The Sickle Cell Podcast

Latest Episodes:

Part 2: What Good Care Looks Like for Adults With Sickle Cell Disease – Sickle Cell Care: Specialists and Labs May 29, 2026

Show notes

What does good care actually look like for adults living with sickle cell disease?

In this episode of our What Good Care Looks Like for Adults with Sickle Cell series, lifespan sickle cell expert Dr. Julie Kanter focuses on two pillars of quality sickle cell care: working with the right specialists and understanding the lab work that guides your treatment.

Dr. Julie Kanter is the Co-Director of the Lifespan Comprehensive Sickle Cell Center at the University of Alabama at Birmingham and President of the National Alliance of Sickle Cell Centers (NASCC).

This episode is part of Sickle Cell 101's Care and Treatment 101 Educational Initiative, a community resource dedicated to making care information accessible and actionable for the sickle cell community.

Thank you to our Care and Treatment 101 sponsors: Vertex, Chiesi, Pfizer, and Medunik.

What Good Care Looks Like for Adults With Sickle Cell Disease Part 1: Medical Home, Sickle Cell Specialist, Emergency Department + Individualized Care Plan May 29, 2026

Show notes

What does good care actually look like for adults living with sickle cell disease?

In this episode of our What Good Care Looks Like for Adults with Sickle Cell series, lifespan sickle cell expert Dr. Julie Kanter breaks it down. She covers establishing a medical home, working with a sickle cell specialist, navigating the Emergency Department, and building an Individualized Care Plan that works for you.

Dr. Julie Kanter is the Co-Director of the Lifespan Comprehensive Sickle Cell Center at the University of Alabama at Birmingham and President of the National Alliance of Sickle Cell Centers (NASCC).

Thank you to our Care and Treatment 101 sponsors: Vertex, Chiesi, Pfizer, and Medunik.

Sickle Cell + Harvard Student (Feat. Hanif Mouehla) Nov 20, 2024

Show notes

In this episode, we dive into the inspiring story of Hanif Mouehla, a Harvard student and former sickle cell warrior. Hanif shares his journey of growing up with sickle cell disease, from the challenges he faced in his youth to the curative treatment that changed his life.

Support this podcast: ⁠https://anchor.fm/thesicklecellpodcast/support⁠

Sickle Cell + Aging (Feat. Ms. Pat McGill & Linda Wade) Sep 25, 2024

Show notes

In this episode, we explore the journey of aging with sickle cell disease through the inspiring stories of 80-year-old Ms. Pat McGill and Linda Wade. Ms. Pat shares her decades-long experience living with sickle cell, providing invaluable insight into the challenges and triumphs of aging with the condition. Linda Wade, founder of the Mark Thomas Foundation and caregiver to her late husband who had sickle cell, joins the conversation to discuss her role in supporting the sickle cell community and her personal journey of advocacy.

Support this podcast:⁠ https://anchor.fm/thesicklecellpodcast/support

2023 SCAY Award Winners: Advocate of the Year + Digital Advocate of the Year (Feat. La'Shardae and Faith Adejei-Sarpong) - Pt. 2 Jun 06, 2024

Show notes

Join host Maia Garrison as she speaks with passionate advocates shining a light on sickle cell disease. La'Shardae Scott, the 2022 SCAY Advocate of the Year, discusses her non-profit organization that bridges the gap by transitioning pediatric patients to adult sickle cell care. Faith Adjei-Sarpong, the Digital SCAY Advocate of the Year, shares how she inspires warriors through social media to live life fully despite having sickle cell disease. Prepare to be inspired by their dedication to raising awareness and empowering the sickle cell community.

Find:

La'shardae Scott

Faith Adeji- Sarpong

Instagram:

@faiithooo

@lashardae_scott or @scottcenteroh

2023 SCAY Award Winners: Community Partner + Youth Advocates of the Year (Feat. Holly John and Ayana Johnson) - Pt. 1 May 24, 2024

Show notes

Join hosts Cassandra Trimnell and Maia Garrison as they hear from Holly John, Senior Director of Patient Advocacy at Agios Pharmaceuticals, recognized as the SCAY Community Partner of the Year for her groundbreaking work integrating patient voices into drug development and advocacy. Also, meet Ayana Johnson, the SCAY Youth Advocate of the Year, a high schooler who has launched a nonprofit, lobbied for legislation, and engaged with President Biden, inspiring fellow youth warriors. Prepare to be moved by their passion and dedication to revolutionizing sickle cell care.

Find Ayana Johnson

Instagram: _ayana_lee_

--- Support this: podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

Sickle Cell + Bone Marrow Transplant Dec 18, 2023

Show notes

Featuring Christina Augustine and Dr. Alexander I. Ngwube, MD, this episode provides an comprehensive exploration on bone marrow transplant (BMT) for sickle cell disease, blending personal experiences with professional expertise.

A huge thank you to Be the Match for Sponsoring this episode. For more information about Be the Match, visit: https://sicklecellconnect.com

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Support this podcast: https://podcasters.spotify.com/pod/show/thesicklecellpodcast/support

Love + Sickle Cell Trait (Feat. Abisola and Seyi Shof) Jul 22, 2022

Show notes

For the month of July, we are bringing awareness to sickle cell trait. Abibat Oshiobugie Suleiman is the host for today's episode. Abi talks with special guests Abisola and Seyi Shof, also known as “the Shofs” on social media, about their involvement in the sickle cell community, their love story with SCT, the challenges they had to face with telling their families, and weighing the options for marriage and children that led them to their IVF journey with PGD testing.

Find Abisola and Seyi Shof on

Instagram: @theshofs

--- Support this podcast: https://anchor.fm/thesicklecellpodcast/support

Hot Topic 🔥 Family Planning + "Genetic Incompatibility" Mar 31, 2022

Show notes

The first of our Hot Topic 🔥 series. Hosts Stephen and Cass have THAT conversation about two individuals wanting to have children but are faced with a chance of having a child with sickle cell disease.

Do you believe people who are "genetically incompatible" (like AS and AS) should have children? Send in your responses to podcast@sc101.org

2021 SCAY Award Winners + Their Stories, Their Work (Feat. Biba Tinga, Siliana Coelho, and Sarah Masamba) Jan 27, 2022

Show notes

Cass chats with the 2021 Sickle Cell Advocates of the Year (SCAY) Award recipients about how they got involved and what they’ve achieved. This episode features:

Biba Tinga - Sickle Cell Advocate of the Year
Siliana Coelho - Digital Sickle Cell Community Advocate of the Year
Sarah Masamba - Sickle Cell Healthcare Profession (HCP) Advocate of the Year

A big thank you to our partner AllStripes!

Visit https://sc101.org/SCAY to connect and learn more about the SCAY Award winners.

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