Kessler Foundation Podcasts

Latest Episodes:

Enabling optimal care after SCI-an online curriculum for personal care assistants-COVID, Ep9 Jun 16, 2020

Show notes

COVID-19 Edition, Episode 9 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. In this episode, Carolann Murphy, PA, interviews Dr. Jeanne Zanca, senior research scientist in the Center for Spinal Cord Injury Research, and co-investigator for the Northern New Jersey Spinal Cord Injury Model Sysytem. Dr. Zanca also serves as associate editor for the Journal of Spinal Cord Medicine, and is a fellow of the American Congress of Rehabilitation Medicine (ACRM) and a member of the ACRM Board of Governors. Dr. Zanca describes the development of a web-based curriculum for training personal care assistants in the type of care needed by individuals with spinal cord injury. This project update is relevant to our recent experience with the COVID-19 pandemic, which has placed new emphasis on health care workers and on the advantages of online education. As director of this project, Dr. Zanca shares her perspective on how its utilization can improve quality of life, as well as the personal assistance received by people living with spinal cord injury. This project is a collaboration of Kessler Foundation and Shepherd Center. To learn more about our experts click on their bio links below:   Dr. Jeanne Zanca - (kesslerfoundation.org/aboutus/Jeanne%20Zanca) CarolAnn Murphy, PA - (kesslerfoundation.org/aboutus/Carolann%20Murphy) Read the transcript at https://kesslerfoundation.org/sites/default/files/2020-08/enabling-optimal-care-after-spinal-cord-injury_an-online-curriculum-for-personal-care-assistants-TRANSCRIPT.pdf Podcast Resources  =================================  Professional Healthcare Institute - phinational.org How to Successfully Hire and Manage a Personal Care Assistant for People with Spinal Cord Injury - https://www.shepherd.org/resources/ebooks United Spinal Association Caregiver Resources - https://askus-resource-center.unitedspinal.org/index.php?pg=kb.book&id=9 Paralysis Resource Center Personal Care Assistance Blog Series - https://www.christopherreeve.org/blog/daily-dose/selecting-and-hiring-a-pca Managing Personal Care Assistance: A Consumer Guide by the Paralyzed Veterans of America - https://pva.org/research-resources/publications/advocacy-and-accessibility ================================= Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 The work described in this podcast is funded by the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) via grant # 90IF0115. The Northern New Jersey Spinal Cord Injury System is funded by NIDILRR grant # 90SI5026. NIDILRR is a Center within the Administration for Community Living (ACL), Department of Health and Human Services (HHS). The contents of this podcast do not necessarily represent the policy of NIDILRR, ACL, or HHS, and you should not assume endorsement by the Federal Government. Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 16th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Obstacles are Made to be Conquered-Adaptive Sports Athlete Catarina Guimaraes Jun 15, 2020

Show notes

Earlier this year, Catarina Guimaraes, an athlete from one of our grantees, the Navigators, an adaptive sports club from Bayonne, NJ shared her experiences as a para athlete with our Center for Neuropsychology and Neuroscience and Traumatic Brain Injury Research team. Angela, Smith, Senior Research Coordinator (https://kesslerfoundation.org/aboutus/Angela%20Smith) at the foundation introduced and welcomed Catarina at the opening of this podcast. Catarina was born in 2004 with Cerebral Palsy. Cerebral Palsy has a significant impact on Catarina’s daily life such as very tight muscles and joints, delayed motor operation, lack of coordinated muscle movement and sensory abnormalities. She is a model student of the Cranford School District. Along with good grades, Catarina Participates in DECA (Business Society Club), Orchestra (Violin), Acapella and High School Able Bodied Sports Clubs like Soccer and Track/Field. When Catarina is not training, stretching or studying, she is an avid reader and as of 2020 has written and published 2 books her first books. Read the podcast transcript at https://kesslerfoundation.org/sites/default/files/2020-06/Obstacles-are-Made-to-be-Conquered-Adaptive-Sports-Athlete-Catarina-Guimaraes.pdf Learn more about Catarina: Athlete Profile (PDF) - http://kesslerfoundation.org/2020-06/Catarina-Guimaraes2020 Personnal Website - https://catarina-guimaraes.com/ Para Athlete website - https://www.teamusa.org/para-track-and-field/athletes/Catarina-Guimaraes North Jersey Navigator Adaptive Sports Club - https://www.facebook.com/navigatorsadaptivesportsclub Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation at https://soundcloud.com/kesslerfoundation. Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Tuesday, January 28th, 2020 at the Kessler Foundation conference Center, 102 Eagle Rock Ave, East Hanover, NJ and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Health disparities across populations: COVID-19's effects on the disability community-COVID, Ep8 May 19, 2020

