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    Health & Fitness

    RealTalk MS

    Jon Strum cuts through all the jargon and breaks down the latest multiple sclerosis news. You’ll meet the scientists who are creating tomorrow’s MS treatments today. You’ll hear from the experts discussing how the latest tweaks and changes to our healthcare laws will impact your MS treatment. And we’ll be talking to the courageous MS warriors who are out there advocating on behalf of the MS community every day, as well as the men and women who are committed to living their best lives with MS and living their best lives as MS caregivers. If you’re dealing with multiple sclerosis in your life — as a patient, caregiver, family member, or friend — join us each week for RealTalk MS.

    Advertise

    Copyright: © Copyright 2020. All rights reserved.

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    Latest Episodes:
    Episode 180: Dr. Jaime Imitola Explains Timing Your MS Medications with the COVID-19 mRNA Vaccines Feb 08, 2021
    Show notes

    The National MS Society has updated their COVID-19 vaccine guidance for people living with MS, providing detailed recommendations for timing your disease-modifying therapy with the two COVID-19 vaccines that are approved in the U.S. If you're on a disease-modifying therapy and you've been wondering about your DMT and the COVID-19 vaccines, this episode is for you. My guest this week is Dr. Jaime Imitola, the Director of the Division of Multiple Sclerosis and Translational Neuroimmunology at UConn Health, a noted expert in his field, and a member of the task force that the MS Society convened to create the COVID-19 vaccine guidance. We're talking about the new updates to the vaccine guidance, answering some of the questions that you've sent my way, and we'll get into how this task force went about creating this very important guidance for people living with MS. We're also talking about the FDA approval of intramuscular injections for Plegridy (and how that came about!) We'll tell you about BRAINTEASER, a European Union initiative that will leverage artificial intelligence in an effort to treat people living with ALS and MS by providing predictive care instead of reactive care. And we'll explain how the newly announced Gladstone-UCSF Center for Neurovascular Brain Immunology is opening a new front in the war on MS. We have a lot to talk about! Are you ready for RealTalk MS??!

    Facts are facts! :22

    National MS Society issues guidance for timing MS medications and COVID-19 mRNA vaccines 4:35

    The latest reason to download the RealTalk MS app 5:26

    FDA approves Intramuscular injection for Plegridy 6:15

    BRAINTEASER launches 7:24

    The Gladstone-UCSF Center for Neurovascular Brain Immunology 9:55

    My interview with Dr. Jaime Imitola 12:26

    Share this episode 28:12

    WalkMS 2021 is here! 28:32

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/180

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society COVID-19 Vaccine Guidance for People Living with MS

    National MS Society: Timing MS Medications with COVID-19 mRNA Vaccines

    WalkMS 2021

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 180 Guests: Dr. Jaime Imitola

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS

    Privacy Policy

    Episode 179: The Importance of Exercise in MS with Dr. Nora Fritz and Judy Boone Feb 01, 2021
    Show notes

    Research has shown that, for people living with MS, regular exercise and physical activity can improve their quality of life while helping to manage MS symptoms. But research has also shown that people living with MS tend to be less active than people in the general population. In response, the National MS Society convened a group of experts to develop fact-based guidance for promoting exercise and lifestyle physical activity for all people with MS, regardless of their ability level. Joining me to talk about these exercise recommendations along with some of the real benefits that exercise produces for people living with MS is Dr. Nora Fritz, a board-certified Neurologic Physical Therapist and an Assistant Professor in the Physical Therapy Program in the Department of Health Care Sciences and Department of Neurology at Wayne State University School of Medicine, where she's also the Director of the Neuroimaging and Neurorehabilitation Laboratory.

    Judy Boon was diagnosed with MS in 2007. Judy is a true MS Warrior who has fully integrated fitness activities and exercise into her everyday lifestyle. Judy is also joining me to talk about how exercise has impacted her MS journey.

    We're also talking about a University of Washington study that measured the willingness to receive a COVID-19 vaccine among people living with MS. We'll tell you about a study from Italy that measured the long-term benefits of autologous hematopoietic stem cell transplantation (aHSCT). And we're talking about an important survey that measured the perspectives and preferences regarding MS research among racial and ethnic groups. We have a lot to talk about! Are you ready for RealTalk MS??!

