Portland Roots Media

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Kids & Family
**Portland Roots Media**

I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called USP7. She’s different. And now, so is everything else. #USP7 #autism

Latest Episodes:

#255: Tess Does a Can Opener Dec 04, 2019

Show notes

Our girl is, to say the least, incredibly busy.

#254: Festival Pt 2 Nov 27, 2019

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I'm a crier. I admit it. My wife busts my chops about it. I've been known to weep at cereal commercials. And in San Francisco this year, there was no shortage of tears.

#253: Festival Nov 20, 2019

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I just wrapped up year two of a massive project. About Tess. And USP7. And some of the other 6999 other rare diseases.

#252: I Really Can't Talk Right Now Nov 13, 2019

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Due to circumstances, Imma keep it short this week. Really short.

#251: Back on Track Nov 06, 2019

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If they gave out punch cards for medical appointments, with frequent flyer miles for our Tess, she'd have enough points for a trip around the world at this point.

#250: Special 250th Episode Oct 30, 2019

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My wife and I are good at some things. But we are terrible at sitting still, for even a short while. We are bad at the pastime of doing nothing.

#249: Getting on the Map Pt 2 Oct 23, 2019

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The map turns out to be the key to everything we're doing right now. I'm talking about the rare-disease map. We want to get on it. And it is slowly beginning to happen.

#248: Getting on the Map Oct 16, 2019

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New Orleans. Known for beignets, Mardi Gras, and conferences about rare neurodevelopmental disorders.

#247: For Tess, Seeing Is Believing Oct 09, 2019

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TBE. Maybe you know what this stands for.

#246: Back to Global Genes Pt 2 Oct 02, 2019

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Copying homework is exactly what you should do.