Tube to Table

S2, Ep. 12: Tube Use During Weaning Jun 17, 2025

Welcome back! This week, Jeni and Heidi are talking about the role of supplementation during the tube weaning process—why it matters, how we approach it, and what it can look like when done thoughtfully and safely.

Feeding tubes are incredible tools that support over 250,000 children in the U.S. They help kids grow, thrive, and heal—and the decision to use one is always made with the child’s best interest at heart. But just like any helpful tool, there may come a time when it's no longer needed and might even begin to create barriers—especially around oral eating, social life, travel, or day-to-day routines. We know that deciding to transition away from the tube is a big step. It often means the medical situation has stabilized or resolved. But the road forward requires careful thought. At THRIVE, we focus on two key ideas: honoring the role the tube has played and using it strategically as we move forward.

What happens when a child is ready to wean? How do we make safe and effective supplementation decisions during this transition?

-Hydration vs. Nutrition: While hydration is vital, it doesn’t usually interfere with oral intake of food. So we keep hydration steady while adjusting nutrition.

-Creating Room for Hunger: Before a child can eat more, they often need to feel more. We begin with what’s called “hunger induction”—a safe, stepwise reduction of tube feeds that gives the child space to connect with hunger and eating.

-Using the Tube Strategically: We’re not pulling support away cold turkey. Instead, we use the tube like a floatie—something to keep them safe and supported while they’re learning new skills. That includes using the tube to reinforce effort ("You worked hard, and now you feel full!") or to offer relief when things get too hard ("Let’s give you a break today.").

-Decision-Making in Real Time: Every child is different. Some might need more reduction to recognize hunger; others may need a little support to feel safe. We base our choices on energy, growth, health, and cues from the child. It’s not about finding the perfect number of ounces—it’s about tuning into your child’s needs.

Progress doesn’t mean perfection. Many kids start with small bites or narrow food ranges. The tube helps bridge the gap while they build skills, confidence, and variety. Our goal is not long-term dependence but rather using the tube as a tool while independence grows. There’s no single “right” way to do this.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 11: The Power of the Pause Jun 03, 2025

In this episode, Jeni and Heidi dive into the often-overlooked but incredibly powerful concept of pausing both before and along the tube weaning journey. After months—or even years—of pushing through medical challenges, therapies, and constant decisions, many families reach a point where forward movement feels exhausting.

Stepping back doesn’t mean giving up; it can actually create the space where the most meaningful progress happens. Pausing allows for emotional and physical repair—for both your child and yourself—and gives everyone a chance to find stability before pushing forward again. Jeni and Heidi explore how to recognize signs of tension or burnout (like dreading mealtimes), and why co-regulation—tuning into both your nervous system and your child’s—is such a vital part of this process. You’ll hear strategies for creating calm, pressure-free mealtimes, honoring your child’s need for space, and learning to trust the slow, sometimes messy path of tube weaning. We also reflect on the emotional work parents do—advocating, observing, supporting—and how important it is to give yourself credit and care along the way. This episode is a gentle invitation to trust that progress isn’t always about doing more, but about allowing space for healing, growth, and connection.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 10: How Parents Protect Mealtimes During Tube Weaning May 27, 2025

In this episode, Jeni and Heidi dive into how parents can play a powerful role in protecting and supporting their child’s journey from tube feeding to eating by mouth. When preparing, it’s easy to focus on the practical things like what foods to buy, which cup to use, and what’s the best bottle out there. What really matters is understanding what’s going on under the surface for both you and your child.

For many kids, especially those with a history of medical challenges, food can be overwhelming. Even something as simple as a new texture or smell might feel scary. Recognizing that your child might not feel safe with food yet helps you meet them with more patience and empathy. Many parents carry emotional weight from past experiences around feeding. Stress, fear, and trauma—it’s real, and you’re not alone. Taking time to understand what you’re bringing into mealtimes can make a big difference. Getting support for yourself is not selfish—it’s essential. Feeding won’t always go smoothly, and that’s normal. What matters is having a plan for the “what ifs”: what if your child refuses food, or you feel overwhelmed? Giving yourself a break, asking for help, or having a different topic to talk about at the table can help shift energy in a healthy way.

Instead of counting bites or measuring progress by how much your child eats, we need to shift our mindset around what we consider a success. In the tube weaning process, it’s important to focus on things like: Did my child feel safe? Did we enjoy time together? Was the food offered in a way that respected their needs? These are real, meaningful wins. Your number one job is to protect your child’s sense of comfort and safety at the table. With preparation, reflection, and a focus on connection, you’re creating the foundation for your child’s eating skills to grow.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 9: Building a Team for Tube Weaning at Home May 20, 2025

Welcome back! In this episode, Jeni and Heidi are talking about how families can form an effective and collaborative team to support their child through the process of tube weaning. Too often, parents find themselves feeling isolated on their child’s tube weaning journey. They are either waiting for a plan that never comes or are trying to piece it together alone. With the right information and questions, a supportive team can be built. As we discussed in last week’s episode, parents are not just bystanders in this process—they are essential members of the team. You know your child best, and your voice, insights, and presence are vital in shaping both the plan and the outcome. It is vital to a child's success in tube weaning to work with professionals who view parents as experts and partners, and who understand that feeding skill development and long-term outcomes are closely tied to the parent-child relationship.

Jeni and Heidi also discuss the other key players on a strong tube weaning team: a medical provider who can set safety parameters around hydration, weight, and who knows your child’s medical history well; a therapist (often a speech or occupational therapist) who supports day-to-day progress through a child-led, strengths-based approach; and, of course, you, the parent, guiding and advocating every step of the way. Collaboration across all team members is crucial, even when it’s challenging. Jeni and Heidi offer practical guidance for asking the right questions, building trust, and planning for “what if” scenarios along the way. Tube weaning isn’t all-or-nothing—it’s a gradual, individualized process. With the right team in place, it can be safe, supported, and successful.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 8: The Role of Parents in Tube Weaning May 13, 2025

When we talk about tube weaning, we’re not just talking about transitioning from tube feeds to oral intake—we’re talking about creating or restoring joy, curiosity, and connection to eating and feeding. And at the heart of that process is YOU, the parent. Too often, parents find themselves in one of two difficult roles: either sidelined and treated as an afterthought or isolated, left alone to search for answers and support. We know and believe that parents are the experts on their children. Your insight, intuition, and involvement are not just helpful—they are essential.

The feeding environment matters deeply. What makes your child feel comfortable, safe and secure? Maybe it’s sitting on a parent's lap during breakfast or being surrounded by siblings at the table. We must expand our definition of safety beyond a physical aspect, also considering emotional and sensory safety. Within the feeding environment, we need to also consider structure, not rigidity.

