RealTalk MS

Latest Episodes:

Episode 364: Understanding the Signs and Symptoms of MS with Dr. Leorah Freeman Aug 19, 2024

Show notes

Getting an MS diagnosis is not always the quick, straightforward process we'd like it to be. For some people, the process can drag on for years. But getting that diagnosis only happens when you and your primary care physician recognize that something's going on.

It might be a sudden vision issue. Maybe it's unexplained tingling in an arm or leg. Or maybe it's something more acute that gets your attention. A wide variety of signs could point to MS, but they could also point to other health conditions.

Dr. Leorah Freeman, Director of the Multiple Sclerosis and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin, joins me this week to help us better understand the signs and symptoms of multiple sclerosis.

Just as COVID-19 viral activity is increasing across the United States, we're sharing the results of a study that should put your mind at ease and motivate you to get that COVID-19 booster vaccination when it becomes available next month.

We'll tell you about a Phase 1 clinical trial that's getting underway for a novel cell therapy that may be effective in stopping MS.

You'll hear about a grant from the National Institutes of Health that will fund a study on the fear of falling among people with MS.

The 16th annual Burgers to Beat MS fundraising event is taking place on August 22nd at A&W locations across Canada. We'll give you the details on how you can participate -- whether you happen to be in Canada or not!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Understanding the signs and symptoms of MS :22

Study results show no increase in the risk of an MS relapse after COVID-19 vaccination booster 1:43

Phase 1 clinical trial of a novel cell-based therapy for MS is underway 4:12

NIH grant to investigate the fear of falling among people with MS 7:13

Burgers to Beat MS is happening at A&W locations across Canada on August 22nd! 9:28

Dr. Leorah Freeman discusses the sometimes confusing signs and symptoms of MS 11:09

Share this episode 28:36

Have you downloaded the free RealTalk MS app? 28:56

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Just copy this link & paste it into your text or email: https://realtalkms.com/364

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I've always thought about the RealTalk MS podcast as a conversation. And this is your opportunity to join the conversation by sharing your feedback, questions, and suggestions for topics that we can discuss in future podcast episodes. Please shoot me an email or call the RealTalk MS Listener Hotline and share your thoughts!

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Risk of Relapse After COVID-19 Vaccination Among Patients with Multiple Sclerosis in France https://www.neurology.org/doi/10.1212/WNL.0000000000209662

Burgers to Beat MS https://burgerstobeatms.ca

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RealTalk MS Episode 364 Guest: Dr. Leorah Freeman

Episode 363: Safe Driving When You're Living with MS with Jenny Nordine, OTL, CDRS Aug 12, 2024

Show notes

For some people, getting in their car and heading for, well, anywhere represents freedom and independence. For others, it's a way to get to their jobs, get to their medical appointments, get the kids to school, and run necessary errands. MS can change all of that.

Occupational Therapist and Certified Driver Rehabilitation Specialist Jenny Nordine joins me to discuss how to preserve your independence while protecting yourself and the people around you when you're driving with MS.

You'll also meet Dr. Susan Seizer, a true difference-maker and one of the founders of the Mobility Aids Lending Library.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Maintaining your independence and keeping yourself and others around you safe when you're driving with MS :22

Dr. Susan Seizer discusses the Mobility Aids Lending Library and the stigma of disability 1:26

Occupational Therapist and Certified Driver Rehabilitation Specialist, Jenny Nordine, discusses how to preserve your independence while protecting yourself and the people around you when you're driving with MS 20:35

Share this episode 31:25

Have you downloaded the free RealTalk MS app? 31:45

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Just copy this link & paste it into your text or email: https://realtalkms.com/363

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LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Mobility Aids Lending Library https://mcpl.info/commorg/mobility-aids-lending-library-mall

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

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Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 363 Guest: Dr. Susan Seizer, Jenny Nordine OT/L, CDRS

Episode 362: The Role of Integrative Medicine in Treating MS with Dr. Lynne Shinto Aug 05, 2024

Show notes

Integrative medicine brings conventional and complementary treatments together in a coordinated way. This approach to health and wellness represents a growing trend across the United States, especially among people who live with a chronic disease like MS.

