Made Visible

128. The Quiet Epidemic with Special Guest, Ally Hilfiger Jul 25, 2023

I moderated a panel discussion at ReelAbilities Film Festival on The Quiet Epidemic, an eye-opening film about Lyme disease that highlights the emotional toll of patients’ journeys with the illness and the scientific facts of the disease.

During the panel I spoke with the film’s Emmy-winning producer Chris Hegedus, who helped the directors bring this topic to light, 19-year-old Julia Bruzzese, a patient with Lyme disease featured in the film who bravely shared her story because she knew it could help other patients, and Julia’s dad, Enrico Bruzzese, who has been her caregiver and biggest supporter.

This episode also includes my recent conversation with past guest and the film’s executive producer, Ally Hilfiger, who talks about her own Lyme story and how important it was for the film to include both real, digestible science and a patient’s story for viewers to connect with.

The Quiet Epidemic reminds us how important it is to educate about a devastating tick-borne disease like Lyme, which is growing more and more common, yet still so difficult to test for and treat.

For more information about The Quiet Epidemic and ReelAbilities, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online! Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible

127. Ilana Jacqueline, Fighting the War Against Medical Gaslighting Jul 18, 2023

Author and patient advocate Ilana Jacqueline experienced medical gaslighting from a young age. At age 19 she was diagnosed with Hypogammaglobulinemia, a rare immunodeficiency.

While navigating young adulthood with an invisible illness, Ilana also faced lots of medical gaslighting, encountering doctors who shamed her out of seeking care.

Ilana has devoted her career to patient advocacy. Through her work, as well as public speaking, social media, and writing books (Surviving and Thriving with an Invisible Chronic Illness, and the upcoming Medical Gaslighting: A Guide to Help You Recognize It, Prevent It, and Fight For Your Life) Ilana helps patients survive and thrive with chronic illness, and spot and combat deadly medical gaslighting. If you have experienced medical gaslighting, you’re not alone, and Ilana is in your corner.

For more information about Ilana Jacqueline, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online! Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible

126. Melissa Coulier, Finding a Holistic Approach to Lupus and Life Jul 11, 2023

Melissa is a functional fitness instructor, photographer, and Lupus warrior. After living her whole life in pain, Melissa was finally diagnosed with Lupus in 2006. She began a variety of treatments that helped combat her symptoms, but the physical and mental toll of pain and treatment left Melissa in a place of exhaustion, depression and self-pity.

A few years later, Melissa shifted gears and adopted an approach to managing her pain that included nutrition and lifestyle changes, as well as medical observation when needed. Melissa also shifted her mindset, creating obtainable goals, avoiding all-or-none thinking, and listening to her body.

Melissa has drawn from her transformation to build a career in holistic nutrition and wellness, helping her clients embrace their individuality and be in charge of their own stories.

For more information about Melissa Coulier, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online! Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible

125. Akiva Zablocki, Helping Families with Hyper IgM Find Community and Care Jul 04, 2023

Akiva Zablocki is a former healthcare consultant and the founder of the Hyper IgM foundation. When Akiva’s son Idan was just eight months old, he was diagnosed with Hyper IgM, an incredibly rare genetic mutation that severely compromises the immune system. After three years of diligent research and advocacy, Akiva and his wife were able to obtain a life-saving bone marrow transplant for Idan.

Through this experience, Akiva connected with other Hyper IgM patients and their families all around the world, as well as many doctors and immunologists working to help those patients. This growing community led Akiva to found the Hyper IgM Foundation, which has become a much-needed way for patients and families to connect and share resources that were previously so difficult to find for such a rare illness. Akiva continues to work tirelessly to support his fellow Hyper IgM families and help them feel less alone.

For more information about Akiva Zablocki and his family’s journey, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible

124. Melissa Aives and Danielle Scaramellino, Navigating Invisible Illness With My Best Friends Jun 27, 2023

Join me for a very special episode where I sit down with my best friends, Melissa Aives and Danielle Scaramellino, as we reflect on a life-changing moment eleven years ago when I underwent a life-threatening surgery, introducing my friends to a world of uncertainty about my health.

Despite our close bond, they had never witnessed this side of me, leading to an adjustment and redefinition of our friendship. Discover the power of vulnerability, the importance of asking for support, and the lessons we've learned about adapting, prioritizing health, and building a strong support system. This heartfelt episode is a testament to the enduring strength of true friendship and the growth that comes from understanding and compassion.

For more information about Melissa Aives and Danielle Scaramellino visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

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Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible

123. Jamie Nicole, Creating Support for the BIPOC Community Living with Autoimmune Diseases Jun 20, 2023

Jamie Nicole is a highly regarded certified health coach dedicated to helping individuals achieve optimal health through complementary medicine and holistic health lifestyle changes. Her passion for health and wellness was sparked when she witnessed the transformative power of holistic health in her own life.

After being diagnosed with Hashimoto's Thyroiditis and later fighting for a narcolepsy diagnosis, Jamie became aware of the lack of representation and access to support for BIPOC individuals with autoimmune conditions. Determined to make a difference, she started engaging in conversations and leading the way for BIPOC individuals suffering from debilitating symptoms. Her story offers hope, understanding, and inspiration to anyone facing similar health challenges while shedding light on the experiences and limitations that many BIPOC individuals encounter on their healing journeys.

For more information about Jamie Nicole visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

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Website: madevisiblestories.com Facebook: madevisiblestories Instagram: @madevisiblestories LinkedIn: madevisible

122. Kate Milligan, The Power of Determination, Community, and Asking Questions Jun 13, 2023

Kate Milligan is an Emmy-nominated producer, writer, speaker, storyteller, and founder of 1 Girl Revolution: a multimedia platform dedicated to highlighting the authentic stories of everyday women and girls who are changing the world through their lives.

