RealTalk MS

Latest Episodes:

Episode 310: The Face Laughs While the Brain Cries with Dr. Stephen Hauser Aug 07, 2023

Show notes

Dr. Stephen Hauser's research as a physician-scientist has revolutionized our understanding of the genetics, immunology, and treatment of MS. It was Dr. Hauser's research that led to the development of a b-cell therapy for MS, which has been shown to be highly effective in treating all forms of MS and the only treatment approved for treating progressive MS.

Dr. Hauser joins me this week, to discuss some of the pivotal moments in his remarkable career.

Dr. Hauser's memoir, The Face Laughs While the Brain Cries: The Education of a Doctor, goes well beyond the expected autobiography and offers us an opportunity to silently observe the process of scientific discovery. If you're curious about how we know what we know about multiple sclerosis, but you aren't ready to make your way through the dry prose of a scientific journal, this is the book for you.

The World Health Organization has added three disease-modifying therapies for MS to its Essential Medicines List. We'll share the details and tell you why this groundbreaking decision is so important.

We're sharing the results from a clinical trial that provide evidence that starting a disease-modifying therapy early slows MS progression.

And we'll remind you that August 17th is Burgers to Beat MS day at A&W locations throughout Canada.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Dr. Stephen Hauser reflects on his remarkable career :22

The World Health Organization has added three disease-modifying therapies for MS to its Essential Medicines List 1:57

Study results show that starting a disease-modifying therapy early slows MS progression 4:12

August 17th is Burgers to Beat MS day in Canada! 7:01

Dr. Stephen Hauser discusses his remarkable career as a physician-scientist whose discoveries have had an enormous impact on people affected by MS 8:23

Share this episode 29:23

Have you downloaded the free RealTalk MS app? 29:44

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/310

ADD YOUR VOICE TO THE CONVERSATION

I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The Face Laughs While the Brain Cries: The Education of a Doctor by Dr. Stephen Hauser https://amazon.com/Face-Laughs-While-Brain-Cries/dp/1250283892

MSIF: WHO's Decision Brings Hope to People with MS Worldwide https://msif.org/news/2023/07/25/whos-decision-brings-hope-to-people-with-ms-worldwide

STUDY: Association of Very Early Treatment Initiation with the Risk of Long-Term Disability in Patients With a First Demyelinating Event https://n.neurology.org/content/early/2023/07/19/WNL.0000000000207664

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 310 Guest: Dr. Stephen Hauser

Episode 309: Solving Speech and Swallowing Problems in MS with Dr. Marissa Barrera Jul 31, 2023

Show notes

The ability to speak is something so basic to our day-to-day lives that you may not ever stop to consider it until you realize something about your speech may be changing. And swallowing is something that's so automatic, we take it for granted. Until, that is, something changes, and you find yourself choking on a sip of water.

Speech and swallowing problems are fairly common MS symptoms. And joining me to discuss some of the most common speech and swallowing disorders people with MS might encounter, and how working with a speech pathologist can make a real difference in tackling those speech and swallowing issues is an internationally recognized medical Speech-Language Pathologist and Multiple Sclerosis Certified Specialist, Dr. Marissa Barrera.

We're also sharing news about an updated guidance that's been published by a group of MS experts to help healthcare professionals avoid misdiagnosing MS.

We'll tell you about results from a small study that demonstrate the potential risks associated with requiring prior authorization from insurance companies for disease-modifying therapies which have been prescribed to people newly diagnosed with MS.

The International Progressive MS Alliance has published a report on the Scientific Congress it convened in June. We'll tell you where you can download your copy.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Improving speech and swallowing issues in MS :22

An international group of experts has published an updated guidance for neurologists and other healthcare professionals on how to distinguish MS from other neurological look-alikes 1:39

Results from a small study demonstrate that requiring prior authorization for disease-modifying therapies poses potential health risks for people newly diagnosed with MS 3:12

The International Progressive MS Alliance has published a report on the Scientific Congress it convened this past June 8:29

Dr. Marissa Barrera discusses some of the common speech and swallowing disorders people with MS might encounter 9:53

Share this episode 34:51

Have you downloaded the free RealTalk MS app? 35:10

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/309

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Differential Diagnosis of Multiple Sclerosis: An Updated Consensus Approach https://thelancet.com/journals/laneur/article/PIIS1474-4422(23)00148-5/fulltext

STUDY: The Impact of Insurance Restrictions in Individuals Newly DIagnosed with Multiple Sclerosis https://meridian.allenpress.com/ijmsc/article/doi/10.7224/1537-2073.2022-069/494514/The-Impact-of-Insurance-Restrictions-in

