Seizing Life

Latest Episodes:

Infantile Spasms: Know the Signs and Take Action Jul 17, 2019

Show notes

Amy Brin Miller, Executive Director of the Child Neurology Foundation, discusses how to tell if a baby is having spasms, steps parents should take if they suspect their child has infantile spasms, and why early intervention is critical.

VNS: A Small Device Making a Big Difference Jul 03, 2019

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Join us as we discuss the VNS device, including patient eligibility, the surgical implant process, and possible side-effects of the device. Dr. Takijah Heard, Division Head of Pediatric Neurology at Northshore Neurological Institute, walks us through these topics and more in this episode of Seizing Life.

My Condition Isn’t Generic: Why Changes to Insurance Coverage Matter Jun 19, 2019

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In this episode of Seizing Life, learn from Joanne Guthrie-Gard how to advocate for yourself or your child when facing an insurance-initiated switch of epilepsy drugs.

Food for Thought: The Keto Diet and Epilepsy Jun 06, 2019

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On this episode of Seizing Life, join us to learn more about using the ketogenic diet for seizure control from registered dietician Robyn Blackford and advanced practice nurse Breanne Fisher from the Ann & Robert H. Lurie Children’s Hospital of Chicago.

Post-Traumatic Epilepsy: A Lasting Impact on our Veterans May 29, 2019

Show notes

In this episode, Dr. Jordan Grafman discusses what causes individuals to acquire epilepsy after TBI, how to potentially prevent PTE, and the state of PTE research. Dr. Grafman is a Professor of Physical Medicine and Rehabilitation at Northwestern University and Director of Brain Injury Research at Shirley Ryan AbilityLab.

How Self-Contained Schools Can Help Special Needs Children May 08, 2019

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In this episode of Seizing Life, Margaret talks about the decision to move her daughter to a self-contained public school, as well as how you can make the best choices for your child when it comes to education.

Epilepsy…It’s Complicated Apr 24, 2019

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In this episode of Seizing Life, we chat with Dr. Charles Marcuccilli about why the many truths of epilepsy aren’t well-known and what patients, caregivers, and healthcare professionals can do to educate others and reduce epilepsy stigma.

Epilepsy Summer Camp: Where Kids Can Be Kids Apr 10, 2019

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From fishing to ziplining to arts-and-crafts, summer camp gives kids the chance to just be kids. For children impacted by epilepsy, Camp YouCan meshes these classic summertime activities with support groups in a stigma-free environment.

Epilepsy and College: How to Survive and Thrive Apr 03, 2019

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In this episode, Eva and Michelle join us to discuss the ways epilepsy can add to the physical, mental, and emotional stresses of college, as well as resources and possible accommodations for college students with epilepsy.

School Nurse Shortages: The Challenges Students and Families Face Mar 27, 2019

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In this episode of Seizing Life, hear what mother and advocate Laurel Henson and her son, Mason, face as a result of a nursing shortage in their school district. Laurel describes the daily physical and emotional challenges Mason experiences as a student with epilepsy due to the lack of a full-time nurse assigned to his school.

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