And when we do offer food, let’s consider pleasure, too. The goal at first is positive, low-pressure, intrinsically motivated experiences. That could be a lick of a chip, a finger dipped in ketchup, or stealing a bite from mom’s plate. If they see you enjoying it, they might be more willing to try it. That joy is the bridge to variety and nutrition later on. Every child is different. Every family is different. This journey will evolve, and that’s okay. It’s not about getting it perfect—it’s about staying curious, responsive, and connected to your child. Tube weaning is a process of learning, for everyone involved. It takes time, flexibility, and trust. And when parents are centered and supported, children can THRIVE.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 7: Sensory Implications for Weaning Apr 29, 2025

How many times has a loving adult or professional told you that your child’s eating difficulties are a sensory based “problem”? Yes, feeding IS a sensory experience AND it’s bigger than that. We all interact with the world and situations using our own individualized sensory identities. The ways in which we receive, interpret, and respond to sensory information within that is also constantly evolving. Sensory preferences are our brain’s learned protection and reaction to lived experiences, whether positive or negative.

The same sensory identities and associations are evolving in children who are learning to eat! While we’re working toward helping children become happy and healthy oral eaters, we must first devote time and energy to understanding WHO the child is and HOW they relate to the world through their sensory experiences before we try to change them. This is crucial to figuring out who your child is from a sensory standpoint. We must examine and consider the context such that we’re maximizing ease, comfort, trust, and peace BEFORE we increase the challenge or try to expand their diet/oral intake.

This is where motivation and autonomy play a key role. Giving the child control over how and when something occurs (such as eating) can significantly influence how they perceive the experience and how prepared their body is to engage in it. It’s only once a child has learned that they can be safe, comfortable, and stable that they can expand and have new experiences to help override old ones. This is a CHILD led process, one where we continue to accept where they are, no matter what. It may take time on the front end but also helps with success in the longer term.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 6: Why Getting Kids to Eat Backfires Apr 08, 2025

In this episode, Jennifer and Heidi are diving into how certain feeding strategies, specifically when transitioning off feeding tubes, can backfire. There is a common phrase that we hear a lot as therapists: “I can’t GET them to do it or I can only GET them to have 2 bites”. As loving caregivers, parents often think that it is their job to get their child to eat a certain food or specific volume. While working to transitioning to oral eating, the focus should be less on what you can get your child to do and more on letting them have the space to do so (McGlothlin, Jenny: Definition of “Let to Get”). The parents should focus on providing the foods and setting up a positive mealtime routine, while the child’s role is to determine if they’re going to eat it and how much (Ellyn Satter – Division of Responsibility).

Jennifer and Heidi discuss what specific feeding behaviors we often see in the traditional feeding therapy. These behaviors are often viewed as symptoms and then the focus tends to be on more behavioral strategies. Although there is some short-term research on those behavioral methods (praising, distracting, negotiating), we know that it has negative long-term effects on a child’s relationship with food. They will also review what we can do as therapists, and parents, to help create a solid foundation and address the relationship with food starting with the foundations. We will also review the evidence to support the responsive feeding strategies, specifically with tube-fed children.

If you would like any of the research or studies mentioned in this article, please do not hesitate to email us at thrive@spectrumpediatrics.com and we can send it to you.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum and @tubetotable on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 5: Hunger and Beyond: Motivation Matters Apr 01, 2025

In this week’s episode, Jennifer and Heidi talk about what motivates children to eat. While hunger is important, it’s not the only missing piece of the eating and feeding puzzle for tube fed kids.

When helping tube-fed kids become oral eaters, there are a lot of other pieces of the puzzle we must consider! Comfort, pleasure, curiosity, and relationships are all aspects that you, the loving and caring adult, can help facilitate for your tube-fed child. Eating in a comforting environment, having a meaningful and pleasurable experience during a mealtime, exploring food independently, and being a part of the mealtime routine can all help to drive internal motivation to eat! And Yes! Hunger also plays a role to build on oral eating. This looks different for every child in our program and beyond, and we know that following your child’s lead is of most importance to THRIVE!

It's important to differentiate between tolerance and internal motivation. Our goal as well-meaning adults is not to help children tolerate a food or bite a certain number of times. In fact, that undermines their curiosity and adds external pressures to eat. We know and believe that all children are competent! They can feel hunger and start to do something about it independently, but only once we remove any obstacles you have control over (pain, discomfort, stress, pressure) and allow for periods of rest/repair for your child to build knowledge and experience on their own terms.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum and @Tubetotable on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 4: Feeding Skill Development and Tube Weaning Mar 25, 2025

In this episode of Tube to Table, Jennifer and Heidi are letting you all in on a little secret: most kids learn to eat while they’re eating and participating in continued meaningful experiences surrounding a mealtime.

Often times, traditional feeding therapy has a narrow skill-based focus that may include oral motor skills, self-feeding skills, increasing volumes, or expanding varieties. Skill development actually includes much more than just those things! To target a skill, we need to zoom out to address the fundamentals. We know that learning is most successful when the learner is an active participant: When they are motivated or in charge of their learning, when they have felt safety, and when they’re given appropriate support that doesn’t undermine or take over.

For many of us adults, there’s an innate meaningfulness in food. What we forget is that it develops through experiences, and often, tube-fed kids do not have the same opportunities. Motor skills build over time, through experience and enjoyment, and by actively participating in activities already occurring throughout your home. Having your tube-fed child sit at the table with you during a meal provides tons of meaningful experiences!

No matter the skill you want to help your tube fed child to learn, whether its variety, volume, oral motor strength, sensory processing, or self-regulation, the goal is to see the big picture and help create an ideal and positive environment.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 3: When Kids Say NO! (And Why It's Important) Mar 18, 2025

Welcome to Tube To Table: The podcast about helping tube fed kids become happy and healthy eaters. In this episode, Jeni and Heidi are here to help parents understand why hearing “no” from your tube-fed child can be a good thing. Learning to accept “no” as parents can be a game changer for mealtimes and can help caregivers reframe what refusal means for their tube-fed child.

Did you know that food refusal is actually developmentally appropriate, regardless of the neurological identity of your child? It is easy to consider refusals as a problem or a deficit, however, it is an important part of the developmental process. It's a way for children to express that they’re unsure or perhaps not ready, and they’re actually doing the right thing by avoiding something that likely caused negative feelings in the past. As loving and well-meaning adults, this can feel like a failure or rejection, like a loss of control, and as if we’re not doing our jobs properly. It’s hard to know how to appropriately respond when it does come up.

Jeni and Heidi are here to help you understand the WHY: why it’s important to accept refusals, why we look at your child’s experiences around eating and feeding and not just the act of eating, and why we allow kids the space and time to create a happy and healthy relationship with food.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information: @TubetoTable and @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 2: What I Wish They Had Told Me! Mar 11, 2025

Did your child just receive a feeding tube? Are you feeling stuck in feeding therapy? In this episode of Tube To Table, we are diving into the topic of what parents wish they had been told when their child first got their feeding tube. Feeding tubes can be a medical necessity and can help keep kids safe when needed. We’re here to remind you that this is not your fault, and your child can do this!

