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    Arts

    Rare Rebels™

    The Rare Rebels™ Podcast shares unscripted conversations with patients, caregivers, advocates, and researchers who are changing the future of rare disease. These aren’t polished soundbites — they’re real voices from the front lines, revealing the humanity, heartbreak, and hope woven into the rare disease experience.

    Because change doesn’t happen through statistics alone — it happens through connection.

    Hosted by award-winning storyteller and advocate Melody Joy Paine, Rare Rebels™ brings lived experiences to the forefront, bridging gaps between families, researchers, nonprofits, and industry stakeholders. Through these deeply personal stories, we build understanding, inspire action, and drive meaningful change.

    Formerly known as the Images of Joy Podcast, Rare Rebels™ is a relaunch and expansion that retains archived episodes while introducing a new lens: one focused on amplifying the rebels in rare disease who refuse to wait for systems to change and are doing something about it.

    Advertise

    Copyright: © 2021 Imperfect Joy, LLC All Rights Reserved.

    • Apple Podcasts
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    Latest Episodes:
    Archived - Melissa Ortendahl - A family of 5 self-portrait Feb 14, 2021
    Show notes

    See Melissa's image of joy on the companion blog post: https://imagesofjoy.com/episode-3/

    .

    ------Guest Info------

    Melissa Ortendahl Photography

    Central, Massachusetts

    https://www.melissaortendahlphotography.com/

    https://www.instagram.com/melissaortendahlphotography/

    Hello Storyteller

    https://hellostoryteller.com/

    https://www.facebook.com/hellostorytelleracademy/


    Archived - Lolly Nazario - Teaching her daughter photography Feb 14, 2021
    Show notes

    Companion blog post: https://imagesofjoy.com/episode-2/

    .

    ------Guest speaker------

    Lolly's Lens Photography

    https://www.lollyslens.com/

    https://www.instagram.com/lollyslensphotography/


    Archived - Melody Joy - Why I am creating this podcast Feb 14, 2021
    Show notes

    Watch the companion film: https://imagesofjoy.com/episode-1/

    .

    ------Host Info------

    Melody Joy Paine

    Central, Massachusetts

    Imperfect Joy Films & Photos

    www.imperfectjoy.com

    https://www.instagram.com/imperfect_joy_/

    https://www.facebook.com/imperfectjoy


    Archived - Images of Joy Trailer Jan 31, 2021
    Show notes

    Watch the companion film: https://imagesofjoy.com/podcast/


    Previous 1 2 3

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