    Study measures COVID-19 vaccine willingness among people living with MS 2:23

    Study shows long-term benefits of analogous Hematopoietic Stem Cell Transplantation 6:32

    Study measures perspectives and preferences for MS research among racial and ethnic groups 9:15

    Study shows a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation 9:05

    My interview with Dr. Nora Fritz 12:45

    My interview with Judy Boone 25:14

    Share this episode 34:47

    Walk MS 2021 is coming! 35:07

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/179

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society COVID-19 Vaccine Guidance for People Living with MS

    What You Need to Know About Coronavirus (COVID-19)

    RealTalk MS Episode 177: Dr. Nancy Sicotte Answers Your Questions about the COVID-19 Vaccine and MS

    STUDY: Willingness to Obtain COVID-19 Vaccination in Adults with Multiple Sclerosis in the United States

    STUDY: Long-Term Clinical Outcomes of Hematopoietic Stem Cell Transplantation in Multiple Sclerosis

    Autologous Hematopoietic Stem Cell Transplant in Multiple Sclerosis: Recommendations of the National Multiple Sclerosis Society

    STUDY: Perceptions and Preferences Regarding Multiple Sclerosis Research Among Racial and Ethnic Groups

    iConquerMS

    Walk MS 2021

    National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 179 Guests: Dr. Nora Fritz and Judy Boone

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

    Privacy Policy

    Episode 178: Diet and MS with Dr. Ilana Katz Sand Jan 25, 2021
    Show notes

    Paleo...Wahls...Swank...Mediterranean...intermittent fasting. Is there such a thing as "The MS Diet"? Joining me to offer an expert opinion about diet and MS is Dr. Ilana Katz Sand, the Associate Director of the Corinne Goldsmith Dickinson Center for MS and Co-Director of the Center's Wellness Program. Dr. Katz Sand's recent and current research studies include a clinical trial of dietary interventions for MS and exploring the role of the gut microbiome in MS. Dr. Katz Sand is also a member of the National MS Society's Wellness Research Work Group where, over the past year, she's led the work of the Nutrition Wellness Subgroup.

    We're also looking at how a recent announcement about a new MS vaccine caught fire on social media. And we'll tell you what that news was really all about!

    We'll tell you about a study in Sweden that showed a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation in MS. And we're talking about a Columbia University study that shows why, if you're living with MS, "ya gotta have friends"! We have a lot to talk about! Are you ready for RealTalk MS??!

    Thanks for your feedback! :22

    And thank you for this very nice (and totally unexpected) surprise! 1:22

    Did you hear about the new MS vaccine? 3:31

    Study shows a cancer treatment may protect the blood-brain barrier and reduce neuroinflammation 9:05

    Study shows social support is linked to mental health, quality of life, and motor function in people with MS 11:29

    My interview with Dr. Ilana Katz Sand 14:23

    Share this episode 31:32

    Donate to the National MS Society COVID-19 Response Fund 31:52

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/178

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society COVID-19 Vaccine Guidance for People Living with MS

    What You Need to Know About Coronavirus (COVID-19)

    Meet the MS Society's 2020 Inspiration Award Winners STUDY: A Noninflammatory mRNA Vaccine for Treatment of Experimental Autoimmune Encephalomyelitis STUDY: Blocking PDGF-CC Signaling Ameliorates Multiple Sclerosis-Like Neuroinflammation by Inhibiting Disruption of the Blood-Brain Barrier STUDY: Social Support is Linked to Mental Health, Quality of Life, and Motor Function in Multiple Sclerosis Friends, Written by Buzzy Linhart and Performed by Bette Midler National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 178 Guests: Dr. Ilana Katz Sand

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, RealTalkMS

    Privacy Policy

    Episode 177: Dr. Nancy Sicotte Answers Your Questions About the COVID-19 Vaccines and MS Jan 18, 2021
    Show notes

    As Chair of the National MS Society's National Medical Advisory Committee, Dr. Nancy Sicotte led the expert task force that the MS Society convened to develop the COVID-19 vaccine guidance for people living with MS. Dr. Sicotte is returning to RealTalk MS to answer your questions about the vaccine and MS. Dr. Sicotte is a Professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she's also the Director of the Multiple Sclerosis and Neuroimmunology Program. Diane Kramer was diagnosed with MS in 2010. As a healthcare worker, Diane has already received the COVID-19 vaccine. Diane is also joining me to share her experience with the vaccine. We have a lot to talk about! Are you ready for RealTalk MS??!