Diagnosed with Job’s Syndrome at a young age, Kate faced years of uncomfortable symptoms that doctors couldn't identify or treat. However, with her mother's unwavering advocacy and self-directed research into dietary solutions, Kate found her path to improved health and confidence. Join her as she explores the power of determination, community support, and limited resources, highlighting the unique impact of conditions like Job’s Syndrome and the personal nature of healing journeys.

For more information about Kate Milligan visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

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Website: madvisiblestories.com

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121. Dr Alex Truong, Highlighting the Unaddressed Long-COVID Symptoms and Trauma Jun 06, 2023

Dr. Truong is a pulmonary and critical care trained physician with 12 years of experience as assistant professor at Emory Midtown Hospital. Since August of 2020, he and Dr. Adviteeya Dixit have been running the Emory Post-COVID clinic where they care for patients with lingering symptoms from their COVID infection.

Dr. Truong’s passion for helping people get the care they deserve and recover from post-COVID physical and mental symptoms is undeniably inspiring. To provide a comprehensive understanding of the topic, he further explores the distinctions between long COVID, active COVID, and other medical diagnoses, as well as avenues for seeking both conventional and alternative medical treatments.. Dr. Truong acknowledges the importance of celebrating the fact that we saved more lives than we lost.

For more information about Dr. Alex Truong visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

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120. Marina Khidekel, Designing an Anxiety-Soothing Product that Hugs Back May 27, 2023

Marina Khidekel created Hugimals World, a TIME Best Inventions- winning line of weighted stuffed animals that "hug you back" to ease anxiety and bring calm. Prior to becoming a founder, Marina was a health & wellness journalist. She previously worked at Arianna Huffington’s workplace well-being enterprise SAAS startup Thrive and held senior editorial roles at Women’s Health, Glamour and Cosmopolitan.

She openly discusses the strategies she employed to manage her mental wellness while launching her brand. While starting a business inevitably presents numerous difficulties, the experience ultimately strengthens both the entrepreneur and the business itself.

For more information about Marina Khidekel visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online:

Website: madvisiblestories.com

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119. Erica Domesek, DIY expert opens up about hidden mental health struggles May 22, 2023

Erica Domesek, founder of P.S. - I Made This and ELD Creative discusses mental health struggles, creative inspiration, and the support systems needed to navigate tough times. Erica reflects on her eating disorder in college and her experience with postpartum depression, ADHD and anxiety, emphasizing that recovery and support may look different for everyone. She talks about her journey from the fashion industry to creating her DIY lifestyle brand and appearing on The Today Show, Rachael Ray, The Martha Stewart Show, E! News, and many others to encourage people to get creative with the items in their own home. She also talks about the importance of therapy and medication, finding the right care team and how daily routines can help manage anxiety.

For more information about Erica Domesek visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

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118. Melissa Bernstein, Utilizing Verses and Creativity to Make Meaning of Existential Depression May 15, 2023

Melissa Bernstein, co-founder of Melissa & Doug, discusses her struggles with existential depression and how she uses writing and creating to cope. She also talks about the importance of embracing all emotions, utilizing daily practices for resilience, and creating her latest company, Lifelines, to help people be more present and get more in touch with their senses and emotions.

For more information about Melissa Bernstein and Lifelines, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses, and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

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Mental Health Awareness Month Tribute May 15, 2023

A brief reminder about Mental Health Awareness Month and the tribute to my friend, Phil Kohn.

Join the monthly Made Visible Writing Session on May 24th here.

117. Dr. Michelle Chung, Acknowledging and Healing Our Pandemic Trauma May 09, 2023

We’re 3+ years into the COVID-19 pandemic and it’s impossible to deny that life still doesn't feel quite the same as pre-pandemic. We’re all saddled with the trauma of a life-threatening illness, the isolation and fear we experienced. In honor of Mental Health Awareness Month, clinical psychologist Dr. Michelle Chung helps us navigate this new world in a healthier way. In this episode, Dr. Chung discusses the many hidden traumas people incurred during the pandemic, including losing relationships, worsened social skills, and of course, the long-term effects of all the stress and emotions. She shares some of the coping strategies she uses with her patients, as well as some great advice for processing trauma and stress in other parts of life.

For more information about Dr. Chung and Psychology In Practice, visit our website at madevisiblestories.com/podcast.

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

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116. Allison Raskin, Debunking Common Misconceptions about OCD May 02, 2023

Surely we’ve all heard someone say, “Oh, I’m so OCD!” at least once in our lives. But what is it really like to live with this clinical diagnosis? How is everyday life managed, and how often does it affect people and their ability to live an uninterrupted, fulfilled life? In honor of Mental Health Awareness Month, Allison Raskin, noted podcaster, writer, and mental health advocate, joins the podcast this week to shed light on these questions. As a content creator, Allison has been able to share her methods and experiences in hopes of supporting to those who are feeling lost or misunderstood as a result of mental illness.

For more information about Allison and her journey, visit our website at madevisiblestories.com/podcast.

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories Instagram: @madevisiblestories

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115. Harper Spero, Sharing My Own Invisible Illness Story Apr 25, 2023

This episode provides an in-depth look into my life navigating a rare primary immunodeficiency, Hyper IgE Syndrome after ten years of not being diagnosed and almost three decades of hiding my condition. I share all the bumps along the way to launching Made Visible, and the how and why behind the show.

For more information about my journey, what I'm up to next, or to sign up for writing classes, visit our website at madevisiblestories.com/podcast.