Dr. Lynne Shinto joins me to explain what integrative medicine is and how to safely incorporate complementary treatments into your MS care plan.

We'll also tell you about study results that show how the common cold, flu, or a urinary tract infection can all contribute to MS worsening.

We'll tell you about the research team that has successfully used an artificial intelligence algorithm to predict future MS disability progression.

We'll share the details behind the work of another research team that successfully used an artificial intelligence algorithm to reliably diagnose MS.

The European Union's AI Act went into effect last week. We're explaining all the ways this new law will impact healthcare.

We have a lot to talk about! Are you ready for RealTalk MS??!

Remembering June Halper :22

This Week: Decoding Integrative Medicine 1:58

STUDY: Infections outside the central nervous system contribute to MS worsening 2:42

STUDY: Artificial intelligence model reliably predicts future MS disability progression 5:33

STUDY: Artificial intelligence model uses retinal imaging to reliably diagnose MS 7:51

How the European AI Act will impact healthcare 10:33

Dr. Lynne Shinto discusses the role of Integrative Medicine in treating MS 14:55

Share this episode 28:49

Have you downloaded the free RealTalk MS app? 29:09

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Just copy this link & paste it into your text or email: https://realtalkms.com/362

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Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

STUDY: Systematic Inflammation Associates With and Precedes Cord Atrophy in Progressive Multiple Sclerosis https://academic.oup.com/braincomms/article/6/3/fcae143/7655554

STUDY: Longitudinal Machine Learning Modeling of MS Patient Trajectories Improves Predictions of Disability Progression https://pubmed.ncbi.nlm.nih.gov/34146771

STUDY: SLO-NET: Enhancing Multiple Sclerosis Diagnosis Beyond Optical Coherence Tomography Using Infrared Laser Reflectance Scanning Ophthalmoscopy Images https://tvst.arvojournals.org/article.aspx?articleid=2800432

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

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Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 362 Guests: Dr. Lynne Shinto

Episode 361: Meet the new President and CEO of the National MS Society with Dr. Tim Coetzee Jul 29, 2024

Show notes

Less than two weeks ago, the National MS Society announced the appointment of Dr. Tim Coetzee as its new President and CEO. The MS Society's board chair, Peter Porrino, commented, "Tim is a trusted voice of the global MS community, a highly respected scientist, and we are excited for him to bring his transformative leadership to drive us into our next era to achieve a world free of MS."

I thought it was important for everyone in the RealTalk MS listener community to hear from Tim and learn firsthand what his vision and priorities are for the MS Society. So, I'm dedicating this entire episode to my conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: A conversation with the new President and CEO of the National MS Society, Dr. Tim Coetzee :22

Share this episode 28:32

Have you downloaded the free RealTalk MS app? 28:52

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Just copy this link & paste it into your text or email: https://realtalkms.com/361

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 361 Guest: Dr. Tim Coetzee

Episode 360: How Digital Technology Is Changing the Diagnosis and Treatment of MS with Dr. Riley Bove Jul 22, 2024

Show notes

It's hard to imagine any area of our lives that hasn't been transformed by digital technology. That's certainly true for healthcare in general and MS diagnosis and treatment in particular.

Dr. Riley Bove joins me to discuss the role that digital technology already plays in the diagnosis and treatment of MS and to share a preview of what's coming next.

The National MS Society has named its new President and CEO. We're sharing the details!

We'll tell you about some of the benefits that are being observed in the Phase 2 clinical trial and extension study of Frexalimab, an experimental antibody that may be on the path to becoming a highly effective disease-modifying therapy.

We'll share the details behind the FTC's planned lawsuit against the three largest Pharmacy Benefit Managers (and we'll tell you why that matters to anyone taking a prescription medication).

Stressing out about an upcoming MRI exam? We're sharing info about Happy MRI, a website that's been designed to relieve MRI-related anxiety.

