At Nemours Children’s Hospital, Florida, associates (staff) and patients celebrated “Well Beyond Medicine Day" with some very honored guests. These VIPs stopped by the podcast to talk about osteogenesis imperfecta (OI), a genetic disease in which bones fracture (break) easily, often with no obvious cause or minimal injury.
Detroit resident Stephen Sheehy is a remarkable man who answered the Nemours Children's Health call for an adult male with OI to be part of the Nemours Children's "Reflections” ad campaign. Already lined up was 4-year-old Nemours OI patient MJ Strickland. Guest host Cheryl Munn boarded our mobile Well Beyond Medicine podcast truck to talk with Steve, MJ’s mom Alex Rice, and the leader of MJ’s care team, Nemours orthopedic surgeon Dr. Alec Stall about OI: how it’s diagnosed and treated today versus when Steve was growing up in the ’70s and ’80s; barriers faced and overcome; the importance of community connection; and how Steve became a model for Nemours.
Host: Cheryl Munn
Producer: Carol Vassar
Stephen Sheehy, husband, father and adult living with OI
Alex Rice, mom to Nemours Children's Health OI patient MJ
Alec Stall, MD, Vice Chair, Department of Orthopaedics and Orthopaedic Surgeon, Nemours Children's Hospital, Florida
Thanks for tuning in today! Please visit NemoursWellBeyond.org to catch all our episodes and sign up for our monthly newsletter. You can also use the voicemail feature on the website to leave a message with your episode ideas or questions — you just might be featured on an upcoming episode of the show.
Subscribe, review or let your voice be heard at NemoursWellBeyond.org.