RealTalk MS

Latest Episodes:

Episode 255: Aging With MS with Dr. John Corboy Jul 18, 2022

Show notes

In last week's episode, we looked at talking with kids about MS. This week, we'll visit the opposite end of the spectrum as Dr. John Corboy discusses some of the things you'll want to think about as you age with MS.

Dr. Corboy is a professor of neurology at the University of Colorado School of Medicine, and the Director of the Rocky Mountain Multiple Sclerosis Center at the University of Colorado. Dr. Corboy is also the Principal Investigator in a recently completed clinical trial that focused on the effects of stopping MS disease-modifying medications in older people living with MS.

We're also sharing the details of a new legislative proposal designed to help manage the skyrocketing cost of prescription drugs.

We'll invite you to be among the first people to review a just-published paper that focuses on how identifying the prodromal phase of MS may lead to disease prevention.

We'll share the evidence from a study that shows how lifestyle choices like choosing not to smoke, engaging in physical activity, and eating a healthy diet can actually impact MS disease progression.

And we'll share some shocking news about how much MS disease-modifying medication is wasted.

We have a lot to talk about! Are you ready for RealTalk MS??!

Aging and MS :22

Revised legislative proposals to better manage the high cost of MS prescription medications 1:28

An important paper focused on how identifying the prodromal phase of MS can lead to disease progression 3:54

Lifestyle factors in MS disability progression 5:53

The shocking reality of DMT waste 9:09

Dr. John Corboy discusses aging and MS and the impact of stopping MS disease-modifying medications in older adults living with MS 13:33

Share this episode 33:17

Download the RealTalk MS app for your iOS or Android device 33:37

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

RealTalk MS Episode 246: The High Cost of MS Medications with Steffany Stern https://realtalkms.com/246

National MS Society Applauds Revised Legislative Proposals to Lower the Cost of Prescription Drugs for People Affected by MS https://nationalmssociety.org/About-the-Society/News/The-National-Multiple-Sclerosis-Society-Applauds-R

National MS Society Advocacy https://nationalmssociety.org/advocacy

From the Prodromal Stage of Multiple Sclerosis to Disease Prevention https://www.nature.com/articles/s41582-022-00686-x

STUDY: Lifestyle Factors in Multiple Sclerosis Disability Progression and Silent Brain Damage: A Cross-Sectional Study https://www.msard-journal.com/article/s2211-0348(22)00522-3/fulltext#%20

STUDY: Hiding in Plain Sight: The Magnitude of Unused Disease Modifying Therapies in Multiple Sclerosis and Strategies for Reducing the Economic Burden of Care https://pubmed.ncbi.nlm.nih.gov/35661567/

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RealTalk MS Episode 255 Guest: Dr. John Corboy

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 254: Talking to Kids About MS with Erin Martin Jul 11, 2022

Show notes

Whether we adults admit it or not, kids see everything. That includes seeing a parent or other family member who's living with MS. And because kids don't have an understanding of neurological conditions, they use their imaginations to fill in the blanks. That can very quickly take them down a rabbit-hole that's far scarier than the reality of living with MS. So, when do you talk to your kids about MS? And what do you say?

Licensed social worker and behavioral specialist Erin Martin joins me to talk about talking to kids about your MS.

If you're living with MS and you still smoke, we're sharing results of a study that you may want to carefully consider.

We'll also share the results of two different studies that might help inform your COVID-19 strategy if you're on a b-cell depleting disease-modifying therapy.

We'll let you know how you can catch the video replay of an excellent webinar presented by the International Progressive MS Alliance.

We'll share the details about how a group of international experts discovered a method for measuring remyelinated MS lesions (And we'll tell you why that's become important right now)

We'll also share some encouraging results of a study that looked at the impact of estriol and Copaxone on women living with MS.

We have a lot to talk about! Are you ready for RealTalk MS??!