    Dr. Nancy Sicotte answers your questions about the MS Society's COVID-19 vaccine guidance for people living with MS 1:47

    Diane Kramer shares her experience with the COVID-19 vaccine 19:51

    Share this episode 27:24

    Donate to the National MS Society COVID-19 Response Fund 27:44

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/177

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    What You Need to Know About Coronavirus (COVID-19)

    COVID-19 Vaccine Guidance for People Living with MS

    National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 177 Guests: Dr. Nancy Sicotte and Diane Kramer

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, COVID19, CovidVaccine, RealTalkMS

    Privacy Policy

    Episode 176: The National MS Society Issues a COVID-19 Vaccine Guidance Jan 11, 2021
    Show notes

    The National MS Society has issued its initial COVID-19 vaccine guidance for people living with MS and we're covering every detail of this anxiously awaited and important announcement. We're also taking a look back with Dr. Barbara Giesser at some of the things that made life better for people living with MS in 2020. We have a lot to talk about! Are you ready for RealTalk MS??!

    National MS Society releases COVID-19 vaccine guidance for people living with MS 1:44

    Some of the things that made life better for people living with MS in 2020 with Dr. Barbara Giesser 13:46

    Share this episode 26:19

    Donate to the National MS Society COVID-19 Response Fund 26:39

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/176

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    National MS Society COVID-19 Vaccine Guidance for People Living with MS

    What You Need to Know About Coronavirus (COVID-19)

    National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 176 Guests: Dr. Barbara Giesser

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, COVID19, RealTalkMS

    Privacy Policy

    Episode 175: People-Powered MS Research with the CEO of iConquerMS Sara Loud Jan 04, 2021
    Show notes

    Research creates the future for people affected by MS. And clinical research can't happen without your participation. Joining me as my guest is Sara Loud, the CEO of iConquerMS, the people-powered-research network that puts you at the center of MS research. We're also celebrating a whole list of MS advocacy wins that will translate into making life better for people living with MS in the United States. We'll tell you about a study that clearly demonstrates why it's essential to start disease-modifying therapy once someone receives an MS diagnosis. We're sharing the results of a study about MS-related pain. And we'll tell you about a new set of Amazon Alexa features that make being a long-distance care partner easier. We have a lot to talk about! Are you ready for RealTalk MS??!

    Celebrating MS advocacy wins :26

    Effects of disease-modifying therapy on disability among people living with relapsing-remitting MS over 15 years 4:33

    Study reveals new information about MS pain 6:01

    Amazon Alexa has new features especially for care partners 9:11

    My interview with Sara Loud 11:58

    Share this episode 28:39

    Donate to the National MS Society COVID-19 Response Fund 28:59

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/175

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    What You Need to Know About Coronavirus (COVID-19)

    National MS Society: Advocate for Change STUDY: Effect of Disease-Modifying Therapy on Disability in Multiple Sclerosis Over 15 Years STUDY: Characterizing Chronic Pain Phenotypes in Multiple Sclerosis: A Nationwide Study RealTalk MS Episode 170: Special MS Pain Episode For More Information About iConquerMS: Website: iConquerMS.org Sara Loud's Email: sloud@acceleratedcure.org National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 175 Guests: Sara Loud

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, iConquerMS, RealTalkMS

    Privacy Policy

    Episode 174: MSVirtual2020 Research Recap with Dr. Bruce Bebo Dec 28, 2020
    Show notes

    In this episode of RealTalk MS, we're re-visiting my conversation with Dr. Bruce Bebo, the Executive Vice-President of Research at the National MS Society, about some of the most interesting research announcements made during the MSVirtual2020 conference.

    This is one of my favorite conversations of the entire year, and you've made it this year's most downloaded and listened to RealTalk MS episode.

    We have a lot to talk about! Are you ready for RealTalk MS??!

