ALS Podcast

Latest Episodes:

Episode 44 Jim Pinciotti Nov 25, 2015

Show notes

ALS Association Greater Philadelphia Chapter Executive Director Jim PInciotti joines the ALS Podcast to talk about his 20 years of being involved with the Chapter. In this special Thanksgiving episode, we talk about what are thankful for in the fight against ALS and why there is so much more to accomplish. Find out how to get more involved at www.alsphiladelphia.org

Episode 43 Anne Cooney Nov 19, 2015

Show notes

Anne Cooney has over two decades of experience as a social worker and in this podcast, she talks about her role in making sure that people with ALS get all of the services they need to live to their fullest potential. We talk about the social worker's efforts to help people navigate the healthcare system, getting people in touch with the right support, and how the social workers at the Chapter continuously go above and beyond at every opportunity. Listen, share, and get involved at www.alsphiladelphia.org

Episode 42 with the Hemsing Family Nov 12, 2015

Show notes

Bill Hemsing passed away from ALS over 15 years ago, but the impact of his disease is still being felt by his surviving family members. During his time living with ALS, his daughters, his son, and his wife learned to be caregivers and they grew closer together as a result. Listen to their story in this podcast as they get ready to participate in this year's Annual Luncheon honoring ALS caregivers. Donate online today at www.alsphiladelphia.org

Episode 41 with Kristen Colby Nov 05, 2015

Show notes

Kristen Colby has been a supportive wife and caregiver for her husband Craig Colby during his long battle with ALS. In this podcast, she discusses what it means to be a caregiver, why she likes the Walk to Defeat ALS, and the anticipation for the Chapter's Annual Luncheon on Friday, November 13 honoring Caregivers. Learn more about the luncheon at www.alsphiladelphia.org/luncheon

Episode 40 Paul Miller Oct 29, 2015

Show notes

Paul Miller is living with ALS and using his personal experience with the disease to educate young people, advocate with public officials, and raise money for a cure. Listen to what he tells people about the realities of ALS and what experiences he finds most enjoyable as he works to end ALS for himself and others. Get involved today at www.alsphiladelphia.org and support a Walk to Defeat ALS, which Paul loves as well, at www.gpcwalktodefeatals.org

Episode 39 with Lauren Stevenson Yacina Oct 22, 2015

Show notes

ALS Association Greater Philadelphia Chapter board member Lauren Stevenson Yacina talks about her 30 year involvement with the Chapter, her mother's battle with ALS, support from the Philadelphia Phillies, and why she is looking forward to the Walk to Defeat ALS and the Annual Luncheon honoring caregivers. Find out how you can get involved at www.alsphiladelphia.org

Episode 38 with Debbie Ihde, Andrew Geronimo, and Donna Cleary Oct 15, 2015

Show notes

Debbie Ihde and her family created a Tribute Fund to honor her late husband, Dave Ihde, who did everything he could to fight ALS for himself and for others. That included ALS Advocacy and fundraising, but also participating in research like a study on Brain Computer Interface with Andrew Geronimo.
In this podcast, Debbie talks about her husband and Andrew Geronimo discusses the potential for this new brain technology to help people with ALS and other diseases. Listen and then get involved at www.alsphiladelphia.org

Episode 37 with Brenda Edelman Oct 08, 2015

Show notes

Brenda Edelman is the Director of Patient Services at The ALS Association Greater Philadelphia Chapter. In this podcast episode, she talks about how her background as a social worker helps guide her management and values while running the patient services department, how her staff is organized to best help people with ALS, and how her role has evolved in her decade with the Chapter. Listen, share, and get involved today at www.alsphiladelphia.org and join Brenda at the Greater Philadelphia Walk to Defeat ALS on November 1 at www.greaterphiladelphiawalktodefeatals.org

Episode 36 with Philly Philms Sep 30, 2015

Show notes

Mikaelyn Austin and Rob Marcolina of Philly Philms have been recording stories about ALS since 2011, first with the Phillies Phestival and now producing feature profiles for the national ALS Association. As outsiders to the disease, they've come to understand how ALS affects whole families and the impact of ALS Association programs and research. Listen to their perspectives and get involved today at www.alsphiladelphia.org

Episode 35 Alisa Brownlee on Emergency Preparedness Sep 23, 2015

Show notes

Alisa Brownlee makes her second appearance on the ALS Podcast, this time to talk about how ALS families can prepare for emergencies and be ready in the event of a natural disaster. From "Go-Bags" to contact lists to important devices, Alisa gives tips on how to be ready and where to go for further resources. After the tough winter of 2014-15, this information can be vital to a person with ALS and their caregivers. For further questions, email Alisa@alsphiladelphia.org or tweet her @ALSAssistiveTec

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