Talking to kids about MS :22

Smoking is shown to affect MS progression 1:29

COVID-19 vaccines, breakthrough infections, and Evusheld 3:44

Catch the video replay of the International Progressive MS Alliance Webinar 8:31

A team of international experts discover a way to measure myelin repair 9:08

Combination of Estriol plus Copaxone is shown to reduce neurofilament light chain levels 11:57

Behavioral specialist Erin Martin discusses talking about MS with your kids 14:27

Share this episode 29:03

Download the RealTalk MS app for your iOS or Android device 29:24

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Just copy this link & paste it into your text or email: https://realtalkms.com/254

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Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: The Effect of Smoking on Long-Term Grey Matter Atrophy and Clinical Disability in Patients with Relapsing-Remitting Multiple Sclerosis https://nn.neurology.org/content/9/5/e200008

STUDY: Tixagevimab and Cligavimab (Evusheld) Boost Antibody Levels to SARS-COV2 in Patients with Multiple Sclerosis on B-Cell Depleters https://sciencedirect.com/science/article/pii/S2211034822004163

VIDEO: Solving the Mystery of Progression: The Key to New Treatments for Progressive MS https://youtube.com/watch?v=U5sm54HSBpY

STUDY: A New Advanced MRI Biomarker for Remyelinated Lesions in Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1002/ana.26441

STUDY: Decreased Neurofilament Light Chain Levels in Estriol-Treated Multiple Sclerosis https://onlinelibrary.wiley.com/doi/10.1002/acn3.51622

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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RealTalk MS Episode 254 Guest: Erin Martin

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 253: Managing Grief and MS with Dr. Rosalind Kalb Jul 04, 2022

Show notes

Everybody remembers the day -- sometimes, even the moment -- when they were diagnosed with MS. And in that moment, you may not have known very much about living with MS, but you probably felt like everything was about to change.

One of the most common emotional responses to MS is grief. Joining me to talk about the relationship between grief and MS, as well as share some specific steps and strategies that you can take to process and manage grief in a healthy way is clinical psychologist Dr. Rosalind Kalb.

Dr. Kalb has specialized in MS care and education for almost 40 years. She's a past Vice-President of the Professional Resource Center at the National MS Society. And currently, Dr. Kalb is the Senior Programs Consultant for Can Do MS.

We'll also share the details of the experiments conducted by two German scientists that may shed important light on the process of myelin repair.

We'll tell you what a research team learned from the largest MS fatigue study ever conducted in the United Kingdom.

We'll highlight some of the changes to the updated guidelines for diagnosing and treating MS in the U.K.

And we'll share the results of an extension study of Kesimpta presented last week at the annual meeting of the European Academy of Neurology.

We have a lot to talk about! Are you ready for RealTalk MS??!

Grief and MS :22

Scientists may have discovered two proteins that stop myelin repair 1:26

Researchers share results of the largest MS fatigue study in the U.K. 3:39

Updated guidelines for diagnosing and treating MS in the U.K. 6:31

Kesimpta extension study participants show no evidence of disease activity after 4 years 8:57

Dr. Rosalind Kalb discusses grief and MS 11:42

Share this episode 30:03

Download the RealTalk MS app for your iOS or Android device 30:24

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Just copy this link & paste it into your text or email: https://realtalkms.com/253

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

The Extracellular Matrix Proteins Tenascin-C and Tenascin-R Retard Oligodendrocyte Precursor Maturation and Myelin Regeneration in Cuprizone-Induced Long-Term Demyelination Animal Model https://www.mdpi.com/2073-4409/11/11/1773/htm

Fatigue in Multiple Sclerosis: A UK MS-Register Based Study https://sciencedirect.com/science/article/pii/S2211034822004655

Updated NICE Guidelines -- Multiple Sclerosis in Adults: Management https://nice.org.uk/guidance/ng220

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 253 Guest: Dr. Rosalind Kalb

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 252: The Journey from MS Diagnosis to Podcaster to Patients Getting Paid with Kathy Reagan Young Jun 27, 2022

Show notes

When I began thinking about launching RealTalk MS, one of the first things I did was listen to other podcasts for the MS community. Five years ago, there weren't nearly as many podcasts focused on MS as there are today, but one of the podcasts I listened to was FUMS. And after listening to that podcast, I remember feeling inspired about moving forward with my plans for launching this podcast.