The transition from being tube-fed to becoming an oral eater can be tricky and it is often not an automatic process. No matter where you are in the process, today’s podcast will touch on a few of the most important factors to look at when starting the transition to tube weaning. We’ll talk through the tricky thought patterns you may be experiencing, why you could be feeling stuck in feeding therapy and how to support progress, and what our roles are as adults to help children feel safe and supported during this transition.

** Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process.**

Don’t forget to follow us on social media for more helpful information @Tubetotable and @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com

S2, Ep. 1: Tube to Table Reboot Mar 03, 2025

Welcome to Tube To Table: The podcast about helping tube fed kids become happy and healthy eaters. In Episode 1 of Season 2, you’ll get re-acquainted with your hosts, Jennifer Berry and Heidi Moreland as they talk about Responsive Feeding and the transition from Tube to Table. Jennifer is an occupational therapist and founder of the Thrive by Spectrum Pediatrics Tube Weaning Program, and Heidi is a speech-language pathologist and clinical coordinator of the Thrive Tube Weaning Program. Both Jennifer and Heidi have over 30 years of combined experience working with families of tube-fed children.

Episode 1 dives into some of the unknowns as a parent or loved one of a tube-fed child, including how to help wean when the tube is no longer medically necessary. There can sometimes be a mismatch and frustration around the whole process, focusing on a child’s deficits. Jennifer and Heidi talk about the focus on “why” and the experience of the child to guide our program.

Jennifer and Heidi are here to help you “zoom out”. To help parents and caregivers take some focus off counting calories, measuring volume, counting number of bites, chewing in a certain way, closing lips, etc. and help you see your child’s experience of feeding in the big picture. We want to help you develop foundations for your child’s experience so that you can see how they’re relating to food and feeding. These foundations then help develop and build the skills that they need to eat more and use the tube less.

**Please remember this podcast is NOT meant to replace the support and guidance of your child's medical team. Consult with your doctor before starting the weaning process. **

Don’t forget to follow us on our other social media accounts: @Thrivewithspectrum on Instagram and Thrive by Spectrum Pediatrics on Facebook. You can also find out more information about the programs we offer at www.thrivewithspectrum.com.

Episode 44: Reframing Refusal Jun 11, 2020

Welcome back to the Tube to Table Podcast. On this week’s episode, Reframing Refusal, Heidi and Jennifer are talking about how to reframe the experience you and your child have when they refuse to eat. We are so thankful for all of our listeners and have loved hearing how this podcast is helping therapists and families implement responsive feeding into their mealtimes! With the summer approaching, we are planning to take some time off to record some new episodes and will be back with Season 2 in a couple months! For today’s episode, your hosts will dive into what refusal looks like and how to handle it when it happens before, during, or after the intensive weaning process. Refusal is a natural and necessary part of development and how your child learns to have a happy and healthy relationship with food. What do you do when your child refuses to eat? Why does refusal happen and what does it mean? All of these questions will be answered in this week’s episode!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 43: The Thrive Parent's Bill of Rights May 27, 2020

In this week’s episode of Tube to Table, Jennifer and Heidi are discussing the Thrive Parent’s Bill of Rights. You may have seen this in a recent blog post at Thrive, but during this episode Jennifer and Heidi will dive into more detail and walk through each crucial step in the Bill of Rights. This was created by the Thrive Tube Weaning Team for any feeding therapy, not just tube weaning, although it especially applies to children with feeding tubes. This is an important tool to help remind parents to listen to their intuition and guide them through what feeding therapy should look like. If something feels wrong, it is important to identify that feeling and address that with your therapist. The Thrive Bill of Rights is a good reminder for parents that your protective intuition is there for a reason, and if it feels wrong, it is worth exploring more. Jennifer and Heidi will break down the Bill of Rights and outline why it is so important for families to be a part of therapy and feel confident in their decisions.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 42: The Measurement Trap May 20, 2020

On this week’s episode of Tube To Table, Jennifer is joined by Jamie Hinchey, a member of the Tube Weaning program at Thrive. Jennifer and Jamie are talking about the measurement trap and how families can easily get caught up in it. Many families get stuck measuring progress with numbers, graphs, charts, and logs, rather than looking at their child and focusing on the responsive mealtimes. This is one of the most common difficulties that we see while working with families after an intensive tube wean. Letting go of the numbers is deeply embedded in the entire process that parents go through while weaning their child from a feeding tube. It is so hard to let go of strict measuring, but it is also a crucial part in building a confident and competent eater. Jennifer and Jamie will discuss why it is important to shift towards more responsive strategies, and how to identify success without focusing on the numbers.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 41: A Parent's Perspective: Joe's Story May 13, 2020

Welcome back to another episode of the Tube to Table podcast! We are continuing our “Parent’s Perspective” series with Joe’s story. On this week’s episode, Heidi sat down with Maggie, Joe’s mom who participated in the Thrive Intensive Tube Weaning Program at their home in Nashville. Maggie and Heidi talk through Joe’s history including his medical complications that led to the feeding tube, past therapy approaches, and how they ended up at Thrive. You’ll also hear Maggie talk more about what she learned about herself and about Joe during the process, as well as some of her favorite memories of Joe learning to eat. Every child’s journey throughout the Thrive program is different and unique, but Maggie talks about how this process helped her learn to trust Joe and build the confidence that he could be a happy and healthy eater!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 40: There's No Place Like Home May 06, 2020

On this week’s episode of the Tube to Table podcast, Heidi and Jennifer are talking about the “where” of tube weaning. Where should tube weaning take place? What are the pros and cons to different weaning settings? They’ll answer all of your questions and talk through the important factors to consider when making a choice for your child’s tube wean. At Thrive, we believe children should be weaned at home whenever possible, but that may not always be possible for some families. Different settings include hospitals, clinics, or through remote treatment. This can be an overwhelming decision for many families, but this is one of the most important factors to really look into. This week’s episode will go through all of the upsides and downsides of different settings to help families make the decision for themselves.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 39: A Parent’s Perspective: Noelle’s Story Apr 28, 2020

Welcome back to another episode of Tube to Table! We are so excited to have another episode as part of our “Parent’s Perspective” series. This week we are joined by Jessica & Chris, whose daughter, Noelle, went through the Thrive Tube Weaning Program a few months ago. Jessica and Chris are sharing their story with Heidi, the clinical coordinator of the program and Noelle’s therapist during her wean! Throughout this episode, you’ll learn more about Noelle’s history, what feeding therapy looked like for the first 5 years, and how her parents found Thrive. Noelle’s parents share their perspective on the intensive program including their experience while traveling to Nashville, Noelle’s amazing progress, and what they learned throughout the process. They will also share advice they have for families of tube-fed children who are either just leaving the NICU, just received a feeding tube, or ready to wean!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 38: What's Love Got to Do With It Apr 17, 2020

