Seizing Life

Latest Episodes:

Epilepsy in Women: Challenges, Concerns, and Considerations Nov 15, 2023

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This week on Seizing Life® we speak with Dr. Elizabeth Gerard about impacts, challenges, and concerns specific to women living with epilepsy. From puberty to menstruation, contraception, pregnancy, and menopause, Dr. Gerard provides information and insights on managing epilepsy as a woman through all stages of life.

NYC Marathoner Achieves Seizure Control and Runs for Epilepsy Research Nov 01, 2023

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This week on Seizing Life® we speak with Peter Burpee who experienced absence epilepsy in childhood and tonic clonic seizures in his teen years, but has gained seizure control and will be running in the upcoming NYC Marathon to raise money for epilepsy research.

Searching for Answers, Providing Support, and Understanding Grief After the Death of a Child Oct 18, 2023

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This week on Seizing Life® in observance of SUDEP Action Day on October 18th, we speak with Dr. Richard Goldstein, Associate Professor of Pediatrics at Harvard Medical School, about the program he directs conducting research into both Sudden Unexpected Death in Pediatrics (SUDP) and the grieving process of bereaved parents.

Infantile Spasms Diagnosis and Treatment Journey Inspires Children’s Book Oct 04, 2023

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This week on Seizing Life® Kate Kostolansky shares her daughter Charlotte’s infantile spasms diagnosis and treatment journey, and explains how these experiences inspired a children’s book designed to help newly-diagnosed families and those around them better understand infantile spasms.

An Extraordinary Life of Autism, Epilepsy, and Advocacy Sep 20, 2023

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This week on Seizing Life® we speak with Barbara D’Amora about the life of her son Nicholas, who lived with autism and epilepsy and became an active and inspirational advocate for the autistic community despite being nonverbal. Barbara recalls the early days of Nick’s life and how a program “unlocked” Nick, allowing him to communicate with the world around him and igniting a passion for advocacy that Nick pursued until his passing from a seizure earlier this year.

A Young Woman’s Journey with Jeavons Syndrome Sep 06, 2023

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This week on Seizing Life®, recent college graduate and CURE Epilepsy summer intern Kiley Flowers joins us to talk about Jeavons syndrome and share her personal journey with this rare form of generalized epilepsy.

Pursuing Effective Epilepsy Treatment and Running for Research Aug 23, 2023

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This week on Seizing Life® Clare Phelps shares the difficult diagnosis and frustrating treatment journey of her young daughter Sophie, whose epilepsy has so far been treatment resistant.

From Hiding Diagnosis to Advocating for Awareness: A Young Woman’s Epilepsy Journey Aug 09, 2023

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This week on Seizing Life® Mariah Mayhugh discusses her epilepsy journey, from hiding childhood absence seizures to becoming an active and creative advocate for epilepsy awareness, education, and representation.

A Teen Uncovers the Emotional Impacts of Childhood Seizures Jul 26, 2023

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This week on Seizing Life®, we speak with Hailey Yoon about the emotional and psychological impacts that childhood epilepsy may have even years after seizures subside.

Comprehensive Epilepsy Centers: An Insider’s Guide Jul 12, 2023

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This week on Seizing Life® Dr. Dave Clarke gives us a thorough overview of the specialists and services available at comprehensive epilepsy centers and offers advice about when and how to access these centers.

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