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

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114. Jacqueline & Alexa Child, Dating with a Disability and Invisible Illness Apr 18, 2023

Dating on an app is challenging. But have you experienced dating on mainstream apps while also living with a disability, chronic, or invisible illness? After disclosing that she was disabled on mainstream dating apps, Jacqueline Child would often be ghosted and disappointed in the dating experience. Jacqueline and her sister Alexa decided it was time to develop Dateability, an app that eliminates the worry of being misunderstood, ghosted, or berated with questions, focusing instead on a user base that is inclusive and informed. In this episode, Jacqueline and Alexa speak about the importance of launching their app together, the value they each provide and why they think it’s so important to create opportunities for people with disabilities and invisible illnesses to safely connect.

For more information about Jacqueline and Alexa's venture, visit our website at madevisiblestories.com/podcast.

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses, and we need your help!

Support our mission by sharing this episode and leaving a review!

113. Kate Washington, Caring For Yourself While Caregiving For Your Loved One Apr 11, 2023

Almost all of us will assume a caregiving role for a close loved one at some point in our lives. When is the correct time to start mentally preparing? Do you think you'd feel comfortable administering treatments that deeply affect your loved one's quality of life? How do these people balance caregiving and their careers? Kate Washington, author of Already Toast: Caregiving and Burnout in America provides insight into the world of caregiving. Kate details her experience as a caregiver to her ill (former) husband, and explains the sheer number of caregivers in the United States; how to introduce systemic policies to benefit these overworked, often struggling people; and to offer advice to those who have already experienced burnout.

For more information about Kate Washington and her experience, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

This podcast aims to change the conversation around invisible illnesses, and we need your help!

Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

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112. Dr. Christiane Wolf, Managing Pain With Meditation Apr 04, 2023

Have you ever tried meditation to help manage chronic pain? After realizing that meditation, mindfulness, and compassion practices are transformational in how we relate to what is happening to us, Dr. Christiane Wolf found a passion in teaching it to others. Internationally known as a Mindfulness and Insight Meditation teacher, she explains the connection between chronic pain and mindfulness and how it can help people who are silently struggling. Through her years of education and experience with the mind-body connection, she believes that everyone can benefit from the practice of mindfulness, regardless of their background or current struggles.

For more information about Dr. Christiane Wolf and her journey, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Support for this episode comes from Credo. Credo was founded in 2015 in San Francisco. Credo currently operates a robust online business, along with 12 stores across the country. The company’s trailblazing brand standard, The Credo Clean Standard, is actively building a cleaner, more sustainable, more ethical beauty industry. Credo’s owned brand portfolio includes Exa Beauty, Follain and EleVen by Venus Williams SPF. Visit bit.ly/madevisiblecredo to start shopping.

This podcast aims to change the conversation around invisible illnesses, and we need your help!

Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

111. Dr. Stella Safo, Debunking Stigmas about HIV and Advocating Equitable Healthcare for All Mar 28, 2023

In this episode, Dr. Stella Safo, a board-certified HIV primary care physician and the founder of Just Equity For Health, talks about healthcare redesign and equity. She discusses her personal journey into healthcare and how her commitment to social justice led her to found her company. She also dives into the stigma surrounding HIV and chronic illnesses, and the work she's done to advocate for equitable care delivery across all sectors of medicine. Join us as we explore Dr. Safo's journey to becoming a healthcare advocate and her dedication to making healthcare accessible for all.

For more information about Dr. Stella Safo and Just Equity For Health, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Support for this episode comes from Credo. Credo was founded in 2015 in San Francisco. Credo currently operates a robust online business, along with 12 stores across the country. The company’s trailblazing brand standard, The Credo Clean Standard, is actively building a cleaner, more sustainable, more ethical beauty industry. Credo’s owned brand portfolio includes Exa Beauty, Follain and EleVen by Venus Williams SPF. Visit bit.ly/madevisiblecredo to start shopping.

This podcast aims to change the conversation around invisible illnesses and we need your help!

Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

110. Isaac Zablocki, Coping with Dysgraphia and Advocating for Change Through Film Mar 21, 2023

Step into the life of Isaac Zablocki as he shares his personal journey of living with dysgraphia - a neurological condition that affects one’s ability to write. Isaac opens up about how his experience with dysgraphia has helped shape his professional career as the co-founder of ReelAbilities, a groundbreaking film festival that celebrates the talents of people with disabilities and champions for their representation on screen.

For more information about Isaac and ReelAbilities, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide you with a diagnosis or treatment advice. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the next Made Visible Writing Class!

An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th. Click here to learn more!

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

Bonus: Exclusive Essay Readings from Laura Frégeau & Lindsay Ellis Mar 16, 2023

This bonus episode of the Made Visible podcast features the exclusive readings of two powerful essays written by students of the Made Visible Writing Class.

Laura Frégeau's "Seeking Care" takes a humorous tongue-in-cheek approach to the task of finding a caregiver for her future needs, listing specific requirements for the ideal candidate. Lindsay Ellis's "Dis-ease done right" offers a raw and honest reflection on the challenges of living with an invisible illness, from navigating the healthcare system to coping with the emotional toll that comes with it. Both essays provide unique and insightful perspectives that you won’t want to miss!

For more information about Laura and Lindsay’s essays, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the next Made Visible Writing Class!

An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th! Click here to learn more!

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

109. The Power of Processing Through Writing Mar 14, 2023

Before I could learn how to live with my invisible illness, I needed a way to process what I was going through. So I created what I wished had existed for me, the Made Visible Writing Class. A safe place where people living with invisible illnesses could write, share and connect with one another while confronting life’s challenges through writing.

