The Lucky Few

Latest Episodes:

86. Palliative Care & Parenting Our Heroes w/Jen Bartz Sep 22, 2020

Show notes

Not only is Jen Bartz a mother to three, she is a narrative shifter in the healthcare community, especially when it comes to palliative care for our medically-complex kiddos. After her son James passed away, Jen and her husband were inspired to create Hero’s Path Palliative Care. Hero’s Path is a non-profit organization that exists to “empower children with serious illness to live fully by providing outstanding, customized palliative care.” Jen’s heart for children receiving palliative care is powerful. That’s why we’re so thankful she’s here to share how we can support and advocate for these families!

Learn more about Hero’s Path Palliative Care!

Website
Instagram
Facebook
Youtube
Reach out to Jen Bartz at jenb@herospathpalliativecare.org

Head to getpalliativecare.org to support individual families with children receiving palliative care.

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

85. Is Inclusion Always The Best Option? Sep 15, 2020

Show notes

When Micha and her family moved across the country this summer, she realized it might be time to shift her son’s classroom setting as well. In this week’s episode, Micha’s discussing her decision to place Ace in a more restrictive classroom environment and we’re answering lots of hard questions about school for our kiddos with Down Syndrome.. Is inclusion really always the best option? What if you don’t have the access or opportunity to pursue inclusion? Are you no longer an advocate if you choose a non-inclusive setting for your child?

So friends, join us for a conversation about social justice, school, and Micha’s thoughts on Ace’s classroom setting. Enjoy!

SHOW NOTES

Read “The Myth of The American Dream”

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

84. Michelle Sie Whitten on Creating the Global DS Foundation, Media Representation, + More Sep 08, 2020

Show notes

After giving birth to her daughter with Down Syndrome, Michelle Sie Whitten noticed a gap in medical research and quality healthcare for people with DS. And from that moment on, she sought to fill that gap by co-founding the Global Down Syndrome Foundation -- the leading organization dedicated to research, medical care, education, and advocacy for people rockin’ an extra chromosome! We’re so grateful to have her on the podcast for a conversation about the beginning of Global, the “Be Beautiful Be Yourself” fashion show, DS in the media, and so much more! Be sure to check out all things Global Down Syndrome by visiting globaldownsyndrome.org or emailing info@globaldownsyndrome.org with your medical/research questions.

Connect with the Global Down Syndrome Foundation

Email info@globaldownsyndrome.org with your medical / research questions!

Learn more about Michelle Sie Whitten here.

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

SPONSOR: JONAS PAUL EYEWEAR

Jonas Paul Eyewear makes stylish glasses for kids and teens! We’re sure you’ll love them just as much as our families do! The frames even perfectly fit our kiddos with Down Syndrome thanks to their unique adjustable tips. Head on over to jonaspauleyewear.com and use code THELUCKYFEW15 for 15% off your order!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

83. So Everything's Going Wrong, Now What? Sep 01, 2020

Show notes

This week we’re sharing a special recording we did at a recent event with the We Are Brave Together community, hosted by Jessica Patay. We Are Brave Together is “passionate about supporting, serving, and inspiring Special Needs Moms.” Most importantly, they want you to know that you are not alone, friends! That’s why today we’re sharing our “everything’s going wrong” moments and how we reacted to them.. gardening, grieving, and sometimes giving up. The stress of this year has left us feeling so much weight on our shoulders — let’s help each other carry it.

Connect with the We Are Brave Together community!

Check out the poem we reference by Morgan Harper Nichols on Instagram.

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

SPONSOR: JONAS PAUL EYEWEAR

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

82. All things Speech & Feeding w/Shandy Laskey (CCC-SLP) Aug 25, 2020

Show notes

If you’re anything like us, you may have wondered (AKA worried) about your child’s speech! How much therapy do they need? What can we do at home? The questions never end! That’s why today we have Shandy Laskey (speech language pathologist, functional nutritionist, and feeding specialist) on to chat about all the things our kiddos need before even thinking about speech therapy... What on earth is the gut-brain connection and why do we actually go gluten/dairy free? Shandy is here with all this information as well as plenty of recommendations! Take notes, friends!

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SHOW NOTES

Learn more about Shandy and her distance coaching services on speakingofhealthandwellness.com

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

SPONSOR: JONAS PAUL EYEWEAR

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

81. Pregnant In A Pandemic w/Abby Green Aug 18, 2020

Show notes

What do you do when your pregnancy isn’t what you thought it would be.. when Covid-19 and a shocking diagnosis leave you looking for answers? Well if you’re anything like Abby Green, you discover that what really matters is not the celebrations and expectations, it’s that you love your baby no matter what.