Joining me to talk about her journey from being diagnosed with MS to launching her podcast and learning how patients get paid is the voice and energy behind the FUMS podcast, Kathy Reagan Young.

We're also talking about a new venture from France, aimed at myelin repair.

We'll share the details of a treatment for urinary incontinence for people living with MS that will soon be available in European Union countries.

And we'll tell you about the first robotic exoskeleton that's received FDA clearance for use by people with MS. (And we'll tell you why that's going to make a real difference for some people living with progressive MS!)

We have a lot to talk about! Are you ready for RealTalk MS??!

250 Episodes -- 1.500,000 Downloads and counting! :22

FIND Therapeutics and SATT Connectus collaborate on myelin repair 2:14

Dysport receives favorable opinion from the EU 3:28

FDA grants clearance for robotic exoskeleton use by people with MS 6:09

Kathy Reagan Young's journey from diagnosis to giving MS the finger and learning how patients get paid 8:45

Share this episode 31:12

Download the RealTalk MS app for your iOS or Android device 31:32

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/252

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

STUDY: Efficacy and Safety of AbobotulinumtoxinA in Patients with Neurogenic Detrusor Overactivity Incontinence Performing Regular Clean Intermittent Catheterization: Pooled Results of Two Phase 3 Randomized Studies (CONTENT1 and CONTENT2) https://sciencedirect.com/science/article/pii/S03022838220116803

RealTalk MS #198: Dr. Brian Sandroff Shares the Results of Kessler Foundation's Robotic Exoskeleton-Assisted Exercise Pilot Study https://realtalkms.com/198

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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RealTalk MS Episode 252 Guest: Kathy Reagan Young

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 251: MS in the LGBTQ+ Community with Dr. William Conte, Payshunz Nagashima, and Andreina Barnola Jun 20, 2022

Show notes

Health disparities, systemic inequities, and discrimination often stand in the way of gaining access to MS care for members of the LGBTQ+ community.

As we explore some of the obstacles faced by members of the LGBTQ+ community in accessing healthcare, we'll gain the clinician's perspective in our conversation with MS specialist, Dr. William Conte. We'll hear about the experiences of a queer trans person living with MS when we talk with Payshunz Nagashima. And we'll learn about the National MS Society's efforts to broaden access to MS care for members of underserved communities when we speak with the MS Society's Director of Health Equity Initiatives, Andreina Barnola.

We have a lot to talk about! Are you ready for RealTalk MS??!

June is Pride Month :22

Dr. William Conte discusses obstacles to MS care faced by members of the LGBTQ+ community 1:12

Payshunz Nagashima shares their experience as a queer transgender person living with MS 10:30

Andreina Barnola discusses the role of the National MS Society in improving access to MS care for members of underserved communities 20:20

Share this episode 26:09

Download the RealTalk MS app for your iOS or Android device 26:30

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/251

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 251 Guests: Dr. William Conte, Payshunz Nagashima, and Andreina Barnola

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 250: At the Consortium of MS Centers Annual Meeting with Dr. Saud Sadiq, Dr. Kathy Zackowski and Marijean Buhse, PhD, RN, NP-C, MSCN Jun 15, 2022

Show notes

One afternoon during the Consortium of Multiple Sclerosis Centers Annual Meeting, I set up my equipment at the National MS Society's booth in the conference exhibit hall and recorded some conversations with a few old friends and a few new friends of the podcast. In this week's episode, we'll hear a couple of those conversations.

Before I left for the conference, I had a chance to catch up with Dr. Saud Sadiq. So, we'll begin this episode with an update on his mesenchymal stem cell clinical trial and the unprecedented outcome he's seeing.

We'll talk with Dr. Kathy Zackowski and get her impressions of some of the conference presentations that got her attention.

And we'll hear from Marijean Buhse as she recaps what I found to be an important presentation on shared decision-making.

We have a lot to talk about! Are you ready for RealTalk MS??!

