Seizing Life

Latest Episodes:

Infantile Spasms – Part 1: A Medical Emergency Dec 01, 2021

Show notes

This week on Seizing Life®, we focus on infantile spasms (IS), a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. How do you get an accurate diagnosis? And what do you do if your baby is diagnosed with IS?

A Family’s Epilepsy Journey: From Diagnosis to Surgery Nov 17, 2021

Show notes

This week on Seizing Life we speak with Daniel Allbeck and his parents Paula and David Allbeck about their family’s journey with epilepsy. From the time of Daniel’s first seizure and subsequent diagnosis at the age of 22, Paula began researching and learning as much as she could about epilepsy.

Post-Traumatic Epilepsy and Our Veterans: Impact, Research, and Hope Nov 03, 2021

Show notes

In observance of Veterans Day, this week on Seizing Life ® we focus on TBI and PTE in veterans. We revisit past conversations with Retired Army Captain Patrick Horan and former Marine Alec Beauseigneur-Jimenez, both of whom suffered a TBI in the line of duty and developed PTE as a result of their injuries. Additionally, we speak with Dr. Lauren Harte-Hargrove, Associate Director of Research at CURE Epilepsy.

SUDEP: What To Know and What To Do Oct 20, 2021

Show notes

On this episode of Seizing Life, we speak with former CURE Grantee and the Director of the Comprehensive Epilepsy Program at The Hospital for Sick Children in Toronto Dr. Elizabeth Donner about all aspects of SUDEP.

A Brave Little Girl’s Journey with Sturge-Weber Syndrome Oct 06, 2021

Show notes

For many people living with epilepsy, seizures are just one of the challenges. Often an epilepsy diagnosis comes with other medical issues. While rare, one such condition can be Sturge-Weber, a vascular disorder in which blood vessels in the brain form abnormally, resulting in a facial birthmark (referred to as a port-wine stain), eye abnormalities such as glaucoma, and often seizures

One Family, Two Different Epilepsy Diagnoses Sep 22, 2021

Show notes

This week on Seizing Life® we speak with Mary and Tom Nugent, parents of 3 young men, two of whom have grown-up with epilepsy. With one son severely impacted from infancy and another diagnosed at the age of 9, the Nugents have experienced the vastly different impacts of epilepsy in the microcosm of their own household.

Epilepsy…It’s Complicated (Rebroadcast) Sep 01, 2021

Show notes

In this rebroadcast of a Seizing Life episode from June 2019, we speak with Dr. Charles Marcuccilli, Director of Pediatric Epilepsy at the Rush University Medical Center. Dr. Marcuccilli explains why epilepsy is so misunderstood, discusses the history and impact of stigma around it, and suggests what patients, caregivers and healthcare professionals can do to increase awareness and education around epilepsy.

A Mother’s Determination: Advocating for Your Child’s Epilepsy Care Aug 28, 2021

Show notes

When and how do you push back against medical professionals? Where do you go for information, and how do you access the best care for your child?

Funding Epilepsy Research: How CURE Epilepsy Advances Science to Find a Cure Aug 18, 2021

Show notes

If you have listened to the Seizing Life podcast you know that it’s produced by CURE Epilepsy. But do you know what CURE Epilepsy, the organization, actually does? Are you aware of its mission and how it funds epilepsy research to help accelerate science and find a cure?

Epilepsy and College: Students and Parents Share Advice and Recommendations Aug 04, 2021

Show notes

With students preparing to head back to college campuses, we revisit several previous episodes in which students with epilepsy and their parents discuss their experiences choosing and attending college.

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