Report from the International Progressive MS Alliance 2023 Scientific Congress https://www.progressivemsalliance.org/wp-content/uploads/2023/07/230719-Alliance-Scientific-Congress-Report-July-2023.pdf

RealTalk MS Episode 303: The International Progressive MS Alliance Scientific Congress (Part 1) https://realtalkms.com/303

RealTalk MS Episode 304: The International Progressive MS Alliance Scientific Congress (Part 2) https://realtalkms.com/304

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 309 Guest: Dr. Marissa Barrera

Bonus Episode: Everything You Need to Know About Clinical Trials with Dr. Aaron Boster Jul 28, 2023

Show notes

This special episode of RealTalk MS is sponsored by Sanofi.

In this special episode of RealTalk MS, Dr. Aaron Boster walks us through everything you need to know about clinical trials.

If you've ever wondered what the difference is between a Phase 1 clinical trial, a Phase 2 clinical trial, or a Phase 3 clinical trial, you're about to find out. If you're curious about how a clinical trial participant's privacy is protected, how safety is ensured, and how you can learn about clinical trials that may be taking place near you, it's time to click that PLAY button!

Dr. Aaron Boster is a board-certified neurologist specializing in MS and the founder of the Boster Center for Multiple Sclerosis in Columbus, Ohio, Dr. Boster has been a principal investigator in numerous clinical trials and has published extensively in medical journals.

To learn more about Sanofi's clinical research studies, please visit https://www.sanofistudies.com/us/en

Episode 308: Improving Your Balance and Walking When You're Living With MS with Dr. Nora Fritz Jul 24, 2023

Show notes

Experiencing difficulty walking is one of the most common mobility challenges faced by people living with MS. The good news is that there are things you can do -- both with a physical therapist and by yourself, at home -- that can make a real difference.

Joining me to discuss improving your gait, avoiding falls, and what experts are learning from the latest research in this area is the Director of Research for the Department of Health Care Sciences at Wayne State University School of Medicine, Dr. Nora Fritz.

We're also sharing the results of a study that looked at whether disease-modifying therapies had an impact on the number of hospitalizations or visits to the doctor someone with MS might experience over a 22-year period.

We'll tell you about a study that measured the outcome for people with relapsing-remitting MS who were treated with autologous hematopoietic stem cell transplantation (aHSCT) compared with the outcome for people with relapsing-remitting MS who were treated with Gilenya, Tysabri, or Ocrevus.

We'll share the results from a study that analyzed 56 other studies to determine the prevalence of sexual dysfunction among women living with MS.

We'll tell you about a nationwide study that's about to get underway that will try to answer the question, 'Should people with MS over the age of 65 discontinue their disease-modifying therapy?'

And we'll remind you about how you can join us in Napa Valley this Saturday, July 29th, for Crush MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Improving your balance and gait :22

A research team analyzed the risk of hospitalization over a 22-year period for people with MS who were on a disease-modifying therapy and compared those results to people with MS who weren't on a DMT 1:21

Researchers compared patient outcomes associated with autologous hematopoietic stem cell transplantation (aHSCT) and compared them with outcomes associated with Gilenya, Tysabri, and Ocrevus 4:40

A research team in Iran analyzed results from 56 separate studies about sexual dysfunction in women with MS 8:29

Should someone over the age of 65 discontinue their disease-modifying therapy? 11:40

Dr. Nora Fritz discusses gait, balance, fall prevention and more 15:20

Share this episode 33:49

I'll be at Crush MS! Will I see you there? 34:09

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/308

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use https://pubmed.ncbi.nlm.nih.gov/34949130

Tremlett's MS Research Explained: Disease-Modifying Drugs for Multiple Sclerosis and Subsequent Health Service Use https://tremlettsmsresearchexplained.wordpress.com/category/ms-disease-modifying-drug-research

STUDY: Comparative Effectiveness of Autologous Hematopoietic Stem Cell Transplant vs Fingolimod, Natalizumab, and Ocrelizumab in Highly Active Relapsing-Remitting Multiple Sclerosis https://pubmed.ncbi.nlm.nih.gov/37437240

STUDY: Prevalence and Risk of Developing Sexual Dysfunction in Women with Multiple Sclerosis (MS): A Systematic Review and Meta-Analysis https://bmcwomenshealth.biomedcentral.com/articles/10.1186/s12905-023-02501-1

RealTalk MS Episode 255: Aging With MS with Dr. John Corboy https://realtalkms.com/255

Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive)

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 308 Guest: Dr. Nora Fritz

Episode 307: Managing Stress and Anxiety When You're Living With MS with Dr. Bree Wannamaker Jul 17, 2023

Show notes

Learning to effectively manage stress and anxiety is important for everyone. And if you're living with the unpredictability of MS, it may be doubly important.