We're at the Consortium of Multiple Sclerosis Centers Annual Meeting! :22

Dr. Saud Sadiq Updates Us on His Mesenchymal Stem Cell Clinical Trial 1:43

Dr. Kathy Zackowski Discusses the Conference Presentations That Caught Her Attention 10:44

Marijean Buhse Recaps Her Conference Presentation on Shared-Decision Making 23:27

Share this episode 33:13

Download the RealTalk MS app for your iOS or Android device 33:34

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/250

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

RealTalk MS Episode 215: Stem Cell Therapy for MS with Dr. Jeffrey Cohen https://realtalkms.com/215

The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 250 Guests: Dr. Saud Sadiq, Dr. Kathy Zackowski, Marijean Buhse, PhD, RN, NP-C, MSCN

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 249: The Ball Came Out with Tyler Campbell Jun 06, 2022

Show notes

In 2007, Tyler Campbell was a running back at San Diego State, looking forward to a real shot at a career in the NFL. Instead, Tyler's life was turned upside down by an MS diagnosis.

For some people, that would have been the end of the story. For Tyler, it was only the beginning.

In this week's episode, Tyler Campbell talks about his transformational journey from the football field to becoming a motivational and inspirational leader in the MS movement.

We have a lot to talk about! Are you ready for RealTalk MS??!

I met a real difference-maker! :22

My conversation with Tyler Campbell 1:12

Share this episode 26:56

Download the RealTalk MS app for your iOS or Android device 27:16

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/249

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 249 Guest: Tyler Campbell

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 248: Pregnancy and MS with Dr. Annette Langer-Gould May 30, 2022

Show notes

Starting a family is a big step for anyone. And when you're living with MS and you're on MS medications along with other symptom management medications, planning a family creates a lot of questions about what's safe and what's not.

Dr. Annette Langer-Gould, a clinician-scientist and MS specialist in the Kaiser-Permanente health system, joins me to answer questions about how to safely and successfully navigate conception, pregnancy, and the postpartum period with MS.

We'll also get a briefing from Principal Investigator Dr. Jiwon Oh on the long-term extension study of Tolebrutinib, an investigational MS medication that's part of a whole new category of MS medications.

And we're sharing details of the 2022 Black MS Experience Summit, taking place June 15-16. Find out how and where to register for this free event!

We have a lot to talk about! Are you ready for RealTalk MS??!

I'm heading to the Consortium of MS Centers Annual Meeting :22

Dr. Jiwon Oh discusses the long-term extension study of Tolebrutinib 1:02

The Black MS Experience Summit is happening June 15-16 11:01

Can-Do MS is hosting a webinar on "Bowel and Bladder: How to Find Confidence and Control" 12:03

Dr. Annette Langer-Gould discusses pregnancy and MS 13:01

Share this episode 31:00

Download the RealTalk MS app for your iOS or Android device 31:20

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/248

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

The National MS Society Presents the Black MS Experience Summit https://www.nationalmssociety.org/Resources-Support/Library-Education-Programs/Black-MS-Experience

Can Do MS Webinar Information and Registration https://cando-ms.org/webinar

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 248 Guests: Dr. Jiwon Oh and Dr. Annette Langer-Gould

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 247: Biomarkers Can Help Diagnose MS, Predict MS, and Telegraph MS Progression with Dr. Tanuja Chitnis May 23, 2022

Show notes

Think about how much faster, easier, cheaper, and less invasive it would be if MS could be diagnosed by a simple blood test.

Scientists have identified biomarkers that can be used to diagnose MS and even predict MS before someone experiences any symptoms. Biomarkers may even be used to predict MS progression before it occurs.

Joining me to discuss how biomarkers may change the way MS is diagnosed and treated is Dr. Tanuja Chitnis, a Professor of Neurology at Harvard Medical School, as well as the Director of the CLIMB Study and the Translational Neuroimmunology Research Center at Brigham and Women's Hospital.

We're also talking about a recent breakthrough in myelin repair.

We're sharing all the details about how you can participate in World MS Day on May 30th.

We'll tell you about a report commissioned by the National Academy of Medicine that takes a close look at the challenges of identifying credible health information in social media.