Show notes

COVID-19 Edition, Episode 8 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. The novel coronavirus pandemic has shed new light on an old problem: poorer health outcomes in vulnerable and diverse communities, including the disability community. In this podcast, we chat with clinical psychologist Dr. Denise Fyffe and social epidemiologist Dr. Amanda Botticello about this phenomenon and get their thoughts on how to best tackle the issues of health disparities from COVID-19 and what policies might help us avoid this pattern in the future. Read the podcast transcription at https://kesslerfoundation.org/sites/default/files/2020-05/Health-disparities-across-populations-COVID-19s-effects-on-the-disability-community_1.pdf To learn more about our experts click on their bio links below:  Dr. Amanda Botticello (https://kesslerfoundation.org/aboutus/Amanda%20Botticello)  Dr. Denise Fyffe (https://kesslerfoundation.org/aboutus/Denise%20Fyffe)  Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Podcast Resource links….  Mental Health  ==================== NJ Mental Health emotional support during COVID-19 (www.njmentalhealthcares.org/) 866-202-HELP (4357) 7 days a week, 8am to 8pm (EST) Upcoming Brain Injury Alliance of New Jersey (BIANJ Virtual Support Groups - bianj.org/support-groups/ Ask an MS Navigator - https://www.nationalmssociety.org/Resources-Support/Find-Support/Ask-an-MS-Navigator Headspace.com (Mindfulness for your everyday life) - https://www.headspace.com Mindful Meditation  ==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present - www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn - www.youtube.com/watch?v=hcKGv06U_KU Headspace - www.headspace.com/meditation/10-minute-meditation National Organization ==================== National Multiple Sclerosis Society - https://www.nationalmssociety.org Brain Injury Alliance of New Jersey (BIANJ) - https://bianj.org Paralyzed Veterans of America (PVA) - https://pva.org COVID-19 Response from the Neilsen Foundation - https://chnfoundation.org/on-our-minds Wounded Warrior Project - https://newsroom.woundedwarriorproject.org/2020-04-09-WWP-Commits-10-Million-to-Help-Wounded-Veterans-During-Pandemic Centers for Disease Control and Prevention - https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html?CDC_AA_refVal=https%3A%2F%2Fwww.cdc.gov%2Fcoronavirus%2F2019-ncov%2Fprepare%2Fmanaging-stress-anxiety.html COVID-19 Consumer Warnings and Safety Tips - www.fcc.gov/covid-scams Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Thursday, April 30th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Coping with MS during the COVID-19 Pandemic-COVID, Ep7 May 18, 2020