In this episode, four of my students from the Made Visible Writing Class, share their experiences and their reflections on how writing has impacted their lives. Whether grappling with chronic pain or navigating through mental health challenges, each student shares how writing has given them a voice and a community in the midst of their struggles.

For more information from this episode, visit our website at madevisiblestories.com/podcast

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the next Made Visible Writing Class!

An 8-week writing class for people living with or affected by invisible illness. Write, share and connect with others in a safe and supportive space. This class will also include guest teachers who will share their experience with writing, sharing and publishing their invisible illness stories. Class begins March 29th! Click here to learn more!

This podcast aims to change the conversation around invisible illnesses and we need your help! Support our mission by sharing this episode and leaving a review!

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblestories

Instagram: @madevisiblestories

LinkedIn: madevisible

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Podcast Editor & Strategist: @episodeready

108. Serena Wolf and Katie Dalebout, Approaching Anxiety with Vulnerability and Laughter Mar 07, 2023

Join Serena, Katie, and host, Harper Spero, for a special IG Live event on March 10th at 12:00 PM EST! Follow @madevisiblestories on Instagram to tune in.

Serena Wolf and Katie Dalebout have embraced vulnerability when it comes to living with anxiety. They’re the hosts of Spiraling, dubbed an “optimistic” anxiety podcast, and they talk openly with me about what it means for them to live with anxiety, how they cultivate awareness around their mental health, and what strategies they’ve developed (or are in the process of developing) to manage day-to-day moments with anxiety. This episode features tons of laughs and relatable moments of anxiety real talk.

This episode previously aired on December 3rd, 2019.

For more information about Serena and Katie, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcast

Instagram: @madevisiblestories

LinkedIn: madevisible

Support for this episode comes from Find Your/self Boxes. Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at www.findyourselfboxes.com.

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Podcast Editor & Strategist: @episodeready

107. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness Feb 28, 2023

Join Lara Bloom and host, Harper Spero, for a special IG Live event on March 1st at 11:00AM EST! Follow @madevisiblestories on Instagram to tune in.

Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.

This episode previously aired on February 18th, 2020.

For more information about Lara and her journey with Ehlers-Danlos Syndrome, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis,treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcast

Instagram: @madevisiblestories

LinkedIn: madevisible

Support for this episode comes from Find Your/self Boxes. Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at www.findyourselfboxes.com.

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Podcast Editor & Strategist: @episodeready

106. Akilah Cadet Advocating for Herself As She Searches for a Primary Diagnosis Feb 21, 2023

Join Akilah Cadet and host, Harper Spero, for a special IG Live event on February 22nd at 12:30pm EST! Follow @madevisiblestories on Instagram to tune in.

Akilah has been diagnosed with pericarditis, coronary artery spasms, and orthostatic hypotension, but she’s still searching for a reason why she’s experiencing intense and chronic pain on the left side of her body. On today’s episode, we talk about how why she no longer thinks of her health journey as a temporary bump in the road, why she decided to start talking about her health with clients, and how she advocates for herself, despite the bias she encounters as a woman of color, so she can find answers.

This episode previously aired on December 4th, 2018.

For more information about Akilah and her journey with advocating for herself, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcast

Instagram: @madevisiblestories

LinkedIn: madevisible

Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Visit lilycbd.com and use code madevisible at checkout for 15% off.

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Podcast Editor & Strategist: @episodeready

105. Devri Velazquez, Living with Takayasu's Arteritis and Embracing Advocacy Through Owning Her Identity Feb 14, 2023

Join Devri Velazquez and host, Harper Spero, for a special IG Live event on February 15th at 11:00am EST! Follow @madevisiblestories on Instagram to tune in.

When Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk about why, today, managing her physical stress and setting boundaries is so important, and how owning her identity is so central to the advocacy work she does.

This episode previously aired on July 28th, 2020.

For more information about Devri and her journey with Takayasu’s Arteritis, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcast

Instagram: @madevisiblestories

LinkedIn: madevisible

Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Visit lilycbd.com and use code madevisible at checkout for 15% off.

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Podcast Editor & Strategist: @episodeready

104. Hannah Olson, Showing Employers (and Beyond) the Value of Hiring People with Chronic Illness and Disability Feb 07, 2023

Join Hannah Olson and host, Harper Spero, for a special IG Live event on February 8th at 12:00pm EST! Follow @madevisiblestories on Instagram to tune in.

When employers come to Hannah Olson and ask her why they should hire people who have chronic illness, she has a lot to say. Hannah is the founder is Chronically Capable, a platform that connects people who are chronically ill or disabled with meaningful remote work. On today’s episode, Hannah and I talk about what it was like to balance her first post-grad job with managing Lyme disease, why the year 2020 looms so large, and what makes people with chronic illness so well equipped for the workforce.

This episode previously aired on November 5th, 2019.

For more information about Hannah and hiring people with chronic illness and disability, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcast

Instagram: @madevisiblestories

LinkedIn: madevisible

Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Visit lilycbd.com and use code madevisible at checkout for 15% off.

–

Podcast Editor & Strategist: @episodeready

103. Genevieve Gorder, Designing a Life with Hashimoto’s Thyroiditis and Lyme Disease Jan 31, 2023

Join Genevieve Gorder and host, Harper Spero, for a special IG Live event on February 1st at 11:30am EST! Follow @madevisiblestories on Instagram to tune in.

Interior design star Genevieve Gorder wants to live in the light, not in her illness. What does that mean, exactly? For Genevieve, who has both Lyme disease and Hashimoto’s thyroiditis, it means refusing to stake her identity in her health challenges. On today’s episode, Genevieve talks to me about the role that learning plays in her journey with Lyme and Hashimoto’s, how a home can be healing, and how she maintains her sense of positivity and remains mightier than her illness.

