RealTalk MS

Latest Episodes:

RealTalk MS Episode 27: Tech Tools To Manage MS Apr 10, 2018

Show notes

As technology advances at an ever increasing rate, it's speeding up the pace of scientific discovery. In this week's podcast, we're looking at new tech tools -- smartphone apps, desktop programs, and mobile technology -- that will change the way you manage MS fatigue, anxiety, foot drop, MS rehab, and more.

And you'll meet this week's guest, Jayce Riley, an MS Road Warrior who is preparing to ride his bike 3,785 miles across the United States to honor his late mother, and raise money for MS research.

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MS State Action Day in California :20

Online Therapy Manages MS Fatigue 3:17

FDA Approves Mobile App For LG 300 Go Rehab System 7:31

Generational Differences In Healthcare 10:35

There's a New Online Resource For People With MS 12:57

Interview with Jayce Riley 16:19

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LINKSIf your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

Elevida Online Therapy Clinical Trial Results

FDA Approves Mobile App for LG 300 Go System

Generational Trends in Healthcare

MyMS Smartphone App Study Registration

National MS Society

MS Path 2 Care

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For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 27 Guests: Jayce Riley Hosted By: Jon Strum

Tags: MS, multiple sclerosis, Elevida, MS fatigue, LG300 Go, My Bioness, MyMS, MS Path 2 Care, MS podcast, RealTalk MS

RealTalk MS Episode 26: Stephanie Buxhoeveden Is An MS Nurse Who Also Happens To Have MS Apr 03, 2018

Show notes

My podcast guest Stephanie Buxhoeveden was diagnosed with MS when she was 25 years old, working as a neurosurgical ICU nurse. Today, Stephanie is a board-certified Multiple Sclerosis Nurse, she is a Nurse Practitioner and she is the Co-Director of the MS Comprehensive Care Center where she has also been a patient. Stephanie will share some of her experiences and observations from the dual perspective of someone who is a medical specialist who treats patients with MS, and also someone who lives with MS. We're also talking about the results of the very first clinical trial to demonstrate a slowing in the progression of disability in secondary progressive MS. We'll tell you about a new Canadian study that shows a clear connection between depression and physical disability in MS. And we'll talk about the kind of information that California's new prescription drug price transparency bill is revealing. ____________

:18 MS Awareness -- It's A 12-Month Campaign

3:01 New Drug Slows Disability Progression in Secondary Progressive MS

4:09 Study Shows Depression Impacts MS Physical Disability

6:42 Drug Price Transparency Law in California Begins to Reveal Real Information

8:49 Interview with Stephanie Buxhoeveden

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LINKSIf your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com

Articles & Videos by Stephanie Buxhoeveden

GPS For Your MS: Initiating Your Wellness Journey

Emergency Preparedness

Facing the Emotional Symptoms of MS Together

TedX Talk: Thriving In The Face of Adversity

MS Path 2 Care

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For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 26 Guests: Stephanie Buxhoeveden, MSCN, FN-BC, MS Activist Hosted By: Jon Strum

Tags: MS, multiple sclerosis, Stephanie Buxhoeveden, Siponimod, MS and depression, MS prescription drug prices, prescription drug price transparency, MS podcast, RealTalk MS

RealTalk MS Episode 25: Progressive MS Day With Dan & Jennifer Digmann Mar 27, 2018

Show notes

March is MS Awareness Month, and tomorrow we'll be observing the first ever Progressive MS Day, which is being celebrated by several MS advocacy groups and state governments around the United States.

My guests on the podcast are Dan and Jennifer Digmann. Jennifer was diagnosed with Progressive MS in 1997, and Dan was diagnosed with relapsing-remitting MS in 2000. Dan & Jennifer met at a National MS Society event in 2002, and they were married in 2005.

Together, Dan & Jennifer write an award-winning MS blog, they host the A Couple Takes On MS podcast on the MS & ME Radio Network, they've co-authored a book entitled, Despite MS, to Spite MS, and in 2015, they were inducted into the National MS Society Volunteer Hall of Fame for Advocacy.

We'll talk with Dan & Jennifer Digmann and get their thoughts about Progressive MS Day, and on what life is like when both partners in a marriage have been diagnosed with multiple sclerosis.

____________ 1:42 Managing MS Pain Through Mindfulness 4:50 Improving Cognitive Processing By Walking On a Treadmill 6:11 The Importance of Sleep in MS Symptom Management 9:57 Progressive MS Day With Dan & Jennifer Digmann ____________ LINKS If your podcast app doesn't show these links, you'll find them in the show notes at www.RealTalkMS.com Association Between Pain & Mindfulness in Multiple Sclerosis Guided Mindfulness Meditation for Pain Relief by Jon Kabat-Zinn Treadmill Walking & Brain Function in Multiple Sclerosis Poor Sleep in Multiple Sclerosis Importance of Sleep in Multiple Sclerosis Dan & Jennifer Digmann A Couple Takes On MS Podcast Despite MS, To Spite MS ____________ For more RealTalk MS, follow us on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com. RealTalk MS Episode 25 Guests: Dan & Jennifer Digmann Hosted By: Jon Strum Tags: Progressive MS Day, MS, multiple sclerosis, Dan and Jennifer Digmann, MS pain, Mindfulness, MS and cognition, MS and sleep, MS podcast, RealTalk MS

RealTalk Episode 24: MS & Depression? There's An App For That! Mar 20, 2018

Show notes

Depression affects over one million people around the world who are living with MS. And when you fail to treat depression, every other aspect of life seems to get worse - and that can include your MS symptoms.

