Seizing Life

Latest Episodes:

Using Basketball to Fight Stigma and Empower Kids Living with Epilepsy May 07, 2025

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Mike Simmel shares his epilepsy journey, explains how his passion for basketball helped him navigate the impacts of epilepsy, and recounts how a personal experience with epilepsy stigma inspired him to help kids with epilepsy and other challenges.

Music Therapy for Neurologic Conditions: Understanding How It Works Apr 02, 2025

Show notes

Dr. Connie Tomaino, music therapist and co-founder of the Institute for Music and Neurologic Function, discusses how music therapy is used to treat neurologic conditions and explains what we know about the power of music to heal the brain.

Despite Medical Training, A Young Doctor’s Epilepsy Goes Undiagnosed for a Decade Mar 05, 2025

Show notes

This month on Seizing Life® Dr. Kelly Tyson shares her decade-long journey to an epilepsy diagnosis. Despite numerous visits to various medical experts through the years and majoring in neuroscience in college, Kelly was never referred to a neurologist, nor did she recognize the “episodes” she experienced as seizures. Kelly details how she managed these episodes through college, graduate school, and medical school, and reveals the surprising way that she came to realize she was having seizures.

Joey’s Song Musicians: Rocking for Epilepsy Research is Personal Feb 05, 2025

Show notes

This month Seizing Life® goes on location at the Joey’s Song Freezing Man Festival to speak with Kay Hanley and John Cowsill, two musicians with personal connections to epilepsy who participated in the multiday music festival to raise money for epilepsy research.

Fostering a Good Relationship with Your Child’s Epilepsy Care Team Jan 08, 2025

Show notes

Patricia Dean, ARNP and the Epilepsy Network Specialist in the Comprehensive Epilepsy Center at Nicklaus Children’s Hospital in Miami, discusses managing the relationship with your child’s epilepsy care team.

SCN8A and Infantile Spasms: A Mother & Researcher Pursues a New Potential Therapy Dec 04, 2024

Show notes

Dr. Madeleine Oudin shares her daughter’s epilepsy journey following a devastating genetic diagnosis and the onset of infantile spasms, and explains how it has impacted her work as a researcher in pursuing a new potential therapy around the SCN8A gene.

Rocking for Research: The Inspiration and Impact of Joey’s Song Nov 06, 2024

Show notes

Joey’s Song founder Mike Gomoll shares his son’s epilepsy story and discusses the creation, growth, and evolution of Joey’s Song into the multi-artist, multi-day, “Freezing Man Festival.”

One Family’s SUDEP story: A Tragic Loss Drives SUDEP Advocacy and Fundraising Oct 02, 2024

Show notes

In observance of Sudden Unexpected Death in Epilepsy (SUDEP) Action Day on October 16th, we speak with the Maffie family about the tragic loss of Anthony Maffie to SUDEP and their advocacy and fundraising efforts in Anthony’s honor.

Overcoming Seizures to Pursue a Neuroscience Degree and Help Others Living with Epilepsy Sep 04, 2024

Show notes

This month we welcome Matthew Summerfield to the podcast. Matthew has lived with epilepsy since his first seizure at the age of eleven. Though he was advised early on not to tell anyone about his epilepsy, Matthew has refused to be held back by seizures, studying neurosceience as a college undergraduate, and now pursuing a PhD while working in an epilepsy research lab at the University of Iowa.

Post-Traumatic Epilepsy: What We Know and Where the Research is Going Aug 13, 2024

Show notes

This month on Seizing Life® we speak with Dr. Elisa Zanier of the Mario Negri Institute in Milan, Italy about the current state of research into Post-Traumatic Epilepsy (PTE) in the wake of a recent International Conference on PTE co-hosted by CURE Epilepsy.

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