Welcome back to another episode of Tube To Table! This week, Heidi and Jennifer are talking all about love and attachment. How do loving and attached relationships impact tube weaning or your child learning how to eat? If there was ever a time that we are all more aware of building these relationships, it is right now. Things can seem hard right now, but as we’re all having more video calls, calling our grandparents more, or reaching out to friends, it’s important to think about how attachment and relationships play a role in tube weaning. In previous episodes, we’ve talked a lot about building loving, trusting feeding relationships, but we have never talked about WHY that’s important. Feeding and attachment are so closely linked that it is impossible to separate out the parent/child relationship around food. When that is separated, there can be a negative long-term impact on the child. Jennifer and Heidi dive into why feeding and attachment are so important and how you can help build that attachment with your child to strengthen the feeding relationship.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 37: Trying to Wean During a Quarantine Apr 08, 2020

We hope everybody is well and staying close at home, keeping themselves and everyone in their community safe. In this week’s episode of Tube To Table, Heidi and Jennifer are back together to answer a question we have been receiving from many families. Is this a good time to move forward with a wean? In the past, we have talked about how high stress times can be a difficult time to wean, but now that we are looking at the long-term view and unknown of how long this “new normal” may last, it’s important to address the pros and cons. There may be multiple opportunities that this crisis lends towards children with feeding tubes and their journey towards oral eating. Throughout this episode, Jennifer and Heidi will break down the important pros and cons to consider when choosing to wean during a quarantine.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 36: When There's a Pause in Therapy Apr 01, 2020

At Thrive, we miss seeing our families in person, but we are so happy we have been able to reach out and see our families online! For many children and families, this can be a challenging time because therapy is on hold or transitioning to teletherapy. Therapists are struggling to reach out to children, parents have multiple tasks to take care of, and families are feeling overwhelmed. In this week’s episode of Tube To Table, Heidi is joined by Jamie, a member of the Tube Weaning team. Our team at Thrive wants to reframe many of the things that people are doing everyday. Many of the routines and activities you are already doing are likely therapeutic, whether it is official therapy or not. So what to do when your feeding therapy is on hold? It’s OKAY! Mealtimes are so much more than just building oral motor skills and working on strategies, mealtimes are about the togetherness and comfort. In this week’s episode, Heidi and Jamie will talk through how you can help your child throughout this time and why it’s important to give yourself a break!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 35: What's the Deal with Drinking? Mar 25, 2020

We know that this past week hasn’t been easy for our families. We are thinking of you and sending a big virtual hug! It’s important to remember that what’s more important than what your kid is eating or how much they are taking by mouth is the comfort, security, and attachment they feel for you. There is a lot of evidence to show that your mental and emotional well-being are very important and can help make things easier, so hang in there! Although this might not be a time to dive into tube weaning, it could be a time to gather more information and map out a plan. At the Tube to Table podcast, we are going to continue to provide you with information and try to keep things as normal as possible for you and your family! In this week’s episode, Jennifer and Heidi are talking about learning to drink while weaning. This episode focuses on things to consider while weaning and learning to drink as well as some practical ways we see kids learn to drink!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 34: Calming The Waters Mar 18, 2020

In this week’s episode, Heidi is joined by Jamie Hinchey, a feeding therapist and member of the Thrive tube weaning team. Heidi and Jamie are discussing the importance of bringing calm to a situation, specifically around children. This could be moving houses, a new baby in the house, spring break, or a change in the weather. If you are listening to this in real-time, then there are many of you who are dealing with a sense of chaos or disruption in your house right now. We’re here to help. It can be hard to manage when different situations arise, big or small. As the adult, you have the right and ability to bring calm into the situation for your family. Today’s episode will dive into a few strategies that we find helpful for parents when things feel chaotic. Jamie and Heidi will discuss the importance of reducing expectations, bringing familiarity to the situation, and linking the old and the new. The Thrive team is also celebrating 10k downloads on the podcast! Thanks for listening!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 33: Autonomy over Efficiency Mar 11, 2020

On this week’s episode of the Tube to Table podcast, Jennifer and Heidi are talking about autonomy. What is it and why is it important in your child’s tube weaning journey? It is so important to allow your child to be autonomous and independent while building a healthy and happy relationship with food. This should be a priority over efficiency and skill development. We have received feedback from therapists and parents who are struggling to find this balance within therapy. Your hosts will elaborate more on what autonomy means, why it is important to prioritize, and how this helps children recover from any past traumatic food experience. So what does this look like in real life at the family table? Jennifer and Heidi will talk through how to build autonomy at mealtimes within your everyday routine, especially throughout the weaning process.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 32: The Lowdown on Liquids Mar 04, 2020

On this week’s episode, Jennifer and Heidi are talking about liquids and how they play a role while weaning your child from a feeding tube. As we all know, liquids are an essential part of our life, especially when we are sick or not feeling our best. Think about when you are dehydrated and how that makes your body feel: typically tired, low energy, swollen, and just generally uncomfortable. Kids feel that way too, even small babies, but they are not able to communicate that as well. At Thrive, we work with your child’s medical team to determine hydration parameters prior to starting a wean. In this episode, Heidi and Jennifer will discuss what that conversation looks like and why it is so important. Your hosts will also talk through 3 main reasons why introducing liquids can feel so hard during a wean or why your child isn’t showing as much interest in drinking.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 31: Dealing With a Crisis Feb 19, 2020

On this week’s episode, Heidi is joined by Brianna Brown, a feeding therapist and member of the Thrive Tube Weaning Team. To follow up with last week’s topic on anxiety, Brianna and Heidi are discussing how to move forward when there is an actual problem or crisis during a tube wean. Anxiety and the feeling of a crisis are common during tube weaning in all families with children of all ages. Although the problem may be different for each family, there are common strategies that we find very important. Brianna and Heidi will discuss why addressing your mindset is so important and how our therapists can help parents through that while weaning. There are many things to consider when working with families, but the 3 most important things are: building a team, focusing on communication, and sticking to the facts. Throughout this episode, Brianna and Heidi will break down these three strategies and how they relate to tube weaning.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 30: Why Do We Worry About Worrying? Feb 12, 2020