This episode previously aired on February 5th, 2019.

For more information about Genevieve Gorder and her journey with Hashimoto’s Thyroiditis and Lyme Disease, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcast

Instagram: @madevisiblestories

LinkedIn: madevisible

Support for this episode comes from Find Your/self Boxes. Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at www.findyourselfboxes.com.

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Podcast Editor & Strategist: @episodeready

102. Ally Hilfiger, Changing the Lenses on Her Experience with Lyme Disease Jan 24, 2023

Join Ally Hilfiger and host, Harper Spero for a special IG Live event on January 25th at ***2pm EST!*** (Rescheduled from 12:30pm EST)

Follow @madevisiblestories on Instagram to tune in.

Ally Hilfiger was bitten by a tick at age seven and battled severe physical and neurological symptoms throughout her childhood, but she wasn’t diagnosed with Lyme until after a hospitalization at age 18. On today’s episode, Ally and I talk about why she wrote a book chronicling her experience, the shift that occurred when she chose homeopathic treatments and lifestyle changes over antibiotics, and how harnessing the power of changing her subconscious perspective has helped her heal.

This episode previously aired on March 5th, 2019.

For more information about Ally and her journey with Lyme Disease, visit our website at madevisiblestories.com/podcast

This podcast aims to change the conversation around invisible illnesses and we need your help! Help support our mission by leaving a review and sharing this episode!

Please note: This podcast is intended to provide information and education and is not intended to provide diagnosis, treatment, prevention, cure, or guarantee. You should consult with a licensed or registered healthcare professional about your individual condition and circumstance.

Join the conversation and connect with us online!

Website: madvisiblestories.com

Facebook: madevisiblepodcastInstagram: @madevisiblestories

LinkedIn: madevisible

Support for this episode comes from Find Your/self Boxes. Find Your/self Boxes is a queer-owned, mental health focused, self-care box company, created to promote good mental health, because mental health is something we ALL have. Find Your/self Boxes serves as an easy way for people to send love and care to those in their life who may be struggling or who need a little pick me up, by offering customizable and curated self-care boxes, filled with research backed wellness products that promote healing. Use code findyourselfcare for 10% off your order at www.findyourselfboxes.com.

–

Podcast Editor & Strategist: @episodeready

Announcing exciting news about Made Visible Dec 20, 2022

Tune in to hear more about the latest happenings with Made Visible.

Follow @madevisiblestories on Instagram

Check out our services, writing classes and offerings at www.madevisiblestories.com

101. Rita Maureen Thompson, Living with POTS and Connecting to the “Why” Behind Her Writing Apr 15, 2021

In Fall 2020, when I launched the Made Visible Writing Class, the editors at Health Magazine held a contest for my class participants. At the end of class, they selected one essay to publish on their website. Today's episode features the winner of the contest, Rita Maureen Thompson and her essay, “POTS Is an Illness Causing Fatigue, Rapid Heartbeat, and Nausea—Here's What It's Like to Live With It.”

The next Made Visible Writing Class begins on May 4th. Space is limited to keep the group intimate, and a few spots have already filled. To apply and learn more, click here.

Made Visible Writing Prompts & Class Announcement Mar 03, 2021

Subscribe to receive Made Visible writing prompts directly to your inbox every Sunday. Click here to subscribe.

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Email hello@madevisiblepodcast.com with any questions.

Follow @harper_spero on Twitter and Instagram for all updates in real time.

Made Visible Writing Class Announcement Jan 19, 2021

Click here to learn more and apply for the Made Visible Writing Class.

Sign up for the Made Visible newsletter here. I promise we won't spam you!

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100. Harry Spero (My Dad), Speaking With Me About My Health Story as We Celebrate 100 Episodes Oct 27, 2020

I’m excited to be talking with my dad, Harry Spero, for this final episode of the podcast. We talk about how Job’s syndrome has impacted my life from childhood to the present, how he and my mom have supported me in different ways throughout my life, and his impression of me as a person who is resilient and determined. My dad told me between Episode #30 and #40 that he wanted to interview me on Episode #100, and I’m so thrilled to be able to celebrate 100 episodes with him as my guest.

Learn more about my dad, Harry Spero and check out the show notes here.

Apply for the Made Visible Writing Class here

Follow Made Visible on Instagram.

Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible at checkout for 15% off your first purchase.

99. Trish Gauthier, A Breast Cancer Survivor Who Knows the Importance of Speaking Up Oct 20, 2020

It was only a couple years after Trish Gauthier’s son had been diagnosed with leukemia that she received her own diagnosis: breast cancer. Even though she had just had her physical and everything had looked great, Trish knew that something was off in her body. On today’s episode, Trish talks to me about how she’s advocated for herself and her son through their journeys with illness, her determination to find a community, and her advocacy for equity in the medical system (and how we can all do our part).

Learn more about Trish and check out the show notes here.

Apply for the Made Visible Writing Class here

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible at checkout for 15% off your first purchase.

98. Larissa "Larz" May, Empowering Young People at the Intersection of Emotional Health and Technology Oct 13, 2020

As founder of #HalftheStory, Larissa "Larz" May is focused on an invisible struggle we’re all facing: our relationship with technology. Larz became aware of her own unhealthy relationship with social media during college, when she was experiencing challenging symptoms of depression and anxiety. On today’s episode, Larz and I talk about her mental health journey, why she’s passionate about digital wellbeing, and her work with #HalftheStory, which aims to empower the next generation’s relationship with technology.

