD8mAA4oawZ7

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/DoctorGretchenHawley/feature

49. NeoWalk Walking Stick Changes The Game Mar 16, 2022

Show notes

Finding yourself in need of a walking stick doesn't mean you need to get something that looks as though it's straight from the hospital! Tune in this week as Dr. Gretchen sits down with Lyndsay Watterson, the founder of Neo Walk, to discuss not only what led Lyndsay to create beautiful, unique walking sticks, but also a bit of the creative process and vision for her company.

Lyndsay Watterson became an amputee 12 years ago, and since then has challenged herself to reimagine her life. She launched company, Neo Walk, 9 years ago and began her journey to bring style, beauty and amazing design to the mobility aid world.

Lyndsay and the Team now make and send beautiful acrylic walking sticks all over the world. With customers in over 20 countries, the word is spreading about our gorgeous handmade walking sticks. We now have a wonderful supportive community on Instagram.

Lyndsay’s mission at Neo Walk is to see disability normalized and for designers to embrace our needs in mainstream products. We want to see our community represented in the media, tv and film industry. Lyndsay is passionate about inclusion and wants to use her success to shout it from the rooftops. Neo Walk will continue to innovate and create beautiful walking sticks, giving people everywhere confidence and style.

Lyndsay lives in York, England with her husband. She’s a self confessed mad dog lady with 4 of her own, and enjoys nothing more than being out, people watching with a cup of coffee. She is constantly dreaming up new ideas for her walking sticks.

NeoWalk Instagram: @neowalksticks

NeoWalk website: https://www.neo-walk.com/

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

48. Exciting MS Awareness Month Collaborations Mar 14, 2022

Show notes

With March being MS Awareness month that brings with it a multitude of opportunities to collaborate with other amazing organizations and programs! This year is no exception. I am so excited to be able to take part in bringing awareness, education and exercises to people in the community. And even more excited to be able to see some smiling faces in person here and there! Tune in to check out what is in store for myself and The MSing Link this month!

★Remyelination Podcast Episode for Apple Podcast OR on Spotify

★Channel 2 News segment

★Channel 4 News segment

★Yoga Moves MS Adaptive Yoga & Physical Therapy Class

★MS Views & News - March 14th from 7 - 8pm EST

★YWCA Exercise Class

★MS-UK Remyelination Presentation - March 14th from 10 - 11am EST

★Overcoming MS Zoom Exercise Classes - March 16th & 30th from 6 - 6:30pm GST

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

47. Pelvic Floor Physical Therapy w/ Dr. Carina Siracusa Mar 09, 2022

Show notes

Talking about anything that is going on "below the belt" isn't typically a conversation that is comfortable to discuss. However, Dr. Carina Siracusa has a way of creating a safe space to talk about what can be happening, and how it can be treated!

Dr Carina Siracusa is a physical therapist who is board-certified in both pelvic health physical therapy and oncology physical therapy. She has practiced in these areas for over 15 years. She currently works as a pelvic floor physical therapist for Ohiohealth in Columbus Ohio. She teaches for the Academy of pelvic health of the American physical therapy Association. She has been a speaker at numerous national and international conferences on the topics of neurologic, oncologic and pediatric pelvic floor physical therapy.

Where to find a pelvic floor PT: https://aptapelvichealth.org/ptlocator/

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram

→ The MSing Link: https://www.doctorgretchenhawley.com/TheMSingLink

46. Progress is Possible w/ Ann Pinchak Mar 02, 2022

Show notes

This week Dr. Gretchen sits down to have a chat with Ann Pinchak. Ann has not only regained confidence in her walking, and ability to tackle her goals such as walking her youngest son down the aisle, she has also found renewed hope through functional exercise!

Since Ann's diagnosis she has also immersed herself in nutrition, and its many health related benefits by completing a nutritional therapy program, then by becoming Wahls Certified, and then completed a functional medicine health coaching class affiliated with the Institute of Functional Medicine!

Find Ann on Instagram - @annpinchak

On Facebook - Ann Pinchak

And soon to come - www.annpinchak.com

Additional Resources: https://www.doctorgretchenhawley.com/insider

Reach out to Me: hello@doctorgretchenhawley.com

Website: www.MSingLink.com

Social:

★ Facebook: https://www.facebook.com/groups/mswellness

★ Instagram: https://www.instagram.com/doctor.gretchen

★ YouTube: https://www.youtube.com/c/doctorgretchenhawley?sub_confirmation=1

→ Game Changers Course: https://www.doctorgretchenhawley.com/GameChangersCourse

→ Total Core Program: https://www.doctorgretchenhawley.com/TotalCoreProgram