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    Kids & Family

    Portland Roots Media

    I quit my law job to be at home with my kids. Turns out our daughter Tess has a rare genetic disorder called USP7. She’s different. And now, so is everything else. #USP7 #autism

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    Latest Episodes:
    #235: Oh No You Didn't Jul 17, 2019
    Show notes
    IMG_6304.jpg

    A massive failure, by me, with Tess feeling quite amused about the whole thing.

    Hey, if you're affected by rare disease, I want you to know about this organization my friend Seth Rotberg started. It's called Our Odyssey, and it connects young adults with support, social and emotional, in the hope of improving their quality of life. This is hard, people. Rare disease is hard. It's especially hard if you're doing it alone, and you're not connected to anyone else who can understand what you're going through. So if you're a young adult and you're affected by rare disease, check out Our Odyssey. You can find them at OurOdyssey.org.


    #234: Island Time Jul 10, 2019
    Show notes

    Holidays aren't always Tess's favorite. After all, they interrupt something that is her favorite: the routine of going to school. But this year on the 4th, Tess had a blast.


    #233: Happy 4th Jul 03, 2019
    Show notes

    Summertime for Tess. Our girl has been a busy bee, to say the least.

    Help Nick’s family get answers about Cameron by clicking and sharing. #HelpCameron https://cameronsmystery.com/


    #232: After the Award Jun 26, 2019
    Show notes

    Tess stood up in front of her class and got an award last week. It was amazing to see, but my favorite part was what happened just after that.

    Did you know that we recently found our 50th USP7 patient? We did. Hooray! Remember, Tess was the 8th known patient in 2015. One of the ways we find more is through your help, Tess Army. You've been with us on this journey, and we feel it. We feel your love every time you share this podcast with someone. So keep it up. Keep sharing and help us get our next 50 USP7 patients. You guys are awesome.


    #231: Breakfast in Bed Jun 19, 2019
    Show notes

    Hope Solo. Dennis Eckersley. Dominik Hasek. All of these people have made great saves. But they got nothing on my wife.

    Hey, if you're new to the podcast, you know what would really help me? Give me a quick review and rating on iTunes. It really helps people find my show and gets the story of Tess out there to more folks. Thanks!

    Follow me to get the latest on Tess:

    Facebook | Twitter | Instagram | Spotify


    #230: The Sovereign Nation of Tess Jun 12, 2019
    Show notes

    How do you explain Tess to someone who doesn't know her but needs to get to know her? What details would you include?


    #229: Science to the Rescue Jun 05, 2019
    Show notes

    Quick one for ya this week. Update on some super-dope studies happening with USP7.


    #228: Just the Check Please May 29, 2019
    Show notes

    It's like a Samuel Beckett play. A tiny room. People waiting. Including Tess. Have they always been in this room? Will they have to wait for all eternity, because they wait for something that will never take place?


    #227: Get a Move On May 22, 2019
    Show notes

    Tess was nagging me this week. Really. She's like, Daaad! Come onnn!


    #226: I'm a Big Fan May 15, 2019
    Show notes

    Last Sunday Tess had a big day.


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