On this week’s episode of the Tube to Table podcast, Heidi is joined by Jamie, a feeding therapist and full-time member of the Thrive Tube Weaning Team. This week is Tube Feeding Awareness Week and we are so happy that this podcast has been able to reach families who have a child on a feeding tube, who are ready to wean, or who recently received a feeding tube. This week’s topic is all about worrying. Why do we as therapists need to worry about worrying? This topic will be helpful for all families who have or who have had a child with a feeding tube. Most parents would do just about anything for their children, and one of those things means trying to anticipate future problems to avoid any bumps in the road. While this can be helpful, there is a sneaky downside to this that is very subtle. Worrying and anxious thoughts can directly relate to mealtimes, feedings, and your child’s weaning journey. In this episode, Jamie and Heidi will talk about what this worrying looks like, what do we do when we encounter it, and what the plan should be to jump off the cycle.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 29: How to Measure Success Feb 05, 2020

Welcome back for another episode of Tube to Table! This week we are talking about how to measure progress while weaning your child from their feeding tube. We have been hearing from various families that we work with that there is confusion over how progress is measured. This is also a common conversation we find ourselves having with healthcare teams when discussing a child’s progression throughout a tube wean. Last week, we talked about how to initiate the conversation with your medical team and the importance of providing them resources on tube weaning. This week, we are focusing on how to shift the focus from a “number” to the whole child when looking at measures of success. There is confusion when people look at factors that we consider parameters or boundaries, as the way to measure progress. This week’s episode will identify the four measures of progress that we focus on at Thrive and why they are important. Heidi and Jennifer will break down each factor to discuss what to look for and how to identify these measures of success.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 28: Doctor Dilemma Jan 29, 2020

On this week’s episode of the Tube to Table podcast, we are talking about the difficulties families face while communicating with their medical team during their tube weaning journey. Jennifer and Heidi sat down with Dr. Katja Rowell, the co-author of Helping Your Child with Extreme Picky Eating as well as a wonderful responsive feeding resource. Katja shares her experience working in a family practice and how she became so interested in the development of feeding as well as the importance of a positive feeding relationship for children. Dr. Rowell dives into what her role is now, how she is continuing to help families, and the importance of working with your medical team. They will discuss how to measure “success” while looking at the whole child and the importance of advocating for your child at the doctor’s office. She will share evidence-based information on where the focus should be when bringing your child to the doctor, as well as what questions to ask to effectively communicate with your team.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 27: Blenderized Diets Jan 22, 2020

On this week’s episode of Tube to Table, we are talking about blenderized diets and how they help children who are on feeding tubes as well as those who are in the weaning process. To discuss this topic in detail, we sat down with Julie Bombacino, the founder of Real Food Blends (https://www.realfoodblends.com/). Julie is telling her story of how she started the Real Food Blends company and her child’s tube feeding journey. Transitioning to a blenderized diet can be very scary for families, especially if they don’t know where to find the resources that will help educate them on this change. Julie discusses how her family transitioned to a blenderized diet, what benefits they immediately saw, and how they started the conversation with their medical team about this transition. Julie and Jennifer will also talk about how Real Food Blends started and what the research shows about the benefits of blenderized diets for the tube-fed population. They will talk about the importance of looking at the whole-child when making a transition to blenderized diets and how that helps the child’s overall health.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 26: A Parent's Perspective: Benji's Story Jan 15, 2020

We are so excited for this week’s episode, which marks the start of our series “A Parent’s Perspective”. The Tube to Table podcast will be featuring parents and families who have gone through our Tube Weaning program and can share their experience! In this week’s episode, our feeding therapist, Jamie Hinchey, is interviewing Benji’s parents, Cory and Ivy from New York City. Benji is also here so you may hear him chiming in! Benji’s family participated in our intensive tube weaning program at their home in New York in May 2018. Benji’s parents are sharing a little bit about his history and where their feeding tube journey started. We will talk about how the feeding tube helped Benji in the first few months, when they knew it was time to work towards weaning him off the tube, and how they chose the Thrive Tube Weaning program. Jamie will also talk with Benji’s parents about what was helpful during the intensive portion, a few keys to success for their personal journey, and how follow up was a big part of Benji’s journey. You’ll also hear a few exciting things about where Benji is today and what he loves to eat!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 25: Comfort vs. Compliance Jan 09, 2020

Happy New Year! We are so happy to be back in 2020 with new episodes and exciting guests! In this week’s episode, your hosts Jennifer and Heidi, will discuss the difference between when children find comfort in eating vs. eating for compliance. It can be very difficult for families to identify if the success they are seeing is due to compliance. Your hosts break down the evidence behind the reasons why children eat and what strategies help build long-term success. Many families share that it can be easy to fall into compliance “mode” while feeding their child and the focus can easily be on “getting” them to eat rather than giving them space. In past episodes, we have talked about responsive feeding and what that looks like, but we rarely discuss what the other side looks like. How do you know if a child is eating for compliance? What cues should you look for? Your hosts will break down the different cues you may see, and some strategies to try instead to help your child build comfort around food. This episode will also cover what progress looks like, how to reframe the word progress for families, and how to transition from a compliant environment to a comfortable environment.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 24: How We See Ourselves Dec 19, 2019

It’s the holiday season, which means a lot of talk about food! This can lead to more “food noise” around parents and their children. In this week’s episode, we are discussing our own food noise as parents and how our self-body image can directly impact our tube-fed kids. In today’s society, adults are often having conversations about the way we see ourselves, our bodies, and how we relate to food. What a lot of adults don’t realize, is that these conversations are typically overheard by our most vulnerable children and eaters. When there is negative talk that is “diet-focused” or culturally-focused rather than talk around self-regulation or pleasure, children can get very confused. This relates to all children, but specifically those who are tube-fed or who already have a complicated relationship with eating. At first, this may not seem like a big deal, but it has a subtle impact on how children learn to listen to their own body. Children who are tube fed are already trying to figure out their relationship with food and how to food can be trusted. Jennifer and Heidi are going to sort through the common pitfalls that we see in both parents and society related to negative food noise. They will also discuss strategies that you can do instead during this holiday season!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 23: The Scoop on Poop Dec 12, 2019

That’s right, we are talking about all things poop in this week’s episode. This includes constipation, poop patterns while weaning, and everything else that comes into play when weaning your child off their feeding tube. This is an important topic to discuss because it can be a large factor during a wean if a child is feeling off. Heidi and Jennifer dive right into the poop talk and discuss what to consider so that your child is feeling good throughout their weaning journey and can continue to move forward. While participating in any weaning program, it is likely that when reducing tube delivered nutrition and hydration, your child may be at risk for constipation. This episode will break down how to have that conversation with your doctor prior to starting your wean. Throughout the Thrive Tube Weaning Program, we always work with your child’s physician during our evaluation, intensive treatment, and follow up. Your hosts will talk about why it is so important to work with your medical team, how to start this conversation, and tips for being prepared prior to starting your wean!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 22: All The Feelings Dec 05, 2019

