The Parkinson's Podcast - TopPodcast.com

Latest Episodes:

Managing Depression and Anxiety in Parkinson's Nov 15, 2023

Show notes

On September 17, 2021, we held The Victory Summit® Virtual Event: Mental Health and Wellness, shining the spotlight on how to manage the symptoms you can't see in Parkinson's. During this event, Dr. Gregory Pontone spoke to us about managing depression and anxiety in Parkinson's.

Topics discussed include:

What are the statistics on how many people are currently dealing with depression?
Wellness vs. Wellbeing
What is mental illness?
What is the impact of mental illness on Parkinson's?
What are the differences between depression and anxiety?
Different types of anxiety medicine and how they impact Parkinson's symptoms
The effect of anxiety on dystonia
Dealing with compulsive thoughts
What are some strategies for families dealing with anxietyand depression at home?
What is apathy?

and more! We hope you enjoy!

Want to see other videos from our Victory Summit on Mental Health? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

A Conversation with Brian Grant and Davis Phinney Nov 09, 2023

Show notes

Brian Grant had a long and successful 12-year career in basketball. In 2008, at age 36, Brian was diagnosed with Parkinson's. Davis Phinney was an Olympic Bronze medalist and Tour de France stage winner who claimed the most victories of any cyclist in American history. In 2000, at age 40, Davis was diagnosed with Parkinson's. Since being diagnosed, both of these athletes have made it their mission to do everything they can to thrive not just survive with Parkinson's, and inspire others to do the same.

In this genuine, inspiring, and relatable conversation, Brian and Davis talk about their experiences as athletes receiving a Parkinson's diagnosis, their difficulties in accepting the physical and mental challenges that have occurred with the progression of their Parkinson's, and how and why they are passionate about living well with Parkinson's each and every day. We hope you enjoy it!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Living with Parkinson's from a Cultural Context Nov 01, 2023

Show notes

During this episode of the Parkinson's Podcast, Dr. Gregory Pontone and Dr. Indu Subramanian discuss how cultural context can impact what living well with Parkinson's looks like, including nutrition, exercise, community, and more.

Topics discussed include:

What does "cultural context" mean?
Holistic health in cultural context
The importance of community in a cultural context
How to help address the divide between clinical care and cultural context as a care partner/care giver
Acceptance of Parkinson's symptoms by family and cultural community
Feeling culturally "separated" by your diagnosis
Finding new community
How to create safer spaces as advocates and allies

and more! We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Dopamine Nation with Anna Lembke Oct 25, 2023

Show notes

In this episode, Dr. Anna Lembke, an internationally recognized expert in addiction and dopamine, discusses addiction, dopamine's role in pain and pleasure, dopamine agonists, and more.

**Please note, taking regular carbidopa/levodopa alone very rarely leads to someone experiencing impulse control disorders, so please do not delay taking these Parkinson's medications because of a fear of developing an impulse control disorder. If your symptoms are getting in the way of your daily activities and quality of life, work with your doctor to find the right dose for you. Dopamine agonists, on the other hand, which are more commonly prescribed in the early stages of Parkinson's, are the types of medication that put people at greater risk. Still, it's not a given. Each person responds to medication differently, and whatever side effects you do experience are almost always duration and dose-dependent. To learn more about Parkinson's medication, read Medication and Parkinson's. For more on impulse control disorders and dopamine agonists, read Impulse Control Disorders and How to Manage Them.

Topics discussed include:

Can you define pleasure and pain and the role dopamine plays in them?
How has our drive for pleasure changed over time?
Does being low on dopamine contribute to the pain many with Parkinson's experience?
How is the pain/pleasure cycle disrupted in the absence of naturally produced dopamine?
What is a dopamine precursor, and what does it have to do with impulse control disorders (ICDs) in people with Parkinson's?
Are there any early warning signs that someone may be experiencing negative side effects such as impulse control disorders from taking their medication?
What is addiction, and how does it work in someone with Parkinson's?
What is the value of truth-telling for someone who is struggling with an impulse control disorder or any other addiction?
Is it possible that Parkinson's meds can expose a preexisting addiction or propensity for addiction?
Is there a link between head trauma and addiction?

and more! We hope you enjoy!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Living Alone with Parkinson's Oct 18, 2023

Show notes

During this episode, we talked to five people, Michael S. Fitts, Allyson Kinney, Michael Fahning, Gerrie Blavat, and Brian Reedy, who are living alone with Parkinson's, some by choice and others not. They shared their stories and offered ideas and advice on how to live alone and well with Parkinson's.

Topics discussed include:

Why are you living alone with Parkinson's?
How does a service dog help in living alone with Parkinson's?
What is the hardest part of living alone with Parkinson's?
Finding more important things to worry about
Accepting your limits while living alone with Parkinson's
What different tools make living alone with Parkinson's easier?
How to get around when you physically can't drive

and more. We hope you enjoy!

