Stay ConnectedA geriatrics and palliative medicine podcast for every health care professional.
Two UCSF doctors, Eric Widera and Alex Smith, invite the brightest minds in geriatrics, hospice, and palliative care to talk about the topics that you care most about, ranging from recently published research in the field to controversies that keep us up at night. You’ll laugh, learn, and maybe sing along.
CME and MOC credit available (AMA PRA Category 1 credits) at www.geripal.org
Copyright: © 2020 GeriPal. All rights reserved.
When I'm on service these days there is inevitably a moment when a resident says "Patient so-and-so is on X" - and I have absolutely no idea what X is. Modern subspecialist practice advances at such a remarkably rapid pace, it can be hard to keep up.
In this context, we're excited to hear from infectious disease experts and nephrologists about updates in the care of older adults. Sonali Advani and Lona Mody talk about their recent JAGS article highlighting three recent articles that every clinician caring for older adults should be aware of in the treatment of infectious diseases (hint: I've never finished a course of antibiotics, and maybe your patients don't need that full course either). Devika Nair and Rasheeda Hall talk about their JAGS article highlighting updates from nephrology in the care of older adults, including a link to this new eGFR calculator that does NOT include race. We have a discussion about the decision to remove race, a social construct, from clinical risk calculators (though I'm not 100% sold that race should always be removed - if removal is likely to worsen disparities for example - at least until a superior race-blind calculator can be developed).
These articles are part of a new series called Clin-Star Corner, a new series in JAGS that reviews practice changing articles in the care of older adults.
And yeah, they made me sing a Miley Cyrus song…(but not this hilarious parody about UTIs).
Enjoy!
-@AlexSmithMD
Earlier this year palliative care was the correct response to the following clue on the game show Jeopardy:
From a Latin word for "to cloak", it's the type of care given to seriously ill patients to provide comfort without curing
What struck me most was not that palliative care was a question, nor that it made it seem that palliative care isn't provided alongside care directed at curing, nor was it that hospice was the first buzzed in response, but it was that palliative care was the $2000 question in the Double Jeopardy round! The fact that palliative care was the hardest of questions told me that we have a massive messaging problem in our field.
So what do we do about it? Well, on today's podcast we talk with Marian Grant and Tony Back, who with support form the John A Hartford Foundation and the Cambia Health Foundation, have done a deep dive into the research on layperson perceptions of palliative care, hospice, and advance care planning. The result is a new toolkit to help us fix our messaging & engage the public: seriousillnessmessaging.org
Questions we talk about include:
Related Links
Public Perceptions of Advance Care Planning, Palliative Care, and Hospice: A Scoping Review https://www.liebertpub.com/doi/full/10.1089/jpm.2020.0111
Public Messaging for Serious Illness Care in the Age of Coronavirus Disease: Cutting through Misconceptions, Mixed Feelings, and Distrust https://www.liebertpub.com/doi/full/10.1089/jpm.2020.0719
Effective Messaging Strategies: A Review of the Evidence. Communicating to Advance the Public's Health: Workshop Summary https://www.ncbi.nlm.nih.gov/books/NBK338333/
Have you had difficulty managing a particular type of cancer pain? For me it's radiation induced mucositis/esophagitis. Janet Abrahm is one of the world's experts in pain and symptom management for patients with cancer joins us to talk about (among other things):
Janet is the author of the 4th edition of the book Comprehensive Guide to Supportive and Palliative Care for Patients with Cancer, along with co-authors Molly Collins and BR Daubman. This book is terrific, truly comprehensive, and is a go to resource for when I'm "stuck" taking care of patients with cancer.
And yes, this would be a great one for CME. Eric and I are working on it…maybe by 2023?
Finally, can you believe this is our 236th podcast and, I believe, the first request for the Grateful Dead?!?
Enjoy!
-@AlexSmithMD
Have you ever had that moment when talking to a patient, when you realized that the phrase you just uttered, which you've uttered a hundred times before, came out rote and scripted? Maybe some phrase you learned from a prominent podcast or VitalTalk? And in response, the family or patient looked at you like you were from another planet? Yeah, I've been there too.
Josh Briscoe, our guests on today's podcast, argues that you've entered the Uncanny Valley. In robotics, the Uncanny Valley is that strange almost-human-but-not-quite territory in which humanoid appearing robots repulse us with their close yet still "off" appearance. Coming off as rote and scripted during a serious illness conversation can have a similar off-putting impact on patients and families. Today we talk with Josh about how to anticipate and avoid the uncanny valley. And talk about times when we've fallen into it.
Key message: Listen to the music. All the time. ;)
Links:
-Uncanny Valley post on Josh's fantastic substack Notes from a Family Meeting
-Anticipatory corpse book mentioned several times on the podcast
-GeriPal post about teaching using YouTube (some links are old and don't work, but you get the idea, I recently gave a spontaneous talk to the palliative care fellows and was able to find the video snippets)
-Ira Byock's 4 things that matter most
-@AlexSmithMD
Transcatheter aortic valve replacement (TAVR) has revolutionized the treatment of valvular heart disease for patients with severe aortic stenosis, a condition that affects one in ten adults older than the age of 80. The rates of TAVR have also risen dramatically in the last decade. In 2019, the number of TAVRs exceeded surgical aortic valve replacement (SAVR) in the US for the first time.
On today's podcast we talk with two amazing cardiologists and researchers - Gwen Bernacki and Ashok Krishnaswami - about TAVRs in the elderly, including what it is, who gets it, and what the outcomes and complications look like after the procedure.