    Happy New Year! :23

    My interview with Dr. Bruce Bebo :39

    Share this episode 27:04

    Have you downloaded the FREE RealTalk MS app? 27:24

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/174

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    What You Need to Know About Coronavirus (COVID-19)

    National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 174 Guests: Dr. Bruce Bebo

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, COVID19, MSVirtual2020, RealTalkMS

    Privacy Policy

    Episode 173: Creating the COVID Vaccine Guidance for People with MS with Dr. Nancy Sicotte Dec 21, 2020
    Show notes

    It's safe to say that this year, the biggest gift of the holiday season has been the arrival of not one, but two COVID-19 vaccines. Still, while the COVID-19 vaccines have created a tremendous amount of hope, they've also created an equal number of questions among people who are living with MS. So the National MS Society has convened a group of experts to provide guidance for people living with MS when it comes to making decisions about the safety, efficacy, and the timing of COVID-19 vaccines as they relate to certain MS disease-modifying therapies. As the Chair of the MS Society's National Medical Advisory Committee, my guest, Dr. Nancy Sicotte, is leading the effort to create this very important guidance. Dr. Sicotte is a Professor and Chair of the Department of Neurology at Cedars-Sinai Medical Center in Los Angeles, where she's also the Director of the Multiple Sclerosis and Neuroimmunology Program. We'll also talking about the FDA's approval to shorten the time required for an Ocrevus infusion. We'll tell you about new study results that show Mayzent may improve cognitive processing speed among people with progressive MS. And if you're living with progressive MS, we'll tell you about an important clinical trial that you may be eligible to participate in. We have a lot to talk about! Are you ready for RealTalk MS??!

    Happy Holidays! :24

    Shortened infusion time for Ocrevus 2:10

    Mayzent may improve thinking skills among people with progressive MS 3:30

    Investigators are recruiting people with progressive MS for a clinical trial 5:21

    My interview with Dr. Nancy Sicotte 8:48

    Share this episode 23:57

    Donate to the National MS Society COVID-19 Response Fund 24:18

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/173

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    What You Need to Know About Coronavirus (COVID-19)

    STUDY: Shorter Infusion Time of Ocrelizumab: Results from the Randomized, Double-Blind ENSEMBLE PLUS Study in Patients with Relapsing-Remitting Multiple Sclerosis STUDY: Siponimod and Cognition in Secondary Progressive Multiple Sclerosis: EXPAND Secondary Analyses For More Information About the Tolebrutinib Clinical Trial: Phone: (800) 733-1610 Email: US@sanofi.com National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 173 Guests: Dr. Nancy Sicotte

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, COVID19, Vaccine, RealTalkMS

    Privacy Policy

    Episode 172: Preventing Holiday (and Pandemic) Stress with Megan Weigel, DNP, ARNP-C Dec 14, 2020
    Show notes

    Feeling some of the stress and anxiety that often come with the holiday season? Who could blame you? If the holidays aren't enough, this year, we're also going through what's looking like the worst part of the COVID-19 pandemic. Stress and anxiety aren't guaranteed, but they aren't exactly unexpected, either. My guest this week, Megan Weigel, is here to share some techniques and strategies that we can use to de-stress during the holidays. Megan is a nurse practitioner specializing in neurological care. As a Multiple Sclerosis Certified Nurse and a board-certified Advanced Practice Holistic Nurse, Megan brings a unique integrative medicine and holistic nursing perspective to her practice. We'll also share more encouraging news about autologous hematopoietic stem cell clinical trials. We'll tell you about the newly released National MS Society guidance on telemedicine. (And if you've downloaded the free RealTalk MS app from the Apple App Store or Google Play Store, you'll find your copy of that guidance under the "Bonus Content" tab!) We're also talking about the very positive pilot study of a new computer-based cognitive rehab program. And we'll tell you about the launch of a first of its kind study that will help scientists understand how MS affects memory. If you're using CBD edibles to help manage some of your MS symptoms, you'll want to hear what happened when 40 brands of edibles were analyzed by an independent laboratory. We'll tell you how you can participate in a clinical trial that's going to evaluate treatments for MS fatigue (You can participate from home...and you can even get paid!) And if there are times when you just want to talk with someone who really gets it when it comes to living with MS, we'll tell you about MS Friends. We have a lot to talk about! Are you ready for RealTalk MS??!

    More encouraging news about autologous hematopoietic stem cell transplantation 1:46

    National MS Society issues telemedicine guidance 5:09

    Computerized cognitive rehab pilot study shows promise 6:34

    Kessler study will explore memory loss in MS 8:34

    CBD edibles...how much CBD is that??? 9:34

    Your chance to participate from home in a clinical trial about MS fatigue 11:29

    Just feel like talking? You can call MS Friends 13:34

    My interview with Megan Weigel, DPN, ARNP-C 16:04

    Share this episode 31:49

    Donate to the National MS Society COVID-19 Response Fund 32:09

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/172

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

    And don't forget to join us in the RealTalk MS Facebook group!

