SRNA Soundwaves

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**SRNA Soundwaves**

SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

Latest Episodes:

207. The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases Oct 13, 2014

Show notes

The Role of Pharmaceutical Companies in Drug Development for Rare Neuroimmune Diseases

206. Alternative Therapies and Lifestyle Management after TM, NMO and ADEM Sep 16, 2014

Show notes

Alternative Therapies and Lifestyle Management after TM, NMO and ADEM

205. Understanding Clinical Trials in NMO and TM Aug 18, 2014

Show notes

Understanding Clinical Trials in NMO and TM

204. Understanding Pediatric NMO, ADEM and TM Jul 18, 2014

Show notes

The podcast on “Understanding Pediatric NMO, ADEM and TM” as part of TMA's Ask the Expert podcast series was held on July 18, 2014 a 4:30 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from University of Texas Southwestern and Dr. Teri Schreiner from University of Colorado School of Medicine and Children's Hospital Colorado. Over 30 people dialed-in to listen to the Live Podcast, which was moderated by our guest moderator, Samuel Hughes. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue & Cognition, Spasticity Management, and more to address your questions and concerns.

203. The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury Jun 16, 2014

Show notes

The podcast on “The Role of Exercise and Rehabilitation in Non-Traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on June 16, 2014 a 12 pm EST. The physician-experts on the panel were Dr. Becker from the International Neurorehabilitation Institute, Dr. Farrar from University of Texas Southwestern and Dr. Zackowski from Johns Hopkins Medicine. Over 50 people dialed-in to listen to the Live Podcast, which was moderated by the Transverse Myelitis Association's Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Spasticity Management, and more to address your questions and concerns.

202. Understanding & Managing Neuropathic Pain May 10, 2014

Show notes

The podcast on “Understanding and Managing Neuropathic Pain” as part of TMA's Ask the Expert podcast series was held on May 9, 2014 a 1 pm EST. The physician-experts on the panel were Dr. Newsome from The Johns Hopkins Transverse Myelitis Center and Dr. Allen DeSena from University of Texas Southwestern. Over 40 people dialed-in to listen to the Live Podcast, which was moderated by our guest moderator, Samuel Hughes. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Spasticity Management, and more to address your questions and concerns.

201. Understanding Autoimmunity & Rare Neuroimmune Disorders Mar 25, 2014

Show notes

The podcast on “Understanding Autoimmunity and Rare Neuroimmune Disorders” as part of TMA's Ask the Expert podcast series was held on March 25, 2014 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Carlos Pardo from Johns Hopkins Medicine. Over 50 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.

103. Children with rare neuroimmune disorders: understanding medical, educational and social considerations Dec 17, 2013

Show notes

The podcast on “Children with rare neuroimmune disorders: understanding medical, educational and social considerations” as part of TMA's Ask the Expert podcast series was held on December 16, 2013 a 2 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Lana Harder from y. Over 20 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 55 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.

102. Understanding Repair and Recovery After non-traumatic Spinal Cord Injury Sep 17, 2013

Show notes

The podcast on “Understanding Repair and Recovery After non-traumatic Spinal Cord Injury” as part of TMA's Ask the Expert podcast series was held on September 16, 2013 a 1 pm EST. The physician-experts on the panel were Dr. Benjamin Greenberg from UTSW and Dr. Michael Levy from Johns Hopkins University . Over 75 people dialed-in to listen to the Live Podcast, which was moderated by TMA Executive Director, Chitra Krishnan. Thank you for submitting your questions in advance as well as sharing your questions on the TMA Facebook page. During the 45 minutes of the podcast, we were able to address most of the questions and the focus of the questions was determined by those that received the most votes by our community. We are planning on future podcasts on topics of Fatigue and Cognition, Pain Management, Spasticity Management, and more to address your questions and concerns.

101. Ask the Expert Podcast in Collaboration with RGI Feb 08, 2013

Show notes

The Transverse Myelitis Association collaborated with Rare Genomics Institute to host an “Ask the Experts Podcast”. Rare Genomics Institiute (RGI) is a non-profit organization that gives families afflicted by rare genetic disorders access to genome sequencing and expert analysis. RGI helps patients with orphan diseases initiate and fund personalized research projects through a dedicated crowd-funding platform and a highly selective network of leading academic scientists and commercial institutions across the globe.Our first Ask the Expert Podcast featuring Dr. Benjamin Greenberg and Dr. Allen DeSena from the University of Texas Southwestern in Dallas, moderated by RGI's president, Dr. Jimmy Lin was held on February 7, 2013 at 7 pm EST.The podcast started with a 30-minute discussion of recent developments in technology applicable to rare diseases. Dr. Cathleen Lutz from The Jackson Laboratory discussed how mice are used in scientific research as models for developments in genomics and b

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