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    Government

    AfPA’s Patient Access Podcast

    Can patients get what the doctor orders? In AfPA’s Patient Access Podcast, you’ll hear physicians, researchers, patients and advocates hash out the issues that impact access to approved medicines and appropriate health care.

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    Copyright: © Copyright Alliance for Patient Access

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    Latest Episodes:
    Insurance Denials Leave Infants Unprotected Jun 04, 2020

    In this episode, Suzanne Staebler, DNP unpacks new data showing that vulnerable infants are denied access to preventive treatment for RSV.


    The Real Story on Gout May 15, 2020

    Renowned expert Larry Edwards, MD, explains why history has given gout a bad rap -- and why patients need reliable resources to get the real story.


    Tardive Dyskinesia Patients’ New Resource Apr 29, 2020

    In this episode, Kathleen Shea explains how her experience with tardive dyskinesia motivated her to create an organization to support other patients with TD.


    How Insurers Hold Headache Patients Back Apr 17, 2020

    Modern medicine has changed the way people living with headache and migraine disease can manage their condition. But Carol Barch, MN FNP-BC, explains how insurers’ policies are holding patients back.


    Moms, Don't Underestimate the Benefits of Seafood Mar 26, 2020

    Tom Brenna, PhD, has a recommendation for expectant and breastfeeding moms: Don't leave the benefits of seafood on the table.


    America's Heart Disease Crisis Mar 12, 2020

    In this episode, Dharmesh Patel, MD, explains how patient-centered care and prevention can help reverse the rising incidence of heart disease.


    How ICER Misses What Matters Feb 20, 2020

    Gunnar Esiason, a cystic fibrosis advocate, explains why the Institute for Clinical and Economic Review’s model for determining drugs' value doesn't sit well with patients.


    When Two is Better than One Dec 20, 2019

    Calli Cook, DNP, explains how combining preventive medications can vastly improve migraine patients' quality of life -- but only if insurers provide adequate coverage.


    The Cancer Care Struggle Nov 21, 2019

    Jeffrey VanDeusen, MD, PhD, explains how certain policies make it difficult to deliver patient-centered cancer care.


    Coming Soon: Out-of-Pocket Relief Oct 30, 2019

    Certain patients with chronic diseases such as diabetes who have high deductible health plans may see some out-of-pocket relief soon. In this episode, John Anderson, MD, talks about the patient experience now and potential implications of a new policy.


    What Nurses are Fighting For Oct 04, 2019

    In this conversation, Kim Newlin, president of the Preventive Cardiovascular Nurses Association, describes how the nursing profession has changed and the big impact utilization management has on CV patients and their caretakers.


    What is Grateful Patient Day? Aug 28, 2019

    In this episode, former San Diego Chargers placekicker and NFL Man of the Year Rolf Benirschke explains why patients should share their story of gratitude on September 7.


    Who Cares about Patient Advocacy? Aug 19, 2019

    Alliance for Patient Access Chairman David Charles, MD, explains why health care providers must be equipped and ready to advocate for their patients.


    Hard to Swallow May 22, 2019

    Parents whose newborns are ready for hospital discharge sometimes receive discouraging news: Feeding complications require a longer stay. In this episode, advocate Kelli Kelley and neonatal therapist Sue Ludwig discuss why feeding challenges occur—and how they affect babies and their families.


    The Benefits—and Hidden Costs—of Clinical Trials May 08, 2019

    While participating in a clinical trial is free, some patients can't join or complete a trial because of associated costs. David Charles, MD, of the Coalition of Clinical Trials Awareness discusses costs to patients and the big-picture implications to society.


    Sick, Sad & Switched Apr 26, 2019

    In this episode, AfPA's Amanda Conschafter and Brian Kennedy share stories and findings from the group's first-of-its-kind national study on non-medical switching and quality of life.


    Who’s Driving Insulin Prices? Apr 11, 2019

    When it comes to rising insulin prices, pharmacy benefit managers are “driving the bus,” explains George Huntley. In this episode, George describes the dynamics that continue to push insulin out of patients’ reach.


    This is Not Parkinson’s Mar 13, 2019

    Similar symptoms, different diseases. Patrick McCartney of the International Essential Tremor Foundation explains how raising the profile of essential tremor can help patients get an accurate diagnosis, gain confidence and find community.


    Gout: Beyond the Myths Feb 13, 2019

    Patients who experience gout attacks – who suffer in agonizing pain – often resist going to the doctor. But they shouldn’t. In this conversation, Christopher Parker, DO, of the Alliance for Gout Awareness dispels myths and reassures patients they can take control of their disease.


    The Really Serious Virus Jan 28, 2019

    It's Respiratory Syncytial Virus season. Do you know the signs? Shanisty Ireland didn't when her six-week-old son Adam contracted the disease. In this episode, Shanisty recalls her family's RSV experience, while Mitchell Goldstein, MD, of the National Coalition for Infant Health shares key risk factors and signs parents should look for.


    The Migraine Thief Jan 14, 2019

    For years, migraine disease stole time, personal goals, career plans and even Jaime Sanders’ ideal of motherhood. But her condition no longer manages her, she manages it—and she advocates so migraine disease patients can access the innovative medications they need.


    New Year, Same Battle Dec 13, 2018

    Despite taking the same medication for 23 years, Emily Schaller shares the prior authorization battle she and other cystic fibrosis patients fight each January. The Detroit native also explains how the lifestyle she’s adopted has improved her health, and how her insurer's cost-cutting tactics needlessly delay medications, derailing her efforts.


    Life with a Severe and Rare Skin Condition Nov 06, 2018

    Eileen Attar’s son Brady lives with epidermolysis bullosa, battling constant sores all over his body. When Eileen’s not caring for Brady and treating his wounds, she’s busy fighting her health insurance company to cover the bandages necessary to keep him alive.


    Why Isn’t Insulin Affordable? Oct 17, 2018

    In this episode, Frank Lavernia, MD, explains how insulin pricing has evolved, why it’s becoming unaffordable and what that means for diabetes patients. He also describes a new trend in pharmacies’ distribution of insulin pens.


    Every Day is a Battle against Cystic Fibrosis Oct 04, 2018

    Challenges for cystic fibrosis patients don’t stop with managing their disease. Cystic Fibrosis Research Incorporated’s executive director Siri Vaeth describes providing input to the Institute for Clinical and Economic Review about the value of new cystic fibrosis treatments.


    Why this Dermatologist is Fed Up Aug 06, 2018

    Health plans are questioning doctors' prescriptions, delaying access to medicine and distracting staff from patient care. Adam Friedman, MD, of the Derma Care Access Network explains why enough is enough.


    The Truth about Gout Aug 06, 2018

    Gout is more painful, prevalent and expensive than you thought. Researcher Kenneth Thorpe, PhD, of the Partnership to Fight Chronic Disease uses Gout Awareness Day to set the record straight.


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