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**The Parkinson’s Podcast**

This podcast is for people with Parkinson’s, Parkinson’s care partners and Parkinson’s providers. You’ll hear from movement disorder specialists, neurologists, psychiatrists, physical and occupational therapists, complementary therapists, people with Parkinson’s and Parkinson’s care partners on how to live well with Parkinson’s today.

Latest Episodes:

Living Well with Parkinson's and Re-defining Identity with Jan and Bill Grimes Feb 07, 2023

Show notes

In this episode, Jan and her husband, Bill Grimes, share:

How their life has changed since Jan got diagnosed with Parkinson's
How Jan redefined her identity as a pianist and full-time LSU faculty when symptom severity started to increase, and she chose to retire
How Jan sees Parkinson's as a blessing
Her newly defined hobbies and passions, including sewing and poetry
How Jan and Bill work together as a partnership to navigate Parkinson's

and more! We hope you enjoy it!

Visit the blog post for this episode here to find mentioned links, related resources, the video recording, and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Parkinson's Disease Psychosis (Hallucinations, Delusions, and Illusions): Part 2 with Dr. Dylan Wint Jan 31, 2023

Show notes

In this episode, Dr. Dylan Wint, Director of the Cleveland Clinic Center for Brain Health and a board-certified physician in Neurology, Psychiatry, Behavioral Neurology, and Behavioral Psychiatry, discusses:

The common misunderstanding that psychosis is always connected to mental health conditions like schizophrenia and bipolar disorder
The connection between sleep and psychosis
Talking to your neurologist about psychotic symptoms
Pharmacological and non-pharmacological treatments
The relationship between psychosis and dementia
Reducing the fear of psychosis
How to calm your spouse/partner during a delusion
Tracking mitigating factors that may contribute to psychotic episodes
Common Q & A

and more! We hope you enjoy!

Visit the blog post for this episode here to find related resources, the video recording, and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Parkinson's Disease Psychosis (Hallucinations, Delusions, and Illusions): Part 1 with Dr. Dylan Wint Jan 24, 2023

Show notes

The definition of Parkinson's disease psychosis and what causes it
The difference between complex, simple, insightful, and non-insightful hallucinations
Common types of delusions and hallucinations in Parkinson's
Risk factors for Parkinson's disease psychosis
The relationship between medications and Parkinson's disease psychosis
The prevalence of Parkinson's disease psychosis
What to do when someone is experiencing psychosis
Things to help reduce psychotic episodes
When to seek help for psychotic symptoms

and more! We hope you enjoy!

Visit the blog post for this episode here to find related resources, the video recording, and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Parkinson's is Hard: Part 2 Jan 17, 2023

Show notes

In this episode, the Living with Parkinson's Meetup panelists discuss:

The importance of self-compassion
Asking for help
Symptoms worsening during menstruation
Finding things that reinvigorate you
Suicidal ideation
Negative self-talk, mindfulness, and breathing

and more! We hope you enjoy!

Visit the blog post for this episode here to find related resources, the video recording, and more.

Parkinson's is Hard: Part 1 Jan 10, 2023

Show notes

In this episode, the Living with Parkinson's Meetup panelists discuss:

The fact that Parkinson's does progress, and treatments and techniques begin to lose their efficacy
The need to slow down and do less due to Parkinson's symptoms
The importance and art of pivoting, a necessary skill when you have a progressive disease
The urge to talk less and begin to isolate when symptoms worsen
The importance of not comparing yourself to those around you, as difficult as it is
Learning self-care

and more! We hope you enjoy!

Visit the blog post for this episode here to find related resources and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Deep Brain Stimulation (DBS), ON and OFF times, and Getting Through It with Heather Kennedy Jan 03, 2023

Show notes

In this episode, Heather Kennedy, a person with Parkinson's who has been living with the diagnosis for 12 years discusses:

Three articles she's recently written called "Gifted", "Poison for Breakfast", and "Sweating it Out"
Her journey with Deep Brain Stimulation (DBS)
The difficulty of unpredictable ON and OFF times in Parkinson's and how those times impact relationships
How her views have changed since the initial days of her diagnosis
The difficulty of discerning between symptoms that are due to Parkinson's, medications, or something else entirely
The burden of explaining Parkinson's to those who don't understand
The importance of having compassion for people with Parkinson's and nurturing that compassion in all areas of life

and more! We hope you enjoy!

