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    Business

    SRNA Soundwaves

    SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

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    Copyright: © TMA

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    Latest Episodes:
    Ask the Expert 711. The Role of CDC in AFM Surveillance Jul 24, 2019
    Show notes

    The TMA is joined by Dr. Janell Routh and Dr. Manisha Patel from the Centers for Disease Control and Prevention, as well as Dr. Benjamin Greenberg from University of Texas Southwestern Medical Center, to discuss the role of CDC in Acute Flaccid Myelitis (AFM) surveillance. The history of the CDC’s response to AFM is discussed. The medical experts explain the difference between polio and AFM. The experts also give a detailed explanation for the current state of reporting of AFM to CDC. A new consult portal was recently developed by the TMA in collaboration with CDC and physicians at UTSW and Johns Hopkins, and more information is given on this new tool. The CDC officials also discuss plans for follow-up of AFM patients. The experts give an overview of the current research being conducted on AFM and how it will inform future treatment.


    Ask the Expert 710. Managing Neuropathic Pain and Paresthesia Jun 19, 2019
    Show notes

    Managing Neuropathic Pain and Paresthesia


    Ask the Expert 709. The Q Study — Q&A Jun 19, 2019
    Show notes

    The latest episode of the Ask the Expert Podcast Series


    Ask the Expert 708. Quality of Life: Adaptive Driving May 24, 2019
    Show notes

    Quality of Life: Adaptive Driving


    Ask the Expert 707. Managing Pediatric Urological Issues May 22, 2019
    Show notes

    Managing Pediatric Urological Issues


    Ask the Expert 706. Parent's Perspective on AFM May 16, 2019
    Show notes

    Parent's Perspective on AFM


    Ask the Expert 705. Quality of Life: Mindset and Healthy Habits Apr 24, 2019
    Show notes

    Quality of Life: Mindset and Healthy Habits


    Ask the Expert 704. Managing Adult Urological Issues Apr 24, 2019
    Show notes

    Managing Adult Urological Issues


    Ask the Expert 703. Relapsing vs Monophasic Rare Neuroimmune Disorders Apr 12, 2019
    Show notes

    Relapsing vs Monophasic Rare Neuroimmune Disorders


    Ask the Expert 702. Pediatric MOG Antibody Associated Disease and ADEM Mar 20, 2019
    Show notes

    Pediatric MOG Antibody Associated Disease and ADEM


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