The Lucky Few

Latest Episodes:

Throwback: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer) Jan 17, 2024

Show notes

Throwback Episode 232: Shifting the Narrative Through Unexpected News Curriculum for Providers (w/Carissa Carroll & Dr. Erin Plummer - Originally aired 11/9/23)

Friends, we’re excited to have Jack’s Basket founder Carissa Carroll back on the show! Today she’s joined by Dr. Erin Plummer to chat with us all about a new curriculum they are launching for medical providers. They’re providing practical online training for providers to review the literature and allow reflection on their own experiences of giving a diagnosis. What could they do better? What went well? What were they feeling? How might their patient have felt? Carissa shares her own experience with receiving her son’s Down syndrome diagnosis and her passion for changing a family’s diagnosis story from the very beginning. We’re so grateful for the work Carissa and Dr. Plummer are doing for our community and can’t wait to share this incredible project they’ve been working on that will make a positive impact for so many families!

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SHOW NOTES

Learn more about ⁠Jack’s Basket⁠

⁠Resources for Providers⁠

⁠Prenatal Consult Film⁠

⁠205. Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko⁠

Check out previous episodes with Carissa Carroll:

⁠44. Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

⁠180. "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ⁠Enable SNP ⁠or sponsoring this episode!

⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠

⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Throwback: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson) Jan 16, 2024

Show notes

Throwback Episode 234: Producing A Diverse, Authentic, & Honoring Netflix Series (w/ Down For Love Producer Robyn Paterson - Originally aired 11/21/23)

On episode 226 we shared our thoughts on the hit Netflix series Down For Love which follows several people with Down syndrome as they navigate “the triumphs and trials of dating.” If you listened to “Our Thoughts On The Netflix Series Down For Love,” then you know how much we loved this show and appreciated the conversations that it started. We’re so excited to keep the conversation going with the Producer of the show, Robyn Paterson! Robyn is a filmmaker and screen creative based in New Zealand committed to promoting diversity, respect, partnership, and equity both on and off the screen. Best known for Down for Love (Netflix), In the Zone (Apple TV), Grand Designs: New Zealand, and Finding Mercy (Prime Video), and the current President of the Directors and Editors Guild of Aotearoa New Zealand. Friends, we get a behind-the-scenes look at the process of approaching the storytelling of participants with Down syndrome and the intentional decisions that made the show so impactful. Robyn shares the challenges and impactful moments of filming Down For Love, along with the differences from other reality-type shows. We chat about the casting process to ensure diverse and authentic representation, and so much more! We promise there are no spoilers, just an incredible conversation about the responsibility to tell diverse, authentic, and honoring stories of people with disabilities.

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SHOW NOTES

⁠Watch Down For Love⁠

⁠Learn more about Robyn Paterson⁠

Learn more about the ⁠Directors and Editors Guild of Aotearoa New Zealand (DEGANZ)⁠.

Learn more about Robyn’s Production company, ⁠Sweet⁠.

Learn more about Paralympic Gold Medalist, ⁠Jai Waite⁠.

Learn more about ⁠Upside Downs⁠

⁠Check out our conversation about Down For Love on episode 226!⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, ⁠Enable SNP ⁠or sponsoring this episode!

⁠47. Planning for the Future w/Phillip Clark from Enable SNP⁠

⁠191. Future Planning for the WHOLE Family - ft. Phillip Clark, Enable SNP⁠

Thank you, ⁠ABLEnow⁠ for sponsoring this episode!

⁠115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Throwback: Our Thoughts On The Netflix Series “Down For Love” Jan 15, 2024

Show notes

Throwback Episode 226. Our Thoughts On The Netflix Series “Down For Love” (Originally aired on 9/26/23)

Have you heard about the Netflix series “Down For Love”?! We’ve been hearing about it from friends, family, and even one of our kid's healthcare providers, all with rave reviews. So we set aside some of the reality shows that we feel a bit guilty about admitting we’ve watched and enjoyed a wholesome reality dating show of people with Down syndrome on a quest for love. This show highlighted so many things for us to think about as parents. The conversations that we’ll need to have about boundaries and consent, what we’d want to see for our kids, and so much more. It of course brought up so many questions that we dive into like: Did the show represent all types of people with Down syndrome? Does the show honor people with Down syndrome? Is the title “Down For Love” problematic or just a fun pun? We’re diving deep into not only the show, but our thoughts (and some fears!) on our kiddos dating. This is an episode you don’t want to miss!