Joining me to discuss the impact that stress and anxiety can have on your physical and mental health, along with strategies you can use to manage the stress and anxiety in your life, is Dr. Bree Wannamaker. Dr. Wannamaker lives with MS, and she's a Licensed Professional Counselor and Chief Therapist & Consultant in her practice, Just Us Counseling and Consulting, LLC.

We're also sharing the results of a study that compared patient outcomes among people with relapsing-remitting MS who were started on a high-efficacy disease-modifying therapy and people with relapsing-remitting MS who were started on a lower efficacy DMT.

We'll tell you about remyelination research that led to a surprising conclusion.

We'll share the details about Crush MS, an amazing event in Napa Valley that brings together wine, food, and music to raise money for MS research. I hope I'll see you there!

And if you're on Ocrevus, we have some potentially time-saving news to share with you!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Managing stress and anxiety if you're living with MS :22

A research team analyzed the outcomes for people with MS who were started on a high-efficacy DMT and compared them to the outcomes for people with MS who were started on a lower-efficacy DMT 1:18

An experimental therapy promoted remyelination by upending the commonly held scientific hypothesis about myelin repair 6:53

I'll be at Crush MS! Will I see you there? 9:53

An Ocrevus treatment in just 10 minutes? 11:31

Dr. Bree Wannamaker shares strategies for managing stress and anxiety 13:33

Share this episode 33:20

Have you downloaded the free RealTalk MS app??? 33:41

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/307

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Does Initial High-Efficacy Therapy in Multiple Sclerosis Surpass Escalation Treatment Strategy? A Comparison of Patients with Relapsing-Remitting Multiple Sclerosis in the Czech and Swedish National Multiple Sclerosis Registries https://sciencedirect.com/science/article/abs/pii/S221103482300305X

TREAT-MS Clinical Trial https://treat-mstrial.org

Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive)

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 307 Guest: Dr. Bree Wannamaker

Episode 306: Making Meal Planning and Prep Easier When You're Living with MS with Trevis Gleason Jul 10, 2023

Show notes

Living your best life with MS often means planning ahead and, when circumstances require, knowing when and how to adapt. Many of us find ourselves in the kitchen every day. And, while cooking can be pleasurable, it can also be a chore that only gets worse if you're dealing with pain, fatigue, mobility issues, tingling in your hands and arms, unsteady balance, or other MS symptoms.

Award-winning author, chef, and blogger, Trevis Gleason joins me to talk about how planning ahead and adopting new behaviors can ease the burden of meal preparation. Trevis was diagnosed with secondary progressive MS in 2001, and he's sharing tips and strategies designed to make your meal planning and prepping easier.

We're also sharing the details about Crush MS, a fantastic mix of wine, food, and music that raises funds for MS research.

We'll introduce you to Air4All, a company that's out to make air travel a much better experience for wheelchair users.

We'll share the outcome of a study that has identified a single genetic variant that may determine how fast an individual's MS will progress.

We'll tell you about another study that gives us one more important reason to quit smoking if you're living with MS.

And we'll share study results from Denmark that demonstrate the impact of a plant-based diet on people living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: How to make meal planning and prep easier if you're living with MS :22

I'll be at Crush MS! Will I see you there? 1:23

Air4All may change everything about air travel for wheelchair users 3:10

Researchers have identified a single genetic variant that may determine how fast MS progresses 5:55

Study results provide one more really good reason to stop smoking if you're living with MS 8:10

Study results illustrate the impact of a mostly plant-based diet on people living with MS 11:08

Award-winning author, chef, and blogger, Trevis Gleason, shares tips and strategies designed to make meal planning and prep easier if you're living with MS 13:54

Share this episode 29:29

Have you downloaded the free RealTalk MS app??? 29:51

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/306

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Crush MS https://crushms.org If you're living with MS, email info@crushms.org for special deep discount code Crush MS 10% Discount Code for everyone is Realtalkmsdiscount (case sensitive)

RealTalk MS Episode 302: De-Stressing Air Travel If You're Living With MS with Dr. Scott Crawford https://realtalkms.com/302

Air4All https://air4all.net

STUDY: Locus for Severity Implicates CNS Resilience in Progression of Multiple Sclerosis https://nature.com/articles/s41586-023-06250-x

