Seizing Life

Latest Episodes:

Infantile Spasms: Know the Signs and Take Action (Rebroadcast) Dec 04, 2019

Show notes

Amy Brin Miller, Executive Director of the Child Neurology Foundation, discusses how to tell if a baby is having spasms, steps parents should take if they suspect their child has infantile spasms, and why early intervention is critical.

Establishing Your New Normal with Epilepsy Nov 20, 2019

Show notes

In this episode, Meg reveals how epilepsy impacted so many aspects of her life; from being a student, to her budding nursing career, to dating, to having a child. Hear how she navigated living her best life with epilepsy and her advice for others.

You Don’t Have to Be a Brain Surgeon to Understand Epilepsy Research Nov 06, 2019

Show notes

You don’t have to be a neuroscientist to understand epilepsy research. CURE’s Board Chair and former Head of the Research Committee, Stacey Pigott, explains how even those without a science background can develop the skills they need to dive into research findings, using them to better communicate with physicians and empower advocacy.

SUDEP: What You Need To Know (Rebroadcast) Oct 23, 2019

Show notes

Sudden Unexpected Death in Epilepsy (SUDEP) is a risk for the more than 1/3 of people with epilepsy whose seizures are uncontrolled, and one the wider epilepsy community needs to be aware of. Often occurring when a person is asleep, SUDEP is a major concern for epilepsy patients and families alike.

A Mind Unraveled (Rebroadcast) Oct 09, 2019

Show notes

This week we’re rebroadcasting an amazing episode featuring New York Times Bestselling Author Kurt Eichenwald. The paperback version of his incredible autobiography A Mind Unraveled about his life with intractable epilepsy launches on October 15, so be sure to preorder your copy!

Shout from the Rooftops: Your Voice Can Help Find a CURE Sep 25, 2019

Show notes

On this episode of Seizing Life, Kelly sits in the guest seat to speak with CURE Board Chair Stacey Pigott about using advocacy to drive science toward a cure for epilepsy.

Advocate Like a Champion: Spreading Epilepsy Awareness and Standing Up for Research Sep 11, 2019

Show notes

Learn how this college student battles epilepsy stigma by speaking up and advocating like a champion.

Growing Pains: Living with a Sibling with Epilepsy Aug 28, 2019

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In this episode of Seizing Life, CURE Board Members Michael Axelrod and Marilynn Kelly Gardner discuss the challenges they experienced and the wisdom they gained growing up with siblings impacted by epilepsy.

Fight Stigma: You’re Never Too Young To Be a Hero Aug 14, 2019

Show notes

In this episode of Seizing Life, learn how Henry built his team of volunteers, fundraises for epilepsy organizations, and battles against epilepsy stigma.

What to Expect When You’re Expecting…as a Woman with Epilepsy Jul 31, 2019

Show notes

In this episode of Seizing Life, mother Caroline McAteer speaks to her experience bringing her daughter Nora into the world.

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