Learn more about Larz and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible at checkout for 15% off your first purchase.

Coming Soon: Made Visible Writing Class Oct 11, 2020

Sign up for the Made Visible Writing Class here: https://harperspero.com/madevisiblewritingclass

97. Felicia Stingone, Writing a Book about Being a Caring Sibling to Her Brother with Bipolar Disorder Oct 06, 2020

When Felicia Stingone talks about her brother, who has bipolar disorder, it’s clear how important this relationship is to her. She sees her brother as a person, not as his illness. As she starts to write a book about her experience as a “caring sibling” to her brother, she embraces that her story is both of their stories. On today’s episode, we talk about how Felicia is navigating the writing process, what she means by “caring sibling,” and her advice to people who have loved ones managing menta

Learn more about Felicia and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Read the blog post about my decision to end Made Visible after 100 episodes here.

Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

96. Elizabeth Tikoyan, Telling Her Lyme Story and Founding a Patient Networking App Sep 29, 2020

Elizabeth Tikoyan didn’t always share her health story the way she does now. Diagnosed with Lyme disease in high school, she was very aware of the stigma around having a health condition. On today’s episode, Elizabeth tells me about her journey to get diagnosed, and how misdiagnosis after misdiagnosis led to her symptoms reaching a chronic stage. We talk about how she navigated college, why she founded Riley App (a patient networking app) and her decision to start putting her story out in the world.

Learn more about Elizabeth and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

95. Stephanie Omens, Helping Children Understand Illness Through Story, Play, and Truth Telling Sep 22, 2020

For creative arts therapist Stephanie Omens, it’s all about storytelling--even in the most challenging of circumstances. She works with children who have illnesses or who have parents or siblings who are ill, and it’s her job to help them understand what they’re experiencing. On today’s episode, Stephanie talks about why white lies don’t serve kids and why truth telling empowers them, how she uses story and play in her practice, and how she’s helping kids and parents understand life during the pandemic.

Learn more about Stephanie and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

94. Tricia Huffman, An Expert on Joy Living with Fibromyalgia and Without the Word “Should” Sep 15, 2020

When she was 15, Tricia Huffman made a big decision--she wanted to move through life in a different way. On today’s episode, Tricia and I talk about this choice, which was wrapped up in the emotional and physical pain of her then-undiagnosed invisible illness. We also discuss her eventual diagnosis of fibromyalgia, and how she managed her condition while working as a touring sound engineer. Finally, we talk about why “should” isn’t in her vocab, and why she wants to remind us to claim our joy.

Learn more about Tricia and check out the show notes here.

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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

93. Pamela Hunter, A Mother to a Daughter with Sensory Processing Disorder Who Gives Hugs with Blankets Sep 08, 2020

Since Pamela Hunter’s daughter Ransom was diagnosed with sensory processing disorder at age two-and-a-half, Pamela has done everything she can to get her daughter the help she needs. On today’s episode, we talk about what it means to be a parent to a child with this condition. We also talk about how difficult moments have given Pamela the conviction to stick with her gut, and how Ransom’s story also led Pamela to found Sheltered.Co --a company selling handwoven weighted blankets made from deadstock.

Learn more about Pamela and check out the show notes here.

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We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

92. Este Haim, A Rocker Who Didn’t Let Her Type 1 Diabetes Diagnosis Cancel Out Her Dream Sep 01, 2020

Fans know Este Haim for her ability to hold a killer baseline as part of HAIM, a band she formed with her two sisters, Danielle and Alana. Less well-known is the fact that Este was diagnosed with Type 1 diabetes in high school. On today’s episode, Este talks about how having a supportive family has meant that diabetes and music can always coexist in her life. We also talk about how Este manages her physical and mental health (especially while touring), and HAIM’s latest album, Women In Music Pt. III.

Learn more about Este and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible at checkout for 15% off your first purchase.

91. Jen Pastiloff, Listening Fiercely with Profound Hearing Loss and Tinnitus Aug 25, 2020

Jen Pastiloff has built her identity and career around connecting with people. She also has profound hearing loss and tinnitus and is deaf without her hearing aids. As a result, she’s had to cultivate other ways of understanding and hearing. On today’s episode, Jen and I talk about the specific challenges that come with tinnitus and hearing loss, the assumptions people make if they don’t know that she’s hard of hearing, and how a sense of courageousness helped her carve out a space to truly be herself.

This episode previously aired on October 23, 2018.

Learn more about Jen and check out the show notes here.

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90. Sonali Gupta, A Writer Chronicling the Muscular Dystrophy Diagnosis that Brought Her to India Aug 18, 2020

After Sonali Gupta was diagnosed with limb-girdle muscular dystrophy in 2008, she went on a trip to India with her dad to explore options for healing. As an NYU grad, Sonali had been eyeing a career in the music industry, but she found a health journey in India instead. She now lives in Mumbai, and is writing a memoir about this experience. On today’s episode, Sonali and I talk about what that trip with her dad was like, how being aware of her needs gives her independence, and her identity as a writer.

Learn more about Sonali and check out the show notes here.

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Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible for 15% off your first purchase.

89. Mira Mariah, A Tattoo Artist Who Thinks Tattoos and Disabled People Are Rock 'n' Roll Aug 11, 2020

Mira Mariah thinks tattoos are rock 'n' roll, and so are disabled people. As she says, disabled people have to be really “innovative and creative”--and what’s more rock 'n' roll than that? Though Mira didn’t always associate with the word “disabled,” that sense of herself shifted once she had amputation surgery and got a prosthetic leg. On today’s episode, I talk with Mira about fashion’s role in her life, the invisible challenges that amputees face, her career as a tattoo artist, and leaning in to joy.

