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In part two of this two-part episode, Brain & Life podcast host Dr. Daniel Correa is joined by Molly Burke. Molly shares how her journey of navigating life with retinitis pigmentosa (RP) has led her to create online content and write a book. She shares more about her mental health journey and the importance of finding joy. Dr. Correa is then joined by Dr. Brittni Scruggs, a vitreoretinal surgeon and physician-scientist at Mayo Clinic. Dr. Scruggs dives into the importance of advocacy and exciting research for people living with RP.
Additional Resources
At a glance: Retinitis Pigmentosa
Customers and Professionals Weigh in on How to Make the Beauty World More Accessible
Molly Burke - Official Website
Brain & Life Podcast Episodes on Similar Topics
Exploring Accessibility and the Arts at the Lincoln Center
Making the Years Count with Brooke Eby, Influencer Living with ALS
Parenting and Writing While Disabled with Jessica Slice
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media
Guests: Molly Burke @mollyburkeofficial; Dr. Scruggs @mayocliniceye
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In part one of this two-part episode, Brain & Life podcast host Dr. Daniel Correa is joined by Molly Burke. Molly shares her journey of navigating life with retinitis pigmentosa (RP), and how it led her to create online content and write a book. She shares the importance of representation, advocacy, and rethinking societal perceptions of disability to create a more inclusive world. Dr. Correa is then joined by Dr. Brittni Scruggs, a vitreoretinal surgeon and physician-scientist at Mayo Clinic. Dr. Scruggs explains inherited retinal diseases and how they are diagnosed and treated. Come back next week for part two to learn about the importance of advocacy and upcoming research!
Additional Resources
At a glance: Retinitis Pigmentosa
Customers and Professionals Weigh in on How to Make the Beauty World More Accessible
Molly Burke - Official Website
Brain & Life Podcast Episodes on Similar Topics
Exploring Accessibility and the Arts at the Lincoln Center
Making the Years Count with Brooke Eby, Influencer Living with ALS
Parenting and Writing While Disabled with Jessica Slice
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media
Guests: Molly Burke @mollyburkeofficial; Dr. Scruggs @mayocliniceye
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this special Rare Disease Day episode of the Brain & Life podcast, co-hosts Dr. Daniel Correa and Dr. Katy Peters respond to your listener questions. They explore how rare diseases can affect relationships, offer guidance on planning for the future, and share tips for explaining complex medical conditions to others.
Resources Mentioned
In the Mix with Rob Floyd: Lessons on Mixology and Moyamoya
Surviving Stroke: A Story of Perseverance and Grace
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of the Brain & Life podcast, co-host Dr. Katy Peters speaks with advocate and author Lori Jones about growing up in a family affected by Huntington's disease (HD), reflecting on stigma, isolation, caregiving, and the inspiration behind her memoir, Spared: A Memoir of Risk and Resolve. Dr. Peters is then joined by Dr. Katie Moore, assistant professor of neurology at Duke University Medical Center, who explains what Huntington's disease is and how genetic testing can impact individuals and families living with HD.
Additional Resources
Promising Therapies May Help Huntington's Disease
Brain & Life Podcast Episodes on These Topics
Author Tanita Allen on Existing with Huntington's Disease
Rare Thoughts on a Rarer Neurologic Condition
We Are Brave Together with Jessica Patay
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media
Guests: Lori Jones @lorijoneswrites; Dr. Katie Moore @DukeNeuroRes
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by musical legend Gloria Gaynor. Gloria talks about her journey in music and opens up about living with a spinal cord injury (SCI), undergoing surgery, and navigating the long road to recovery. She shares what the experience taught her about resilience and adapting when life doesn't go as planned. Next, Dr. Correa is once again joined by Dr. Shelly Hsieh, attending physician and Assistant Professor, Physical Medicine and Rehabilitation at Montefiore Einstein. Dr. Hsieh dives further into the multifaceted approach to rehabilitation for spinal cord injuries and the lifestyle factors that support healing.
Additional Resources
How Spinal Surgery Helped Gloria Gaynor Beat Chronic Pain and Return to the Stage
Brain & Life Podcast Episodes on These Topics
Answering Your Spinal Cord Injury Questions with Dr. Shelly Hsieh
"Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple
How Disability Advocate Wesley Hamilton Became Empowered by Adversity
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media
Guests: Gloria Gaynor @gloriagaynor ; Dr. Shelly Hsieh @MontefioreHealthSystem
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of the Brain & Life Podcast, host Dr. Daniel Correa is joined by Dr. Emmanuelle Waubant, professor of neurology at UCSF and Director of the UCSF Regional Pediatric Multiple Sclerosis Center. Together, they explore how diet, microbiome, and environmental factors influence the progression of multiple sclerosis, with a special focus on pediatric cases. Dr. Waubant also discusses the role of dietary patterns and vitamin D and highlights how emotional well-being and physical activity can impact disease outcomes.
Additional Resources
Expert Insights and Practical Tips for Managing Multiple Sclerosis
How Ultra-processed Foods Can Have a Negative Effect on Brain Health
Nutrition for kids: Guidelines for a healthy diet
Brain & Life Podcast Episodes on These Topics
Advocating for a Multiple Sclerosis Diagnosis with Comedian Kellye Howard
Embracing Each Day with Author and MS Advocate Lilibet Snellings Kyte
Voices from the Multiple Sclerosis Community
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media
Guests: Dr. Emmanuelle Waubant @ucsfmedicine
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of the Brain & Life Podcast, co-host Dr. Katy Peters is joined by award-winning actor and playwright Michael Patrick, who shares his journey from studying science at Cambridge to becoming a celebrated actor. Michael also discusses his diagnosis of Motor Neuron Disease (MND), his participation in a clinical trial, and how he continues to find hope and support from his network. Dr. Peters is then joined by Dr. Matthew Harms, an Associate Professor of Neurology at Columbia University Irving Medical Center. Dr. Harms explains the complexities of diagnosing Motor Neuron Disease and ALS, the genetic factors involved, and the importance of early detection and treatment. He also discusses the importance of advocacy and what exciting research is happening now.
Additional Resources
What are motor neuron diseases?
Michael Patrick: Actor and Writer
Brain & Life Podcast Episodes on These Topics
Focusing on Hope: Answering your ALS Questions with Dr. Rick Bedlack
Making the Years Count with Brooke Eby, Influencer Living with ALS
Finding Strength in ALS Advocacy with Podcaster Lorri Carey
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media:
Guests: Michael Patrick @michaelpatrick314; Dr. Harms @osdib_cuimc
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this Olympics‑themed episode of the Brain & Life Podcast, hosts Dr. Daniel Correa and Dr. Katy Peters explore what resilience looks like in the bodies, minds, and everyday lives of both Olympians and our listeners. First, they answer your listener submitted questions on concussion and Charcot‑Marie‑Tooth disease. Then, they look back on how former guests faced profound challenges and found a way forward through a collection of standout moments from past conversations with Olympians and Paralympians.
Brain & Life Podcast Episodes Mentioned
Olympic Swimmer Rowdy Gaines on His Career and Guillain-Barré Syndrome
Paralympic Athlete Helen Kearney on Living Her Dreams with Friedreich's Ataxia
Getting Back in the Game After a Concussion with Olympian Elana Meyers Taylor
Resilience and Recovery with Olympic Skier Colby Stevenson
Paralympian Jamal Hill on Winning Bronze with Charcot-Marie-Tooth
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media:
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of the Brain and Life podcast, host Dr. Daniel Correa is joined by Brason Lee, a writer, social worker and traumatic brain injury survivor. Brason shares his journey from a severe ATV accident at 18, through rehabilitation, to a successful career in social work and advocacy. He discusses the challenges of recovery, the importance of supportive relationships, and his motivation to write and share his story to inspire others. Dr. Correa is then joined by Dr. Erika Trovato, Associate Chief Medical Officer and Chief Quality Officer at Burke Rehabilitation. Dr. Trovato discusses returning to work and your community after a TBI and building new dreams after rehabilitation.
Additional Resources
Surviving and Thriving After a Traumatic Brain Injury
What Is Traumatic Brain Injury?
How Sports Neurologists Protect Football Players' Brains
Brain Injury Association of New York State
Brain & Life Podcast Episodes on These Topics
Veteran Lindsay Gutierrez is Reaching New Heights with Traumatic Brain Injury
U.S. Soccer Legend Briana Scurry on Concussion and Mental Health
Healing the Traumatized Brain with Dr. Sandeep Vaishnavi
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media:
Guest: Brason Lee @brason.lee; Dr. Erika Trovato @burke_rehab
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
In this episode of the Brain and Life podcast, host Dr. Daniel Correa is joined by Dr. Elvis Francois, a spine surgeon known for integrating music into his practice. They discuss the intersection of music and medicine, common spine conditions, and the importance of human connection in healthcare. Dr. Elvis shares his journey from being a young musician to a surgeon and how music can enhance patient care and emotional well-being.
Additional Resources
How Spinal Surgery Helped Gloria Gaynor Beat Chronic Pain and Return to the Stage
The Growing Role of Music Therapy in Health Care
Brain & Life Podcast Episodes on These Topics
Answering Your Spinal Cord Injury Questions with Dr. Shelly Hsieh
"Roll with Cole & Charisma" On Building a Life Together as an Interabled Couple
How Disability Advocate Wesley Hamilton Became Empowered by Adversity
We want to hear from you!
Have a question or want to hear a topic featured on the Brain & Life Podcast?
· Record a voicemail at 612-928-6206
· Email us at BLpodcast@brainandlife.org
Social Media:
Guest: Dr. Elvis Francois @dr.elvis.francois
Hosts: Dr. Daniel Correa @neurodrcorrea; Dr. Katy Peters @KatyPetersMDPhD
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