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SHOW NOTES

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSORS:

Thank you, ⁠Enable SNP ⁠for sponsoring this episode!

Thank you, ⁠Jack’s Basket⁠ for sponsoring this episode!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Throwback: Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate) Jan 12, 2024

Show notes

Throwback Episode 208. Growing Through Uncomfortable Conversations (w/Ashley - TLFP Producer & Self-Advocate - Originally aired 5/23/23)

Friends, we recognize and appreciate that so many of you come to us for our open, honest, and candid conversations week after week. After seeing the response Heather was receiving over on @theluckyfewoffical under a post that she wouldn’t be celebrating an abled person asking a disabled person to prom, we knew this topic deserved another conversation. We also knew the conversation deserved to include a person with disabilities. Our producer and self-advocate Ashley Fraccalossi joins us for this candid conversation on honoring people with disabilities and when that line can get blurred or crossed. She helps break down with us what inspiration p*rn means in the disabled community, unconscious bias, and how her own experiences with disability have shaped her views on this topic. We’re grateful to not only hear from her today, but to continue this important conversation with all of you. May we all continue to learn, listen, and grow from conversations like this together.

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SHOW NOTES

We first talked about this topic on EP 169 ⁠The Harm in Using People with Disabilities As "Inspiration" in Clickbait Viral Videos⁠

Learn more about ⁠unconscious bias⁠

Watch ⁠Stella Young’s Ted Talk⁠

Read Heather’s blog post, ⁠“Why Kindness and Good Intentions Are Not Enough”⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

Throwback: Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy) Jan 11, 2024

Show notes

Throwback Episode 229: Poet, Author, “Levitator Of Language”: Sid Ghosh (w/Mom Dr. Vaish Sarathy - Originally aired 10/17/23)

Happy Down Syndrome Awareness Month, friends!! We’re celebrating BIG this month with some incredible self-advocates chatting about everything from entrepreneurship to marriage! Today, we’re excited to have poet, author, and “levitator of language,” Sid Ghosh on the show! He describes himself as, “just your autistic boy next door with Down syndrome!” His Mom, Dr. Vaish Sarathy joins us as Sid’s communication partner and also shares their journey of using spelling to communicate with the world. This incredible sixteen-year-old is the author of two chapbooks: Give a Book and Proceedings of the Full Moon Rotary Club. It’s a unique opportunity and honor to feature a non-speaker on a podcast and for the first time in The Lucky Few Podcast history, we’re offering a ⁠VIDEO version⁠ of this episode! Friends, whatever version you choose, this is an episode you don’t want to miss!

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SHOW NOTES

Follow ⁠Sid on Instagram⁠

Follow ⁠Dr. Vaish Sarathy on Instagram⁠

Contact Dr. Vaish Sarathy: ⁠vaish@functionalnutritionforkids.com⁠

⁠Check out Jandy Nelson⁠

Purchase Sid’s Chapter Books:
⁠Proceedings of the Full Moon Rotary Club⁠
⁠Give a Book⁠
Learn more about ⁠Rapid Prompting Method (RPM)⁠
Learn more about ⁠The Spellers Method⁠
Learn more about ⁠Spelling To Communicate (S2C)⁠

Listen To Previous Episodes With Dr. Sarathy:

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ⁠ABLEnow⁠ for sponsoring this episode!

⁠115. How The ABLE Act Supports Your Child's Future (ft. Catherine Beck)⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

LET’S CHAT

Email ⁠hello@theluckyfewpodcast.com⁠ with your questions and Good News for future episodes.