Want to read the article associated with this podcast? Check it out on our website!

Want to watch the video version of this podcast? You can watch it on our YouTube!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

Addtional Resources:

Advances Directives and Parkinson's

How Service Dogs Can Support People With Parkinson's

Parkinson's Nutrition and Living Well

Life With Dempsey, My Parkinson's Service Dog

Keep ON Moving – A New Online Parkinson's Exercise Program

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Questions and Answers Oct 11, 2023

Show notes

During this session, panelists from the Living with Parkinson's meetup answered questions from the chat on everything Parkinson's.

Topics discussed include:

Why is it important to work with experts in Parkinson's?
What is a biomarker?
Why does it take so long to develop a drug for Parkinson's?
What are the challenges with diagnosing Parkinson's?
What are the potential impacts of surgery on Parkinson's symptoms?
How do you make sure all medical providers have critical information?
What is brain fog?
How do you balance having Parkinson's and caring for others?
What is speech therapy for Parkinson's?
How do you get out of being frozen?

and more. We hope you enjoy!

Want to join us at the next Living with Parkinson's Meetup? Join us the third Thursday of every month!

Want to read the article associated with this podcast? Check it out on our website!

Loving the Parkinson's Podcast? You can listen to more episodes on our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Urinary Dysfunction and Parkinson's Oct 04, 2023

Show notes

In this episode, Dr. Arun Mathur, a urologist with specialized knowledge of Parkinson's, explains the symptoms, causes, and treatments of urinary dysfunction in people with Parkinson's.

Topics we discuss include:

What are the differences between urinary dysfunction in different neurological diseases?
What is urinary dysfunction?
Urinary dysfunction can be a precursor to a Parkinson's diagnosis
How does urinary dysfunction affect a person with Parkinson's quality of life?
When should you seek treatment?
Urinary dysfunction is more prevalent in Later Onset Parkinson's
Non-pharmacological and surgical treatments
DBS and Urinary Dysfunction
Carbidopa/Levodopa's effect on urinary dysfunction
Pharmacological treatments
Catheterization
Prostate symptoms versus Parkinson's symptoms
When will non-pharmacological treatments show results?

and more! We hope you enjoy!

Want to watch the video recording of this audio? Watch here!

To view the show notes and related resources for this webinar, visit our website!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

What I Wish I Knew Then Sep 27, 2023

Show notes

In this episode, panelists discussed what they wish they knew when they were diagnosed with Parkinson's and what advice they would give now to those who are newly diagnosed.

Topics we discuss include:

What do you wish you had known when you were first diagnosed with Parkinson's?
Being kind, listening to elders, and seeking help
Take things seriously, but not too seriously
Don't ignore your symptoms
Medications
The moment when you are first diagnosed
Having a movement disorder specialist
Support groups
Importance of exercise
Socializing, being with people, and getting out of your head

and more! We hope you enjoy!

Want to watch the video recording of this audio? Watch here!

Want to join the Living With Parkinson's Meetup? Register here!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Demoralization, Meaning, and Parkinson's Sep 20, 2023

Show notes

In this episode of The Parkinson's Podcast, Greg Pontone, MD, Indu Subramanian, MD, and Bradley McDaniels, PhD, discuss how symptoms of depression begin and how to combat them.

In this episode, we talk about:

How Dr. Subramanian, Dr. McDaniels, and Dr. Pontone are working on
What clinicians can do to make your symptoms better
How Dr. Subramanian combines Eastern and Western medicine
The impact of demoralization on people with Parkinson's
The importance of normalizing diagnosing depression
The difference between demoralization in people with early-onset versus late-onset Parkinson's
Changes in patient care since this panel started researching demoralization
Dr. McDaniels' mother's journey with demoralization and Parkinson's
The signs of depression and how to know when to see a doctor

and more. We hope you enjoy!

Want to read the article associated with this podcast? You can read it here.

Want to watch a video of this podcast? You can watch it on our channel!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

Vulnerability with the Living with Parkinson's Meetup Sep 12, 2023

Show notes

During this episode, our Living with Parkinson's Meetup panelists discussed physical, social, and emotional vulnerability in Parkinson's. They offered their thoughts about how to adapt to changes that arise as Parkinson's progresses. As always, this panel doesn't hold back, and we're so fortunate to have them tell the hard truth and share their journeys with all of us.

In today's episode, we talk about:

Start of discussion on vulnerability
Vulnerability vs. danger
Social vulnerability
Adapting to difficult situations
Going to the worst-case scenario
Community as a source of strength
Impact of stories, beliefs and finding community

and more! We hope you enjoy it!

Want to come to our next Living with Parkinson's Meetup? Join us every third Thursday of the month!

Want to watch a video of this podcast? You can watch it on our YouTube channel!

This content is made possible by the generous support of listeners like you. If you would like to make a donation, please visit: https://dpf.org/podcastdonation

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