Stay ConnectedHow can people with Parkinson’s live a better life today? Join the Parkinson’s Foundation as we highlight the treatments and techniques that can help all people affected by Parkinson’s live a better life today, as well as the research that can bring a better tomorrow.
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Ser trabajadora social en una clínica significa ser parte del equipo médico y brindar atención a las personas que viven con Parkinson y a sus familias.
En este episodio, hablamos con Adriana González, trabajadora social en el Centro para el Parkinson y Otros Trastornos del Movimiento de la University of California, San Diego. Como trabajadora social, Adriana ayuda a las familias y a los cuidadores a identificar recursos comunitarios y los apoya cuando enfrentan situaciones difíciles.
La meta de Adriana es conocer a las familias desde el inicio de la enfermedad para hablar acerca de los diferentes periodos y crear un plan antes de llegar a un momento de crisis.
Para Adriana, lo más importante es concientizar a la comunidad de habla hispana acerca de la enfermedad de Parkinson para mejorar el manejo médico de esta enfermedad y apoyar a más familias y cuidadores que están tratando de ayudar a su ser querido con Parkinson.
Como noviembre es el Mes Nacional de Cuidadores Familiares, hablamos con Adriana acerca de la importancia del autocuidado: un plan que garantiza que los cuidadores o aliados de cuidado estén atentos a su propio bienestar.
¡Siga y califíquenos en su plataforma favorita de podcasts para recibir notificaciones cuando salga un nuevo episodio! Cuéntenos que otros temas le gustaría que cubriéramos visitando parkinson.org/podcastencuesta.
Caregiving can be an intensive endeavor, not to mention the physical, mental, emotional, and even financial aspects of it. Just as people with Parkinson's disease need support services, so, too, do their care partners. In this episode, Social Worker Cara Iyengar, MSW, LISW, the coordinator of the Parkinson's Foundation Center of Excellence at the University of Iowa in Iowa City, discusses some of the Foundation's resources that she shares with care partners, her three-pronged approach to supporting them, some of the challenges she faces in bringing support services to people in a rural state like Iowa, and the kind of feedback that she has received from care partners.
Join community members from across the country for this virtual experience that allows you to move for Parkinson's from wherever you are! This program will help you get motivated and kick off your 60 minute walk. Remember, you can walk, run, hike your favorite route, or simply just listen to the Moving Day at Home program! We encourage everyone to share photos of their experience by posting to your social media page with the hashtag #MovingDayatHome.
Join us for the entire program by accessing our Spotify playlist: https://open.spotify.com/playlist/0n6HRIvfZgoPjJfSoc57aW?si=d49f0a3fd6b54dbe\
Cuando uno piensa en la enfermedad de Parkinson (EP), es fácil asociarla más con los síntomas motores, como la rigidez o el temblor; pero también existen síntomas no motores, como los cambios de estado de ánimo, la ansiedad o la depresión.
En este episodio, hablamos con la doctora Elsa Baena, neuropsicóloga clínica en el Barrow Neurological Institute, Centro de Excelencia de la Parkinson's Foundation, acerca de estos cambios cognitivos asociados con el Parkinson.
La doctora Baena explica la conexión entre el Parkinson y la cognición y cómo pueden prepararse las personas con Parkinson para estos cambios (no sólo las maneras farmacológicas, sino también las terapéuticas).
Asimismo aprenderemos acerca de los miembros del equipo de atención médica que pueden apoyar a una persona con Parkinson y a sus familiares con estos cambios cognitivos.
¡Siga y califíquenos en su plataforma favorita de podcasts para recibir notificaciones cuando salga un nuevo episodio! Cuéntenos que otros temas le gustaría que cubriéramos visitando parkinson.org/podcastencuesta.
This episode explores parkinsonism, a group of conditions with symptoms similar to those of Parkinson's disease, itself a neurological degenerative brain disorder resulting from neurons in the brain failing to make enough dopamine. It is characterized by a loss of motor control, including stiffness, slow movements, resting tremors, and postural instability. Plus, non-motor symptoms of depression, loss of the sense of smell, gastric problems, mood and cognitive changes are common.
