Seizing Life

Latest Episodes:

From Epilepsy Researcher to Epilepsy Patient Jul 21, 2021

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Today on Seizing Life, we speak with epilepsy researcher, educator, and patient Dr. Steve White. Dr. White is a professor and Chair of the Department of Pharmacy at the University of Washington. He is also an epilepsy patient, having experienced his first seizure in 2010.

Infantile Spasms: Awareness, Observation, and Intervention Jul 07, 2021

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On this episode of Seizing Life, Lissy recounts her daughter’s onset, diagnosis and ACTH steroid treatment for infantile spasms. She also explains why early detection and treatment are so important, where to find infantile spasms support groups, and how awareness and education among parents, caregivers, and doctors can result in positive outcomes for infants with I.S.

Living and Thriving with Epilepsy Jun 23, 2021

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On this week’s Seizing Life, epilepsy patient, counselor, and author Jon Sadler discusses his 50-year journey living with epilepsy. Jon’s experiences reflect many of the challenges and concerns of people with epilepsy including stigma, employment, family, dealing with changing treatments and side-effects, and undergoing life-changing brain surgery.

After SUDEP: A Journey of Grief and Hope Jun 09, 2021

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n August of 2020, Geoff Applegate lost his fiancé Zsatara to SUDEP just weeks before the couple was to be married. Geoff shares his ongoing journey through the grieving process including what he has personally found helpful, what he’s learned about helping his son cope with the loss, and how he keeps Zsatara’s memory alive by raising awareness about SUDEP.

Epilepsy Education and Seizure Safety in Schools May 26, 2021

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When a recurring eye twitch led to a diagnosis of epilepsy, Paul St. Pierre found himself trying to gain seizure control while managing medication side effects and trying to maintain his grades. With the help of their state senator, they gathered support for a bill to ensure epilepsy education and seizure safety in all New Jersey schools.

Finding Balance: Managing Epilepsy and Work May 12, 2021

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Lauren Panco was 26 years old, in the midst of a promising career with a fast-growing company, engaged to be married, and enjoying a busy professional and social lifestyle when she suddenly suffered a seizure. On this week’s Seizing Life®, Lauren, now 32, discusses the disturbing initial diagnosis she received, her concerns about the impact of epilepsy on her career, and how she has navigated workplace challenges with a determination not to allow epilepsy to define her.

Raising A Child with Both Autism and Epilepsy Apr 14, 2021

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On this week’s episode of Seizing Life, we speak with author, journalist, and mother Liane Kupferberg Carter. Liane’s son Mickey was diagnosed with autism at 5 years old, and several years later received an additional diagnosis of epilepsy.

Growing Up Alongside a Sibling with Epilepsy Mar 31, 2021

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This week on Seizing Life, we speak with two CURE Epilepsy Education Enrichment Fund Scholars about their experiences growing up with a sibling who has epilepsy. Emma Cardwell and Nathan Bliss share their siblings’ diagnoses and how this affected their respective families and themselves in both challenging and inspirational ways.

Community, Fatherhood, and Seizures Mar 17, 2021

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CURE Epilepsy and Epilepsy Canada recently entered into a strategic partnership to accelerate scientific progress and drive research forward to find a cure for epilepsy. To celebrate this new partnership, and in honor of Epilepsy Awareness Month in Canada, we speak with Alek and Brittany Stewart, husband and wife advocates for Epilepsy Canada.

Helping Your Teen Navigate Epilepsy Mar 03, 2021

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This week on Seizing Life we speak with Angie Froehlich about parenting a teenager with epilepsy. Angie’s daughter Chloe was diagnosed with epilepsy at age 12.

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