It’s the start to the holiday season and although that brings joy, it also brings many other feelings! The holidays are a time that can bring back ALL of the feelings, good and bad. This topic can be a difficult one for many families since it involves digging deep into your emotions throughout all the phases of the tube weaning journey. This is such an important topic to discuss because often the experience of having a child who is tube-fed or weaning from a feeding tube can feel very isolating without the right support. In this week’s episode, Jennifer and Heidi will talk through what these feelings can look like, how to become aware of those feelings, and a few strategies to help manage those feelings. In future episodes, we will feature special guests who will focus more on specific strategies for coping through a stressful event. This episode breaks down the two important steps involved with feelings while weaning your child from the feeding tube. This involves first identifying the emotions and patterns involved with it, then creating a plan to move forward.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 21: Winning the War Against Insurance Nov 26, 2019

This week’s episode discusses a topic that can cause stress and anxiety for many families. The insurance battle. Where do you start? How do you start? What information do you need? Jennifer and Heidi will walk you through the important steps for starting the conversation with your insurance provider. Deciding to start a tube weaning program is a significant and life-changing event, but unfortunately many families run up against walls that cause them to stumble and give up while fighting for insurance coverage. Parents report that this battle is frustrating, time consuming, and extremely difficult to navigate. At the Thrive by Spectrum Pediatrics Tube Weaning program, there has been an evolution over the last 3 years where more families are able to get insurance companies to pay large portions of the program, if not all of the intensive wean. This is not an easy process though, and at Thrive, we are here to help you through it. In today’s episode, Heidi and Jennifer will break down each step of the process and what you will need to help build your case against insurance.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 20: Getting Real About Reflux Nov 19, 2019

In this week’s episode, we are getting REAL about reflux. Why are we talking about reflux? It affects so many children throughout their feeding tube journey, whether they had reflux before the tube or after tube placement. It also impacts the decision for the timing of a wean, the process of weaning, and the transition to oral eating. Jennifer and Heidi are discussing what is known about reflux, what medical providers use to help diagnose and treat reflux, and how reflux is related to the tube weaning journey. Every child is so different and there is no medical guideline for reflux that would be the same for every child. Throughout our tube weaning program, we see many children who have all been diagnosed with reflux at some point in their life. It can be scary to start this conversation with your doctor, but Heidi and Jennifer will walk you through helpful tips to bring this conversation up with your team. There may be times throughout your child’s journey where you feel that your gut is telling you something doesn’t feel right. If that’s the case, start the conversation! This week’s episode breaks down different reasons for reflux, data from our tube weaning program at Thrive by Spectrum Pediatrics, and helpful tips to starting a conversation with your medical team.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 19: Just Weight Nov 07, 2019

This week’s episode is talking about weight. Why is it such a stressful topic? How can you handle conversations about weight? What else should we be looking at? Throughout our tube weaning process, we receive so many questions about the role that weight plays in child receiving a tube, preparing to wean, or while weaning. Weight is a topic that causes stress for families of children with feeding tubes, children with general feeding difficulties, or children who have had a complicated medical history. In this week’s episode, Heidi and Jennifer are unraveling what we know about weight and its importance on feeding and growth from the medical literature, as well as from their clinical experience. This episode discusses how weight becomes the main focus when looking at a child’s wellness and what other wellness parameters are being looked over. Heidi and Jennifer also dive into growth charts and what they really mean, how to start conversations with your medical team about your child’s weight, and the importance of starting this conversation during your feeding journey.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 18: Celebrations!! Oct 31, 2019

Happy Halloween! It’s time for a celebration!! Halloween, Thanksgiving, Christmas, or even a birthday party. These are all exciting celebrations in families that are a time to be together as a family and enjoy each other’s company. For tube-fed children, it can be hard to remember that these days are special and are about so much more than just the food. These are days where you can celebrate your child! Even if your child might not be able to enjoy certain foods, or if food is a challenge, it doesn’t mean the fun is gone. Your hosts discuss the importance of celebrating birthdays as so much more than a “cake smash” party. Jennifer and Heidi break down WHY the holidays or birthday parties are so important to celebrate with tube-fed kids and some strategies for how to do this. This can seem like an overwhelming task for many families who feel discouraged in their journey, but we are here to tell you that it’s time to stop comparing yourself to other families, take control of the mindset, and find other ways to enjoy these special days with your child! They will also discuss a few tips and tricks for Halloween and how to build responsive feeding strategies into this fun celebration!

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 17: Out of Order: When is oral motor therapy appropriate? Oct 24, 2019

When you hear the words “oral motor therapy” what comes to mind? Has this been a recommendation for your child? When is it appropriate? This week’s episode of the Tube to Table podcast will answer all these questions and more. Your hosts, Jennifer and Heidi, will break down what oral motor therapy really is, when it is appropriate, and when it doesn’t make sense. For some children, strengthening and range of motion exercises may be necessary and helpful, but for many others, this type of therapy happens at the wrong time and in the wrong context. Heidi and Jennifer discuss the foundations that need to be built and focused on within a responsive way, prior to working on oral motor skills. It is so important to take a step back and look at your child’s relationship with food, their motivation for the skills they are learning, and the context where they are learning those skills. This episode will also look briefly at the Thrive by Spectrum Pediatrics Tube Weaning program’s outcome data for how oral motor skills develop throughout our program.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 16: Nibbles and Bits Oct 17, 2019

Picture this: You’re starting a tube wean and you’re at the grocery store...what do you buy? On this week’s episode of the Tube to Table Podcast, Heidi and Jennifer are discussing a topic that is on every parent’s mind when starting to wean their child from the feeding tube. Making food choices while weaning can be very overwhelming for families. Parents are always asking for that “magic food” and although we wish we had that, it doesn’t exist. There is no one food that will help your child eat, but there are factors to consider when choosing certain foods. Helping parents with food choices during a wean can help eliminate some of the focus on the volume of food. It can feel complicated feeding a child who eats very little or who has never eaten before. We’re here to help! There are a few important factors to consider when shopping for food choices. These include ability for independence, consistency with food, texture/taste, and familiarity within the family. Heidi and Jennifer will also talk through some factors that should NOT be considered. You’ll hear a few of their favorite tips and tricks when they are helping families choose foods during a wean.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 15: Tools of the Trade Oct 10, 2019

We’re back for Season 2! Thank you so much for listening to Season 1 of the Tube To Table Podcast, we are so excited for you to hear our upcoming season! Your hosts, Jennifer and Heidi, are back and ready for a great season! This week, Jennifer and Heidi are discussing the tools and tricks of the trade. What does that mean exactly? They are answering all your common questions including, “What cup should I use?”, “When should I introduce spoons?”, and “Is there a magic food?!” When starting treatment or preparing for an intensive tube wean, parents often ask these questions in order to feel prepared for getting started. While these are all great questions, it is hard to pick just one tool or utensil, so this week your hosts will discuss the spoons, cups, forks, and other utensils that might be helpful for your little one! There are three specific factors to consider when choosing these tools: familiarity, novelty, and control. Since the tool you choose will depend on your child specifically, this week’s podcast will discuss guidelines for where to look and how to choose.

Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook! Please feel free to message us for our shownotes as well and we can email them to you!

Episode 14: Getting Unstuck Jul 29, 2019

In this week’s episode, Jennifer and Heidi are discussing the common traps in tube weaning and how people can easily get stuck on their journey from feeding tube to family table. As discussed in previous episodes, Jennifer and Heidi will use the pyramid infographic as a reference for building the foundations to become an oral eater. When time is spent in the foundational aspect of the tube weaning process, the final stages feel easier and have a better flow. This episode will work through each foundational step of the pyramid and at each stage, discuss what the common breakdowns are and where parents feel stuck. One of the most common breakdown happens when families try to do things out of order and skip over the foundational pieces. Often families may feel like they are ready or want to rush the process and what people don’t realize is that by “skipping” steps you are adding pressure and not allowing your child the time to build trust and understanding with food. Jennifer and Heidi walk through the 6 phases of the tube weaning process: First, Do No Harm, Rest and Play, Creating Responsive Mealtimes, Discover Internal Drives to Eat, Supporting Skill Development, and Thrive.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 13: Structure Without Stress Jul 23, 2019

In this week’s episode, Jennifer is joined by Brianna Brown, a speech therapist and member of the Thrive Tube Weaning Team. Brianna works in the Spectrum Pediatrics clinic in Alexandria, VA, working in Early Intervention, as well as working with families in our tube weaning program. Brianna and Jennifer will dive into the topic of structure around mealtimes, and how you can use structure without added stress. They will discuss how to help kids that need more structure or support through the tube weaning process in a way that doesn’t interfere with responsive feeding. The internal drives for eating have been discussed in previous episodes, but what should you do when a child has a hard time being able to tune in to these abstract feelings? Structure can look different for every child, but it is important to continue to use a child-directed, responsive feeding approach when building in these strategies to your child’s mealtimes. Jennifer and Brianna will discuss all the different options for building in structure, including visual schedules, first/then boards, choices, and social stories. This episode will review all of these strategies in more detail and discuss how to implement these strategies in a way that will allow your child to feel safe and build a positive relationship with food.

Check out this episode’s show note page (www.thrivewithspectrum.com) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 12: Tricks and Treats Jul 15, 2019

On this week’s episode of Tube to Table, Jennifer and Heidi discuss how tricks and treats are used to encourage children to eat or make progress in therapy and why this is detrimental to their relationship with food. This can happen at a family mealtime as well as during structured feeding therapy. Throughout this episode, Jennifer and Heidi will talk through both situations and the length people and therapists will go to “get” their child to eat with tricks or how they use treats to encourage eating. “What does this therapy look like?” “How do I know if I’m “tricking” my child?” This episode will guide you through what behavioral therapy looks like, why it can erode your child’s relationship with food, and what you can do instead. There are basic fundamental reasons why behavioral strategies should not be used to help a child eat, especially those who are tube-fed. Heidi and Jennifer review how tube-fed kids are most susceptible to this therapy, and how they both came to the realization that every child should engage in responsive feeding, tube-fed or not.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 11: The Tortoise and the Hare Jun 24, 2019

How fast should tube weaning really be? Is there a right speed? At Thrive, we hear from parents starting their journey, in the middle of weaning, or during follow up wondering about how fast to push their kid or how slow to go. Tube weaning often gets broken down into two simplified categories: Rapid weaning and the “wait and see” method. At Thrive, we are typically put into the rapid weaning category, but in this week’s episode, Jennifer and Heidi discuss how our therapists make clinical decisions while weaning.There is not one “fast” or “slow” lane, as it is extremely important to respond to the child and every child is different throughout their weaning journey. This episode reviews why it is crucial to acknowledge that children develop at different rates, learn skills at different times, and for some children weaning can happen fast, while others need to slow down. Jennifer and Heidi will review why sometimes a child may need to slow down or take a break while weaning, and while other times it is important to move faster. At Thrive, our philosophy is unique and we respond to each child individually by learning their cues and encouraging parents to do the same.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 10: Safety First Jun 11, 2019

This week’s episode is all about the safety parameters put in place during your child’s tube weaning journey and how we work together with your child’s medical team to establish boundaries to make sure your child is safe. In preparation for an intensive tube wean, the Thrive team collaborates with your child’s existing medical team to make sure there is a discussion tailored to each child’s needs to ensure safety during this time. As discussed in previous episodes, it is crucial to educate your child’s medical team with information on how children learn to eat, but then it is also necessary to get their feedback about what parameters a child needs in order to stay safe during a wean. Heidi and Jennifer talk more about what this dialogue looks like with your child’s medical team, and what categories we specifically focus on when establishing medical readiness and building safety parameters for your child. This dialogue starts as early as the evaluation and continues throughout intensive treatment and into follow-up. Jennifer and Heidi will also discuss more specific parameters, why it is important to have a physician on board, and how to help identify the parameters with your child’s medical team.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 9: Learning to Swim Jun 04, 2019

Teaching a child how to eat when they aren’t experiencing hunger is like teaching that child to swim in a pool without water. What does this mean? In this week’s episode, Jennifer and Heidi are breaking down this analogy that we use in tube weaning to explain the importance behind the need for a context when learning to eat. We often hear that a child is not eating yet, and therefore not ready to learn how to eat because they don’t know how. This is a confusing topic for families to work through as they are thinking about starting their tube weaning journey. Imagine learning to swim, if you are standing on the dock and flapping your hands, you are not really swimming. If a child is sitting in a highchair with an empty spoon, they are not really learning to eat. As we have discussed in past episodes, hunger is NOT the magic bullet, but it is WHERE the learning needs to take place. Like the water in the pool, children must have the internal drive and reason in order to learn a new skill. Heidi and Jennifer will discuss two common misconceptions we hear about learning to eat, the difference between learning and relearning a skill, and why the context where you are learning a skill is crucial for development.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 8: Every Moment Matters May 27, 2019

Is there a moment in time that stands out for you during your tube weaning journey? This week’s Tube to Table episode focuses on the moments that matter! Whether you are working on building the foundations for eating, just starting your tube weaning journey, or already have an eater, there are moments that MEAN something! This episode focuses on all the moments that stand out for both therapists and families during their tube weaning journey. This week’s guest, Jamie Hinchey, is a feeding therapist and a full-time member of the Thrive Tube Weaning Program. Jamie and Heidi will discuss their own experiences early in their career that led them to the Thrive Tube Weaning Program. They will also talk through the lessons they’ve learned while working with families during this time, as well as some of the most exciting moments they have experienced during the weaning process. This week’s episode also features reflections from parents who have gone through the tube weaning journey with Thrive. We will talk through their responses to questions about their most difficult times, lessons they have learned, and the moment when they knew their child was an eater!

