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    Kids & Family

    LOMAH Disability Podcast

    The LOMAH Podcast is an award winning show that runs topical series deep diving into an issue for 10-12 episodes with interviews from expert guests, including self advocates. Your host, Kim, has a teenage daughter with level 3 non speaking autism who will require 24/7 support the rest of her life. Like many parents, Kim has a lot of important questions. She does not claim to know the answers for her child nor yours but does promise to search for them and share what she is discovering along the way. You will notice a striking difference in the earlier shows compared to the most recent as she has grown and evolved as a result of listening to expert guests and self advocates.

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    Copyright: © lomah.org 2017

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    • Spotify

    Latest Episodes:
    #131 - Literacy Instruction for Students With Disabilities Mar 02, 2021
    Show notes

    The next 12 episodes will focus on what is being discovered regarding literacy instruction for ALL students with disabilities. This first part of this introductory episode explains how to get the most out of the upcoming episodes in this literacy series. The second half of the episode retells the history of Miranda's literacy instruction and why it has become a priority despite her age.

    We recommend purchasing a copy of the book Comprehensive Literacy for All by Karen Erickson and David Koppenhaver as a supplemental resource while listening to this literacy series. We will be referring to it often.

    Also recommended is the Talking with Tech Podcast.

    Additional resources will accompany each episode so do be sure to take a look at the show notes each week.


    #130 - The 18th Birthday To Do List Feb 02, 2021
    Show notes

    Turning 18 is big milestone for all teens. When the teenager requires significant support needs due to disabilities there are additional considerations and things that must be done ahead of time to ensure the person with disabilities is protected and with wanted support services. In this episode we get a to do list and a pep talk to accompany the streamers and balloons.

    About the Guest

    Trudy Marsh Grable is a long-time advocate in the field of disability issues, family support, and services. Trudy conducts person centered thinking programming at Parents Helping Parents, where she has enjoyed a 30-year career. Trudy is also the Executive Director of Journey of Choice, a parent-directed supported living agency, and is the founder of The BFF Project. Trudy is a Credentialed Person Centered Thinking (PCT) Trainer by The Learning Community for Person Centered Practices and utilizes the PCT tools in all aspects of her career and life.

    Links to Mentioned Resources
    • Parents Helping Parents

    • Parents Helping Parents Facebook Group

    • State by State SSI Payment Scale

    • SSA Blue Book list of impairments

    • HUD

    Related Episodes
    • Legal Rights After 18 - Episode 30 from Season 1

    • Special Needs Trusts - Episode 102 from Season 4

    • Choosing a Trustee - Episode 103 from Season 4

    • Memorandum of Intent - Episode 104 from Season 4

    • Life Insurance - Episode 110 from Season 4

    #129 - Our Empty Nest Plan Jan 26, 2021
    Show notes

    We have set a deadline for Miranda to be independent of us, her parents in 5 years, at the age of 22. While she will always require significant care and continual supervision, we have a multi step plan to phase those supports to others while at the same time honoring her life as a young adult. In this episode Tom joins the conversation to share what we will be doing 5 years out, 4 years out, 3 years out, etc to eventually arrive at this big milestone.

    Mentioned in this episode:
    • Guidelight Group

    • Gilfix & LaPoll

    Relevant episodes:
    • Financial Planning Series: Episodes 101-112 from season 4

    • Transition Planning Series: Episodes 86 - 98 from season 3

    • Is Technology the Caregiving Solution - Episode 53 from season 2

    • Easy Technology Solutions for Individuals with Disabilities - Episode 58 from season 2

    • Person Centered Planning - Episode 49 from season 2

    • Housing Series: Episodes 11 - 23 from season 1


    #128 - Our Educational Journey Jan 19, 2021
    Show notes

    We are deviating from our typical format of deep diving with expert guests into a topic for a 12 episode series. Rather, we are spending 3 episodes to share 3 things (we hope) that will be happening for Miranda this year. In this episode we discuss our hope that she will return to school.

    The last two years have been a mix of public school, homeschool, NPS heartbreak, and Covid. In this episode Kim shares the roller coaster they can't seem to exit. The ride has offered deep disappointments and surprising opportunities.

