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    SRNA Soundwaves

    SRNA Soundwaves is a podcast network that brings together expert insight, research updates, and experiences from the rare neuroimmune disorder community. Through multiple series, SRNA Soundwaves connects those living with rare neuroimmune disorders, caregivers, clinicians, and researchers with trusted information and meaningful conversations that educate, empower, and inspire. Topics include acute disseminated encephalomyelitis (ADEM), acute flaccid myelitis (AFM), MOG antibody disease (MOGAD), neuromyelitis optica spectrum disorder (NMOSD), optic neuritis (ON), and transverse myelitis (TM).

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    Latest Episodes:
    Ask the Expert 910. Acute Disseminated Encephalomyelitis | Diagnosis and Treatment Guidelines Oct 21, 2021
    Show notes

    Krissy Dilger of SRNA was joined by Dr. Farrah Mateen and Dr. Cindy Wang for an Ask the Expert Podcast on "Acute Disseminated Encephalomyelitis (ADEM): Diagnosis and Treatment Guidelines." The experts begin by providing an overview of ADEM, including a brief definition, signs and symptoms in the acute phase, and potential causes. The physicians then discuss diagnostic tests and how other disorders are ruled out. They talk about acute treatments and long-term care for people with ADEM. Finally, the experts provide information on research being conducted on ADEM.

    ABCs of NMOSD 208. Navigating Treatment Options Sep 17, 2021
    Show notes

    Dr. Hesham Abboud joined Dr. Chelsey Judge of The Connor B. Judge Foundation for an ABCs of NMOSD podcast titled, "Navigating Treatment Options." Dr. Abboud began with an overview of treatments for NMOSD patients experiencing an acute relapse and the timing for introducing these treatments, as well as potential side effects. He talked about factors to consider during the Covid-19 pandemic and strategies for navigating costs and medical insurance. Dr. Abboud outlined each FDA-approved and off-label treatment for relapse prevention and maintenance, possible risks and side effects, potential differences in insurance coverage, and a clinical pharmacist’s role in the selection process. Finally, Dr. Abboud described considerations for a woman who's considering family planning and how to set up co-treatment with an academic or neuroimmunology center.

    ABCs of NMOSD 207. Pediatric NMOSD | Part 1 Sep 01, 2021
    Show notes

    Rebecca Whitney of SRNA was joined by Dr. Jayne Ness and Dr. Silvia Tenembaum for an ABCs of NMOSD podcast titled, "Pediatric NMOSD - History and Diagnosis, Part 1." The experts begin by explaining the history of pediatric NMOSD, including the first known cases and a research paper that was published on the subject. They then discuss how common NMOSD is in pediatric patients and the diagnostic tests used for NMOSD. The experts compare NMOSD and MOGAD in children, including antibody levels, disease course, and treatment protocol. Finally, the experts provide information on differential diagnoses and prognosis.

    Ask the Expert Bonus Track | COVID-19 Vaccines Part VI with Dr. Greenberg Aug 19, 2021
    Show notes

    In this Part VI of our Q&A series, Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders.

    Ask the Expert Bonus Track | COVID-19 Vaccines Part V with Dr. Greenberg Aug 16, 2021
    Show notes

    In this Part V of our Q&A series, Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders.

    Ask the Expert Bonus Track | COVID-19 Vaccines Part IV with Dr. Greenberg Aug 16, 2021
    Show notes

    In this Part IV of our Q&A series, Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders.

    Ask the Expert Bonus Track | COVID-19 Vaccines Part III with Dr. Greenberg Aug 16, 2021
    Show notes

    In this Part III of our Q&A series, Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders.

    Ask the Expert Bonus Track | COVID-19 Vaccines Part II with Dr. Greenberg Aug 16, 2021
    Show notes

    In this Part II of our Q&A series, Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders.

    Ask the Expert Bonus Track | COVID-19 Vaccines Part I with Dr. Greenberg Aug 16, 2021
    Show notes

    In this first part of our Q&A series, Dr. Benjamin M. Greenberg, member of SRNA’s Board of Directors and SRNA’s Medical and Scientific Council, discussed COVID-19 vaccinations and the implications for those with rare neuroimmune disorders.

    Ask the Expert 909. Transverse Myelitis | Symptom Management Aug 10, 2021
    Show notes

    Krissy Dilger of SRNA was joined by Dr. Ram Narayan and Dr. Elena Grebenciucova for an Ask the Expert podcast entitled, "Transverse Myelitis: Symptom Management." The experts discuss medications and other treatment options for symptoms such as pain, spasticity, fatigue, and more. They talk about the different healthcare providers who form a team to help a person with TM receive comprehensive care. Finally, the experts discuss vaccinations and whether the COVID-19 vaccine is recommended for people with TM.

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