Show notes
Evidence shows that MS can affect members of minority communities differently. But how does that impact the total number of people who are living with MS? For multiple reasons, it's a tricky problem to solve. Yet, it's important that the numbers reflect everyone living with MS and no one is left behind.
This week, the National MS Society's Executive Vice-President of Research, Dr. Bruce Bebo, is on hand to walk us through the just-published results of a study that provides a more granular estimate of the prevalence of MS in the United States, analyzing it by race, ethnicity, age, sex, and geographic region.
We're also reminding you that this is the final week for you to spend a quick couple of minutes taking the RealTalk MS listener survey...and, maybe, win a $100 Amazon gift card.
On June 14th and 15th, the National MS Society is hosting the virtual 2023 Black MS Experience Summit. And we're sharing all the registration info.
Can Do MS is hosting a day-long in-person and virtual More About MS program on June 2. We'll tell you how you can register for this free event.
We'll give you the details about the latest advocacy win for people living with MS.
And we'll tell you about the new MS Society in the UAE.
We're sharing the results of a study that analyzed the benefits of virtual reality therapy for improving balance among people living with MS.
And we'll tell you about the somewhat puzzling results of a study of the incidence of MS in the U.K.
We have a lot to talk about! Are you ready for RealTalk MS??!
Next Week: Episode 300 (Yikes!) :22
FINAL WEEK: Take the RealTalk MS listener survey...you might win a $100 Amazon gift card! 1:36
This Week: A deep dive into the prevalence of MS in the United States 2:31
Registration info for the 2023 Black MS Experience Summit 3:12
Registration info for the Can Do MS More About MS Program 4:12
An advocacy win! 6:13
An MS Society in the UAE 10:40
STUDY: Virtual reality therapy is shown to improve balance for people living with MS 12:34
STUDY: The incidence of MS in the U.K. has not changed for almost two decades 16:25
Dr. Bruce Bebo walks us through anewly-published study that takes a granular look at the prevalence of MS in the United States 21:09
Share this episode 34:05
Please remember to take our listener survey! 34:26
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
Take the RealTalk MS Listener Survey https://realtalkms.com/survey
STUDY: Population-Based Estimates for the Prevalence of Multiple Sclerosis in the United States by Race, Ethnicity, Age, Sex, and Geographic Region https://jamanetwork.com/journals/jamaneurology/fullarticle/2805038
REGISTER for the National MS Society's 2023 Black MS Experience Summit https://nmss.6connex.com/event/BlackMSExperienceSummit/login
REGISTER for the Can Do MS More About MS Program https://cando-ms.org/more-about-ms-registration
Advocate For Change -- Become an MS Activist https://nationalmssociety.org/advocacy
The National MS Society in the UAE https://www.nationalmssociety.ae
STUDY: Virtual Reality-Based Therapy Improves Balance and Reduces Fear of Falling in Patients with Multiple Sclerosis: A Systematic Review and Meta-Analysis of Randomized Controlled Studies https://jneuroehgrehab.biomedical.com/articles/10.1186/s12984-023-01174-z
STUDY: Incidence, Prevalence, and Co-Occurrence of Autoimmune Disorders Over Time and by Age, Sex, and Socioeconomic Status: A Population-Based Cohort Study of 22 Million Individuals in the U.K. https://thelancet.com/journals/lancet/article/PIIS0140-6736(23)00457-9/fulltext
Take the RealTalk MS Listener Survey https://realtalkms.com/survey
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RealTalk MS Episode 299 Guests: Dr. Bruce Bebo
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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