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    Health & Fitness

    RealTalk MS

    Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you’re dealing with multiple sclerosis in your life — as a patient, caregiver, family member, or friend — join us each week for RealTalk MS.

    Advertise

    Copyright: © Copyright 2020. All rights reserved.

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    Latest Episodes:
    Episode 325: Making Your Home Safe and Accessible with Tracy Carrasco Nov 20, 2023
    Show notes

    According to the CDC, 36 million falls are reported each year, resulting in 3 million adults being transported to the Emergency Room and 32,000 adults dying from their falls. Studies have shown that, in any six-month period, more than 50% of the people living with MS fall at least once, and 30% fall multiple times.

    As falls at home are common, occupational therapist Tracy Carrasco joins me to share tips and strategies for making your home safe and accessible.

    We're also sharing a research roundup featuring results from a few different clinical trials that are focused on the impact of diet on MS. And that includes the Swank diet, the Wahls diet, the Mediterranean diet, and a simple low-fat diet.

    We'll tell you about a novel study that explored the economic impact of an Epstein-Barr Virus vaccine on the cost of MS care in Australia.

    If you're living with MS, we have your invitation to participate in the Patient Reported Outcomes for Multiple Sclerosis (PROMS) initiative survey.

    And we'll tell you how you can catch the video replay of the International Progressive MS Alliance global webcast on research and treatment for cognitive challenges in progressive MS.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Some of the things I'm thankful for :22

    Research Roundup: The impact of diet on MS 2:40

    Survey results show how an EBV vaccine could impact the cost of MS care in Australia 9:03

    If you're living with MS, here's your invitation to participate in the PROMS initiative online survey 12:22

    How to catch the video replay of the International Progressive MS Alliance global webcast about research and treatment for cognitive challenges in progressive MS 13:38

    Tracy Carrasco shares tips for making your home safe and accessible 15:25

    Share this episode 27:26

    Have you downloaded the free RealTalk MS app? 27:46

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/325

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    STUDY: A Low-Fat Diet Improves Fatigue in Multiple Sclerosis: Results from a Randomized Controlled Trial https://journals.sagepub.com/doi/10.1177/13524585231208330

    STUDY: Diet-Induced Changes in Functional Disability are Mediated by Fatigue in Relapsing-Remitting Multiple Sclerosis: A Secondary Analysis of the WAVES Randomized Parallel-Arm Trial https://journals.sagepub.com/doi/full/10.1177/20552173231209147

    STUDY: Exploring the Cost-Effectiveness of EBV Vaccination to Prevent Multiple Sclerosisin an Australian Setting https://jnnp.bmj.com/content/early/2023/11/02/jnnp-2023-332161

    PARTICIPATE: The PROMS Initiative Survey https://proms-initiative.org/survey-proms

    VIDEO: Cognitive Challenges in Progressive MS https://youtube.com/watch?v=bN26GrRZMts

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 325 Guest: Tracy Carrasco

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    Episode 324: Avoiding the Risks of Misdiagnosing MS with Dr. Andrew Solomon Nov 13, 2023
    Show notes

    MS is misdiagnosed too often, which leaves some people who don't have MS receiving expensive disease-modifying therapy that they don't need, while leaving other people who do have MS still not receiving treatment with a disease-modifying therapy that will slow disability progression and preserve their quality of life longer.

    My guest, Dr. Andrew Solomon, is the lead author of a paper published by a team of international experts that provides updated guidance for healthcare professionals on clinical approaches to diagnosing MS. Dr. Solomon joins me to discuss why MS can be difficult to diagnose and how that situation can be improved upon.

    We're also sharing the results of a study that showed how neurofilament light chain levels in the blood can predict MS disability progression one or two years before that worsening occurs.

    For the past five years, we've been following the path of an investigative stem cell therapy through clinical trials. We'll tell you why the company behind this therapy announced it was stopping its Phase 2 trial.

    If you're a female living with MS, we're sharing an invitation for you to participate in an important online survey about a topic that's too often overlooked.