Throwback: Guardianship, Conservatorship, & Supported Decision-Making Jan 10, 2024

Show notes

Throwback Episode 214. Guardianship, Conservatorship, & Supported Decision-Making (Originally aired on 7/4/23)

Friends, what better conversation to have on an episode released on a holiday that celebrates America than to talk about the differences between Guardianship, Conservatorship, and Supported Decision-making? We have attorney and Executive Director of Massachusetts Advocates for Children, Anna Krieger here to help explain the differences and similarities between these options. Anna is a nationally recognized expert on Supported Decision-Making and has trained, advocated, and written widely on the topic alongside decision-makers and their supporters. We’re also joined by self-advocate Craig Kinney and his mom Sandy, who have chosen Supported Decision-Making and are sharing their experience with us today! We hope this episode helps you think about what next steps you may consider when deciding what is best for your family.

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SHOW NOTES

⁠The Center for Public Representation⁠

⁠National Resource Center for Supported Decision Making⁠

⁠For more information on Conservatorship, Guardianship, & Supported Decision Making by State⁠

⁠Massachusetts Advocates for Children⁠

DISCOUNT CODE

Friends, grab your narrative shifting gear over on ⁠The Lucky Few Merch Shop⁠ and use code PODCAST for 10% off!

THANK YOU TO OUR SPONSOR:

Thank you, ⁠Jack’s Basket⁠ for sponsoring this episode!

⁠EP 44 Shifting the Diagnosis Narrative w/Carissa Carroll from Jack's Basket⁠

⁠EP 180 "You make me better" (An Interview with Carissa Carroll, Founder of Jack's Basket)⁠

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email ⁠hello@theluckyfewpodcast.com⁠ for more information!

LET’S CHAT

Email ⁠⁠hello@theluckyfewpodcast.com⁠⁠ with your questions and Good News for future episodes.

Throwback: Nurturing Meaningful Connections With Our Kids Jan 09, 2024

Show notes

Throwback Episode 205: Nurturing Meaningful Connections With Our Kids (Originally aired 5/9/23)

Happy Mother’s Day, friends!! On this week’s episode we’re celebrating with a candid conversation about connecting with your child with Down syndrome! We know how important making meaningful connections with our kids is, today we’re talking all about nurturing those connections. What we’re doing to develop the relationships with our kiddos, learning new ways to give and receive love, and so much more! And we might even have a surprise performance by none other than our very own Micha Boyett performing her original score of a still untitled Mother’s Day song. We hope all you lucky mama’s out there know we love you, and as always, we’re cheering you on!

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SHOWNOTES:

⁠75. What makes a family? (Adoption + Motherhood w/Kayla Craig) ⁠

⁠113. Happy Mother's Day! (Ft. Our Very Own Moms)⁠

⁠14. Marriage & Relationships: Parents Raising Children with Down Syndrome⁠

Friends, grab your narrative shifting gear over on ⁠⁠⁠⁠The Lucky Few Merch Shop⁠⁠⁠⁠ and use code PODCAST for 10% off!

LET’S CHAT:

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

Throwback: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko Jan 08, 2024

Show notes

Throwback Episode 205: Healthcare Equity in the Down Syndrome Community w/Dr. Spinazzi & Dr. Skotko (Originally aired 5/2/23)

Friends, we’re so excited to have the brilliant Dr. Brian Skotko and Dr. Noemi Spinazzi back on the show today! They’re here to tell us about a big research project they worked on involving patients with Down syndrome who identify as Black as well as parents of patients who primarily speak Spanish. This work included conducting surveys of parents and primary care physicians from across the country over the last two years. Its primary goal was to identify the barriers for families looking to access adequate care that shouldn’t only be found at specialty Down syndrome clinics in large cities. We chat about structural racism in medical care, striving for cultural humility, some of the surprises they found in their research, and so much more. They share some valuable resources for those without access to a Down syndrome clinic and how we can all strive to be champions for the Down syndrome community. Thank you to Dr. Skotko and Dr. Spinazzi for their continued work in making sure everyone in the Down syndrome community has access to quality health care.

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SHOWNOTES:

Learn more about ⁠Down Syndrome Clinic To You⁠

If you want to hear more from Dr. Skotko or Dr. Spinazzi, check out these episodes!

