Seizing Life

Latest Episodes:

Seizing Life Highlights: Epilepsy Surgery Sep 10, 2020

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On this episode of Seizing Life, we’ve compiled insights from patients and doctors alike to explore and demystify brain surgery for epilepsy.

A Disability-Friendly Model for Independent Living Aug 26, 2020

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Main Street is an organization dedicated to building a holistic model of supportive and stable housing for people with disabilities. Founders Jillian and Scott Copeland‘s son Nicholas has epilepsy and lives with special needs. Today on Seizing Life, Jillian and Scott discuss the how their vision creates a community of belonging and how it may serve as a model for others to follow.

All About Seizures: How Understanding Informs Treatment Aug 12, 2020

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Today on Seizing Life, we’re taking a deep dive into seizures with Dr. Michael Smith, Senior Attending Neurologist and Director of the Rush Epilepsy Center in Chicago.

The “Invisible” Consequences of Traumatic Brain Injury Jul 29, 2020

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Alec Beauseigneur-Jimenez was injured in a training accident in May 2015, causing extensive damage to his hand and a concussion. The medical team’s focus was on the severe injury to his right hand, prompting multiple surgeries. However little attention was paid to the concussion.

Seeing the Whole Person: Disability, Race, and Healthcare Jul 15, 2020

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Our guest this week is mother and advocate, Sherri Brady. Her daughter, Lauren was diagnosed with Rett Syndrome, a rare disorder that can have devastating impacts, including seizures. For the past 20 years, Sherri has gathered the tools she needs to advocate for Lauren’s care in a biased system.

It’s Personal: Christin Godale’s Path to Epilepsy Research Jul 01, 2020

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As a child growing up with epilepsy, Christin Godale experienced stigma and exclusion by her peers, driving her to hide her condition from friends and classmates. But a neurologist’s encouragement sparked Christin’s interest in understanding her own epilepsy and eventually brought her to acceptance, advocacy, and the pursuit of her PhD in neuroscience with the ultimate the goal of becoming an epilepsy researcher.

Growing Up and Gaining Independence with Epilepsy Jun 17, 2020

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Caroline Pratt was diagnosed with epilepsy at 8 years old. Now 17, Caroline has battled seizures and the physical and emotional impacts. But with Caroline now attending college and living away from home for the first time, both parent and child have had to make concessions and changes within their relationship.

Epilepsy and Mental Health: What You Should Know Jun 03, 2020

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In this episode of Seizing Life, explore the psychological impacts of epilepsy that can result in mood disorders, like depression and anxiety with Dr. Kanner, Director of the International Comprehensive Epilepsy Center and Chief of Epilepsy Division at the University of Miami, Miller School of Medicine.

Seizure Tracker™: Empowering the Community With Data May 20, 2020

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While this app comes from humble beginnings, Seizure Tracker now provides patients, families, and physicians the ability to track, understand, and treat seizures, as well as tools to manage treatment regimens and document medication side effects.

No One Does It Alone: Finding Support to Navigate the World of Epilepsy Care May 06, 2020

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One in 26 Americans will develop epilepsy in their lifetimes and millions more will be touched by this devastating condition. While the diagnosis can be challenging there are people and groups who can provide support in many different ways. The trick is how to find them.

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