Show notes
The conversation between a doctor and patient is evolving from a time when that conversation was often limited to the doctor prescribing a particular disease-modifying medication and the patient silently nodding their head in agreement to something much more closely resembling a real conversation.
Shared decision-making offers the patient an opportunity to discuss their treatment goals, explain their risk tolerance, and talk about their comfort level with side effects.
But not every neurologist, nurse practitioner, or MS specialist has made the transition to shared decision-making. Some haven't even heard of it. And some patients worry that shared decision-making means they have more work to do in preparing for an appointment with their healthcare provider.
Dr. Marijean Buhse joins me to walk us through how shared decision-making works for people living with MS -- and what to do if it isn't working for you.
We'll also tell you where you can catch the video replay of an MS Society webcast that explains how and when the new drug pricing law will impact the cost of your MS medications if you're on Medicare.
We'll share the registration details for next week's Hispanic/Latinx MS Experience Summit
We'll tell you about a new research collaboration between iConquer MS, the National MS Society, and Quest Diagnostics
We'll share study results that point to a novel pathway to myelin repair.
We'll share study results that indicate the rate of MS in a country may have less to do with latitude and sun exposure and more to do with healthcare spending.
And we're giving a shout-out to A&W Canada and the MS Society of Canada for raising $1.8 million during the Burgers to Beat MS event.
We have a lot to talk about! Are you ready for RealTalk MS??!
This Week: How shared decision-making shapes your MS treatment plan :22
You can catch the replay of the MS Society's webcast or read the one-page "explainer" about how and when the new drug pricing law will impact your MS medications if you're on Medicare 2:47
The Hispanic/Latinx MS Experience Summit takes place on Sept 15. Here's how to register 3:41
iConquer MS teams up with the National MS Society and Quest Diagnostics for a study that will track the long-term effects of COVID-19 vaccines on b-cells and T-cells among people on anti-cd20 medications 5:14
A research team at Oregon Science & Health University are exploring a unique pathway to remyelination, with promising early results 7:41
A study shows that the rate of MS in different countries may have less to do with latitude and more to do with healthcare spending 11:57
Burgers to Beat MS beats its goal and raises $1.8 million dollars 15:06
Dr. Marijean Buhse discusses how shared decision-making works and what to do if it isn't working for you 16:45
Share this episode 30:38
Download the RealTalk MS app for your iOS or Android device 30:59
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LINKS
If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com
National MS Society COVID-19 Vaccine Guidance for People Living with MS https://www.nationalmssociety.org/coronavirus-covid-19-information/multiple-sclerosis-and-coronavirus/covid-19-vaccine-guidance
WEBCAST REPLAY: What Does the New Drug Pricing Law Mean for You? https://www.youtube.com/watch?v=xQ0HueOmo0U
National MS Society Explainer: What Does the New Drug Pricing Legislation Mean for People with MS? https://www.nationalmssociety.org/getmedia/6fa7aae3-0543-4884-b783-359b0df683aa/IRA-Drug-Pricing-Timeline.pdf
National MS Society Hispanic/Latinx MS Experience Summit https://nmss.6connex.com/event/HispanicandLatinx/Login
STUDY: A Modified Flavonoid Accelerates Oligodendrocyte Maturation and Functional Remyelinationhttps://onlinelibrary.wiley.com/doi/10.1002/glia.23715
STUDY: Association of Multiple Sclerosis Prevalence With Sociodemographic, Health Systems, and Lifestyle Factors on a National and Regional Level https://n.neurology.org/content/early/2022/08/24/WNL.0000000000200962
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RealTalk MS Episode 262 Guest: Dr. Marijean Buhse
Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS
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