Learn more about Mira Mariah and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Lily CBD. Lily CBD’s hemp-based CBD oil offers an alternative way to nurture yourself, and can be especially beneficial for relieving anxiety and inflammation. Because Lily CBD focuses on small, single-farm harvests, more nutrients are able to make their way into each bottle. Think of it like a glass of beautiful natural wine from a small family vineyard. Click here to try Lily CBD for yourself and use code madevisible for 15% off your first purchase.

88. Quentin Vennie, An Advocate for Humanity Managing His Anxiety with Gardening Aug 04, 2020

For Quentin Vennie, despite having been diagnosed with acute anxiety and depression at 14, this wasn’t the focus as he grew up. The focus was on surviving, given that he lived in one of the most dangerous cities in America, had to contend with racism and prejudice, and lived in communities with limited resources. On today’s episode, I talk with Quentin about his decision to fight to live, why gardening is his “secret weapon” for his mental health, and how vulnerability helps remind him of his purpose.

Learn more about Quentin and check out the show notes here.

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Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

87. Devri Velazquez, Living with Takayasu's Arteritis and Embracing Advocacy Through Owning Her Identity Jul 28, 2020

When Devri Velazquez was diagnosed with Takayasu's arteritis at 20 years old, the prognosis was devastating. Doctors didn’t think she would live to age 21. On today’s episode, we talk about what Devri’s life looks like now, ten years after her diagnosis, and what it was like to hear such a scary prognosis when she was first diagnosed. We also talk about why, today, managing her physical stress and setting boundaries is so important, and how owning her identity is so central to the advocacy work she does.

Learn more about Devri and check out the show notes here.

Follow Made Visible on Instagram.

We want to learn more about you! Tell us about you and what got you listening to Made Visible here.

Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

86. Nikki Boyer, Sharing Her Best Friend's Story of Navigating Terminal Cancer Alongside Sexual Adventures Jul 21, 2020

Nikki Boyer put it best, when talking about her relationship with her best friend Molly: “We’re going to say the things that people don’t say.” On today’s episode, Nikki and I talk about “Dying for Sex,” the podcast she and Molly created to tell Molly’s story of navigating terminal cancer while also embracing sexual adventures. We also dig into the complicated and layered nature of caregiving, and talk about the profound ripple effect of Molly’s story and how it has helped Nikki keep Molly close.

Learn more about Nikki and check out the show notes here.

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Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

85. Jenn Donohue, Helping Her Son who Was Born Premature Approach His Invisible Challenges Jul 14, 2020

Jenn Donohue and her husband’s twins were born at 24 weeks, making them four months premature. On today’s episode, Jenn and I talk about how she and her husband navigated the “start and stop” feeling as they navigated their son’s health while also coping with the loss of their daughter, who passed away at one week old. We also talk about what the role of caregiving means to Jenn, and how she and her husband support their teenage son and the invisible challenges he faces due to complications from birth.

Learn more about Jenn and check out the show notes here.

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Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible

84. Dr. Alexandra Freeman, Helping Immunocompromised Patients Navigate the Time of COVID-19 Jul 07, 2020

Dr. Alexandra Freeman is an infectious diseases physician at the National Institutes of Health, and as she explains, there are still a lot of unanswered questions about COVID-19. Dr. Freeman first spoke on Episode #24, and I wanted to have her back to talk about what the pandemic has been like for her and her patients, who are people with primary immunodeficiencies (like me). On today’s episode, we talk about the “new normal,” antibody testing, and possibilities for vaccine distribution.

Learn more about Dr. Freeman and check out the show notes here. Check out her original episode here.

Follow Made Visible on Instagram.

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Support for this episode comes from Betterhelp. Betterhelp is an online counseling service that matches you with a licensed professional therapist. No matter where you are in the world, Betterhelp lets you schedule video and phone sessions with your therapist, or even text them. Plus, they’ll work with you to find a counselor you love. It’s not self help, it’s better help. Take 10% off your first month of Betterhelp by visiting https://betterhelp.com/madevisible.

83. Sarah Ramey, Writing Her Story as a Woman with Mysterious Illnesses May 07, 2020

Sarah Ramey has a term for people like her. She calls herself a WOMI, or a “woman with a mysterious illness.” On today’s episode, Sarah tells me about the events that set her life as a WOMI in motion, and what it was like to be told over and over that her problems were psychosomatic. We also discuss her recently published book, The Lady’s Handbook for Her Mysterious Illness, and how she hopes it will change the experience for other patients with mysterious illnesses as they seek answers.

Learn more about Sarah and check out the show notes here.

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82. Alisa Vitti, Pioneering Modern Hormonal Healthcare and Rewriting the Female Narrative Apr 30, 2020

Alisa Vitti wrote the book on women’s hormonal health--literally. WomanCode, her first book, was published in 2013, and it provides the education many women never knew they needed. A women’s hormone and functional nutrition expert, Alisa is the founder of FLOLiving.com. On today’s episode, we talk about her new book, how she developed the basis for the FLO Protocol through her experience with PCOS, and why she doesn’t buy into the narrative that women should accept pain and suffer in silence.

Learn more about Alisa and check out the show notes here.

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81. John Boyle, Living with a Primary Immunodeficiency and Advocating for “Zebras” Like Him Apr 23, 2020

John Boyle was diagnosed with X-linked agammaglobulinemia (XLA) in 1978, when he was just six months old. On today’s episode, John and I talk about the routine management of his condition that allows him to live with minimal symptoms, and how taking care of his health was instilled in him at an early age. We also talk about his work with the Immune Deficiency Foundation, and why, after years of being attuned to his physical health, he realized it was time to give some attention to his mental health, too.

