The Sickle Cell Podcast

Latest Episodes:

Sickle Cell + Caregiver Nov 18, 2021

Show notes

Caregiving for sickle cell is underrated... Celebrating National Family Caregiver's Month, it's just Stephen and Cass this episode talking about what caregiving for sickle cell looks like – even caregiving from abroad. There is mild humor sprinkled in too. 😬

A HUGE THANK YOU TO OUR SPONSOR: Sickle Cell Speaks

#SickleCellSpeaks is people sharing their stories and strengths living with sickle cell. #SickleCellSpeaks talks about navigating the situations and feelings people with sickle cell face. Visit sicklecellspeaks.com to learn more.

Sickle Cell + The Workplace (Feat. Tayo Rockson, MBA) Nov 04, 2021

Show notes

Hosts Dr. Stephen Boateng and Cass Trimnell talk to workplace diversity and inclusion expert Tayo Rockson, MBA about discuss tips, accommodations, and how to navigate the workplace when living with sickle cell disease.

Find Tayo Rockson on

Instagram: https://www.instagram.com/tayorockson
Website: https://tayorockson.com
Podcast: https://podcasts.apple.com/us/podcast/as-told-by-nomads/id910739730

A HUGE THANK YOU TO OUR SPONSOR: Hemanext

Hemanext partners with groups like Sickle Cell 101 on resources and tools for sickle cell patients. Safer transfusions, healthier patients, that’s their mission. Visit hemanext.com to learn more about the company.

Sickle Cell + A Mental Health Discussion (Feat. Dr. Jonathan Lassiter, PhD) Jun 24, 2021

Show notes

Dr. Jonathan Lassiter is a clinical psychologist living with sickle cell disease. Listen to his and guest host Naim Rasul’s gems on managing mental health issues for sickle cell disease.

Personal Website

Talks at the Schomburg

Book: Black LGBT Health in the United States

Twitter: @matjl

Instagram: @jmlassiterphd

Pronouns: he, him, his

Sickle Cell Trait + RMC - A Kidney Cancer (Feat. Dr. Pavlos Msaouel, MD, PhD) Jun 02, 2021

Show notes

Did you think Renal Medullary Carcinoma (RMC – a kidney cancer) was a sickle cell trait complication? Listen and learn more about this rare, but aggressive kidney cancer and what signs, symptoms, and precautions to take to stay on top of this issue and your kidney health. Featuring RMC expert Dr. Pavlos Msaouel

Why Sickle Cell? (Feat. Teonna Woolford) Mar 11, 2021

Show notes

Girls chat! In honor of Women's History Month, we're talking about women's reproductive health and advocacy with sickle cell advocate Teonna Woolford, founder of SC-RED.

Sickle Cell + Racial Injustice (Feat. Dr. Ahmar Zaidi, MD) Mar 01, 2021

Show notes

An important discussion on the racial disparities individuals living with sickle cell disease face within the U.S. healthcare system. This episode features hematologist-oncologist physician and activist Dr. Ahmar Zaidi.

Getting to Know the Hosts (Why Sickle Cell?) Dec 17, 2020

Show notes

Happy holidays! Stephen and Cass have a list of questions to ask each other. Tune in to learn more about their personal lives, philosophies on sickle cell, and their deep dark secrets (haha).

Why Sickle Cell? (Feat. London Knight) Dec 03, 2020

Show notes

Girl chat! Fashion model and sickle cell warrior London Knight shares how she juggles being a model, advocate and inspiration to others. 💋💃🏽

You can follow London Knight on Instagram at @LondonKnight_

Why Sickle Cell? (Feat. The B Strong Group) Nov 12, 2020

Show notes

Sponsored by bluebird bio– A mother's perspective on raising her son diagnosed with sickle cell SC disease. This episode addresses the blessings and the hardships Brenda Greene has experienced as a caregiver. We also discuss discovering their genotypes, tips for newly diagnosed families, and nonprofit organization The B Strong Group's work with blood donation.

We would like to thank our sponsor bluebird bio. Check out a new website to learn how you can advocate for better sickle cell care. Take some time to check out SparkSickleCellChange.com to learn more and sign up to Be The Spark for Change in Sickle Cell!

Sickle Cell + Gene Therapy (Feat. Dr. Isaac Odame, MD & Aeon Chintersingh) Oct 30, 2020

Show notes

Sickle Cell + Gene Therapy: An Honest and Open Discussion About Gene Therapy

This episode features Aeon Chintersingh, an adult who underwent gene therapy to cure sickle cell disease and Dr. Isaac Odame, a specialist and medical director of Hematology/Oncology at SickKids in Toronto.

We discuss fertility, chemotherapy, genotypes, the word 'cure' and much more.

We would like to thank our sponsor Aruvant Sciences, a company focused on developing gene therapies for rare diseases. Aruvant Science has an ongoing clinical trial in sickle cell that is currently enrolling participants. Please go to momentumtrials.com for more information on the clinical trial.

Aruvant neither owns nor controls this platform and does not have editorial control over content or responsibility for any other information provided.

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