Show notes

Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. While the COVID-19 pandemic has disrupted daily life for the general population during the past two years, individuals living with multiple sclerosis (MS) know a thing or two about coping with unforeseen challenges. In this podcast, Erica Weber, PhD, research scientist in the Center for Traumatic Brain Injury Research, speaks with two Kessler Foundation employees who also have MS, Carla Basante and Michaele Clayborne-Crosby. They discuss their experience during the novel coronavirus pandemic, and how they are managing to maintain their health and well-being during the pandemic. Read the podcast transcription at https://kesslerfoundation.org/sites/default/files/2020-05/Coping%20with%20MS%20during%20the%20COVID-19%20Pandemic_0.pdf To learn more about our host and guests click on their bio links below: Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Carla Basante (kesslerfoundation.org/about-us/found…/carla-basante) Michaele Clayborne-Crosby is a former employee. Click here to find out more about current COVID-19 tele-studies at Kessler Foundation. (kesslerfoundation.org/covid-19#participate) Additional Resources: National Organizations ==================== NJ Mental Health emotional support during COVID-19 866-202-HELP (4357) 7 days a week, 8 am to 8 pm (EST) - www.njmentalhealthcares.org National Multiple Sclerosis Society - www.nationalmssociety.org Centers for Disease Control and Prevention - https://www.cdc.gov/mentalhealth/stress-coping/cope-with-stress/index.html COVID-19 Consumer Warnings and Safety Tips - www.fcc.gov/covid-scams Mindful Meditation ==================== Headspace - www.headspace.com/meditation/10-minute-meditation Daily Calm | 10 Minute Mindfulness Meditation | Be Present - www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat-Zinn Body Scan Meditation Guided Meditation - www.youtube.com/watch?v=u4gZgnCy5ew Tuned into our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities and how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 29th, 2020, remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Optimizing healthy sleep habits during the COVID-19 pandemic-COVID, Ep6 Apr 27, 2020

Show notes

COVID-19 Edition, Episode 6 Sleep is a critical function that contributes significantly to our physical and emotional health as well as our overall quality of life. Many individuals with disabilities (for instance, those recovering from traumatic brain injury) may have increased problems with sleep. Consequences of the COVID-19 pandemic and its effect on society can interfere with sleep in a variety of ways, making existing issues more difficult for people with disabilities and/or bringing about new challenges. Listen as Dr. Erica Weber interviews neuropsychologist Dr. Anthony Lequerica, senior research scientist at Kessler Foundation, and an expert in sleep disturbances after brain injury, about the importance of quality sleep and how to maintain proper sleep hygiene during this stressful time. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-05/Optimizing-healthy-sleep-habits-during-the-COVID-19-pandemic-TRANSCRIPTION.pdf To learn more about our experts click on their bio links below: Dr. Anthony Lequerica (kesslerfoundation.org/aboutus/Anthony%20Lequerica) Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Join a study - https://kesslerfoundation.org/research/studies/motor-learning-and-sleep-tbi Podcast Resources ===================== General information about sleep hygiene: https://www.sleepfoundation.org/articles/sleep-hygiene For Cognitive Behavioral Therapy for Insomnia (CBT-I): Provider search tab at https://www.behavioralsleep.org/ To find an accredited Sleep Disorders Clinic: http://sleepeducation.org/find-a-facility Traumatic Brain Injury resources from the Model Systems Knowledge Translation Center: https://msktc.org/tbi/factsheets/sleep-and-traumatic-brain-injury https://msktc.org/lib/docs/Info_Comics/MSKTC_SleepComic_508.pdf Mindful Meditation  ==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present - www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn - www.youtube.com/watch?v=hcKGv06U_KU Headspace - www.headspace.com/meditation/10-minute-meditation ============================================================ Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 15th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Caregiving for Persons with Traumatic Brain Injury while Sheltering in Place for COVID-19-COVID, Ep5 Apr 21, 2020