Visit the blog post for this episode here to find related resources, the video recording, and more.

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

The Value of Community, Meaning, and Purpose in Parkinson's Oct 11, 2022

Show notes

In this episode, Living with Parkinson's Meetup panelists, Sree Sripathy, Kevin Kwok, Tom Palizzi, Kat Hill, Robynn Moraites, and Heather Kennedy as well as guest Bradley McDaniels discuss:

The research connecting loneliness and quality of life
Common reasons you might become lonely
How to find meaning and community
The feeling of wanting to "give up" with Parkinson's
Ways to get involved
How to get connected in rural communities
What to do when you try to connect and it doesn't work
The importance of the quality of your relationships

and more! We hope you enjoy!

For the video recording, associated resources, and more visit: http://davisphinneyfoundation.org/podcast-recording-the-value-of-meaning-purpose-and-community-in-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Managing Motor Symptoms During OFF Times in Parkinson's Oct 04, 2022

Show notes

In this episode, panelists Yasar Torres-Yaghi (movement disorder specialist), Amanda Craig (occupational therapist), and Joe Van Koeverden (person with Parkinson's), discuss how to manage motor symptoms during OFF times in Parkinson's. In particular they discuss:

What is an OFF time?
Distinguishing OFF times from other "feelings"
The impact of stress on OFF times
How to adapt your home for OFF times
Optimizing your medications
Non-motor symptoms associated with OFF times
Rescue meds/rescue therapy
Rational polypharmacy
On demand and as needed medications
Planning your schedule around OFF times
Having a realistic expectations of tasks
Taking brain breaks
Can exercise reduce ON times?
Do endorphins have anything to do with OFF times?

and more! We hope you enjoy!

For related resources, the video recording of this interview, and more visit: http://davisphinneyfoundation.org/podcast-recording-managing-motor-symptoms-during-off-times

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Freezing of Gait, Postural Instability, and Exercise in Parkinson's Sep 27, 2022

Show notes

In this episode, Dr. Jay Alberts discusses:

The connection between cognition and freezing of gait
What you can do to improve your cognitive and physical skills
Music's impact on walking and freezing of gait
Deep brain stimulation
The importance of managing postural instability and freezing of gait
Assistive devices
LSVT Big programming
Dizziness and postural instability
Festination of gait
Laser canes & the importance of physical therapy
Suggestions for a hunched back
Strength training
Retraining your brain to address freezing
The "right" amount of exercise
Causes of increased fall risk
Boxing
Stairs and freezing of gait
Anxiety and freezing of gait

For additional resources visit the accompanying blog post for this episode: http://davisphinneyfoundation.org/podcast-recording-freezing-of-gait-postural-instability-and-exercise-in-parkinsons

Are you loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

What Not to Say to a Person with Parkinson's Sep 20, 2022

Show notes

In this episode, Living with Parkinson's Meetup (formerly the YOPD Council) panelists discuss:

Common hurtful phrases they hear from people without Parkinson's including, "I know how you feel" and "everybody's got something"
The importance of "listening for the love"
The fact that many hurtful comments come from the people we love and can often stem from misunderstanding
How to use hurtful comments as a teaching moment
Communicating to others that Parkinson's doesn't always have to be the topic of conversation
Dealing with people who try to ascribe meaning to their Parkinson's, who don't understand the non-motor symptoms they struggle with, and who misinterpret going on disability
Being asked to "stop shaking" during medical appointments
When and how to share your Parkinson's diagnosis with others
How to explain the "inconsistencies" with Parkinson's
Their favorite things that people without Parkinson's have said