My guest on this week's podcast is Dr. Athena Robinson, the Chief Clinical Officer at Woebot Labs, and we're talking about Woebot -- a breakthrough app that lives on your smartphone and has been proven to be effective in treating depression.

We're also talking about a robotic arm brace that restores the use of paralyzed limbs due to MS, ALS, and stroke. And you'll hear all about 2 new MS research studies taking place at the University at Buffalo. We'll even tell you where you can sign up to test-drive a smartphone app that's been developed to help your neurologist fine-tune your MS treatment and better personalize your MS symptom management. We have a lot to talk about! Are you ready for RealTalk MS?

RealTalk MS Episode 23: Accelerating the Cure for MS Mar 13, 2018

Show notes

The Accelerated Cure Project for Multiple Sclerosis is a national non-profit organization dedicated to accelerating advances toward a cure for MS. My guests on this week's podcast are Dr. Robert McBurney, the President & CEO of the Accelerated Cure Project for MS, and David Gwynne, who manages their Alliances & Collaborations. We're talking about some of their major initiatives, their recent announcement about a new collaboration, and you'll even learn how you can be a part of MS research.

We're also talking about amazing research being done at Cambridge, where they're successfully repairing myelin in the lab using a patient's skin cells. And we're re-capping the National MS Society's Public Policy Conference and Day on Capitol Hill in Washington, D.C.

We have a lot to talk about! Are you ready for RealTalk MS?

RealTalk MS Episode 22: All-Star MS Researchers & Their Work Mar 06, 2018

Show notes

To kick off MS Awareness Month, we'll go inside a private VIP research briefing where you'll hear 3 award-winning MS research scientists tell us how their work is impacting our understanding of multiple sclerosis.

Then, you'll meet my special guest, Emily Blosberg, founder of Oscar, the MS Monkey. Emily is an amazing young lady who's making life better for some of the youngest folks who are living with MS today and their families.

We have a lot to talk about! Are you ready for RealTalk MS?

RealTalk MS Episode 21: MS Advocacy: What It Is & Why It's So Important Feb 27, 2018

Show notes

Decisions made by our legislators can have a direct impact on our healthcare, our financial well-being, and our overall quality of life. That's why next week, 300 MS Activists will be in Washington D.C. to hold more than 400 conversations with our elected officials about the legislative issues that are likely to have the greatest impact on people living with MS. My guest on this week's podcast is Bari Talente, Executive Vice President of Advocacy for the National MS Society. This week's entire podcast is devoted to talking about MS advocacy and the importance of being an #MSActivist. We have a lot to talk about! So are you ready for RealTalk MS?

RealTalk MS Episode 20: Help at Home From Helping Hands Feb 20, 2018

Show notes

While we're tracking the breakthroughs and discoveries that move us closer to solving the riddle of multiple sclerosis, it's also important to remember that people living with MS need help today. Some of them need help with even the most basic sorts of daily tasks. My guests on the podcast are Angela Lett and Alison Payne from Helping Hands, a non-profit organization that helps adults with MS and other mobility impairments live independent lives by providing them with a very special service animal -- a highly trained capuchin monkey -- to live in their home and assist them with the tasks of everyday living. We're also talking about how 3D printing technology is paving the way for important MS research. And we're talking about the cutting-edge research by an award-winning neuroscientist who is investigating the effects of aging on mylenation. And Canadian researchers may have identified an anti-depressant that can be re-purposed to treat Progressive MS. We have a lot to talk about! So are you ready for RealTalk MS?

RealTalk MS Episode 19: MS Navigators - A Seriously Remarkable Service You Need To Know About Feb 13, 2018

Show notes

If you're looking for no-cost customized, personalized, one-on-one expert advice on all sorts of issues that people with MS encounter, you're going to want to pay attention to my conversation with Kay Julian, Executive Vice-President of Services at the National MS Society.

We're also talking about the demographic imbalance in MS clinical trials, and why that matters. (And you can find the Accelerated Cure Project's MS Minority Research Engagement Report here). We're discussing the initial results of a clinical trial of a stem cell therapy that may reverse physical disability in progressive MS. It may turn out that a drug designed to improve walking for people with MS may have some additional benefits. And we're also talking about research from Penn State that may explain one reason why 50% of the people living with MS are going to be diagnosed with depression.

We have a lot to talk about! So are you ready for RealTalk MS?

RealTalk MS Episode 18: Meet the MS International Federation Feb 06, 2018

Show notes

Multiple sclerosis doesn't respect borders, and that's why a global response to MS is so necessary. And that's where the MSIF comes in. My guest this week is Mr. Peer Banake, CEO of the MS International Federation. ACTRIMS -- the largest MS research conference in the United States -- took place last week in San Diego, California. We were there, and we're talking about the news and the research announcements that were made at the conference.

We have a lot to talk about this week! Are you ready for some RealTalk MS?

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