Show notes

COVID-19 Edition, Episode 5 Caregiving for a loved one who has experienced a traumatic brain injury (TBI) can be stressful in the best of times, let alone during a pandemic. In this podcast, Dr. Erica Weber hosts a conversation about TBI caregiving in the time of COVID-19 with director Nancy Chiaravalloti, PhD, and senior research scientist Denise Krch, PhD, of the Center for Traumatic Brain Injury Research at Kessler Foundation. These experts discuss challenges often faced by caregivers of persons with TBI and how symptoms may be exacerbated during sheltering in place, along with recommendations to reduce stress in the household while remaining vigilant, safe, and healthy. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-04/caregiving-for-persons-with-traumatic-brain-injury-while-sheltering-in-place-for-covid-19-TRANSCRIPTION.pdf To learn more about our experts click on their bio links below:  Dr. Nancy Chiaravalloti (kesslerfoundation.org/aboutus/Nancy%20Chiaravalloti) Dr. Denise Krch (https://kesslerfoundation.org/aboutus/Denise%20Krch) Dr. Erica Weber (kesslerfoundation.org/aboutus/Erica%20Weber) Podcast Resource links…. ============================== Upcoming Brain Injury Alliance of New Jersey (BIANJ Virtual Support Groups - https://bianj.org/support-groups/ Caregiver newsletter with some COVID-19 info: https://mailchi.mp/caregiver.com/leading-love?e=c30a6d44c8 Join a TBI-caregiver tele-study through Kessler Foundation (PI: Denise Krch, PhD): "Comparison of Two Group Wellness Interventions in Partner Caregivers of Individuals with TBI" The purpose of this research study is to compare the effect of two different types of group wellness interventions for partner caregivers of individuals with TBI. https://kesslerfoundation.org/research/studies/comparison-two-group-wellness-interventions-partner-caregivers-individuals-tbi COVID-19 Consumer Warnings and Safety Tips - https://www.fcc.gov/covid-scams Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/resilience-and-disability-in-the-time-of-covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 8th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Moving research forward while staying home:Past, present, and future of rehab research-COVID-19, Ep4 Apr 15, 2020

Show notes

COVID-19 Edition - Episode 4 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. Moving research forward while staying home: The past, present, and future of rehabilitation research Carolann Murphy, senior staff writer at Kessler Foundation and host of this podcast, interviews three Foundation scientists: Dr. Olga Boukrina, research scientist in the Center for Stroke Rehabilitation Research, Dr. Ekaterina Dobryakova, research scientist in the Center for Traumatic Brain Injury Research, and Dr. Nuri Erkut Kucukboyaci, associate research scientist, also in the Center for Traumatic Brain Injury Research. Together they will explore the changing face of rehabilitation research during the COVID-19 pandemic. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-04/moving-research-forward-while-staying-home-TRANSCRIPTION.pdf Learn more about our scientists: CarolAnn Murphy, PA https://kesslerfoundation.org/aboutus/Carolann%20Murphy Senior Staff Writer Olga Boukrina, PhD https://kesslerfoundation.org/aboutus/Olga%20Boukrina Research Scientist, Center for Stroke Rehabilitation Research Ekaterina Dobryakova, PhD https://kesslerfoundation.org/aboutus/Ekaterina%20Dobryakova Research Scientist, Center for Traumatic Brain Injury Nuri Erkut Kucukboyaci, PhD https://kesslerfoundation.org/aboutus/Erkut%20Kucukboyaci Associate Research Scientist, Center for Traumatic Brain Injury Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts that are listed on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Thursday, April 9th, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Social distancing with MS or a TBI: Difficulties with being *too close* and *too far*-COVID-19, Ep3 Apr 14, 2020

