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Should Patients Have the Right to Try? Jan 31, 2019

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In this podcast, Dr Alison Bateman-House, Assistant Professor, Division of Medical Ethics at NYU Langone Health, discusses the debate of compassionate use and the right to try. It dives into the implications, both positive and negative, of opening up that door.

Best Practices in Communication and PR Strategy Jan 30, 2019

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In this podcast, Raju Joshi, Managing Partner at Clinical Partners Group and Dr Zain Kassam, CSO at Finch Therapeutics, discuss how CMO's can more effectively communicate with CEO's, CSO's, and Clinical Operations executives in order to prove a comprehensive summary of the science and business aspects of the company. You can join us at the 7th annual Chief Medical Officer Summit happening April 4-5, 2019 in Boston. To learn more visit theconferenceforum.org.

Translating Patient Insight and Patient Experience Internally into Deliverables Jan 24, 2019

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Mary Stober Murray, Associate Director, Diversity and Patient Engagement for BMS, discusses applying quality systems framework (structure, processes, outcomes) to patient engagement initiatives to help create clinical development deliverables that meet industry goals while aligning with patients needs. Mary Stober Murry will be joining the 6th annual Patients as Partners US program on March 11-12 at the Wyndham Philadelphia Historic District Hotel in Philadelphia to lead a roundtable discussion on Building Patient Engagement into Systematic Processes. Patients as Partners US is the only conference that demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research. For more information visit www.theconferenceforum.org.

Progress and Future Outlook of Cancer Immunotherapy Jan 23, 2019

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In this podcast, we were joined by Mr Charles Graeber, award-winning journalist and author who recently published The Breakthrough: Immunotherapy and the Race to Cure Cancer along with Dr James Gulley, Head of the Immunotherapy Section and Director of the Medical Oncology Service at the Center for Cancer Research within the National Cancer Institute. Together Mr Graeber and Dr Gulley delved into the significance of this moment in science, what the progress has been and explore what is next on the horizon within immuno-oncology. Both Dr Gulley and Mr Graeber will be presenting at the 5th annual IO360°, February 6-8 at The Crowne Plaza Times Square Hotel, NYC. For more information visit IO360°.

Panel: Engaging Patients By Giving Them their Data Jan 22, 2019

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This podcast features a panel previously recorded at the 5th annual Patients as Partners US program on Engaging Patients By Giving Them their Data. The panel, moderated by David Leventhal, Director of Clinical Innovation for Pfizer, discussed: • What information and data do patients want during a clinical trial? • What initiatives is pharma currently doing to support this? • What impact will it have if patients have access to their data? Additional panelists included: Jenny Ahlstrom, Myeloma survivor and Co-founder, CrowdCare Foundation Kristina Figueroa, MSPH, Patient and Advocate Cindy Geoghegan, Cancer Survivor, Patient Advocate & Team Lead, CTTI’s Mobile Clinical Trials Stakeholder Perceptions Project Thérèse Johnsen, Associate Director, Patient Engagement Management, Novartis Join us for the 6th annual Patients as Partners US program on March 11-12 at the Wyndham Philadelphia Historic District Hotel in Philadelphia where we feature extended sessions on The Democratization of Patient Data & Returning Data to Patients.Patients as Partners US is the only conference that demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research.For more information visit www.theconferenceforum.org.

Mobile Technology in Clinical Trials: Clinical Trials Transformation Initiative Jan 15, 2019

Show notes

Les Jordan, Working Group Member and Cindy Geoghegan, Team Lead for CTTI, the Clinical Trials Transformation Initiative, share findings from a multi-stakeholder project undertaken by the Clinical Trials Transformation Initiative to better understand patient perspectives on mobile technologies in clinical trials. The survey, conducted amongst 100 patients across multiple therapeutic areas, evaluated the ways patients would be willing to use mobile technologies and the impact on their participation in clinical trials. Additional focus areas included: • Potential impacts of mobile on participant experiences in clinical trials • Patient willingness to share personal health data • Important attributes for designing trials that address patient preferences and expectations • Implications for the research enterprise CTTI will also be joining the 6th annual Patients as Partners US program on March 11-12 at the Wyndham Philadelphia Historic District Hotel in Philadelphia where they will share newly-released recommendations and actionable tools, understand unique considerations for participants in mobile trials, and opportunities to effectively engage patients during trial planning. For more information on the 6th annual event, visit www.theconferenceforum.org.

How GSK Implemented Pivotal End-to-End Engagement Initiatives at Different Stage Jan 14, 2019

Show notes

Dr Marilyn Metcalf, Head of the Center of Innovation for GSK, at the 5th annual Patients as Partners 2018 program. Dr Metcalf shares how GSK implemented pivotal end-to-end engagement initiatives at different stages of development. Dr Metcalf walked the audience through some examples of the engagement initiatives supported by: • Creation of a framework and toolkit that builds on existing infrastructure • Networks of champions and project leads • Project planning • Emerging best practices being shared throughout the organization Dr Metcalf will also be joining the 6th annual Patients as Partners US program on March 11-12 at the Wyndham Philadelphia Historic District Hotel in Philadelphia where she leads a panel with patients and advocacy on Mapping Out the Patient Decision Making Journey. Patients as Partners US is the only conference that demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research. For more information visit www.theconferenceforum.org.

How to Make Patient Involvement Sustainable Throughout Medicines Development Jan 12, 2019

Show notes

To prevent ticking off a box and to ensure that patient involvement is systemic and sustainable, we have to move into patient-centricity 2.0. What does this mean and how is this done so we can turn the patient voice into value, impact, and benefit? This session presented at the 2nd annual Patients as Partners EU meeting, which took place January 2018 in London, demonstrates best practices from Hoffman La Roche, Melanoma Patient Network, Patient Focused Medicines Development, and European Patients Forum. Moderated by: Bettina Ryll, PhD, Founder, Melanoma Patient Network Europe. Panelists: Nicola Bedlington, Secretary General, European Patients ForumNicholas Brooke, Chief Executive Officer, Patient Focused Medicines Development (PFMD)Irmi Gallmeier, Senior International Health Policy Leader, Patient Relations, F. Hoffman La Roche The 3rd annual Patients as Partners EU meeting will take place January 28-29, 2019 in London, UK. Find more information here.

What Does a Truly Patient-Centered Healthcare System Look Like in 5-10 Years? Jan 11, 2019

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What would have to change to make a patient-centric healthcare system a reality? How can this be achieved, given the huge resistance to change built into current systems? In this session, Alastair Kent, Director of Genetic Alliance UK, addresses: New opportunities to interveneDemographic changeConstrained funding right across EuropeThe introduction of Expert Reference NetworksHow we can work through this collaboratively. This session was presented at the 2nd annual Patients as Partners Europe meeting in London in January 2018. The 3rd Annual Patients as Partners Europe meeting will take place January 28-29, 2019 in London, UK. You can find more information here.

6th Annual Patients as Partners US: What to Expect in 8 Minutes Jan 09, 2019

Show notes

This 8 minute podcast summarizes what you can expect at the 6th annual Patients as Partners US conference. This is the only event that truly demonstrates how to involve patients throughout the entire medicines development life cycle to drive greater efficiencies in clinical research. The conference takes place March 11-12, 2019 at the Wyndham Philadelphia Historic District, Philadelphia, PA. The program is chaired by Merck's Jan Nissen, VP, Patient Innovation and Engagement, Arthritis Foundation's Suzanne Schrandt, Director of Patient Engagement, and IQVIA's Cynthia Verst, President, Design and Delivery Innovation. For more information please visit www.patientsaspartners.org or contact us at service@tcfllc.org.

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