    And we'll tell you about the results of a study that underscore the value and importance of staying on your disease-modifying therapy.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: The risks of misdiagnosing MS :22

    Results from a study show that neurofilament light chain level can predict future disability progression 1:37

    We've been following an investigative stem cell therapy since 2018. Now, the company developing this therapy is ending the Phase 2 clinical trial 4:59

    If you're a female living with MS, we have an invitation for you to participate in an important survey 7:15

    Study results underscore the importance of staying on your disease-modifying therapy 9:01

    Dr. Andrew Solomon discusses why MS is difficult to diagnose and what experts are doing about that 12:54

    Share this episode 30:41

    Have you downloaded the free RealTalk MS app? 31:02

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/324

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    STUDY: Neurofilament Light Chain Elevation and Disability Progression in Multiple Sclerosis https://jamanetwork.com/journals/jamaneurology/article-abstract/2811628

    SURVEY: Patient Education Preferences Regarding Sexual Health in Women with Multiple Sclerosis https://openredcap.nyumc.org/apps/redcap/surveys/?s=D7L4NKPWMJA98RXP

    STUDY: Impact of Adherence to Disease-Modifying Drugs in Multiple Sclerosis: A Study on Italian Real-World Data https://www.sciencedirect.com/science/article/abs/pii/S2211034823005953

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 324 Guest: Dr. Andrew Solomon

    Privacy Policy

    Episode 323: Support for Veterans with MS with Izzy Abbass and a New Project for Jamie-Lynn Sigler Nov 06, 2023
    Show notes

    More than 70,000 U.S. veterans are living with MS. That's why the only federal funding specifically earmarked for MS research comes from the U.S. Department of Defense. It's why the U.S. Department of Veterans Affairs has established the Multiple Sclerosis Centers of Excellence. And it's why, in 2019, the National MS Society established a strategic partnership with the U.S. Department of Veterans Affairs.

    This week, we're saluting the men and women of our armed services, and we're highlighting some of the resources available to U.S. veterans who are living with MS.

    Izzy Abbass, the Co-Chair of the Paralyzed Veterans of America MS Committee, joins me to discuss all the ways the PVA assists U.S. veterans in obtaining their VA benefits.

    We're also sharing the results of a study that compared the efficacy of being treated with autologous hematopoietic stem cell transplantation (aHSCT) and being treated with a high-efficacy disease-modifying therapy.

    We'll tell you about the results of a study that may begin to explain why African Americans who are living with MS often experience a more severe disease course.

    We'll give you the details about where and how to register for this Thursday's International Progressive MS Alliance's global webcast that's focused on treatments and new research for cognitive challenges in progressive MS.

    And actress Jamie-Lynn Sigler is also joining me this week to talk about her MS journey and to share some news about a new project that she has developed for people living with MS.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Resources for U.S. Veterans living with MS :22

    My guest, Izzy Abbass, explains how the PVA assists U.S. Veterans with MS in receiving their VA benefits 2:41

    A study compared the efficacy of autologous hematopoietic stem cell transplantation (aHSCT) with a high-efficacy disease-modifying therapy 11:21

    Results of a study may begin to explain why African Americans who are living with MS often experience a higher level of disease activity and faster disability progression 14:36

    This Thursday, the International Progressive MS Alliance is hosting a global webcast exploring treatments and research focused on cognitive challenges in progressive MS 17:31

    Jamie-Lynn Sigler discusses her new guide for people living with MS 19:13

    Share this episode 30:25

    Have you downloaded the free RealTalk MS app? 30:45

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/323

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    National MS Society: Resources for U.S. Veterans with Multiple Sclerosis https://nationalmssociety.org/Resources-Support/Find-Support/Veterans-with-Multiple-Sclerosis

    U.S. Department of Veteran Affairs: Multiple Sclerosis Centers of Excellence https://www.va.gov/ms

    Paralyzed Veterans of America: Multiple Sclerosis Resources https://pva.org/research-resources/multiple-sclerosis

    STUDY: Autologous Hematopoietic Stem Cell Transplantation is Superior to Alemtuzumab in Patients with Highly Active Relapsing Multiple Sclerosis and Severe Disability https://sciencedirect.com/science/article/pii/S2211034823005977

    STUDY: African American Patients with Multiple Sclerosis (MS) Have Higher Proportions of CD19+ and CD20+ B-Cell Lineage Cells in Their Cerebrospinal Fluid than White MS Patients https://sciencedirect.com/science/article/abs/pii/S2211034823005485

    REGISTER for Thursday's Global Webcast on Cognitive Challenges in Progressive MS https://msif.org/cognitive-webcast

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 323 Guests: Izzy Abbass and Jamie-Lynn Sigler

    Privacy Policy

    Episode 322: Women's Research in MS with Rachel Horne and Dr. Rhonda Voskuhl Oct 30, 2023
    Show notes

    Rachel Horne is a journalist who was diagnosed with MS in 2009. Since then, Rachel has developed a first-hand understanding of the knowledge gaps that remain when it comes to understanding the impact of MS on women's health and the impact of women's health issues on MS.