Friends, grab your narrative shifting gear over on ⁠⁠⁠The Lucky Few Merch Shop⁠⁠⁠ and use code PODCAST for 10% off!

LET’S CHAT:

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

HELP US SHIFT THE NARRATIVE: Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

240. Ready To Slay Another Year Jan 02, 2024

Show notes

Friends, we're kicking off the new year with a bang! In our exciting sixth-season premiere, join us as we dive into the festivities, reflections, and dreams that come with the arrival of 2024.

We're sharing our favorite traditions and bidding farewell to everything we left behind in 2023. Ever wondered about our New Year's Eve and New Year’s Day shenanigans? We spill the beans on the NYC ball drop, the bathroom dilemmas, and why we've never braved the waiting game for those glittering lights.

Join us as we delve into our goals for 2024, both for our families and The Lucky Few Podcast community. Advocacy, inclusion, friendship, hope – these are the themes we're exploring and continuing to champion. We share our dreams of making this community even bigger and better, and we express our gratitude for the best listeners on the planet.

But wait, there's more! We want to hear from you. What are your three words for 2024? Share your dreams, aspirations, and resolutions with us as we embark on another new year. Happy New Year, friends! Let's slay 2024!

SHOW NOTES

Check out Olive and June

Listen to our episode with Sid Ghosh:

229. Poet, Author, "Levitator of Language" Sid Gosh (w/Mom Dr. Vaish Sarathy)

Check out our New Year’s Episodes from previous seasons:

53. Our Goals for 2020!

98. Looking Back on 2020 & Moving Forward in 2021

145. Just the Three of Us.. on Grief, New Year's Resolutions, & What's to Come in 2022

193. Lets catch up!

DISCOUNT CODE

Friends, grab your narrative shifting gear over on The Lucky Few Merch Shop and use code PODCAST for 10% off!

HELP US SHIFT THE NARRATIVE

Interested in partnering with The Lucky Few Podcast as a sponsor? Email hello@theluckyfewpodcast.com for more information!

LET’S CHAT

Email hello@theluckyfewpodcast.com with your questions and Good News for future episodes.

239. 2023 In Review: Celebrating A Spectacular Season Dec 26, 2023

Show notes

And just like that, we’re wrapping up our 5th season! 2023, what a year! We’re coming close to ONE MILLION DOWNLOADS, we had listeners in 36 countries, and 64% of listeners discovered us this year! Welcome new and old friends, we’re glad each and every one of you is here, shouting worth and shifting narratives for people with Down syndrome! We’re so grateful we get to connect and have so many incredible guests and conversations on the show.

Today, we’re reflecting on the incredible conversations we’ve had this year. We're highlighting so many amazing topics and moments from your top listened, most shared, and our favorites! Cheers to a year of connections, good news, and joy that this community has brought us. Stay tuned we’ve got some epic plans for 2024!

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Top 5 Listened To Episodes of 2023:

199. What We Wish We Knew, Had, & Told Ourselves In The First Years…

194. Undoing Ableism & Telling True Stories with April Aguilera (writer of "For Paloma")

198. The Best We Can: An Unscripted Conversation on Inclusion In Our Schools

203. Beyond Checking A Box

217. The Things People Say

Most Shared Episode of 2023:

220. Back To School Jumpstart w/ Dr. Vaish Sarathy

Some of our favorites:

Self-Advocates Episodes:

Sofia Sanchez 201. Sofia Sanchez: Filming ‘The Hunger Games’, Her New Book, Self-Advocacy, & Middle School

Kayla McKeon, Matthew Schwab, & Charlotte Woodward in DC 204. Self-Advocates On Capitol Hill w/Kayla McKeon, Matthew Schwab, & Charlotte Woodward

Noah Matthews Matofsky 207. ‘Peter Pan & Wendy’ Star: Noah Matthews Matofsky

Madison Tevlin & Matthew Von Der Ahe210. Champions On & Off Screen: Madison Tevlin & Matthew Von Der Ahe

Craig Kinney (With Mom Sandy and attorney/Exec Director of Mass Advocates for Children Anna Kreiger) 214. Guardianship, Conservatorship, & Supportive Decision-Making