Stay ConnectedTake Heart is a podcast for special needs moms by special needs moms. It is a place for special needs moms to find authentic connection, fervent hope, and inspiring stories.
Contact us!
Amy J. Brown: amy@amyjbrown.com
Carrie M. Holt: carrie@carriemholt.com
Sara Clime: sara@saraclime.com
Copyright: © 2024 Take Heart
Join hosts Carrie, Sara, and Amy as we take a deep dive into the grief we face as mothers of children with disabilities. In this episode, we talk about how grief can feel like fear or anger, the need to be honest with ourselves, and the transformative nature of lament. This topic is something you may not know that you need until you allow yourself the space.
Eps. 165: May 7, 2024
Key Moments:
[4:23] Guilt says “I didn’t do enough.”
[7:29] My anger is actually grief
[11:04} Why doesn’t God stop the pain
[17:58] “Everything is not going to be ok, but we’re gonna get through it”
Resources:
Extraordinary Kids: Nurturing & Championing Your Child With Special Needs
How To Build A Thriving Marriage
Dark Clouds Deep Mercy
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We are excited to share Amy’s conversation with Michele Cushatt, an author, communicator, and 3-time cancer survivor. Michele's latest book, "A Faith That Will Not Fail," offers practices to strengthen faith during challenging circumstances. Amy and Michele talk about acknowledging and dealing with trauma honestly, offering hope. They also discuss the concept of lament and the practice of relinquishment.
Eps. 164 : April 16, 2024
Navigating Family Trauma: Finding Hope Amidst Hardship with Michele Cushatt
Summary:
Key Moments:
[9:20] Fear of letting go
[18:34] Struggle to be content, envy is natural
[23:08] Suffering reveals gifts
[35:12] Guide children loosely, but then let go
[41:20] Permission to grieve and trusting the process
Resources:
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Carrie, Amy, and Sara answer listener’s questions in this episode. Questions like, “How do you make good decisions regarding your child’s health?” and “What’s the appropriate amount of information you give when answering someone’s question about your child?” We have learned some real lessons over the years through trial and error and want to share with you some practical advice from our experiences.\
Eps. 163
Date: April 9, 2024
Key Moments:
[3:45] Choosing who you speak to about the hard things
[15:44] Advocating for privacy and understanding in healthcare
[21:54] Ask for more time to make decisions
[35:08] Life’s changes and feeling jealous of others
Resources:
A Blessing for the Gift of Doubt
Ep 143: God’s Faithfulness in the Midst of Daily Suffering
Sara’s Wedge Boots
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We are honored to welcome the inspiring Kelley Coleman to our podcast. Kelley shared her deeply personal journey as a parent of a child with multiple disabilities and how she ended up writing her book, "Everything No One Tells You About Parenting." Her authenticity and wisdom shine through in this interview. We discuss the lack of information parents are provided on diagnosis and how there’s not one specific place a parent can go to find the info and support they need. We talked about the crucial aspects of caregiving in navigating the healthcare system, accessing financial support, and our need for self-care that might be unconventional.
Ep. 162; March 19, 2024
Key Moments:
[7:03] Care plan for my dependent child brings victories
[15:52] State disability definitions and benefits
[26:12] Getting a second opinion is freeing
[39:57] Balancing rewards and guilt of parenting challenges
[44:05] Going home Googling things and crying
Resources:
https://www.kelleycoleman.com/
https://www.kelleycoleman.com/books
https://www.instagram.com/hellokelleycoleman/
https://www.facebook.com/kelley.coleman.56
https://emilypfreeman.com/next-right-thing-book/
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Find Sara at www.saraclime.com or on Instagram @saraclime
As caregivers, we are well acquainted with transitions, and very much so in regard to our children. In this collaborative, Amy, Sara, and Carrie discuss the difficulties of life transitions as parents. They talk about their personal experiences, including making medical decisions and educational changes. The challenges of balancing autonomy and outside influences, going against medical recommendations, and seeking guidance for decisions are all discussed. We hope this episode offers valuable insights and practical tips for you!