STUDY: The Effects of Different Types of Smoking on Recovery From Attack on Hospitalized Multiple Sclerosis Patients https://sciencedirect.com/science/article/abs/pii/S0303846723002627

STUDY: Dietary Patterns and Their Association with Symptom Levels Among People with Multiple Sclerosis: A Real-World Digital Study https://link.springer.com/article/10.1007/s40120-023-00505-5

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 306 Guest: Trevis Gleason

Episode 305: 30 Years Later -- Looking Back (and Ahead) with Dr. Fred Lublin and Dr. Stephen Krieger Jul 03, 2023

Show notes

2023 marks 30 years since the very first MS disease-modifying therapy received FDA approval. To say that changed everything would be an understatement.

Two of the top MS experts in the world have published a reflection, looking back at how MS research and treatment has progressed over the past 30 years and looking ahead at the challenges that remain in solving the riddle of MS. Joining me this week are the authors of that reflection, Dr. Fred Lublin and Dr. Stephen Krieger.

Dr. Lublin participated in the development of the very first disease-modifying therapy approved for treating MS and, since that time, he has been involved in the development of nearly all of the DMTs available today.

Dr. Krieger has developed a game-changing theory that MS is a single disease that evolves along a continuum, rather than the four separate categories that neurologists have used to describe MS for the past couple of decades.

We'll also introduce you to The Community Review of MS Research Committee.

We'll share what very well may be the single most important development to come out of the Pathways To Cures Global Summit.

We'll tell you about the outcome of a study that may point to a potential MS treatment for women that has also been shown to trigger myelin repair.

We'll explain the method for accurately measuring remyelination that was just recently confirmed by a UCSF research team.

And we'll tell you where you can catch the video replay of the webcast that was live-streamed from last month's International Progressive MS Alliance Scientific Congress.

We have a lot to talk about! Are you ready for RealTalk MS??!

I'm back from the Community Review of MS Research Committee meeting :22

This Week: 30 Years Later....looking back (and ahead!) 4:08

The first-ever Global Research Strategy Framework has been announced 5:26

Don't miss the video replay of the webcast that was live streamed from last month's International Progressive MS Alliance Scientific Congress 2:55

A study shows that the hormone estriol reduces MS severity and promotes myelin repair 9:54

A UCSF research team has developed a method of accurately measuring remyelination 13:16

Dr. Fred Lublin and Dr. Stephen Krieger review the progress that's been made since the approval of the first MS disease-modifying therapy and they look ahead at the challenges that remain in solving the riddle of MS 17:23

Share this episode 30:08

Have you downloaded the free RealTalk MS app??? 30:27

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/305

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 297: The Pathways To Cures Global Summit (Part 1) https://realtalkms.com/297

RealTalk MS Episode 298: The Pathways To Cures Global Summit (Part 2) https://realtalkms.com/298

Video Replay: Ending MS Progression: Research Advances That Could Lead to Breakthrough Treatment https://www.youtube.com/watch?v=p9OQ_hvVpfA

STUDY: Neuroprotection in Cerebral Cortex Induced by the Pregnancy Hormone Estriol https://sciencedirect.com/science/article/pii/S0023683723001320?via%3Dihub

RealTalk MS Episode 189: Research on Sex Differences in MS Leads to Potential Treatment Options with Dr. Rhonda Voskuhl https://realtalkms.com/189

STUDY: MWF of the Corpus Callosum Is a Robust Measure of Remyelination: Results from the ReBUILD Trial https://pnas.org/doi/10.1073/pnas.2217635120

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 305 Guests: Dr. Fred Lublin and Dr. Stephen Krieger

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 304: The International Progressive MS Alliance Scientific Congress (Part 2) Jun 26, 2023

Show notes

Just a couple of weeks ago, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including people affected by progressive MS, to report and review the progress being made in developing new, effective treatments for progressive MS.

