Seizing Life

Latest Episodes:

Epilepsy Advocacy and Education: Determining The Care You Need Feb 17, 2021

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What do you do when your life is suddenly upended by an epilepsy diagnosis? Where do you turn for reliable information? How do you find a neurologist that you connect with? Can you manage your seizures and live the life you’ve always had?

The Best of Seizing Life 2020 Feb 03, 2021

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This week on Seizing Life we revisit just a few of the incredible guests and conversations from 2020. In a challenging year, we, like so many across the country, had to adjust to working remotely. And although we had to sit in the kitchen alone, we were fortunate to be joined by many inspiring and insightful guests from across the country.

Epilepsy Drug Development: Clinical Trials – A Patient’s Perspective Jan 20, 2021

Show notes

In the finale of our 4-part series exploring the drug development process, we look at clinical trials through the eyes of a participant. We speak with Kim Nye, mother of two children with epilepsy and founder of the Tess Research Foundation, about her experiences enrolling her children in epilepsy clinical trials.

Epilepsy Drug Development: How Patients Can Make An Impact Jan 06, 2021

Show notes

In the third part of our 4-part series exploring the drug development process, we explore the importance of clinical trial participation with Dr. Darcy Krueger, Director of the Tuberous Sclerosis Clinic and Associate Professor of Clinical Pediatrics and Neurology at Cincinnati Children’s Hospital Medical Center.

Epilepsy Drug Development: Clinical Trials Dec 16, 2020

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On this episode of Seizing Life, we talk with Dr. Kelly Knupp about the development process of a clinical trial from the IND application, through human clinical studies and the FDA approval process.

Epilepsy Drug Development: The Journey Begins Dec 02, 2020

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Today, in the first of a 4-part series exploring the drug development process and clinical trial participation, we speak with Dr. James Cloyd, the Lawrence C. Weaver Endowed Chair in Orphan Drug Development, and Director of the Center for Orphan Drug Research at the University of Minnesota College of Pharmacy.

The Impact of COVID-19 on Epilepsy Research Nov 18, 2020

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Today on Seizing Life, we speak with Mike Coburn, Executive Vice President and Chief Operating Officer of Research!America, an organization that advocates for science, discovery and innovation to achieve better health for all.

A Veteran’s Battle with Post Traumatic Epilepsy Nov 04, 2020

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As Veterans Day nears, we speak with former U.S. Army Captain Patrick Horan and his wife Patty on this week’s episode of Seizing Life. The Horans describe the circumstances around Pat’s near-fatal injury, the amazing efforts of soldiers and medical personnel to save Pat’s life, the sudden, shocking onset of epilepsy months into Pat’s recovery process, and the long battle they have waged against PTE.

Speaking Up About SUDEP: Two Mothers’ Stories Nov 04, 2020

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On this episode of Seizing Life, Libby Boyce and Jessica Brandes, two mothers who each lost a son to SUDEP, discuss how they hope to transform tragedy and grief into action and change.

Mourning Your Idealized Life: Resilience, Love and Acceptance Oct 08, 2020

Show notes

This week on Seizing Life, we present a never-before-seen episode with Kelly and Miguel Cervantes that was recorded in November 2018. At the time of the recording, Kelly and Miguel were in the midst of provding care and desparately searching for answers for their 3-year-old daughter Adelaide who was suffering from an undiagnosed condition resulting in seizures and multiple physical and cognitive challenges.

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