And we're reminding you that Crush MS, the Napa Valley wine-tasting fundraising event, is happening this Saturday, July 27th. We'll let you know where to get your ticket!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The impact of digital technology :22

Dr. Tim Coetzee named the President and CEO of the National MS Society 1:50

Frexalimab shows significant benefits in Phase 2 clinical trial 4:08

FTC to file suit against three largest Pharmacy Benefit Managers 6:08

Happy MRI is designed to relieve MRI-related anxiety 8:03

We're just days away from Crush MS 9:47

Dr. Riley Bove discusses how digital technology is changing MS diagnosis and treatment 11:21

Share this episode 28:54

Next week: Newly named President and CEO of the National MS Society, Dr. Tim Coetzee, talks about his vision for the MS Society and shares his immediate priorities 29:14

Have you downloaded the free RealTalk MS app? 29:32

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/360

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

RealTalk MS Episode 359: The Unraveling with Dr. Nara Michaelson https://realtalkms.com/359

Happy MRI https://happymri.com

CRUSH MS https://crushms.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 360 Guests: Dr. Riley Bove

Episode 359: The Unraveling with Dr. Nara Michaelson Jul 15, 2024

Show notes

As Harvard Fellow Dr. Nara Michaelson treated women who had been recently diagnosed with MS, she recognized they shared characteristics that she had observed in victims of violent domestic abuse. Dr. Michaelson's observation led her to write The Unraveling, an essay that highlights the fear that can accompany the uncertainty of living with MS.

Dr. Michaelson joins me to discuss the experiences that led to her award-winning essay and to share resources that can help maintain your emotional health and well-being in a good place when you're living with MS.

We're also sharing the details about BEAT-MS, a clinical trial that will compare autologous hematopoietic stem cell transplantation (AHSCT) with high-efficacy disease-modifying therapies when it comes to reducing or eliminating MS relapse activity. And we'll let you know how to find out if you could be a potential participant in this important clinical trial.

We'll tell you about the FDA approval granted to Abata Therapeutics to conduct a Phase 1 clinical trial of ABA-101, their experimental therapy for progressive MS.

We're sharing news about the Federal Trade Commission's newly released report on Pharmacy Benefit Managers. (And we'll tell you why this matters to every person in the United States who takes a prescription medication)

And we'll tell you about Take Charge, a new virtual program from Can Do MS that you can participate in at no cost!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The Unraveling :22

BEAT-MS clinical trial compares AHSCT with high-efficacy DMTs 1:58

FDA clears ABA-101 for Phase 1 clinical trial 5:17

FTC is turning its focus to Pharmacy Benefit Managers 6:55

Can Do MS offers new Take Charge virtual program 11:47

Dr. Nara Michaelson discusses her award-winning essay, The Unraveling 13:23

Share this episode 29:15

Next week: Dr. Riley Bove discusses how digital technology has become a game-changer in diagnosing, treating, and managing MS 29:35

Have you downloaded the free RealTalk MS app? 29:55

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/359

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The Unraveling https://neurology.org/doi/10.1212/WNL.0000000000209492

BEAT-MS Clinical Trial https://beat-ms.org

RealTalk MS Episode 205: A Potentially Transformational Therapy for Progressive MS with Samantha Singer and Dr. Richard Ransohoff https://realtalkms.com/205

FTC Report -- Pharmacy Benefit Managers: The Powerful Middlemen Inflating Drug Costs and Squeezing Main Street Pharmacies https://ftc.gov/system/files/ftc_gov/pdf/pharmacy-benefit-managers-staff-report.pdf

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 359 Guests: Dr. Nara Michaelson

Episode 358: VISIBL-MS with Dr. Jaime Imitola Jul 08, 2024

Show notes

The inequities associated with gaining access to quality healthcare are often discussed, and my guest this week has taken steps to address them. Dr. Jaime Imitola and his team at UCONN Health have created a tool called VISIBL-MS, a bilingual framework designed to increase doctors' and patients' awareness of the early signs of MS.

We'll also share the results of a study that clearly illustrate progression independent of relapse activity (PIRA).

We'll tell you about a small study that showed a positive outcome for people with progressive MS who received neural stem cell therapy.

We'll share details of a study that identified a panel of 20 blood-based proteins that have been shown to be predictive of MS disease activity. (And we'll tell you why that's a good thing for patients and researchers!)