And if you're an MS caregiver, healthcare professional, or researcher, we'll give you the details of an important survey that you can participate in.

We have a lot to talk about! Are you ready for RealTalk MS??!

Biomarkers can change everything :22

May 30th is World MS Day 1:53

Lab-made molecule is shown to promote myelin repair in preclinical models of MS 3:23

National Academy of Medicine weighs in on the challenges of finding credible sources of health information in social media 5:03

An important survey for MS caregivers, healthcare professionals, and researchers 11:34

Dr. Tanuja Chitnis discusses biomarkers that may fundamentally change how MS is diagnosed and treated 13:38

Share this episode 28:23

Download the RealTalk MS app for your iOS or Android device 28:43

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/247

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

Report: Identifying Credible Sources of Health Information in Social Media: Principles and Attributes https://nam.edu/identifying-credible-sources-of-health-information-in-social-media-principles-and-attributes

World MS Day https://worldmsday.org

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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RealTalk MS Episode 247 Guests: Dr. Tanuja Chitnis

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

Episode 246: The High Cost of MS Medications with Steffany Stern May 16, 2022

Show notes

When my wife was diagnosed with MS in 1997, the annual cost of her MS medication was $9,000. Today, the annual cost of that same medication is $110,000.

We cannot allow the insanity associated with the cost of MS medications to continue.

Joining me to discuss the impact of the outrageously high cost of MS medications -- and what each of us can do about it -- is the National MS Society's Vice-President of Advocacy, Steffany Stern.

We're also talking about a Phase 1 clinical trial for an investigational Epstein-Barr Virus vaccine (and why that matters to everyone living with MS).

We'll tell you about a study that may have identified a biomarker for MS-related fatigue.

We're also sharing the results of a study that identified which stress-reducing activities can help reduce MS-related depression and fatigue.

And we'll tell you about a study that identified the economic benefits of starting MS medications early.

We have a lot to talk about! Are you ready for RealTalk MS??!

The (HIGH!) Cost of MS Medications :22

NIH Announces Phase I Clinical Trial of Investigational EBV Vaccine 4:21

Study identifies a potential biomarker for MS fatigue 6:04

Study identifies stress-reducing activities that lower MS-related depression and fatigue 8:37

Study shows the economic benefits of starting MS medications early 11:25

Steffany Stern discusses the impact of the cost of MS medications 14:16

Share this episode 32:10

Download the RealTalk MS app for your iOS or Android device 32:30

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance

National MS Society: You Can Help Bring MS Medications Into Reach https://nationalmssociety.org/Treating-MS/Medications/Make-MS-Medications-Accessible/Take-Action

RealTalk MS Ep.229: Evidence Shows MS Is Triggered by the Epstein-Barr Virus with Dr. Kassandra Munger and Dr. AJ Joshi https://realtalkms.com/229

RealTalk MS Episode 231: Evidence Shows EBV Triggers MS: Understanding this Breakthrough Research with Dr. Bruce Bebo https://realtalkms.com/231

Cerebrospinal Fluid Amyloid Precursor Protein as a Potential Biomarker for Fatigue in Multiple Sclerosis: A Pilot Study https://sciencedirect.com/science/article/pii/S2211034822003583

SURVEY: Undertaking Specific Stress-Reducing Activities are Associated with Reduced Fatigue and Depression, And Increased Mastery, in People with Multiple Sclerosis https://sciencedirect.com/science/article/pii/S2211034822003169

Early vs Late Treatment Initiation in Multiple Sclerosis and Its Impact on Cost of Illness: A Register-Based Prospective Cohort Study in Sweden https://pubmed.ncbi.nlm.nih.gov/35496759

iConquer MS Survey for MS Caregivers https://survey.alchemer.com/s3/6823942/Caregiver-Survey-MS-Caregivers

iConquer MS Survey for Researchers and Healthcare Providers https://survey.alchemer.com/s3/6823815/Caregiver-research-survey-HCPs-and-researchers

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 246 Guests: Steffany Stern

Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS