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    Health & Fitness

    Bendy Bodies with Dr. Linda Bluestein

    Whether you’re bendy with all the benefits or hurting in all the wrong places, you’ve come to the right place for all things hypermobility. Connective tissue disorders like Ehlers-Danlos Syndromes (EDS) are often dismissed or overlooked by healthcare providers as a cause of chronic pain. But if you or someone you care about struggles with the life-altering symptoms of hypermobility, you should know YOU ARE NOT ALONE! At the Bendy Bodies Podcast, we understand.
    Each week, join Dr. Linda Bluestein (The Hypermobility MD) as she pulls back the curtain on how to prevent injury and unnecessary suffering in “double-jointed” individuals seeking a more comfortable life in their unique, complex “bendy bodies.” When you tune in, you’re engaging in more than a podcast. Both on-air and online, you’re joining a supportive community where patients, caregivers, and healthcare professionals trade insights, life hacks, and inspiring stories to embrace our Bendy Bodies journey together!

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    Latest Episodes:
    82. The Impact of Clinician-Associated Trauma on EDS and HSD with Colin Halverson, PhD Dec 14, 2023
    Show notes

    In this episode, YOUR guest is Colin Halverson, PhD. He received his Ph.D. in linguistic and medical anthropology from the University of Chicago, where he studied communication issues in medical genetics, based on fieldwork at Mayo Clinic. At Chicago, he also completed a fellowship in clinical ethics, and then a postdoctoral fellowship in medical ethics at Vanderbilt. He is currently a professor at Indiana University School of Medicine, where his research focuses on ethical care for patients with rare disease, in particular Ehlers-Danlos Syndrome (EDS).


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways

    • Patients with Ehlers-Danlos syndrome often face an antagonistic relationship with healthcare professionals, leading to mistrust and negative health outcomes.
    • The diagnostic odyssey experienced by patients with EDS can be likened to a hero's journey, characterized by challenges, misdiagnoses, and a long path to diagnosis.
    • The panoply of symptoms in EDS and the complexity of chronic pain make it difficult for patients to describe their experiences and receive appropriate care.
    • Clinician-associated traumatization is a distinct construct that captures the negative experiences and trauma patients with EDS face in their interactions with healthcare professionals.
    • Building a trustworthy team of clinicians and seeking support from the EDS community can help patients navigate the challenges of their condition and improve their healthcare experiences.

    Chapters


    00:00 Introduction

    00:29 Dr. Halverson's Background and Research Interest

    03:02 The Hero's Journey of Patients with Ehlers-Danlos Syndrome

    05:51 Challenges Faced by Patients with Ehlers-Danlos Syndrome

    07:02 Antagonistic Relationship with Healthcare Professionals

    08:29 Impact of Antagonistic Relationship on Patients

    09:47 Triggers for Transition into Unbearable Symptoms

    12:36 The Panoply of Symptoms in Ehlers-Danlos Syndrome

    13:44 Importance of Panoply of Symptoms in Diagnosis

    15:22 Challenges in Describing Multi-Systemic Symptoms

    16:26 Numeric Pain Scales and the Complexity of Chronic Pain

    19:40 Research on Hypermobile Ehlers-Danlos Syndrome

    20:39 Research on Other Forms of Ehlers-Danlos Syndrome

    23:56 Failure of Empathy in Patient-Provider Relationships

    27:24 Worse Health Outcomes and Trust Issues

    28:06 Impact of Failure of Empathy on Patients

    30:33 Dealing with Antagonistic Relationships

    31:45 The Isolation and Invisibility of Ehlers-Danlos Syndrome

    36:12 Clinician-Associated Traumatization and its Differences from Other Constructs

    39:21 Surprising Aspects of the Research

    42:01 Recommendations for Patients with Clinician-Associated Traumatization

    45:01 Future Directions of Research

    49:04 Closing Remarks


    This important conversation with Dr. Halverson about clinician-associated trauma in patients with Ehlers-Danlos Syndromes (EDS) and Hypermobility Spectrum Disorder (HSD) will leave you feeling better prepared to advocate for the care you need.


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.


    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, articles, and services mentioned in this episode:


    https://bioethics.iu.edu/people/colin-halverson.html

    https://pubmed.ncbi.nlm.nih.gov/34524722/

    https://doi.org/10.1016/j.ssmqr.2023.100237


    Dr. Halverson can be reached at chalver@iu.edu.


    #InvisibleIllness #HealthJourney #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility #HypermobileLife #BendyBuddy #HypermobilityMD #BendyBodies #EhlersDanlosResearch #MedicalGaslighting #PatientSupport #ResearchOpportunity #DiagnosticJourney

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    81. Foot Pain 101: Everything You Need to Know with EDS and HSD with Lisa Ralston, PT Dec 07, 2023
    Show notes

    In this episode, YOUR guest is Lisa Ralston, a physical therapist with over 30 years of experience in orthopedics, joint hypermobility, foot pain, and sports medicine. Since 2009, she has traveled internationally treating Team USA Olympians and World level figure skaters. Lisa was the physical therapist for Team USA figure skating for the 2022 Winter Olympics in Beijing. Lisa is the owner and founder of Ralston Physical Therapy and Wellness in Arvada, CO.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.


    Takeaways


    • Posture and alignment play a crucial role in foot pain in people with joint hypermobility.
    • Orthotics can be an effective intervention for managing foot pain in hypermobile patients.
    • Assessing and addressing foot pain early in children can prevent the development of other pain problems.
    • Proper shoe selection and tying techniques are important for managing foot pain. Failed physical therapy may be due to a lack of addressing all systems and factors contributing to the condition.
    • Orthotics can fail if they are not properly assessed and customized to the individual's foot flexibility and posture.
    • Over-the-counter orthotics can be a more affordable option, but it is important to choose ones that provide proper support and alignment.
    • Self-mobilization exercises, such as using a foam ball to mobilize the foot joints, can help improve foot mobility and relieve pain.
    • Addressing foot stability and proprioception is crucial for maintaining proper foot alignment and preventing issues related to hypermobility.
    • Hypermobility in ice skaters is a specific topic that may be worth exploring in a future episode. Foot problems are common and can cause significant discomfort and pain.
    • Proper lacing techniques can help alleviate foot pain and discomfort.
    • Lisa Ralston provides valuable insights and tips for managing foot problems.

    Chapters


    00:00 Introduction and Guest Introduction

    02:05 Causes of Foot Pain in People with Joint Hypermobility

    06:12 Approach to Hypermobility Patients

    08:18 Common Causes of Foot Pain

    10:10 Pain Begets Pain

    11:36 Approach to Hypermobile Patients

    14:59 Orthotics for Children

    17:02 Different Approach for Hypermobile Patients

    19:06 Assessment and Treatment of Foot and Ankle

    21:00 Shoe Selection and Tying Techniques

    23:19 Different Foot Types and Shoe Recommendations

    26:31 Importance of Firm Heel Counter in Shoes

    27:45 Tying Shoes Properly

    31:40 Recommended Shoe Brands

    34:53 Orthotics and Failed PT

    39:51 Addressing Failed PT

    47:51 Orthotics and Failed Orthotics

    53:48 Over-the-Counter Orthotics

    56:06 Self-Mobilization of Feet

    01:08:46 Hypermobility in Ice Skaters

    01:09:16 Hypermobility Hacks

    01:09:26 Foot Problems and Solutions

    01:10:21 Lacing Techniques for Foot Comfort

    01:10:54 Finding More Information Online


    This important conversation about foot pain and orthotics in people with Ehlers-Danlos Syndromes (EDS), Hypermobility Spectrum Disorder (HSD) and other hypermobility conditions will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the contributing factors to suboptimal foot function.


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://lisaralstonpt.janeapp.com/

    https://www.bauerfeind.com/b2c/

    https://www.oofos.com/

    https://www.abeofootwear.com/

    https://www.humanlocomotion.com/

    https://www.brooksrunning.com/en_u

    https://www.hoka.com/en/us/

    https://www.aetrex.com/home

    https://yoursole.com/us

    https://www.vasylimedical.com/

    https://www.birkenstock.com/us

    https://www.nike.com/

    https://www.saucony.com/en/home

    https://naot.com/

    https://www.keenfootwear.com/

    https://www.merrell.com/US/en/home

    https://www.chacos.com/US/en/home

    https://www.mephisto.com/us/

    https://www.theballetblog.com/about-us/lisa-howell/

    https://nyulangone.org/locations/harkness-center-for-dance-injuries

    https://www.vasylimedical.com/products/easyfit

    https://www.humanlocomotion.com/product/peel-and-stick-balances-sesamoid-balance/

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    80. A Multidimensional Approach to EDS and HSD Care with Dacre Knight, MD Nov 30, 2023
    Show notes

    In this episode, YOUR guest is Dacre Knight, MD. Dr. Knight established a specialty clinic for treating patients with hypermobility syndromes including hypermobile Ehlers-Danlos Syndrome (hEDS) and hypermobility syndrome disorder (HSD) at Mayo Clinic Jacksonville, Florida in 2019.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · What specialty evaluations are most important for patients with hypermobility syndromes

    · What tests he feels are most helpful for patients with Ehlers-Danlos Syndromes (EDS) and HSD

    · How they determine when to perform genetic testing and the findings in this group of patients

    · How his approach has evolved since the clinic’s inception in 2019

    · The research that he has conducted and relevant findings

    · The role of autoimmunity in EDS and HSD

    · Findings in patients with orthostatic intolerance vs Postural Orthostatic Tachycardia Syndrome (POTS)

    · The role of the immune system in symptomatic joint hypermobility

    · The relationship with fibromyalgia

    · What percentage of patients are diagnosed with hEDS vs HSD

    · What he says to people who assume that HSD is a less serious condition



    This important conversation about Dr. Knight’s approach to the evaluation and treatment of hEDS and HSD will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the evaluation process.


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    Ehlers-Danlos Syndrome Newsfeed | Mayo Clinic Connect

    Ehlers-Danlos Syndrome Clinic in Florida - Overview - Mayo Clinic

    https://www.mayoclinic.org/biographies/knight-dacre-m-d/bio-20477206

    https://x.com/knidac?s=21

    https://www.frontiersin.org/articles/10.3389/fmed.2023.1096180/full

    https://link.springer.com/content/pdf/10.1007/s42399-022-01218-w.pdf

    https://pubmed.ncbi.nlm.nih.gov/35687402/

    https://www.ehlers-danlos.com/

    https://www.ehlers-danlos.com/healthcare-professionals-directory/


    #BendyBuddy #HypermobilityMD #POTSawareness #HolisticHealth #MayoClinicJax

    #SpecialtyClinic #HealthInnovation #WholeBodyTreatment #MedicalCollaboration

    #InvisibleIllness #PatientAdvocacy #ChronicIllness #ChronicPain #EhlersDanlos #HSD #JointHypermobility

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    79. Gastrointestinal Problems in Hypermobile EDS: Learning to Treat and Spot them with Leonard Weinstock, MD Nov 16, 2023
    Show notes

    In this episode, YOUR guest is gastroenterologist Leonard Weinstock, MD, author of over 150 peer-reviewed journal articles. His extensive research on MCAS (Mast Cell Activation Syndrome) and diseases of the esophagus, stomach, small intestine, and colon has been presented at national and international conferences. He is actively researching the connection of the gut and small intestinal bacterial overgrowth (SIBO) with several medical problems, including restless legs syndrome (RLS) and chronic pelvic pain syndromes. He presented several lectures in Oregon at the first SIBO symposium and in France at the international rosacea study group.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · What can cause abdominal pain in those with EDS (Ehlers-Danlos Syndromes), MCAS (Mast Cell Activation Syndrome) and/or dysautonomia (syndromes like POTS - Postural Orthostatic Tachycardia Syndrome)

    · How gastrointestinal tract symptoms and extraintestinal problems like RLS (restless leg syndrome), rosacea, and interstitial cystitis are related

    · What unique treatments are available for restless leg syndrome, rosacea, and interstitial cystitis

    · How Dr. Weinstock’s medical practice evolved after becoming “MCAS aware, POTS aware and EDS aware”

    · What correlations exist between Crohn's disease, irritable bowel disease and RLS

    · Why it is so crucially important to listen to AND believe our patients

    · How Mast Cell Activation Disease and MCAS differ from one another

    · Why the term “syndrome” can be problematic

    · What environmental factors can play a role in MCAS

    · When to suspect a compression syndrome (like Median Arcuate Ligament Syndrome or MALS, Nutcracker Syndrome, or pelvic congestion syndrome), visceroptosis (drooping of the intestines) or gastroparesis

    · What testing can be performed for MCAS and the significance of tryptase levels

    · How YOU can help support our nonprofit documentary film and free online educational library, Still Standing.


    The goal of our documentary film and free online educational library is to promote wider awareness and physician education about three complex chronic conditions, MCAS, dysautonomia and hypermobility syndromes. Better recognition will help patients get treatment and hope for a better quality of life.


    This important conversation about extraintestinal manifestations of gastrointestinal diseases will leave you feeling more knowledgeable, better prepared to advocate for the care you need, and with a better understanding of the interaction of the gastrointestinal system with other bodily systems.


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://www.gidoctor.net/provider/leonard-weinstock-md

    https://www.bendybodiespodcast.com/34-highlighting-gi-disorders-with-leonard-weinstock-md/

    https://www.mcasfund.org/

    https://www.nowleap.com/leap/

    https://www.ifm.org/

    https://ldnresearchtrust.org/

    https://www.ldnscience.org/

    https://www.genebygene.com/


    #BendyBuddy #HypermobilityMD #GITract #EDSInsights #EhlersDanlos #GastroHealth #ChronicIllness #MCAS #MCAD #PotsSyndrome #RestlessLegSyndrome #LowDoseNaltrexone #MALS #CrohnsDisease #GutHealth #HypermobilityPodcast

    #PodcastDiscoveries #EDSdoctor #CompressionSyndrome

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    78. Uncovering Inequality in Healthcare with Brianna Cardenas, DMSC, PA-C Nov 09, 2023
    Show notes

    In this episode, YOUR guest is Brianna Cardenas, DMSC, PA-C, ATC and the founder of Healed and Empowered. Brianna courageously shares her own personal journey with Ehlers-Danlos Syndrome (EDS), cervical instability, spinal CSF leak, and dysautonomia, shedding light on the mistreatments she endured - both as a patient and a healthcare professional.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · Inequality in healthcare and how we can best advocate for ourselves

    · Why we should prioritize diversity, equity, and inclusion in medical spaces

    · The need for personal responsibility when learning about sensitive topics

    · Discrimination and power dynamics in the healthcare setting

    · Handling microaggressions

    · Addressing internalized ableism

    · The importance of outward visible signs of safety for marginalized groups such as LGBTQ plus and BIPOC


    This important conversation about inequality in healthcare will leave you feeling more informed, better prepared to tackle that next step, and with a better understanding of the multitude of factors that can impact the healthcare you receive.


    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://www.healedandempowered.com/


    #Podcast #EDSPodcast #HealthcareInequality #LGBTQ #BIPOC #Hypermobility #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #EhlersDanlos #PainManagementJourney #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    77. Neurosurgical Insights from Paolo Bolognese, MD and Guest Cohost Pradeep Chopra, MD Nov 02, 2023
    Show notes

    In this episode, YOUR guest is neurosurgeon, Paolo Bolognese, MD, founder of the Chiari Neurosurgical Center in New York. Dr. Bolognese is also on the Board of Directors of the American Syringomyelia & Chiari Alliance Project, Inc. (ASAP), on the Scientific Education and Advisory Board of the Chiari Syringomyelia Foundation (CSF), and is a member of the International Consortium on EDS, HSD, and Related Disorders. The Chiari EDS Center is focused on the diagnosis and treatment of Chiari I Malformation, Syringomyelia, Craniocervical Instability, Tethered Cord, Eagle Syndrome, Idiopathic Intracranial Hypertension, and Intracranial Hypotension. Dr Bolognese’s surgical experience includes more than 1,600 Chiari Decompressions and 900 Craniocervical Fusions, 300 of which with condylar screws. He is on the Board of the main national and international organizations focused on Chiari and Syringomyelia and has also made contributions in the field of Intraoperative Ultrasound and Laser Doppler Flowmetry.

    YOUR guest co-host is Pradeep Chopra, MD, Harvard-trained anesthesiologist double Board Certified in Pain Management and Anesthesiology, Director of the Center for Complex Conditions and Assistant Professor, Brown Medical School with a special interest in chronic complex pain conditions and their associated co-existing conditions.

    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.
    Explored in this episode:
    · How Dr Bolognese discovered the link between Ehlers-Danlos Syndromes (EDS) and Chiari I malformation
    · Why people with EDS are at increased risk of craniocervical instability
    · What type of imaging he prefers for the evaluation of Chiari I malformation and/or cervical instability
    · Why he started performing surgery for Eagle’s Syndrome
    · Why he feels invasive cervical traction is an essential part of the neurosurgical evaluation for upper cervical spine problems
    · Causes of elevated intracranial pressure


    This episode is really special as it is rare to get a neurosurgeon's point of view outside of a medical appointment. It may be easier for you to have the transcript in front of you while you are watching this episode of the Bendy Bodies Podcast on our YouTube channel or listening to this episode on your favorite podcast player. Dr. Bolognese uses his hands a lot for demonstration so you may find watching this episode on YouTube beneficial.


    This important conversation about neurosurgical problems will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact symptoms.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!
    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.
    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.

    YOUR bendy body is our highest priority!

    Products, organizations, and services mentioned in this episode:

    https://chiariedscenter.com/

    Access Dr. Bolognese's intake forms here.

    https://www.dropbox.com/scl/fo/2vrapu5w2b0ara2pyke8l/h?rlkey=06e9q7pjhwhyypo0xjhn0jkgy&dl=0
    #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    76. Orofacial Pain with Robinson-Smith, DDS Oct 19, 2023
    Show notes

    In this episode, YOUR guest is Julie Robinson-Smith, DDS, diplomate of the American Board of Oral Medicine, a diplomate of the American Board of Orofacial Pain and an instructor of Orofacial Pain at the University of Colorado Anschutz School of Dental Medicine. Following dental school, she served in the US Air Force for five years as a general dentist. After her time in the Air Force, she completed a two-year residency in Orofacial Pain and Oral Medicine at the University of Southern California. Dr Smith is also Dr. Bluestein’s amazing TMD (jaw and facial pain) doctor!


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · Why the jaw is problematic so frequently in those with joint hypermobility

    · How ligamentous laxity contributes to jaw dysfunction

    · The influence of hormones and puberty on jaw pain and function

    · Open locking - what is it and how can you reduce the risk?

    · How you can make dental visits less traumatic


    This important conversation about orofacial pain will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact pain in the teeth, jaw pain, and open and closed locking.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://www.ofpcos.com/


    #Hypermobility #EDSpodcast #JawPain #TMD #TMJ #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    75. Cervical Instability: Thinking Beyond the Neck with Patty Stott, DPT Oct 12, 2023
    Show notes

    In this episode, YOUR guest is Patricia Stott, DPT, physical therapist with expertise in Ehlers-Danlos Syndromes and related conditions. Dr Stott and Dr Bluestein presented together on integrative approaches to pain management at the EDS Society Global Learning Conference in August 2023 in Dublin, Ireland. Dr Stott is the founder of Elevation Wellness, and is also trained in visceral manipulation, neural manipulation, fascial Counterstrain, Craniosacral Therapy, and is certified in Reiki. She frequently addresses instability and neck pain in her patients and is currently enrolled in a PhD program for integrative medicine.


    YOUR host, as always, is Dr. Linda Bluestein, the Hypermobility MD.

    Explored in this episode:

    · Whether or not hypermobility spectrum disorder (HSD) and Ehlers-Danlos Syndrome (EDS) have different clinical presentations

    · Severity of presentation versus the severity of instability

    · How inflammation impacts cervical instability

    · How dysfunction in other bodily systems can impact cervical instability

    · Treatment options beyond “usual” physical therapy and surgery

    This important conversation about causes of cervical instability beyond the neck will leave you feeling hopeful, prepared to tackle that next step, with a better understanding of the multitude of factors that can impact instability of the neck.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!


    Products, organizations, and services mentioned in this episode:


    https://chalelapti.com/about-us/

    https://peterattiamd.com/outlive/

    https://www.posturalrestoration.com/

    https://www.uprightmrico.com/

    https://www.asha.org/practice-portal/clinical-topics/orofacial-myofunctional-disorders/

    https://www.tarlovcystfoundation.org/

    https://www.elevationwellness.co/

    https://www.frontiersin.org/articles/10.3389/fmed.2022.1072764/full

    #Hypermobility #EDSpodcast #HypermobilityPodcast #HypermobilityMD #BendyBuddy #ChronicIllness #ChronicPain #InvisibleIllness #HypermobileHacks #EhlersDanlosSyndrome #PainManagementJourney #PhysicalTherapy #PhysicalTherapists #EDSdoctor

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    74. Podcast Secrets and Sneak Peeks with Guest Host Kate Colbert Oct 05, 2023
    Show notes

    In this episode, where we close out Season 3 of the podcast and kick off Season 4, YOUR guest (and host!) is Bendy Bodies founder, Dr. Linda Bluestein, the Hypermobility MD.

    YOUR guest co-host – serving up questions to Dr. Bluestein – is Kate Colbert, outspoken EDS advocate, world-renowned marketer, and award-winning healthcare and higher-education writer.

    Explored in this episode:

    • How the Bendy Bodies Podcast has evolved since its founding in 2020 from a resource for hypermobile dancers to a resource for EVERYONE with hypermobility (and their medical providers too!).
    • What it’s like for Dr. Bluestein to be a physician who treats hypermobile patients AND a podcaster and social media icon in the hypermobility community. Learn the truth about the challenge of educating hundreds of thousands of people vs. working one-on-one with someone in the clinic setting.
    • The perfect Bendy Bodies episodes for “newbies” – where to start listening and why – if you’re new to a hypermobility disorder diagnosis or suspicion.
    • Run-away BEST episodes in terms of listenership and the “buzz.”
    • Dr. Bluestein’s favorite part of working with other professionals who care so much about hypermobile patients.
    • What excitement YOU can look forward to in Season 4 of the Bendy Bodies Podcast!

    Chapters


    00:00 Introduction and Background

    03:01 Career Trajectory and Transition

    08:37 Specializing in Symptomatic Joint Hypermobility

    10:24 Challenges in Healthcare System

    20:33 Starting the Bendy Bodies Podcast

    30:59 Recommended Episodes for New Listeners

    35:33 Balancing Expectations and Realities

    39:35 The Importance of Patient-Provider Collaboration

    40:18 Teaching Healthcare Providers about Hypermobile Conditions

    41:37 The Role of Patients in Educating Doctors

    42:53 Continual Learning and Growth in Medical Practice

    45:08 Practical Tips for Living with Hypermobility

    48:28 Hypermobility Hacks and Their Importance

    55:41 Working with Professionals in Hypermobility Medicine

    01:00:39 The Evolution of the Bendy Bodies Podcast

    01:06:23 The Impact of the Bendy Bodies Podcast

    03:00 Benefits of Yoga for Flexibility and Strength

    09:30 Yoga for Stress Relief and Mental Health

    15:45 Yoga for Injury Prevention and Rehabilitation

    22:10 Yoga for Overall Well-being

    28:20 Different Types of Yoga and Finding the Right Practice

    34:50 Yoga for Different Age Groups

    40:15 Yoga for Pregnancy and Postpartum

    46:40 Yoga for Seniors

    52:55 Yoga for Children and Teens

    59:20 Yoga for Athletes

    01:05:10 Yoga for Chronic Pain Management

    01:11:25 Yoga for Specific Health Conditions

    01:16:17 Conclusion

    This important conversation about the beginnings (and the future) of the Bendy Bodies Podcast featuring the Hypermobility MD will leave you feeling inspired, prepared to get more from this community, and with a better understanding of how to use this platform to improve your health.

    Connect with YOUR Bendy Specialist, Linda Bluestein, MD!

    Thank YOU so much for tuning in. We hope you found this episode informative, inspiring, useful, validating, and enjoyable. Join us on the next episode for YOUR time to level up your knowledge about hypermobility disorders and the people who have them.

    Join YOUR Bendy Bodies community at https://www.bendybodiespodcast.com/.


    YOUR bendy body is our highest priority!

    #EDSdoctor #DrBluestein #KateColbert #Hypermobility #EDSpodcast #HypermobilityPodcast #Podcast #HypermobilityMD #Bendy #BendyBuddy #EhlersDanlosSyndrome #EDS #EhlersDanlos

    Learn more about your ad choices. Visit megaphone.fm/adchoices


    73. Understanding Lower Extremity Pain with Pradeep Chopra, MD Aug 31, 2023
    Show notes

    The lower extremities must bear the weight of our whole bodies. Problems in the hip may cause a chain reaction of aches, imbalances, or chronic issues that could manifest in the knee, ankle, or somewhere else along the kinetic chain.


    Continuing our series on pain with Dr. Pradeep Chopra, we explore the hips, knees, ankles and feet, diving into multiple possible causes of issues in these joints.


    Dr. Chopra discusses why rolling of the ankles is unhealthy, even if it’s asymptomatic, explains how pain in one part of the leg may be due to an issue in a different joint, and explores why and how you might correct knee hyperextension.


    Dr. Chopra dives into the hip joint structure, outlining possible reasons for hip subluxation. He shares different ways to treat SI joint pain, and offers practical suggestions for dealing with multiple lower extremity pain issues.


    Filled with detailed information, accessible medical explanations, and Dr. Chopra’s popular “hack” tips, this episode belongs on your must-listen list!


    Learn more about Dr. Chopra here.


    Check out the products discussed during this episode:

    https://pedagusa.com/

    https://medspec.com/product-category/knee/patellofemoral/

    https://www.bauerfeind.com/

    https://www.drmartens.com/us/en/

    https://www.converse.com/


    #Podcast #HypermobilityHacks #HypermobilitySyndrome #HypermobilitySpectrumDisorder #EhlersDanlos #Hypermobility #Hyperextension #HipPain #Subluxation #PainManagementStrategies #JointPainRelief #LowerBodyPain #MobilityIssues #HipProblems #JointHealth #ChronicPainSupport #LowerBackPain #KneePain #BendyBuddy

    Learn more about your ad choices. Visit megaphone.fm/adchoices


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