    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    What You Need to Know About Coronavirus (COVID-19)

    First Coast Integrative Medicine STUDY: Selective Cognitive Dysfunction and Physical Disability Improvement After Autologous Hematopoietic Stem Cell Transplantation in Highly Active Multiple Sclerosis RealTalk MS Episode 166 National MS Society Guidance: Tips for Successful Telemedicine for Those Living with MS STUDY: Enhancing Cognitive Rehabilitation in Multiple Sclerosis with a Disease-Specific Tool Leafreport CBD Edibles Market Report COMBO-MS MS Fatigue Study Eligibility Survey MS Friends: 1-866-MSFRIEND (1-866-673-7436)

    National MS Society COVID-19 Response Fund

    Join the RealTalk MS Facebook Group

    Download the RealTalk MS App for iOS

    Download the RealTalk MS App for Android

    Give RealTalk MS a Rating and Review

    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 172 Guests: Megan Weigel, DNP, ARNP-c

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, MSFriends, CBD, Stemcells, RealTalkMS

    Privacy Policy

    Episode 171: The Country with One of the Highest Rates of MS in the World with Dr. Pamela Valentine Dec 07, 2020
    Show notes

    Every day, 12 more Canadians are diagnosed with multiple sclerosis. Facing one of the highest MS rates in the world, spread across a geographically large country, the MS Society of Canada is the only national voluntary organization in Canada that supports cutting-edge MS research while providing services and support to more than 90,000 people living with MS. Joining me as my guest is Dr. Pamela Valentine, who is not only the president & CEO of the MS Society of Canada but also a multi-award winning neuroscientist. During our conversation, we'll be talking about COVID-19, progressive MS, and some of the most pressing issues facing the MS community today. We'll also share some encouraging stem cell clinical trial results. (And we're including a quick review of what these different types of stem cells are all about!) We'll tell you about a new immune cell discovery that helps explain the importance of the connection between the gut and the central nervous system. We're also talking about a new study from the Mayo Clinic that shows how a woman's pregnancies and the onset of menopause may influence the onset of progressive MS. And we'll tell you where to watch a 2020 MS Research Update from MS Research Australia. This video was produced especially for people affected by MS, and it's definitely worth watching! We have a lot to talk about! Are you ready for RealTalk MS??!

    Beneficial effects of mesenchymal stem cell transplantation in active progressive MS 1:44

    Gut Immune Cells May Play Key Role in MS 5:38

    Pregnancies, Later Menopause Tied to Progressive MS Onset Age 10:44

    $100M Program Aims to Improve Diversity in Clinical Trials 12:53

    MS Research Australia: Progress in MS Research Update 2020 16:15

    My interview with Dr. Pamela Valentine 17:59

    Share this episode 31:55

    Donate to the National MS Society COVID-19 Response Fund 32:15

    SHARE THIS EPISODE OF REALTALK MS

    Just copy this link & paste it into your text or email: https://realtalkms.com/171

    ADD YOUR VOICE TO THE CONVERSATION

    I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

    Email: jon@realtalkms.comPhone: (310) 526-2283

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    LINKS

    If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

    Give RealTalk MS a Rating and Review

    National MS Society's Ask An MS Expert Video Replay

    What You Need to Know About Coronavirus (COVID-19)

    MS Society of Canada

    STUDY: Beneficial Effects of Autologous Mesenchymal Stem Cell Transplantation in Active Progressive Multiple Sclerosis STUDY: Gut Microbiota-Specific IgA-B Cells Traffic to the CNS in Active Multiple Sclerosis STUDY: Reproductive History and Progressive Multiple Sclerosis Risk in Women Email for info about Bristol Myers Squibb Foundation Diversity in Clinical Trials Career Development Program: DCTCDPinfo@nmfonline.org VIDEO: MS Research Australia: Progress in MS Research Update 2020

    National MS Society COVID-19 Response Fund

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    Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

    RealTalk MS Episode 171 Guests: Dr. Pamela Valentine

    Tags: MS, MultipleSclerosis, MSResearch, MSSociety, MSActivist, MSSocietyCanada, MSResearchAust, Stemcells, RealTalkMS

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