Show notes

COVID-19 Edition - Episode 3 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. Social distancing is becoming the new norm in the days of COVID-19. While quarantining is proving to be challenging for many Americans, there may be additional social struggles faced by individuals with multiple sclerosis(MS) and traumatic brain injury (TBI). In this podcast, we discuss with Dr. Genova how problems with social cognition (referring to the brain's ability to interpret and react to interactions with others) may be exacerbated during quarantine, and how to reduce the impact of these difficulties on relationships in the household. Dr. Weber also provides insight into how individuals with MS and TBI may be feeling socially isolated right now, and how to find social outlets and resources to improve mental health in this stressful time. Read the transcription at https://kesslerfoundation.org/sites/default/files/2020-04/social-distancing-with-MS-or-a-TBI_Difficulties-with-being-too-close-and-too-far-TRANSCRIPTION.pdf To learn more about our experts click on their bio links below: Dr. Helen Genova (https://kesslerfoundation.org/aboutus/Helen%20Genova) Dr. Erica Weber (https://kesslerfoundation.org/aboutus/Erica%20Weber) Nicky Miller (https://kesslerfoundation.org/aboutus/nicki%20miller) Podcast Resource links…. National Organization ==================== National Multiple Sclerosis Society - https://www.nationalmssociety.org Brain Injury Alliance of New Jersey (BIANJ) - https://bianj.org Centers for Disease Control and Prevention - https://www.cdc.gov/coronavirus/2019-ncov/daily-life-coping/managing-stress-anxiety.html?CDC_AA_refVal=https%3A%2F%2Fwww.cdc.gov%2Fcoronavirus%2F2019-ncov%2Fprepare%2Fmanaging-stress-anxiety.html Mental Health ==================== New Jersey Mental Health emotional support during COVID 19 - https://www.njmentalhealthcares.org 866-202-HELP (4357), 7 days a week, 8am to 8pm (EST) Headspace.com (Mindfulness for your everyday life) - https://www.headspace.com/ Mindful Meditation ==================== Daily Calm | 10 Minute Mindfulness Meditation | Be Present - https://www.youtube.com/watch?v=ZToicYcHIOU Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - https://www.youtube.com/watch?v=u4gZgnCy5ew 3/30 Livestream Meditations with Jon Kabat-Zinn - https://www.youtube.com/watch?v=hcKGv06U_KU Headspace - https://www.headspace.com/meditation/10-minute-meditation ============================================================ Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 1st, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

COVID-19 and Spinal Cord Injury: Minimizing Risks for Complications - COVID-19 Edition, Ep2 Apr 08, 2020

Show notes

COVID-19 Edition - Episode 2 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. In this episode, CarolAnn Murphy, senior staff writer interviewed spinal cord injury expert Dr. Trevor Dyson-Hudson, both from Kessler Foundation on COVID-19 and SCI: Minimizing Risks for Complications. Read the podcast transcript at https://kesslerfoundation.org/sites/default/files/2020-04/COVID-19-and-spinal-cord%20Injury_minimizing-risks-for-complications-TRANSCRIPTION.pdf  For more information about our experts and resources mentioned in the podcast, please check out the program notes. Listen in as CarolAnn Murphy and Dr. Trevor Dyson-Hudson discuss practical techniques and devices that people with spinal cord injury can use to improve their cough. To learn more about our experts click on their bio links below: Trevor Dyson-Hudson, MD (https://kesslerfoundation.org/aboutus/Trevor%20Dyson-Hudson) Director, Center for Spinal Cord Injury Research Co-Director, Northern New Jersey Spinal Cord Injury System Kessler Foundation Carolann Murphy, PA (https://kesslerfoundation.org/aboutus/Carolann%20Murphy) Senior Staff Writer Kessler Foundation Podcast Resource links…. Blog Post: https://kesslerfoundation.org/info/covid-19-and-spinal-cord-injury-minimizing-risks-complications Taking a Deeper Breath: Air Stacking (Duration: 3 min 43 sec - https://youtu.be/NpYz-I9H94U)“Frog Breathing” or “Glossopharyngeal Breathing.” (Duration: 1 min 47 sec - https://youtu.be/-CLRGatzqdA)  Increasing Cough Force: Manually Assisted Coughing (Duration: 5 min 52 sec - https://youtu.be/jHKw-je1Z9c)   Increasing Cough Force: Mechanically Assisted Coughing [Mechanical Insufflation/Exsufflation] (Duration: 4 min 7 sec - https://youtu.be/M1O9P2AevdY)  Complete Kessler video on Prevention of Pneumonia and Atelectasis after spinal cord injury go to https://www.youtube.com/watch?v=T-jr5daLyLw Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19 Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Wednesday, April 3, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Practical Tips to Help Survive the Pandemic as a Parent of a Child with Autism-COVID Edition, Ep1 Apr 06, 2020