Parkinsonism is a general term for a group of neurological conditions involving movement problems similar to those seen in Parkinson's disease. A variety of underlying causes may lead to parkinsonism, including medications that affect dopamine levels in the brain or the action of dopamine in the brain. Examples are antipsychotic medications used in psychiatry, calcium channel blockers for blood pressure control, and stimulants like amphetamines and cocaine. Even though stopping the medications may result in them being cleared from the body in the near term, symptoms may persist for several months.
In this episode, Cheryl Waters, MD, Professor of Neurology at Columbia University in New York City, discusses medication-induced parkinsonism and what people with Parkinson's and doctors need to be aware of.
Past podcasts have given glimpses into the broad range of programs and initiatives that the Parkinson's Foundation has developed and supports. But to give a better understanding of the Foundation's mission, its operation, reach, and funding, we spoke with John Lehr, its president and CEO. He discussed the reasons for the merger of the National Parkinson Foundation and the Parkinson's Disease Foundation to form today's Parkinson's Foundation, what the new organization has accomplished, and its plans for the future.
Parkinson's disease (PD) can be an impediment to certain activities, but with proper planning, people can still pursue many of the things they have always enjoyed. One of those things is travel – to see family, visit friends, or explore new sights and cultures. One key to enjoying travel is planning. Pay special attention to issues that are known to affect how you feel and function.
Packing extra medications when traveling has always been a good idea, but with today's unpredictability of flight schedule changes and cancellations, as well as the possibility of contracting COVID, it makes sense to carry even more than a few days' supply of extra medication. Anticipate managing any shifts in medication timing if you are visiting a different time zone, interruptions to your exercise and sleep routines, in addition to unforeseeable events and changes.
In this episode, we hear from two people with valuable advice and tips for traveling with PD. Rebecca Miller, PhD is a clinical psychologist and Associate Professor of Psychiatry at Yale University School of Medicine and is a person living with PD. Occupational Therapist Julia Wood, MOT, OTR/L is Director of Professional and Community Education at the Lewy Body Dementia Association. An overriding message from both of them is "planning for the unpredictability of today's world."
People often view Parkinson's disease (PD) in terms of its motor symptoms, including slow movements, tremors, and stiffness. Often, these symptoms can be controlled with levodopa or other dopaminergic drugs. But just as troubling or more so to the person with PD are the non-motor symptoms of nausea, constipation, low blood pressure, mood disturbances, sleep problems, and more. In this episode, we focus on feeling nausea with Parkinson's disease in an interview with Andrew Feigin, MD, Professor of Neurology at New York University Langone Health and director of the Fresco Institute for Parkinson's and Movement Disorders in New York City, a Parkinson's Foundation Center of Excellence. He discusses the causes of nausea, both from PD itself and from medication, and what people can do to help lessen or prevent it.
As with many medical conditions, people with Parkinson's disease (PD) may experience disparities in access to care, in diagnosis, treatments, and ancillary care. These disparities may be based on age, gender, race, financial situation, language barriers, and geographic location, among other factors. Dr. Lynda Nwabuobi, now a movement disorders specialist at New York-Presbyterian/Weill Cornell Parkinson's Disease and Movement Disorders Institute in New York City, received her specialized training at Columbia University, supported by a Parkinson's Foundation Movement Disorders Fellowship.
During her training, she noticed that women with PD who were home-bound were more likely than men to be alone and to have less access to a neurologist. She also recognized disparities in the care between the majority white population of people with PD seen at the main hospital clinic of New York University (NYU) compared to the more racially diverse, multicultural community of people seen at NYU's public Bellevue Hospital nearby – even though they were being treated by the same doctor. In this episode, she describes how she acted on her passion of "creating access to better care to marginalized communities and bring more diversity to the clinic." Rather than waiting for the community to come to the health care setting, she reached out to them on their turf -- at a farmers' market.
Many people with Parkinson's disease (PD) continue to work, socialize, and enjoy life, making accommodations as necessary to fit the disease into their lifestyles. And while no one would choose to have PD, some people have even found or created benefits of having it. One of them is Barry Blaustein, an award-winning Hollywood writer, director, and producer, who wrote several of Eddie Murphy's movies and developed several of his Saturday Night Live characters, writing many of Murphy's skits with his writing partner. When we spoke, he had been living with PD for five years, working during that time in Hollywood and teaching screen writing at the university level. In this episode, he describes how he has dealt with his disease, continued to work, and maintained an upbeat attitude.
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