    As Rachel reviewed MS research, she also observed that when it came to acknowledging outstanding MS research, it was rare that a female researcher was singled out to receive recognition for their work. This year, Rachel took action and did something about this unbalanced situation, establishing the Rachel Horne Prize for Women's Research in MS.

    Dr. Rhonda Voskuhl has dedicated much of her career to improving our understanding of why MS affects men and women differently. Dr. Voskuhl was honored at the recent 2023 joint ECTRIMS-ACTRIMS meeting as the first recipient of the Rachel Horne Prize for Women's Research in MS.

    I met up with Rachel Horne and Dr. Rhonda Voskuhl at the 2023 joint ECTRIMS-ACTRIMS meeting, and you won't want to miss our conversation.

    We're also sharing an update on an investigational disease-modifying therapy for people with nonactive secondary progressive MS that's administered at home through a nasal spray.

    We'll tell you how artificial intelligence is changing the way that MRI scans are analyzed. And we'll explain why that's a good thing for people living with MS.

    And we're sharing the results of a study that demonstrates how obesity impacts symptom severity and quality of life for people living with MS.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: Women's Research in MS :22

    An investigational DMT for people with nonactive secondary progressive MS that's administered at home through a nasal spray 2:35

    How artificial intelligence is changing MRI analysis for people living with MS 4:50

    How obesity impacts symptom severity and quality of life in people living with MS 6:48

    Rachel Horne and Dr. Rhonda Voskuhl discuss research into how MS impacts women's health issues and how women's health issues impact their MS 9:44

    Share this episode 32:06

    Have you downloaded the free RealTalk MS app? 32:26

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/322

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    RealTalk MS ECTRIMS EXTRA with Dr. Jiwon Oh https://realtalkms.com/ectrims2301

    RealTalk MS ECTRIMS EXTRA with Dr. Anthony Feinstein https://realtalkms.com/ectrims2302

    RealTalk MS ECTRIMS EXTRA with Dr. Annette Langer-Gould https://realtalkms.com/ectrims2303

    RealTalk MS ECTRIMS EXTRA with Dr. Daniel Ontaneda https://realtalkms.com/ectrims2304

    RealTalk MS ECTRIMS EXTRA with Dr. Robert Motl https://realtalkms.com/2305

    ECTRIMS PRESENTATION: Obesity Negatively Affects Disease Progression, Cognitive Functioning, and Quality of Life in People with Multiple Sclerosis https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/146956.pdf

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 322 Guests: Rachel Horne and Dr. Rhonda Voskuhl

    Privacy Policy

    ECTRIMS EXTRA: Dr. Robert Motl Oct 28, 2023
    Show notes

    With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.

    During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Robert Motl.

    Dr. Motl is a professor in the department of Kinesiology and Nutrition, and a professor in the department of Rehabilitation Sciences at the University of Illinois Chicago. Dr. Motl is responsible for generating much of the foundational research validating the benefits of common physical activity in people living with MS.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/ectrims2305

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS ECTRIMS Extra with Dr. Robert Motl Guest: Dr. Robert Motl

    Privacy Policy

    ECTRIMS EXTRA with Dr. Daniel Ontaneda Oct 27, 2023
    Show notes

    With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.

    During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Daniel Ontaneda.

    Dr. Ontaneda is a neurologist at the Cleveland Clinic Neurological Institute's Mellen Center for Multiple Sclerosis and, while attending the ECTRIMS-ACTRIMS meeting, Dr. Ontaneda co-chaired a scientific session on artificial intelligence in MS.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/ectrims2304

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS ECTRIMS Extra with Dr. Daniel Ontaneda Guest: Dr. Daniel Ontaneda

    Privacy Policy

    ECTRIMS EXTRA: Dr. Annette Langer-Gould Oct 26, 2023
    Show notes

    With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.

    During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Annette Langer-Gould.

    Dr. Langer-Gould is an MS Specialist at Kaiser-Permanente, and while at the ECTRIMS-ACTRIMS meeting, she co-chaired a session on MS and comorbidities.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/ectrims2303

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS ECTRIMS Extra with Dr. Annette Langer-Gould Guest: Dr. Annette Langer-Gould

    Privacy Policy

    ECTRIMS EXTRA with Dr. Anthony Feinstein Oct 25, 2023
    Show notes

    With more than 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.

    During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Anthony Feinstein.

