Seizing Life

Latest Episodes:

The NORSE Institute: A Mother’s Loss Drives Awareness and Research into a Devastating Form of Epilepsy Jul 03, 2024

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After losing her son to a rare form of epilepsy called NORSE, or New Onset Refractory Status Epilepticus, Nora Wong set out to get answers from doctors and researchers. When she found little information and more questions, she founded the NORSE Institute to raise awareness and fund research into this sudden and devastating form of epilepsy.

The Sudden and Life-Altering Impact of Adult-Onset Epilepsy Jun 05, 2024

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This month on Seizing Life® Jon Tuteur shares his journey with adult-onset epilepsy. From his first seizure at age thirty, through his epilepsy diagnosis, treatment, and eventual brain surgery, Jon discuses the physical and emotional impacts of seizures, medications, diagnostic tests, and medical procedures in pursuit of controlling his epilepsy. He also tells us about his forthcoming book Seizing Today: Discovering Purpose and Authenticity in a Life Changing Diagnosis

Older Adults and Epilepsy: the Causes, the Signs, and the Treatments May 01, 2024

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Dr. Laura O’Dwyer joins us to talk about the fastest growing segment of people living with epilepsy in the United States – older adults. Dr. O’Dwyer explains why adults are more likely to develop epilepsy later in life, outlines the challenges of recognizing, diagnosing, and treating epilepsy in older adults, and provides valuable information for older adults living with epilepsy and their caregivers.

One Woman’s Epilepsy Journey Through Childhood, Parenting, Discrimination, and Surgery Apr 03, 2024

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This month on Seizing Life® author Laura Beretsky shares her decades-long journey with epilepsy, from diagnosis at age 6, through college, parenting, fighting discrimination in the workplace, and ultimately seizing control of her epilepsy via life-changing surgery.

A Nurse’s Knowledge & A Mother’s Love Leads to Son’s Life-Changing Brain Surgery Mar 06, 2024

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This month on Seizing Life® a nurse and mother shares her young son’s journey from the onset of focal seizures to a devastating diagnosis of Rasmussen’s Encephalitis to a life-changing brain surgery.

Artificial Intelligence and Epilepsy: The Promise & Pitfalls of AI in Diagnosing Epilepsy and Treatment Feb 07, 2024

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This month on Seizing Life® we explore artificial intelligence as it relates to epilepsy care, how it’s impacting the process of diagnosing epilepsy and treatment today, and what it promises for the future.

The Best of Seizing Life 2023 Jan 03, 2024

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This week on Seizing Life®, we revisit several compelling conversations from the past year in our Best of Seizing Life 2023 compilation episode.

Regenerative Brain Cell Therapy: One Woman’s Journey to Seizure Freedom Dec 13, 2023

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This week on Seizing Life® Annette Adkins, who has lived with intractable epilepsy since 2014, discusses the impacts of epilepsy on her professional and personal life, and how it led her to participate in a clinical trial for a new procedure that has brought her seizure freedom.

Rare Epilepsy Organizations: Fostering Community and Advancing Research Dec 01, 2023

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This week on Seizing Life® we speak with two rare epilepsy organizations, The KCNT1 Epilepsy Foundation and The Cute Syndrome Foundation, in an episode recorded at Epilepsy Awareness Day at Disneyland this past November.

Infantile Spasms: The Facts, The Research, and The Hope for the Future Nov 23, 2023

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This week on Seizing Life®, in recognition of Infantile Spasms Awareness Week (December 1st – 7th), we speak with epilepsy researcher Dr. Chris Dulla about infantile spasms – what we know, what recent research has revealed, and how current research may lead to better detection and treatments.

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