Today we have this pregnant lucky mama on to tell us all about her pregnancy in a pandemic, receiving a Down Syndrome diagnosis alone, and joining #TheLuckyFew before even giving birth. We’re also touching on the shock and confusion that comes with a Down Syndrome diagnosis, who to tell and when to tell them, and how to navigate it all in the middle of Covid-19. Thinking of all you mamas who are pregnant during this wild year! We see you and we are cheering you on!

SHOW NOTES

Follow Abby on Instagram and check out the Herself podcast!

Read Micha’s article: ‘As Long as the Baby’s Healthy’… But What if He’s Not?

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

SPONSOR: JONAS PAUL EYEWEAR

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

80. Assuming Intelligence in Our Kids w/Down Syndrome, ft. Dr. Sarathy Aug 11, 2020

Show notes

“Who decides how smart you are?” Dr. Sarathy is back on the show to chat about this idea from her Tedx talk, as well as her son’s extraordinary educational journey that involves poetry, patterns, and more! We’re also discussing fearless learning, the teach don’t test method, and the unfortunate way that people measure intelligence by appearance. You don’t want to miss this one, friends!

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SHOW NOTES

Listen to Dr. Sarathy’s TedX Talk: “Who Decides How Smart You Are?”

Follow Dr. Sarathy on Instagram: @drvaishsarathy

Follow Sid on Instagram: @downlikesid

Listen to Dr. Sarathy’s podcast: Functional Nutrition and Learning for Kids

Check out Project Swasthya

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

SPONSOR: JONAS PAUL EYEWEAR

79. Understanding Functional Nutrition for Our Kids w/Down Syndrome, ft. Dr. Sarathy Aug 04, 2020

Show notes

When it comes to feeding our kids with Down Syndrome, we’re all just doing the best we can right? Some days our best is a PBJ and some days it's fresh baked gluten free bread! But everyday, we want to fuel them with food that helps them be their best!

That’s why we have Dr. Sarathy on this episode for a conversation all about functional nutrition. Not only does she have two masters degrees and her PHD, she’s a mother to a child with a dual diagnosis of Down Syndrome and Autism, as well as a fellow podcast host! So friends, join us for a chat about all things nutrition, whole foods, “picky eaters,” and the small changes that make a huge difference!

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Listen to Dr. Sarathy’s TedX Talk: “Who Decides How Smart You Are?”

Follow Dr. Sarathy on Instagram: @drvaishsarathy

Listen to Dr. Sarathy’s podcast: Functional Nutrition and Learning for Kids

Check out Project Swasthya

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

SPONSOR: JONAS PAUL EYEWEAR

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

78. Building Trust (not barriers) w/Your Child's IEP Team Jul 28, 2020

Show notes

Have you ever felt like you’re preparing for battle when you’re getting ready for an IEP meeting? You’ve gathered all your resources, you’ve been to all the conferences, and you’ve asked everyone you know for advice, but you’re still worried about being met with negativity and pushback. We’ve all been there. Let’s face it, the education system wasn’t made for our kiddos, and it takes a whole lot of advocacy (+ an amazing IEP team) to make school work for them. That’s why today we’re chatting about our tips for going into those (sometimes daunting) meetings.. what to say, what not to say, when to speak up, and when to remove someone from your IEP team. It’s not easy friends, but we are cheering for you!

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

77. Back to School or Back to the Screen? (Covid-19 & the Upcoming School Year ft. Dr. Spinazzi) Jul 21, 2020

Show notes

Anyone else feeling more uncertain about the upcoming school year than ever before? We know we are! That’s why we have Dr. Spinazzi back on the show for a special episode about her insights into Covid-19 and her thoughts on sending kids to school in the middle of this pandemic. Not only is she a physician and professor, Dr. Spinazzi is the medical director of Charlie’s Clinic, a Down Syndrome specific clinic in Oakland, CA. We are so grateful for her infinite wisdom and her heart for our kiddos. Join us for a chat about classroom safety, school precautions, the risks and benefits of distance learning, + so much more. And whatever the school year looks like for you and your family, we are cheering you on.

Learn more about Charlie’s Clinic, where Dr. Spinazzi works and follow them on Instagram @oaklanddownsyndromeclinic

Check out UCSF’s Youtube channel for weekly Covid-19 updates

Read a Q & A on Covid-19 and Down Syndrome by Down Syndrome Medical Interest Group, Global Down Syndrome Foundation, National Down Syndrome Congress, National Down Syndrome Society, National Task Group on Intellectual Disabilities, and Down Syndrome Foundation

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

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