And we're reminding you that we're just over 2 weeks away from CRUSH MS!

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: VISIBL-MS :22

Study results provide evidence of PIRA 1:41

Stem cell therapy for progressive MS? 4:28

Researchers identify a panel of 20 proteins that are predictive of MS disease activity 7:19

We're just over 2 weeks away from CRUSH MS! 10:07

Dr. Jaime Imitola discusses how VISIBL-MS will increase doctors' and patients' awareness of the early signs of MS. 11:35

Share this episode 31:33

Have you downloaded the free RealTalk MS app? 31:53

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/358

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

VISIBL-MS: A Bilingual Educational Framework To Increase Awareness of Early Multiple Sclerosis https://journals.sagepub.com/doi/10.1177/13524585241228739

STUDY: Acute Clinical Events Identified as Relapses with Stable Magnetic Resonance Imaging in Multiple Sclerosis https://pubmed.ncbi.nlm.nih.gov/38949816

STUDY: Phase I Clinical Trial of Intracerebroventricular Transplantation of Allogeneic Neural Stem Cells in People with Progressive Multiple Sclerosis https://www.sciencedirect.com/science/article/pii/S1934590923003934

STUDY: Inflammatory and Neurodegenerative Serum Protein Biomarkers Increase Sensitivity to Detect Clinical and Radiographic Disease Activity in Multiple Sclerosis https://nature.com/articles/s41467-024-48602-9

CRUSH MS: Tickets and Info https://crushms.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 358 Guests: Dr. Jaime Imitola

Episode 357: Living Your Best Life When You're Living with MS with Dr. Lisa Doggett Jul 01, 2024

Show notes

When it comes to living your best life when you're living with MS, the first step is to make smart lifestyle choices. Maintaining a healthy lifestyle doesn't require pills, injections, or infusions. And making smart lifestyle choices can make a real, measurable difference in your quality of life.

Joining me to talk about the benefits of maintaining a healthy lifestyle and share some tips and strategies for living your best life when you're living with MS is Dr. Lisa Doggett, a family and lifestyle medicine physician at the MS and Neuroimmunology Center at Dell Medical School at the University of Texas at Austin.

Dr. Doggett was diagnosed with MS in 2009, and she's the author of the memoir, 'Up the Down Escalator: Medicine, Motherhood, and Multiple Sclerosis'.

We'll also tell you about a research team that's looking to improve the way that stem cells are transplanted -- and why that's a good thing for people with MS.

We'll share the details behind the European Union's approval of a new Ocrevus formulation that makes the DMT much more patient-friendly.

You'll hear about the blood test for measuring a biomarker that can predict future MS disease worsening that has just gained approval in the European Union.

And we'll tell you where to find the video replay of Mobility Challenges in Progressive MS, the most recent webcast hosted by the International Progressive MS Alliance.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: Lifestyle changes that will improve your quality of life :22

Researchers receive a grant to develop a better way to transplant stem cells 1:30

Subcutaneous Ocrevus has been approved in the European Union 3:50

Blood test to measure a biomarker that can predict future MS disease worsening receives approval in the European Union 5:35

Catch the video replay of the latest Progressive MS Alliance webcast 7:13

Dr. Lisa Doggett offers strategies for making lifestyle choices that will make a difference in your quality of life 8:20

Share this episode 26:50

Next Week: Dr. Jaime Imitola introduces us to VISIBL-MS 27:10

Have you downloaded the free RealTalk MS app? 27:39

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/357

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

VIDEO REPLAY of the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://youtube.com/watch?v=YGA-2k9JCLg&t=14s

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 357 Guests: Dr. Lisa Doggett

Episode 356: A Final Conversation with National MS Society President and CEO, Cyndi Zagieboylo Jun 24, 2024

Show notes

Over the course of her 39-year career with the National MS Society, including the past 13 years as its President and CEO, Cyndi Zagieboylo has been a driving force behind major initiatives that have fundamentally changed the MS treatment and research landscape. Creating a world where cures for MS are now within reach, Cyndi has led the work to make living with MS better today than it's ever been.