We also discuss Gwen and Ashok's mixed-method study in the Journal of the American Geriatrics Society (JAGS) where they interviewed TAVR coordinators across California and Washington State about how code status is managed within their programs, and compared programs according to their policies to assess differences in outcomes. What they found was fascinating:
Gwen and Ashok want to make it clear how thoughtful interventionists are about this topic for their patients — as this is very very challenging on a daily basis for them. They also advocate for having more great minds at the table to help move the field forward (including geriatric and palliative care specialists!)
Here are more resources if you want to take a deeper dive into the subject:
Holly Prigerson recalls the moments in which she started investigating prolonged grief disorder. She recalls being "a social scientist [Holly] in room a full of psychiatrists," who recognized a diagnostic gap in people experiencing profound and potentially harmful grief far after the death of a loved one. This led her on a remarkable journey. Holly has accumulated mountains of evidence for the diagnosis of prolonged grief disorder as a specific condition primarily notable for a yearning over a year after the death. Prolonged grief is associated with increased risk of suicide and other negative health outcomes. This accumulation of data over her career led ultimately to the inclusion of Prolonged Grief Disorder first in the ICD, then in the DSM-V.
And yet, despite mountains of evidence, Holly has taken a tremendous amount of heat for this work. "Everyone has experienced grief, which makes everyone the expert." Today we offer Holly a chance to answer her critics, including assertions that:
Along the way we talk about other related studies Holly has conducted, including a validation of DABDA - Elizabeth Kubler Ross's famous stages of grief.
And a song choice from the great lyricist Tom Waits.
Enjoy!
-@AlexSmithMD
In day-to-day practice, It's hard to imagine providing excellent hospice or palliative care services without access to a team social worker. Social workers augment a team's ability to provide whole-person care, often aiding to identify and meaningfully address the wide variety of challenges and unmet needs faced by individuals and families facing serious illness. But are we really taking full advantage of ALL social workers have to offer our field?
On today's podcast, we are talking with Barbara Jones – a national hospice and palliative care social work leader whose many accolades include being a founding member of the Social Work in Hospice and Palliative Care Network (SWHPN), a Professor of Direct Social Work Practice and Associate Dean for Health Affairs at the Steve Hicks School of Social Work at UT Austin.
Barbara highlights social workers' inherent leadership qualities and tasks us to consider whether our own team and organizational structures are allowing for optimal social work engagement and influence. Whether in direct practice or in research and academia, we should work together to help Hospice and Palliative Care Social Work meet its full potential.
by: Anne Kelly, LCSW, APHSW-C
Two major shifts are transforming the landscape of hospice.
First, private equity firms are gobbling up hospices. As Melissa Aldridge, a health services researcher and former banker explains, we should be very concerned. Private equity firms try to turn companies as profitable as possible within 3-5 years. Thus, they have little in the way of long term vision for hospices, instead focused on cutting costs and maximizing profits.
Second, Hospice was originally designed for patients with advanced cancer, but the fastest growing admitting diagnosis is dementia. People with dementia make up about half of hospice admissions. And yet, we know little about the clinical experience of people with dementia in hospice. Krista Harrison found, to her surprise, that caregivers of people with dementia who died rated hospice as well as similar patients without dementia who died on hospice. And yet, disenrollment from hospice, either due to patient/family revoking the benefit or stabilization of illness (extended prognosis) is remarkably high for people with dementia among some hospices. In fact, as Lauren Hunt found, the average likelihood that a person will be disenrolled from one hospice vs. another is two. In other words, which hospice you enroll in has a tremendous influence on whether you're going to be disenrolled from hospice, which often feels to patients and families like being expelled.
And I had a blast playing Take the Money and Run!
-@AlexSmithMD
Today we have the honor of interviewing Susan Block, MD, one of the pioneering leaders in the fields of palliative care, particularly psychosocial aspects of palliative care. Susan led the Project on Death in America's Faculty Scholars program, used her dual training in internal medicine and psychiatry to shine a light on psychosocial aspects of palliative care, and founded the Department of Psychosocial Care at the Dana Farber Cancer Institute and Brigham and Women's Hospital.
We talk with Susan about how far the field has come, from early days when the attending physician would decide which patients were DNR and place a black "no code" dot in the chart. We talk about challenges facing the field today. In particular, she reminds us that when we think about the most challenging of our patient encounters, they almost always involve a complex psychosocial dynamic, and this has received far less attention than communication and symptom management issues.
We delighted to be joined by Brian Block, pulmonary/critical care faculty at UCSF and frequent guest host on GeriPal…and also nephew to Susan.
-@AlexSmithMD
Links:
-PDIA Faculty Scholars Program
A year ago we did our first "Deprescribing Super Special". Today we are coming back for more (or less given the content), talking about the following articles with their lead authors:
First up, we talk with Ariel Green about her article in JAMA Network on preferred phrases a clinician may use to explain why they should reduce or stop the medication. My take home from this is that while the most preferred explanation for deprescribing statins and sedative-hypnotics is one focused on the risk of side effects, we also need to individualize it to the patient and the medication that they are taking.
Next up, we chat with Liz Bayliss about her JAMA IM article that studied whether increasing awareness about deprescribing prior to primary care visits can reduce the use of potentially inappropriate long-term medications for individuals with cognitive impairment. While the study was largely negative, it does bring up important implications about how we should think about deprescribing in older adults (added bonus too - all of the resources used in the study can be found on the US Deprescribing Research Network website).
Lastly, we talk with Kevin McConeghy about one deprescribing intervention that was hugely successful, although somewhat atypical. Kevin's study looks at a period of time in the COVID pandemic when a large multistate nursing home provider created a "nonessential medication on hold" (NEMOH) policy in order to conserve critical nursing resources and PPE, and to limit exposure risk for residents by reducing unnecessary contact. Although the policy was not originally envisioned as a deprescribing intervention, 54% of held medications were discontinued. That's huge! While it's unlikely this will be repeated, we talk about lessons we can learn from this natural experiment.
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