In Part 2 of our coverage, we're taking you back inside this Scientific Congress, where you'll hear from some of the top MS researchers in the world who participated in this game-changing event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: More from the International Progressive MS Alliance Scientific Congress :22

Professor Xavier Montalban shares his perspective on the role of the Alliance and the presentations that we saw and heard on Day One of the Scientific Congress 1:32

Professor David Leppert explains how a biomarker for MS progression will impact MS research and MS treatment 8:04

Dr. Anne Cross discusses some of the presentations that we saw and heard on Day One of the Scientific Congress 16:20

Philanthropist Monia Joblin explains why the work of the International Progressive MS Alliance is important to her and to other families affected by progressive MS 26:13

Share this episode 39:19

Have you downloaded the free RealTalk MS app??? 39:40

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/304

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The International Progressive MS Alliance https://progressivemsalliance.org

RealTalk MS Episode 303: The International Progressive MS Alliance Scientific Congress (Part 1) https://realtalkms.com/303

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 304 Guests: Prof. Xavier Montalban, Prof. David Leppert, Dr. Anne Cross, and Monia Joblin

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 303: The International Progressive MS Alliance Scientific Congress (Part 1) Jun 19, 2023

Show notes

Last week, the International Progressive MS Alliance convened its fourth Scientific Congress in Vienna, Austria, bringing together nearly 200 international scientists and MS leaders, including people affected by progressive MS, to report and review the progress being made in developing new, effective treatments for progressive MS.

In Part 1 of our coverage, we're taking you inside this Scientific Congress, where you'll hear from some of the top MS researchers in the world who participated in this game-changing event.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The International Progressive MS Alliance Scientific Congress :22

Dr. Robert Fox shares an overview of the Alliance and a preview of this Scientific Congress 3:17

Vanessa Fanning explains the role of the Alliance People Affected by MS Engagement Coordination Team 16:49

Professor Tanja Kuhlmann discusses the critical importance of identifying the mechanisms that drive MS progression 26:01

Remyelination is a natural process. Professor Robin Franklin explains why it stops working for people with MS 35:24

Professor Olga Ciccarelli tells us where we are in understanding remyelination and shares some of her cutting-edge research 41:48

Share this episode 53:01

Please remember to take our listener survey! 53:21

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/303

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The International Progressive MS Alliance https://progressivemsalliance.org

RealTalk MS Episode 279: A New Framework for Researching, Diagnosing, and Treating MS with Professor Tanja Kuhlmann https://realtalkms.com/279

RealTalk MS Episode 280: How the Proposed Framework for Diagnosing and Treating MS Will Affect You with Dr. Tim Coetzee https://realtalkms.com/280

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 280 Guests: Dr. Robert Fox, Vanessa Fanning, Prof. Tanja Kuhlmann, Prof. Robin Franklin, and Prof. Olga Ciccarelli

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 302: De-Stressing Air Travel If You're Living With MS with Dr. Scott Crawford Jun 12, 2023

Show notes

When you're living with MS, air travel can sometimes get complicated. We're heading into the summer vacation season, so the timing couldn't be better to talk with Dr. Scott Crawford.

Dr. Crawford is a neuropsychologist who lives with MS and has extensive experience as a passenger on commercial airlines. Dr. Crawford is also an MS Activist and he's joining me to walk us through how to de-stress airline travel and to explain your rights as an airline passenger if you're living with a disability.

You're also going to meet MS patient advocate Julie Stamm and Dr. Jenny Woo, the two difference-makers behind a project called 52 Essential Inclusion Skills: An A-to-Z Guide to Kindness, Compassion, and Respect for Diverse Abilities.

We'll give you your last reminder to sign up for the Black MS Experience Summit. It's happening virtually this Wednesday and Thursday, June 14th and 15th.

And we'll also tell you where you can sign up for the global webcast that I'll be hosting this Thursday, June 15th, from the International Progressive MS Alliance Scientific Congress in Vienna, Austria.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: De-Stressing Air Travel If You're Living with MS :22

June 14th and 15h -- It's the Black MS Experience Summit 1:19

June 14th -- Don't miss the webcast from the International Progressive MS Alliance Scientific Congress live from Vienna, Austria 2:17

Julie Stamm and Dr. Jenny Woo share 52 Essential Inclusion Skills: An A to Z Guide to Kindness, Compassion, and Respect for Diverse Abilities 2:55

Dr. Scott Crawford discusses how to de-stress air travel if you're living with MS 19:29

Share this episode 38:00

Have you downloaded the free RealTalk MS app??? 38:21

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/302

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

52 Essential Inclusion Skills: An A-to-Z Guide to Kindness, Compassion, and Respect for Diverse Abilities https://mindbrainemotion.com/products/52-essential-inclusion-skills

REGISTER for the International Progressive MS Alliance Scientific Congress LIVE Webcast https://msif.org/join-us-for-the-june-2023-webcast-on-ending-ms-progression

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 302 Guests: Julie Stamm, Dr. Jenny Woo, and Dr. Scott Crawford

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Our TOPPODCAST Picks

Follow Us

Stay Connected

Related Podcasts

Links

Stay Connected