Key Moments:
[2:20] 4 different types of transitions
[7:59] Planned our son’s birth…but have learned our lesson
[11:25] We don’t use ‘never’ when it comes to health
[24:34] Comparing to others make transitions harder
[35:30] Balancing hope and grief
Resources:
https://onlinelibrary.wiley.com/doi/10.1002/ace.193
Hospital Stay Guide by Carrie M. Holt: Listen to Episode 140, “Hospital Stay Survival: Spiritually & Practically.” You can access the transcript with links to her guide HERE.
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Being a parent to a child with special needs comes with its own unique set of challenges, and being misunderstood is a chief issue. As Amy, Carrie, and Sara share their personal experiences and insights, they provide valuable guidance on responding with grace and resilience when faced with misunderstandings…even though they don’t do it perfectly every time. They discuss the balance of speaking the truth and advocating for their children without being intentionally hurtful to others and not feeling the need to explain everything, instead using their child's trauma as an explanation only when necessary. Join us for a funny and truthful episode about real life.
Ep. 160; February 27, 2024
Key Moments:
[1:35] One thing we want to set straight about a misunderstanding
[4:06] People ask the most inappropriate things, even those in medicine
[13:40] The tension of mishandling comments and drawing boundaries around ourselves
[21:00] Trying to understand others' intentions in church and beyond
[28:23] Why don’t more people understand trauma
Resources:
The Place We Find Ourselves Podcast
The Allender Center Podcast
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Summary: Sara opens up about the challenges of feeling misunderstood as a mom and caregiver to a son with disabilities. Her top 5 instances when she has felt misunderstood touch on assumptions about strength, the perpetual feeling of needing to do more, finding a balance between identity and the constant impact of the diagnosis, and more. We know you’ll feel seen by listening to Sara’s honesty. So, grab a cup of coffee and prepare to dive into the heartfelt truth in this episode.
Key Moments:
[1:54] “You’re so strong!” and “I couldn’t do what you are doing!”
[7:02] Believing in God but having fear
[8:05] We can be busy, never alone but not fulfilled
[10:22] Life outside of our child’s diagnosis
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As parents of special needs kids, we have felt the weight of being misunderstood. In this episode, Carrie shares her experience with people who have made assumptions about us or our children and how it affects us as parents. She explains three things she wishes people understood about her parenting journey and three ways to handle ourselves when we have been misunderstood. Experiencing this life can be lonely, and this episode will give you some practical ways to manage the complex feelings that come.
Ep.158: February 13, 2024
Key Moments:
[0:52} A hospital experience I’ll never forget
[5:08] Our grief is just as heavy as losing someone
[8:22] Is this assumption worth addressing?
[9:58] Assume the best intent, ask questions before assuming
[11:25] Our reaction may not be about the offender
Resources:
Scriptures mentioned: Exodus 14:14; Isaiah 53
No Other King
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Do you ever feel like people just don't get it? We've all had those experiences - whether it's strangers at the grocery store or even our closest friends not understanding our journey as special needs parents. Amy shares some practical things you can do to bridge the divide and navigate the challenges of being misunderstood. We don’t want to stay isolated because of other people’s lack of awareness. Amy encourages us to continue the quest for connection.
Key Moments:
[2:25] Comparing a difficult child to a dog?
[4:39] Shifting our perspective
[6:00] Let’s calm down, being a nonanxious person
[8:30] Give them a glimpse into your life
Resources:
A Curious Pursuit of Christ: Jamie Harper
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Carrie welcomes her longtime friend, Erika Weise, a mother navigating the complexities of caring for a son with a trach and ventilator. Erika shares her personal insights on acceptance of this new life vs. living in denial, finding meaning in adversity, and creating a support network for families facing similar challenges. This down-to-earth discussion will inspire you with their stories of friendship and the unwavering belief that, even in the face of adversity, everything will be okay.
Ep.156; January 30, 2024
Key Moments:
[3:17] Birth stories and diagnosis
[15:51] Dealing with doctor's negative perspective
[18:55] Parenting a 20-year-old vs. a child
[20:00] A friend who will walk with you
[22:50] Using this to help someone else
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