    Dr. Feinstein is a Professor of Psychiatry at the University of Toronto, and his expertise is in the neuropsychiatry of multiple sclerosis. Dr. Feinstein has studied behavioral disorders in people living with MS for 26 years. He also maintains a busy clinical practice in which over 80% of the patients are people living with MS.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/ectrims2302

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS ECTRIMS Extra with Dr. Anthony Feinstein Guest: Dr. Anthony Feinstein

    Privacy Policy

    Episode 321: More from the 2023 Joint ECTRIMS-ACTRIMS Meeting with Dr. Helen Tremlett Oct 23, 2023
    Show notes

    This week, we're sharing more from the 2023 joint ECTRIMS (European Committee for Treatment and Research in Multiple Sclerosis) and ACTRIMS (Americas Committee for Treatment and Research in Multiple Sclerosis) annual meeting.

    What if we could identify MS before anyone experienced any of the typical clinical symptoms? Would treating that person with a high-efficacy disease-modifying therapy prevent the clinical symptoms of MS from even developing? Those are the questions that make the study of the MS prodrome so fascinating and important. At the joint ECTRIMS-ACTRIMS meeting, I met up with one of the foremost experts on the prodromal phase of MS, Dr. Helen Tremlett, who shared an update on what she's continuing to learn about the MS prodrome.

    We'll also tell you about Dr. Jeffrey Huang's work in developing an experimental drug that may stop MS progression and stimulate remyelination.

    We're sharing a report from Deloitte that analyzes the economic impact of the pandemic gap for people living with MS in Canada.

    We'll tell you about the results of a study that show lower-efficacy disease-modifying therapies can lead to faster disability accumulation.

    You'll hear about the work being done to deliver Ocrevus in a subcutaneous injection.

    And we'll tell you what happened that caused a study focused on stopping your DMT if your MS was stable to be called off.

    I had the good fortune of speaking with several research presenters at the joint ECTRIMS-ACTRIMS meeting, and I'll be releasing those bonus ECTRIMS Extra Conversations all week long. It's an opportunity for you to listen in to my conversations with some of the top MS research and clinical experts in the world. Be sure to look for these conversations throughout this week!

    We have a lot to talk about! Are you ready for RealTalk MS??!

    This Week: More from the largest MS research conference in the world :22

    Don't miss ECTRIMS Extra Conversations all week long!

    Georgetown University researchers develop a drug that may stop MS progression and stimulate remyelination 1:20

    The cost of the pandemic gap for people living with MS in Canada 3:10

    Study shows that lower-efficacy DMTs can lead to faster disability accumulation 7:12

    Clinical trial demonstrates that subcutaneous formulation of Ocrevus is safe and effective 10:47

    Your MS stable, no relapses for at least 5 years. Can you stop your DMT? 12:33

    Dr. Helen Tremlett explains how understanding the MS prodrome can change the future of MS treatment 15:49

    Share this episode 21:26

    Have you downloaded the free RealTalk MS app? 21:47

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/321

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    REPORT: The Socioeconomic Cost of, and Impact of, COVID-19 on Multiple Sclerosis in Canada https://mscanada.ca/sites/default/files/documents/2023-10/deloitte-covid-19-impact-english.pdf

    ECTRIMS PRESENTATION: Subcutaneous Ocrelizumab in Patients with Multiple Sclerosis: Results of the Phase 1b Dose-Finding OCARINA 1 Study https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/148349.pdf

    ECTRIMS PRESENTATION: Discontinuation of First-Line Disease-Modifying Therapy in Stable MS (DOT-MS): An Early-Terminated Multicenter Randomized Controlled Trial https://s3.eu-central-1.amazonaws.com/m-anage.com.storage.congrex/abstracts_ectrims2023/146784.pdf

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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    RealTalk MS Episode 321 Guest: Dr. Helen Tremlett

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    ECTRIMS EXTRA with Dr. Jiwon Oh Oct 19, 2023
    Show notes

    With about 9,000 MS researchers and clinicians in attendance, the 2023 combined ECTRIMS-ACTRIMS meeting in Milan was the largest MS research conference in the world.

    During the meeting, I had an opportunity to talk with some of the best and brightest minds in MS research and clinical practice. This is your invitation to listen in on my ECTRIMS EXTRA conversation with Dr. Jiwon Oh.

    Dr. Oh is a neurologist, scientist, and the Medical Director of the Barlo Multiple Sclerosis Program at St. Michael's Hospital in Toronto, Canada.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/ectrims2301

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.com Phone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

    Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

    Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

    Give RealTalk MS a rating and review http://www.realtalkms.com/review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS ECTRIMS EXTRA with Dr. Jiwon Oh Guest: Dr. Jiwon Oh

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