    We pick up the discussion where we left off last year. For the back story refer to episode 99 of The LOMAH Podcast "Advocating FAPE for our Teenage Daughter" as well as episode 111 of The Mama Bear Podcast with Mary Susan McConnell "What's the Plan." Both were published exactly one year ago in January, 2020


    #127 - Three Big Things Happening for Miranda in 2021 Jan 12, 2021
    Show notes

    2021 Is looking like it might be a big year. In this episode Kim shares three big things on the horizon for Miranda.

    Find Kim on Instagram as Journey2Lomah


    5 Episodes That Changed Us (#5) Nov 17, 2020
    Show notes

    Kim picked 5 episodes that have had the greatest influence on her approach to disability and future plans.

    Listen to this republished episode from season 2 where a new friendship was formed that has continued to present day. While not the topic of this episode, the conversation opened Kim's eyes to a gaping hole in her circle of friends.

    **Special Note**

    The next series will begin late January or early February of 2021. To ensure these episodes find their way to you, tap subscribe on your podcast app and follow @journey2lomah on instagram


    5 Episodes That Changed Us (#4) Nov 10, 2020
    Show notes

    This mini series revisits 5 previous published episodes.

    The 4th is a republished episode from Season 2 and is without question a unicorn in the line up of over 125 shows.

    The LOMAH Podcast has earned a reputation of providing dense information and episodes so packed with resources that many listen to episodes more than once, and often take notes. This republished episode from season 2 is different and yet is Kim's favorite interview that she has ever done. It was randomly tucked into the technology series (but completely unrelated) thus easy to miss.

    Enjoy this unicorn republish of Kim's favorite interview, ever!


    5 Episodes That Changed Us (#3) Nov 03, 2020
    Show notes

    This mini series revisits 5 previous published episodes that have had the greatest influence on Kim's approach to disability and future plans.

    The LOMAH Podcast has earned a reputation over 4 seasons, 4 years and 125 episodes of being a resource with high caliber guests providing dense information. Kim learns from the expert guests right alongside listeners.

    About this episode:

    If you, in any way, have an interest in creating lives of value, choice, and dignity for those with disabilities please listen to this republish of an episode from our advocacy series in season 2. It is one of the most important conversations we have had and focuses on considerations too many in disabilities circles are not even aware of nor taking into account.

    Please, listen. Be informed.


    5 Episodes That Changed Us (#2) Oct 27, 2020
    Show notes

    This mini series revisits 5 previous published episodes that were game changers for Kim, Miranda, and the family.

    The LOMAH Podcast has earned a reputation over 4 seasons, 4 years and 125 episodes of being a resource with high caliber guests providing dense information. Kim learns from the expert guests right alongside listeners.

    Kim picked 5 episodes that have had the greatest influence on her approach to disability and future plans.

    What Kim learned from the guest in this previously published episode from season 2 hands down made the biggest difference in Miranda's life and provided techniques for breakthroughs that were years in the making. She directs new listeners who message her to this episode all the time and uses daily what she, herself, learned.

    Unfortunately, it was published during the time episodes were kept under 40 minutes and it's a shame because there was tremendous value in information the guest shared that didn't make the episode. That information is, however, included on the LOMAH website show notes so do make sure to grab those resources. Click here.

    Find examples of Miranda & Kim using what they learned in this episode by following the IG stories @journey2lomah


    5 Episodes That Changed Us (#1) Oct 20, 2020
    Show notes

    This mini series revisits 5 previous published episodes that were game changers for Kim.

    The LOMAH Podcast has earned a reputation over 4 seasons and 125 episodes of being a resource with high caliber guests providing dense information. Kim learns from the expert guests right alongside listeners.

    Kim picked 5 episodes that have had the greatest influence on her approach to disability and future plans. If you follow Kim on instagram at journey2lomah you have seen several times in IG Stories how the topic discussed in this episode from season 2 is now part of Kim and Tom's current 5 year plan to have Miranda successfully living in her own space, at her own address, by the age of 22 despite her significant support needs which will require 24/7 supervision.


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