Show notes

COVID-19 Edition - Episode 1 Welcome to this COVID-19 special edition podcast brought to you by Kessler Foundation. In this episode, Nicky Miller, our social media specialist spoke with experts in autism, Drs Helen Genova of Kessler Foundation (https://kesslerfoundation.org) and Regina Peter of the Newmark schools (https://www.newmarkeducation.com) about autism and social isolation.  In this episode, we discuss how the corona pandemic has affected children with autism. Specifically we discuss: • The effects that Covid-19 pandemic has on children with autism (1:38) • How the Newmark School (Scotch Plains, NJ) - (https://www.newmarkeducation.com) has created an online learning program to meet the needs of children with ASD (4:22) and how educators can utilize the techniques used by the Newmark School (13:14) • Practical tips for parents of children with autism including: • Creating a visual schedule for their child (14:33) • Maintaining physical and sensory activities during pandemic (15:52) • Practicing mindfulness to reduce anxiety (18:05; 33:00) • Maintaining mental health during the pandemic (21:05) • Disconnecting from technology and social media (24:56) • Latest research performed by Dr. Genova on using mindfulness in children with autism (28:33) Podcast transcript: https://kesslerfoundation.org/sites/default/files/2020-04/practical-tips-to-help-survive-the-pandemic-as-a-parent-of-a-child-with-autism-TRANSCRIPT.pdf Listen in as Drs Genova and Peter discuss practical tips to help survive the pandemic as a parent of a child with autism.   To learn more about our experts click on their bio links below: Dr. Helen Genova (https://kesslerfoundation.org/aboutus/Helen%20Genova) Dr. Regina Peter (https://www.newmarkeducation.com/about/our-team)  Podcast Resource links….   Autism Resources ==================== A guide to managing social isolation in individuals with autism, written by members of the autism community: https://ausm.org/images/docs/PandemicGuideforASDAdults2020.pdf   Visual Social Stories to Help Individuals with Autism understand the Pandemic: https://www.autism-society.org/wp-content/uploads/2020/03/My-Schedule-will-Change-Social-Narrative.pdf https://howard-autism.org/wp-content/uploads/2020/03/my-coronavirus-story.pdf For Educators ==================== Online training offered by Newmark Education to support educators who work with children with autism: https://www.newmarkeducation.com/training/teacher-training-institute   Mental Health  ====================  NJ Mental Health emotional support during COVID-19 (https://www.njmentalhealthcares.org/) 866-202-HELP (4357) 7 days a week, 8am to 8pm (EST)   Helpful Apps: ==================== Making a Visual Schedule for your child with autism: Choiceworks: https://apps.apple.com/us/app/choiceworks/id486210964   Mindful Meditation  ====================  Daily Calm | 10 Minute Mindfulness Meditation | Be Present - https://www.youtube.com/watch?v=ZToicYcHIOU  Jon Kabat Zinn Body Scan Meditation GUIDED MEDITATION - https://www.youtube.com/watch?v=u4gZgnCy5ew  3/30 Livestream Meditations with Jon Kabat-Zinn - https://www.youtube.com/watch?v=hcKGv06U_KU   Calming Apps  ====================  Calm your Dog - https://apps.apple.com/us/app/calm-your-dog/id1046523043   Tuned in to our podcast series lately? Join our listeners in 90 countries who enjoy learning about the work of Kessler Foundation. In new episodes, our experts weigh in on the impact of COVID-19 on people living with disabilities. And they talk about how research that changes lives continues at Kessler Foundation. Check back soon to listen to more COVID-19 podcasts on our playlist at https://soundcloud.com/kesslerfoundation/sets/covid-19   Listen on iTunes, SoundCloud, Spotify, or wherever you get your podcasts. This podcast was recorded on Tuesday, March 31, 2020 remotely and was edited and produced by Joan Banks-Smith, Creative Producer for Kessler Foundation.

Our TOPPODCAST Picks

Follow Us

Stay Connected

Kessler Foundation Podcasts

Related Podcasts

Links

Stay Connected