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 7: Better Together May 20, 2019

What should a family mealtime look like? How can I create happy and healthy mealtimes for my child? This week’s episode of Tube to Table discusses the principals behind building a positive and happy mealtime environment for your child. These mealtime foundations are relevant for children with a feeding tube, children with a feeding aversion, or families who are looking to improve their family mealtimes. Responsive mealtimes are mealtimes that encourage togetherness between family members, facilitate self-regulation, and are known to set the stage for a life-long healthy relationship with food. The family table is an important place to pay attention to and make improvements because it has been shown that what happens at the table sets the stage for eating habits later in life. Jennifer and Heidi break down the 6 most important foundations to think about when creating a responsive mealtime environment for your family. They will also discuss various strategies to help you during mealtimes, as well as helpful resources to help families of children with all ages!

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 6: First Things First May 15, 2019

In past episodes, we have talked about some of the foundations to our program, including hunger, signs of readiness, and what you can do while you wait to wean. This week’s episode focuses on the specific progression from feeding tube dependency to eating orally. Heidi and Jennifer will walk you through the five crucial steps that the Thrive by Spectrum Pediatrics Tube Weaning Program focuses on while working with families who are ready to start their journey to being tube-free. The five steps are: Do no Harm, Build Trust, Create Responsive Mealtimes, Discover the Internal Drive to Eat, and lastly, watch your child THRIVE and GROW. They will dive into each step specifically and discuss why it is important in your child’s tube weaning journey and what you can do to help your child no matter what stage they might be in right now. As children work their way through each step, you are helping them build a positive and strong foundation for a lifetime of happy and healthy eating.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 5: Ready or Not May 06, 2019

Wondering if your child is ready to wean from their feeding tube? How do you know? In this week’s episode of Tube To Table, we are discussing feeding tube readiness and what makes a child ready to transition from feeding tube to oral eating. There are many important factors to look at when making this important decision. Heidi and Jennifer talk through the series of readiness criteria that the Thrive Tube Weaning Program looks at. At Thrive, we focus on medical readiness including weight gain and growth, safety readiness, developmental readiness, and family readiness. Jennifer and Heidi will discuss each of these criteria in more depth and review why it is so important to assess all these areas prior to moving forward. They also dive into a discussion about why waiting is NOT always the right thing to do and why although feeding tubes save lives, when they are no longer needed it is crucial to identify the criteria for readiness and move forward.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 4: The Eating Instinct with Virginia Sole-Smith Apr 29, 2019

In this week’s episode of the Tube To Table Podcast, Jennifer and Heidi sit down with Virginia Sole-Smith to discuss her child’s journey from feeding tube to family table. Virginia is a writer, contributing editor to Parents Magazine, and the author of The Eating Instinct: Food Culture, Body Image, and Guilt in America. Virginia is also the cohost of one of our favorite podcasts, The Comfort Food Podcast, and most importantly, a mom! Virginia has known both Jennifer and Heidi since her own feeding tube weaning experience with her daughter, Violet. In this episode, you will hear Virginia’s story about her daughter’s scary medical experience, why she needed a feeding tube, and how she worked with various professionals to eventually wean Violet off her feeding tube. We will talk through the things Virginia wish she knew, how her medical team played a role, and how a responsive feeding therapy approach eventually helped get her daughter off her feeding tube and become a happy and healthy eater!

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithsp on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 3: Hungry For More! Apr 22, 2019

In this week’s episode of Tube To Table, Jennifer and Heidi are giving our listeners a brief history of how the Thrive by Spectrum Pediatrics Tube Weaning Program started. They will discuss what brought them together as therapists and how their interest in feeding therapy and tube weaning first started. Jennifer shares how she found herself looking for more after working as an occupational therapist in feeding therapy for multiple years. For so long, therapy focused on skills including behavior, sensory, and oral motor, but a common observation was that the children she saw didn’t ever seem to enjoy food or mealtimes. After looking at the research behind what motivates children to eat, Jennifer worked to build a program that included hunger as well as responsive feeding techniques. This week’s episode breaks down why these two elements are crucial for building the foundation for a child’s healthy relationship with food while tube weaning.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithsp on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 2: What To Do While You Wait Apr 15, 2019

What can you do while you’re getting ready to wean?

Last week, we talked about what parents wish they knew when their child received their feeding tube. This week’s episode focuses on what you can do to help your child become a happy and healthy eater while they are still tube-dependent. We will talk through practical tips for parents to set their tube fed kids up for success for when the time comes to wean from the feeding tube. Jennifer and Heidi discuss the importance of building a foundation for your child while they are tube-dependent to establish a positive relationship with food. Think about all the strategies, therapies, or changes that are happening during this time: are they hurting or helping your child’s relationship with food? This episode discusses why it is crucial to work through these steps prior to weaning. This includes building in rest, play, and taking a step back from anything that could be harming your child’s initiation and interest in food. Jennifer and Heidi will also provide our listeners with helpful strategies and tips you can implement immediately at home to help your child prepare for when it is time to wean.

Check out this episode’s show note page (www.thrivewithspectrum.com/blogs) for links to the resources we mentioned and more information on what we discussed in today’s episode! Don’t forget to follow us on social media for more helpful information @Thrivewithsp on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Episode 1: What I Wish They Had Told Me! Apr 01, 2019

Welcome to Tube To Table: The podcast about helping tube fed kids become happy and healthy eaters. In episode 1, you’ll get to know your hosts, Jennifer Berry, occupational therapist and founder of the Thrive by Spectrum Pediatrics Tube Weaning Program and Heidi Moreland, speech-language pathologist and clinical coordinator of the Thrive Tube Weaning Program. In preparation for this episode, we spoke to multiple families of children we have helped wean from their feeding tube and asked them what they wish they had known prior to their child getting a feeding tube. In this episode, we specifically focus on children who have the goal of transitioning to oral eating and what parents wish they had known to help their child become a happy and healthy eater. We break down different feeding therapy approaches, importance of responsive feeding, and how self-regulation plays a role in all of this. We will also talk about the role your child’s medical team should play and how they can support you during this transition. Heidi and Jennifer discuss strategies that you can do now, while your child is fully tube-fed, to eventually help with the transition to weaning.
Check out this episode’s show notes page (www.thrivewithspectrum.com/blog) for more resources and more information on what we discussed today!
Don’t forget to follow us on social media for more helpful information @Thrivewithspectrum on Instagram, @Thrivewithsp on Twitter, and @Thrivewithspectrum on Facebook!

Our TOPPODCAST Picks

Follow Us

Stay Connected

Related Podcasts

Links

Stay Connected