Seizing Life

Latest Episodes:

Love, Marriage, and Epilepsy Jun 28, 2023

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This week on Seizing Life® we speak with epilepsy advocates and married couple Tiffany and Chris Kairos about the impact that epilepsy has had on their marriage.

The Caregiver Journey: A Father’s Story Jun 14, 2023

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This week on Seizing Life®, father and therapist Bud Hager discusses being the caregiver to a young daughter with a rare and complex medical condition. Bud discusses the daily responsibilities and the overarching emotional journey of parenting a child with a rare disease, and how it has transformed his life in both tangible and philosophical ways.

Epilepsy Researcher Compounds Lab Work with Fundraising May 31, 2023

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This week on Seizing Life® Dr. Patrice Jackson-Ayotunde, an organic chemist and Associate Professor of Pharmaceutical Sciences at the University of Maryland Eastern Shore (UMES), discusses her 20+ years of epilepsy drug research and her decade-long epilepsy fundraising efforts.

A Daughter’s Diagnosis Inspires Concerts for Epilepsy May 17, 2023

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This week on Seizing Life® we speak with Matt Perrone about his epilepsy onset and treatment journey, the impacts of seizures and medication on his mental health, and how his daughter’s diagnosis at the age of four spurred him to create EpiPalooza, a multi-band concert aimed at raising awareness and funds for epilepsy research.

The Crucial Role of Nurses in Epilepsy Care May 03, 2023

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This week on Seizing Life® we welcome Lucretia Long to the podcast to discuss the present and future of epilepsy care and treatment. Lucretia is an Advanced Practice Registered Nurse (APRN) and a Certified Nurse Practitioner (CNP) at The Ohio State University Wexner Medical Center who has been working with epilepsy patients for over 30 years. She shares her vast experience and perspective on a range of areas within epilepsy care, treatment, and patient information.

Teen Tennis Player Remains on Court Despite Seizures and Stigma May 03, 2023

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This week on Seizing Life® we speak with Reid Rainwater and his father Ryan about the sudden onset of epilepsy that Reid experienced as a freshman in high school, his journey to controlling tonic-clonic seizures, and how epilepsy and stigma have impacted his education and tennis career as one of the top young players in Oklahoma.

From LGS to Surgery to Just Being a Kid: A Mother Shares Her Son’s Epilepsy Journey Apr 19, 2023

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This week on Seizing Life® mother and epilepsy advocate Collen Jendreas joins us to share her young son Owen’s epilepsy journey from initial onset to a diagnosis of Lenox Gastaut Syndrome (LGS), and discuss how two particular interventions have made a significant impact on Owen’s quality of life.

From Desperation to Hope: The Founding and Future of CURE Epilepsy Mar 22, 2023

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This week on Seizing Life Susan Axelrod, CURE Epilepsy founder, and Barbara Kelly, the founding Research Chair, discuss the past, present, and future of the organization and epilepsy research.

Sharing Epilepsy Diagnosis After Decades Leads to Climbing for Research Mar 08, 2023

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This week on Seizing Life® Carmen Zannier shares her 35 year epilepsy journey, discusses her recent decision to go public with her diagnosis, and explains how her passion for mountain climbing has led her to raising funds for epilepsy research.

Epilepsy Can’t Stop Young Girl’s Competitive Spirit Feb 22, 2023

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This week on Seizing Life®, Christy and Lawrence Tsane share daughter Christiane’s epilepsy diagnosis and explain how they manage her seizures while nurturing her love of competitive running.

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