On July 1, Cyndi is retiring from her remarkable career at the National MS Society. I had an opportunity to talk with Cyndi about the progress she's witnessed and the progress she has driven in leading the MS Society. It's been a career filled with so many moments that are worthy of celebration, I am devoting this entire episode of RealTalk MS to one last conversation with Cyndi Zagieboylo.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: A final conversation with the National MS Society's President and CEO, Cyndi Zagieboylo :22

A look back at some of the most impactful initiatives that were led by Cyndi 1:43

Share this episode 30:39

Next Week: Lifestyle medicine physician Dr. Linda Doggett shares tips and strategies for making healthy lifestyle choices that will improve your quality of life 31:00

Have you downloaded the free RealTalk MS app? 31:50

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/356

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 356 Guest: Cyndi Zagieboylo

Episode 355: The NARCOMS Patient Registry with Dr. Robert Fox Jun 17, 2024

Show notes

Research is the engine that drives the future. And participating in MS research is not only vital to improving scientists' understanding of multiple sclerosis, it's also empowering. And the really good news is that you can participate in MS research from the comfort of your own home.

My guest this week is the Managing Director of the North American Research Committee on Multiple Sclerosis, Dr. Robert Fox. And we're taking a deep dive into the NARCOMS patient registry.

We'll also tell you about the latest version of AlphaFold, a highly advanced artificial intelligence model designed to help scientists design new drugs and target disease more effectively.

Evidence shows that the Epstein-Barr Virus (EBV) triggers MS. We're reviewing the results of a study that may help scientists better understand the relationship between EBV and MS.

The International Progressive MS Alliance upcoming webcast, Mobility Challenges in Progressive MS, takes place this Thursday, June 20th. Find out where you can register and why you won't want to miss this!

And we're just 6 weeks away from Crush MS, a fundraising event in Napa Valley, California that raises money to support MS research. I'll be there, and I hope you can join me! We're sharing all the details.

We have a lot to talk about! Are you ready for RealTalk MS??!

This Week: The NARCOMS Patient Registry :22

The most advanced AI on earth is focused on discovering new medications 1:40

Researchers learn that Epstein-Barr Virus re-activates and drives inflammation during an MS relapse 4:00

The Progressive MS Alliance hosts a live global webcast this Thursday, June 20th! 7:17

Crush MS is just 6 weeks away 8:39

Dr. Robert Fox takes us on a deep dive into the NARCOMS patient registry 10:08

Share this episode 26:12

Next Week: A special conversation with National MS Society President and CEO, Cyndi Zagieboylo 26:33

Have you downloaded the free RealTalk MS app? 27:17

SHARE THIS EPISODE OF REALTALK MS

Just copy this link & paste it into your text or email: https://realtalkms.com/355

ADD YOUR VOICE TO THE CONVERSATION

Email: jon@realtalkms.com Phone: (310) 526-2283

And don't forget to join us in the RealTalk MS Facebook group!

LINKS

If your podcast app doesn't allow you to click on these links, you'll find them in the show notes in the RealTalk MS app or at www.RealTalkMS.com

The NARCOMS Patient Registry https://www.narcoms.org

STUDY: Multiple Sclerosis Patient-Derived Spontaneous B Cells Have Distinct EBV and Host Gene Expression Profiles In Active Disease https://nature.com/articles/s41564-024-01699-6

REGISTER for the International Progressive MS Alliance Global Webcast: Mobility Challenges in Progressive MS https://msif.org/webcast-mobility

Get Tickets for Crush MS https://www.crushms.org

Join the RealTalk MS Facebook Group https://facebook.com/groups/realtalkms

Download the RealTalk MS App for iOS Devices https://itunes.apple.com/us/app/realtalk-ms/id1436917200

Download the RealTalk MS App for Android Deviceshttps://play.google.com/store/apps/details?id=tv.wizzard.android.realtalk

Give RealTalk MS a rating and review http://www.realtalkms.com/review

Follow RealTalk MS on Twitter, @RealTalkMS_jon, and subscribe to our newsletter at our website, RealTalkMS.com.

RealTalk MS Episode 355 Guests: Dr. Robert Fox