Learn more about John and check out the show notes here.

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80. Dr. Krystal Lewis, Using Principles from CBT in Everyday Moments During the COVID-19 Pandemic Apr 16, 2020

As a clinical psychologist at the National Institute of Mental Health, Dr. Krystal Lewis is interested in how to make therapy, specifically cognitive behavioral therapy (CBT), more effective for children and adolescents.On today’s episode, Krystal and I talk about what led to her interest in psychology, and how CBT can treat anxiety and increase resilience. Then, we shift to the COVID-19 pandemic: how it’s affecting people on an emotional level and how principles from CBT can help us during this time.

Learn more about Krystal and check out the show notes here.

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79. Jen Gotch, Recognizing the Power of Optimism in Life, Work, and Mental Health Apr 09, 2020

Right now, ban.do founder and CCO Jen Gotch was supposed to be on tour for her first book, “The Upside of Being Down.” But because of the coronavirus pandemic, the tour was cancelled. While she did feel sadness about that, as Jen says, her knee-jerk reaction when most things happen is, “this is going to be okay.” On today’s episode, Jen and I talk about the meaning of that phrase and the power of optimism, why she doesn’t feel the stigma of mental illness, and how she’s choosing to get the news these days.

Learn more about Jen and check out the show notes here.

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78. Jodi Taub, Protecting Her Health and Supporting Clients with Chronic Illness During COVID-19 Apr 02, 2020

Like others with compromised immune systems, Jodi Taub’s life is at risk due to COVID-19. Jodi was diagnosed with primary immunodeficiency around 14 years ago, and she manages about 22 different health conditions as a result. On today’s episode, Jodi and I talk about recognizing that she felt unsafe in NYC, and what her new normal looks like. We also talk about how, as a psychotherapist, she’s helping clients with chronic illness navigate the emotional shifts and trauma that this pandemic has created.

Learn more about Jodi and check out the show notes here.

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77. Past Guests of Made Visible Share How Coronavirus is Impacting Their Lives: Part 2 Mar 31, 2020

The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it’s more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible.

76. Past Guests of Made Visible Share How Coronavirus is Impacting Their Lives: Part 1 Mar 19, 2020

The coronavirus pandemic has changed life as we know it. This crisis is a scary time for all of us, and it presents unique challenges for the invisible illness community. For this episode of Made Visible, we reached out to past podcast guests to hear how coronavirus is impacting their lives. As we face an era of physical distancing and isolation, we believe it’s more important than ever to connect with our community and hear their stories. We want to hear yours, too: https://www.speakpipe.com/MadeVisible.

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75. Coronavirus and Its Impact on People with Invisible and Chronic Illnesses Mar 10, 2020

On today’s episode, we’re covering the recent coronavirus outbreak and the impact that global health challenges can have on people with invisible and chronic illnesses. To get expert perspectives, I spoke with Hernando Garzon, MD, an emergency medicine physician with experience in disaster response and global health; Andrew Kessler, founder of Scough, a company that makes scarves and bandanas that function as masks; and John Boyle, president and CEO of the Immune Deficiency Foundation.

Learn more about Hernando, Andrew and John and check out the show notes here.

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74. Zach Iscol, Providing an Effective, Cost-Free Mental Health Program for Veterans with PTSD Mar 03, 2020

As an officer in the Marine Corps, Zach Iscol was mentored by people who emphasized the importance of taking care of your people...and that lesson came home with him. After his service ended, he saw the heavy toll of PTSD and other military-related trauma on veterans. In particular, the suicide rate among veterans drove him to action. On today’s episode, Zach and I talk about how the Headstrong Project removes barriers for veterans seeking care, and the impact it’s had for over 1,500 veterans in 7 years.

Learn more about Zach and check out the show notes here.

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73. Aliza Licht, Turning a Private Health Experience into an Empowering Breast Cancer PSA Feb 25, 2020

When Aliza Licht was diagnosed with breast cancer in 2015, she didn’t tell anyone but close family. That changed in 2019, when she agreed to share her story in a TV segment for abc7NY. Only today’s episode, Aliza and I talk about why, after keeping her story to herself for so long, she decided she wanted people to know the facts of her diagnosis. We also chat about how life has changed for her since cancer happened, and why she thinks everyone has a responsibility to take the initiative in their health.

Learn more about Aliza and check out the show notes here.

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72. Lara Bloom, Supporting People with Ehlers-Danlos Syndrome While Elevating Global Awareness Feb 18, 2020

Before being diagnosed with Ehlers-Danlos syndrome at 24 years old, Lara Bloom endured 12 years of undiagnosed pain and mysterious symptoms. According to Lara, who is now the president and CEO of The Ehlers-Danlos Society, this experience isn’t uncommon. On today’s episode, Lara and I talk about why she’s dedicated her career to EDS awareness, why it’s important to her that The Ehlers-Danlos Society is in it for the long haul, and how her life changed when she stopped waiting for a cure for EDS.

Learn more about Lara and check out the show notes here.

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71. Shannon Shores, Facilitating Judgement-Free STD Testing and Sexual Health Empowerment Feb 11, 2020

When Shannon Shores was diagnosed with a strain of HPV that can cause cervical cancer, it was an emotional and scary experience. But at the same time, it helped cement her new career path, validating her decision to build a product that would offer discreet and fast STD testing to people all over the country. On today’s episode, we talk about how education and empowerment factor into the mission of samedaystdtesting.com, and why shame and judgement don’t belong in conversations around sexual health.

Learn more about Shannon and check out the show notes here.

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